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Post Info TOPIC: My Mavyret Journey


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RE: My Mavyret Journey
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Still hanging in there...feeling great.  Looking forward  to 3 month post treatment labs in Dec.  Going to try to quit smoking...



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47

Tig


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I’m glad to hear about your continued improvements and all of the good times you’re able to enjoy! Keep treating yourself right and great things will continue to happen.



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Attended a two day family reunion/wedding over the weekend ...stuck to my water regimen and only had two glasses of wine!  Had a great time not worrying about HepC...so glad I did the treatment!!!



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47



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Congrats MissusB! I did not have the option of Mavyret when I was treated as my Medicare HMO only covered Epclusa at the time. Now they cover Mavyret also since it costs less.



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Male, 66, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24. 8/15/19 F2 8.8 kPa.



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Congratulations MissusB!!! Woohoo!! I found that after treatment, I've continued to drink more water each day and I feel much better than I did before treatment..Life is good!

ps

Sorry for the delay in my congrats...I had in-laws and family in and out for last 2 weeks. You flew through treatment with wings! Way to Go!



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New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 

Tig


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Thank you so much for the generous contributions to the forum, MrsB and 5! Every dollar goes toward keeping us going smile  

I appreciate your support so much!

 



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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LAST dose of the magic pills....YAY

 

woohoo :

i'm so happy for you! and thankyou for the donation i did that too



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Really great!  And you did it without complaint. Very well done.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Just sent $25 donation to the forum to thank you, my friends, for your support & encouragement through my treatment journe!



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47

Tig


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Hoorah!! Congratulations MrsB, YOU DID IT!

You have reached

A07D2E67-8141-4950-ACDE-45E01FACE831.png



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Just swallowed my LAST dose of the magic pills....YAY!  So thankful those 8 weeks passed quickly and that I did not experience side effect!  Docs office called today.... 3 month follow up visit & labs on 12/23.  Hoping for a continued UND!  



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47



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So awesome!!! Im late with congratulations but genuinely happy for you MissusB! Welcome to UND!!



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52 y/o male, Genotype 1B, F3, Dx - 1992, likely contracted virus 1977, Current Tx - 8 weeks Mavyret 07/23/2019. Tx - 1st time, Rebetron 6/2000-6/2001, 2nd time, Pegasys 11/2002-4/2003. VL - 636,000 AST - 49, ALT - 77

UND - 08/22/19!!!

 

 

 



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-- Edited by Observer on Friday 27th of September 2019 04:10:12 AM

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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



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Where is the heart emoji when I need it.  Good feeling for good people and good health.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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Thank you for your kind words, Mrs B! It’s nice to hear and I whole heartedly agree, there is no place like this place! Like you, I received friendship and support from so many. All those years ago, I made the decision to be part of helping others here. This forum changed my outlook on so many things, all good.



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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i feel the same way MB, i'm gonna be here with time and donations when i can. this group made my tx easier



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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As reluctant as I was before starting treatment , due to fear, I have become and always will be an advocate for treatment!  And I owe that all to this group...you guys calmed my fears, encouraged me, supported me.  All of you made this journey much easier!  Ive never met you but consider every one of you a tight circle of best friends!  I will always stay an active member of this group, supporting it financially, and encouraging other members on their journeys!  I will share my story far & wide...I have already told my doc if he encounters patients that are scared of treatment to have them call me and I will immediately introduce them to this group.  i still have a week of treatment and a wait for that 3 month lab, but Im feeling really positive about things now.  Thank you, my friends 



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47



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Strange that this is incredible and predictable in the same moment.  Yo anyone who fears getting HCV treatment, you are showing they way.  Very, very, good news.  What a time we live in.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hey MrsB,

Congratulations! biggrin The way it should be. No virus. Virus begone! Mav working magic. After all that time having the virus. Aren't we lucky nowadays to be able to get rid of it with just a short course of tolerable meds. So happy you are uND now. Good going - good news, fer sure.  : )  C. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Congratulations MissusB!! Way to go and welcome to the UND Club!!

Yippers! WooHoo!!! Yippe Aye Oh!

ps

 

Don't forget to keep drinking plenty of water this next week! 



__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 



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So did they test you before you were finished with the TX because they might of added some more weeks?

In any case CONGRATULATIONS!!!!!!! What a relief you must be feeling. The three month is promising, look forward to all your end results biggrin

Many blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Tig


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You've been the poster member for all prescribed Mavyret. Your journey has helped to prove to all comers after you, that this stuff works. You have also shown us what an easy protocol this is to complete. Essentially side effect free and didn't require you to suffer through treatment. We need to continue to get the word out, these aren't the treatments of old and people need to be aware of their simplicity. No more sickness, just following an easy schedule and drinking lots of water. I believe that's something anyone can do. It's a wonderful thing!



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Thanks to all!  Now to get that 3 month UND!!!



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47



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hurray missusB thats what we all like to see

:party :



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



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Image result for party time gifs

woohoo  

we knew you had UND in you



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


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Congratulations, Mrs B!! I never doubted your success, but when you hear it, it makes your heart skip a beat. It was one of those moments you’ll never forget. Once undetected, always undetected! Take it to the bank. 

Only thing left is the final blood work in 3 months and you’ll be able to look at this in the rear view mirror, finally. Well done, MB, well done!

0A351074-C5D8-4EBA-B89D-41332156E5CE.jpeg



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Just got the call....RNA is UND!!  Whoo hoo!  Followup in 3 months.  Just 7 more days of the magic beans!  Amazed & excited dont even begin to describe this journey!  Im happy, happy, happy!



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47



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woohoo! MB, i'm so happy for you



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


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WOOHOO!! I know the feeling, it’s spectacular! Get those shoes polished, you’re going to be dancing the night away! smile



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Just swallowed last dose of week 7; hopefully just one more week to go!!!!



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47



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Ouchy whaaa whaaa ....poor you 

i have annoying veins that roll away from needles in one arm..I do not even give the techies the choice to try the wrong arm... You have to be fierce with some know it alls... I had to have blood drawn every week during treatment because I was on Riba (which can cause hemoglobin to drop quite dramatically)

looking forward to hearing your results...can you access them online or do you have to see Dr?



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



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yep, it could be a good idea to let the higher management know about her cos ya never know if she has a problem they need to address.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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They finally got blood....hope it enough.  I emailed my Doc immediately when I left the lab...it was one of the hospitals outpatient lab sites.  I know that I will never go to that one again!



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47

Tig


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I'd be talking to someone's supervisor or office manager. That's as unacceptable as it gets. What became of the blood draw, completed or does it have to be redrawn? If you have to go through it again, I'd raise hell... Good luck Mrs B.



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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What? Ouch...you're fired!!!! How very unprofessional 

waiting now for the big reveal

best, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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MissusB wrote:

Oh...I definitely will go to a different lab


 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Oh...I definitely will go to a different lab



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47



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omg MB cry

i hope you can go to another lab next time and that you are rewarded with news of good labs



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Had the absolute worst lab tech today...Told her to draw from left arm (I know my veins), but she insisted on right arm.  She was whining to other staff that she hadnt had a morning break, her grandson kept her up all night with music blaring, and she was tired.  I kinda knew it was going to go downhill from her whining when she said lady, whats your name and birthday?.  Dug around with needle in my arm with a tight tourniquet on for about 5-6 minutes all the while mumbling that she didnt have time for this today. She said well, this is weird... have you drank any water today. To which I responded you just have no idea how much water Ive already drank today, but why are you asking?  No response so I guess she knew I was figuring out that she wasnt the ripest apple on the tree.  Still digging...no blood coming, changed tubes 3 times with no blood.  Finally on 4th tube, blood flowed.....she explained that the other 3 tubes had lost their suction capability and it happened frequently!!!  To myself Im saying WHAT???  This is a major metropolitan, nationally recognized research & teaching hospital and they have not 1, but 3 tubes in one lab draw station that is defective....I dont think  so!!!  I think they have a lab tech that either hates her job and just dont care or shes totally incompetent.  



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47



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Good for you Ms. (on all counts), you impress me!  : )  C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Yep...promised my doc no alcohol during treatment....will always now limit myself to glass or two of wine. 



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47



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Glad you had a great time Missus B! I like the occasional cold beer too but have strictly avoided alcohol during my treatment. When I received my HepC diagnosis years ago I limited alcohol to small amounts but very rarely. My doc is probably never going to say, hey, a little alcohol is ok. I do intend to have a glass of champagne at my youngest daughters college graduation this December! Keep up the water girl, youre close to the end and you WILL be VL und! YOU GOT THIS!



__________________

52 y/o male, Genotype 1B, F3, Dx - 1992, likely contracted virus 1977, Current Tx - 8 weeks Mavyret 07/23/2019. Tx - 1st time, Rebetron 6/2000-6/2001, 2nd time, Pegasys 11/2002-4/2003. VL - 636,000 AST - 49, ALT - 77

UND - 08/22/19!!!

 

 

 



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No kidding. Isn't it amazing how much fun you can have anyway.  It's an internal cultural shift.  Being healthy actually trumps being buzzed.  Who knew?!



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Beach Vacation with no beer, no wine, no oysters on half shell, no tanning...just lots of water, shrimp, sunblock, and beach umbrellas!  Had a great time!



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47



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MB, i think it's so cool you were able to have a beach vacation during tx, and only 2 weeks to go



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Home from beach... had a great time.  Hotter in Tn than it was in PCB!!!  Doc called.... lab draw this Friday.  Today ends week 6.... only two more to go!



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47

Tig


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It’s hard to beat a fresh Appalachicola oyster on the half shell! I will still make the occasional exception, especially since I live here. There is a warning for people with liver disease to avoid raw oysters, or other mollusks. Best to give them a pass, especially during treatment.

Oyster Illnesses



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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i couldn't bring myself to eat any raw shellfish or fish



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Probably wont eat again...too scared of Hep A



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66 yr old female; polio survivor; hbv that wasnt treated but cleared; chronic hcv gt1a; diagnosed 2018 but likely infected during surgery as child; Metavir score F2-F3; mild to mod fibrosis; RNA 3,951,412; AST 40; ALT 47



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Me, too.  They'll be there next time. Take a pat on the back this time.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

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