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Hep C Discussion Forum -> Post Treatment -> Resuming supplements after EOT
Post Info TOPIC: Resuming supplements after EOT
Hoodietree


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RE: Resuming supplements after EOT
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Tig wrote:
Ocassional use is fine for the majority of people, on or off treatment

 Thank you Tig!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Tig


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Hi Hoodie,

NSAID’s should pose no problems at all. They absolutely reduce inflammation, where Tylenol doesn’t. The best course in my opinion is to only use them when necessary, not as a routine medication. If that becomes a requirement, you need to see your GP and find out why. Steady use of either of them can impact liver and renal health. Ocassional use is fine for the majority of people, on or off treatment. If you have any concerns, it’s always wise to seek the input of a pharmacist and/or doctor. 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Hoodietree


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New question: what about NSAIDS? Advil, Aleve/naproxe, etc? I was told tylenol was ok on treatment but Im not sure if that helps with inflammation... 

Observer yes soy is filled with toxins so I avoid it. Thanks for the tip on the bio identical hormone cream. I think Ill look into that as soon as possible. Maybe Kaiser will cover it?? Or maybe Ill need to find a functional medicine practitioner. 

Will keep you posted friends



-- Edited by Hoodietree on Wednesday 19th of December 2018 11:33:53 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Hoodietree


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Thank you for all the kind words and helpful suggestions everyone. Your support means the world to me



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
5-1-18


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awesome work hoodie. i too do the work to feel better feeling thots in order to move toward that positive momentum . rather than those old negative thots that have lingered from life.

i too try to stay focused on being thankful for as much as possible without putting on the happy face sticker...admitting to myself if i feel like crap and try to move up from there, or from where ever my emotion is at the time

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0
Cheddy


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Gosh, Hoodie.  

That's a lot of stuff to be working on.  I do know what you mean, though.  Mental hygiene is a good thing.  We do know now that neurology is plastic and some change is possible.  Most people don't want to fight with it or do the work, though.

There is the other side.  Learning to accept yourself is a beautiful thing.  I hope you are focusing on the good things you bring to the world.

We are.

confuseCheddy



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 
Observer


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Soy milk is evil

the method for extracting the soy sludge that they mix with water to make into milk is extremely carcinogenic...hazbane or hexbane or something...

 the safest way to eat soy products is if they have been fermented...miso or real soya sauce.

drinking soy milk is what made me very very very allergic to soy in any form.

i miss miso and might try fermenting some black beans to make some I can eat.

 

 Hoodie, I use bio identical compounded creams 

 

 



-- Edited by Observer on Monday 17th of December 2018 05:16:08 AM

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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
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4 years.... successful dragon slayer 
5-1-18


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hoodie, i drank soymilk during my menopause times and it wasn't too bad. i don't drink it anymore cos my skin doesn't like it :( 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0
Hoodietree


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Iris, if I recall correctly, I was told to stop taking glucosamine/chondroitin during treatment, therefore I think the extrapolation is anything we didnt take during treatment we should continue not taking until we are tested at the SVR 12 blood draw. 

Thanks for the reminder about that supplement I want to start that up again too a soon as possible. 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Hoodietree


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Thanks for the update 5! I wonder if you NEED fewer supplements now because your liver is processing them more efficiently? 

As I approach menopause Im very interested in how my liver processes hormones and the wild fluctuations I am experiencing, which contribute to brain fog and anxiety Both of which are symptoms of hepatitis C and side effects of Epclusa. So basically a trifecta of symptoms and side effects which are causing me a great deal of stress. Anyways Dr. Google helped me find this:

https://www.ncbi.nlm.nih.gov/m/pubmed/19002016/

Another roller coaster ride for which I am grateful for the experience I have had riding roller coasters lately. Seriously, Im grateful for the experiences and hope that I can continue to stay in gratitude around all of this stuff. Im trying to rewire my brain to reduce my negativity bias, which is evolutionary, and change it to a positivity bias which difficult but not impossible. Im trying to do a gratitude journal every morning along with 5 to 10 minutes of meditation per day. I have about a 4 out of 7 days a week of success, which is not bad! Shooting for 7 out of 7, in order to really get the benefits of the brain rewiring, Changing from a negativity bias to a positivity bias

 



-- Edited by Hoodietree on Sunday 16th of December 2018 01:29:38 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Iris Dragonfly


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Hummm, no one said a thing to me about that, I took my usual dose of B's, C, D, coQ-10, mag cal zinc, and glucosamine chondroitin, the other day, so I should lay off? My 12 week after EOT is right after Christmas.

Bb, Iris



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60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
5-1-18


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i waited till a month after my svr13. , yes i had to nag them to not wait a full 3 months.

now i take fewer sups. than i did before.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0
Hoodietree


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Okay, thanks Tig



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Tig


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Hi Hoodie,

The rule is to wait until after your EOT +12 viral load and LFT’s are drawn. After that, the schedule is all yours. Too often, a supplement will alter some testing results. You want nothing but a clean sample and the proof it will provide. Only the facts, Ma’am..... wink 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Hoodietree


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My EOT date was October 18, my 12 week SVR blood draw will be January 2. I would really love to resume taking supplements, especially ALA-ALCAR (acetyl l-carnitine plus alpha lipoic acid acid) for chronic fatigue, and S-adenosyl-L-methionine (SAMe) for joint pain and depression.

What did your doctors tell you about when to resume taking supplements after treatment? I will put a call into my doctor as well, but I understand from reading here that people generally wait till after their 12 week SVR blood draw to resume supplements. I honestly dont remember specifically what my doc told me. 

Thanks in advance!

Your friend hoodie



-- Edited by Hoodietree on Saturday 15th of December 2018 07:04:11 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
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