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Hep C Discussion Forum -> Post Treatment -> Post Epclusa problems
Post Info TOPIC: Post Epclusa problems
Harry


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RE: Post Epclusa problems
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Harry here ,woody your not alone im in Australia finished the epclusa 2weeks ago,and yes im getting the aches pains plus exhaustion big time ,now its just a waiting game (story of my life ) there are some really good people here i have learnt so much ,more then the so called liver experts.i am 65 yrs old and i can honestley say i have lost 95%of friends i have had over the yrs ,what with fast cars bikes drugs ,wars ,cancers ,an now they have finally found a cure for this terrible virus please try an think positive ( i am ) it does seem to be the real thing this time ,hang in there.

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Harry


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Harry here thanks for all the good advice im taking fusemide 20mg daily try loose the puffy look.so glad my dr checked my kidney function an noticed my alt ast,s were all good.im just worried my VL mite let me down being so hi 21,000000 seemed to really increase after flu vacc the heavy duty one for over 65 yr olds,still getting aches pains nausea sometimes,plus so exhausted i was heaps better pre tx,my grankids are staying over xmas so iv got to try an act normal lol. I know i stress too much the whole thing just makes me feel like a cigarette....just gotta wait it out...thanks.

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Canuck


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hey woody,

glad to hear from you again. Sorry about how you feel.

I agree with others here, that it is "too early" to judge how you are going to end up feeling over the next weeks and months - you may just be going through a transitional/temporary period. Your body does need to recover and adjust from the 12 week course of potent drug treatment, and to it's new-found operation without the interference of a viral infection ruling everything.

Still, that is very good you are presenting yourself to the doctors and keeping them apprised on all these things you are feeling and experiencing. Getting yourself checked out and followed is always a good idea, but, you may find some of what you are experiencing IS going to resolve (all on it's own) just like 5 and some of the others have alluded to.

You may be surprised how you feel months from now!

Be patient, remain optimistic, and positive - you have just beaten a terrible health foe.

It's never too early or late to do up a signature line - we would love to know your GT, any of your old labs and new ones - I think on one of the other threads you started, we had done up a "draft" sig. line for you - maybe you could just use that one and correct it/add to it? C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Hoodietree


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I think a lot of MY joint problems are because for 12 weeks I wasnt exercising due to severe  fatigue from Epclusa. So now that I only need 10 hours of sleep a night instead of 12 I can start doing hot yoga and possibly jogging again! Of course I will start slow, but exercise and proper nutrition cannot be understated in terms of their health benefits. also stress management! I started a brain rewiring program where I do a gratitude journal every morning and I meditate for 10 minutes with my Insight Timer app. Im trying to be very consistent with this every single morning. Managing stress is one of the key components to living a long and healthy life and I encourage all my friends to do some sort of stress management. Maybe you could give that a try Harry?

very best wishes to you friend



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
5-1-18


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i promise you will be a new person in about 6 months.

my hubs had it really bad, he couldnt even eat even with smoking pot

now he is a year from starting tx and doing pretty good. he still has some arthritis problems, but he is 69. 

i have some arthritiis probs too blankstare

i remember feeling like "what have i done?", but i am cured and happy and getting weller all the time.

how is your b12? we oldsters need more b12

take care and you will be well

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0
woodytwoshoes


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ya, im wating for my doc to talk with the internist and they are going to figure out what tests they should do.Im still working but my energy level is real low and it pisses me off because i felt fine prior to treatment and took the treatment because they said i would have more energy not less. Oh well im 68 soon and have had a good life so far, if its all downhill ill just retire and play my sax. that don't hurt. haha. Ill keep you all informed when i get the results of my test.

Thanks all

Woody



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5-1-18


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woody, my after harvoni time was weird ... gum problems, vision prbs, migraine for first time, no energy, just felt like crap , body hurt.... now nearly 5 months post tx i'm starting to feel like myself again and those prbs are going away.

it's just that the tx is a rough one on our bods, but is effective, do-able and we do recover from it with time. hang in there. 5

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0
Cheddy


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Woody, I'm going with the sage advice below.

I'm really eager to find what your doctors come up with.  HCV is so huge it seems to be the cause of everything, but, our complicated bodies say otherwise. Continue to pursue it with your doctors and please let us know what you learn.  We need the info, too.

As you have heard around here, treatment is only one phase of recovery.  Then we have to recover from that.  Then our bodies have to reorganize and build anew, no easy task, right?

This sounds really tough.  I'm sorry to hear you are suffering., and I hope you get it under control asap.  

Hang in there.  Ride it out (again). Let us know.

Cheddy



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 
Tig


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Hi Woody,

Sorry to hear about the problems you're experiencing right now. None of it sounds good. I'm with Lamassu, don't regret treatment and ridding yourself of this virus. There have been others mention the joint discomfort following some of these newest DAA's. I went through the old treatments with Interferon and Draino, we also suffered greatly during and after treatment from all sorts of maladies. But you know what? They started to diminish and most have resolved to the point they're a non issue. I don't know why these things happen, but they do. The allergy thing you're experiencing is a new one to me. I haven't heard of that before. It may come down to your immune system function being overwhelmed by your freshly restored liver function and it's working overtime to catch up for lost time. I don't know, but I'm glad you're discussing it with your doctor and trying to find a reason and some relief.

The thing with wishing you had never gone through treatment is, eventually your liver suffers irreparable damage, up to and including compromised function, cirrhosis and cancer. Not to mention all of the health problems that accompany a failing liver and digestive system. Many people didn't or don't have any symptoms from this disease, at least they didn't think they were. Those that ignored the virus, sometimes found out too late to correct the damage done. We simply don't know all the what if's and maybe's. I do know, HCV left untreated, does continue to degrade and destroy your liver function.

You didn't fill out your signature line or bio, so I don't have any reference to know where your liver function and condition was pre treatment. Maybe you could do that now and it'll give us a better insight into your history. I'm betting money that your tests now, are better than they were then. Hopefully you'll begin to see these problems diminish and you'll be able to get on with more comfort and better health. I'm in the camp that believes you will begin to feel better, just know it takes more time than many realize. Try hard to be positive and never regret achieving SVR.



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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lamassu


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post Esclusa problems
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Hi Woody,

Sorry to hear you are not feeling well:( I experienced severe fatigue while taking Epclusa which cleared on week 10. I am living with osteoarthritis but it has not gotten worse after finishing treatment. I have more energy than I have in years and feel normal. I just had the end of treatment plus 24 weeks viral load and I am still undetected.

I don't think you should regret the treatment ridding your body of the HCV virus should have nothing but positive effects. I think it is up to your doctors to find out what is going on which means more tests. Did you have an end of treatment viral load or is your doctor waiting until 12 weeks after treatment for a comprehensive metabolic panel and HCV viral load? Best wishes that you feel better soon.

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Male, 67, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24. 8/15/19 F2 8.8 kPa.
woodytwoshoes


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Post Epclusa problems
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Hi all, i have been off Epclusa for 6 weeks and am experiencing some not so nice problems. I have developed bursitis in both shoulders, my arthritis is worse, achy muscles, tiredness and lack of energy and now have alergies i never had before. I have never been bothered with allergies before taking treatment. I got in a bath yesterday and felt chest pains and or lung pains and this hasn't happened before. 

I saw my doctor today and he and the internist are going to come up with a test plan to try to find out what's going on. 

Wondering if any Epclusers have had similar problems. Im kinda pissed off because before treatment i had no problems whatsoever and was told i should do the treatment anyway. now I'm kinda regretting it.

Woody



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