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Post Info TOPIC: New member/starting treatment
Tig


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RE: New member/starting treatment
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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Tig


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Hi Annie,

I'd like to welcome you to the forum, too! You are definitely among friends and we will do our best to reduce your concerns.

First, congratulations on getting the ball rolling. For so many of us, that was a big obstacle to achieving the cure, or SVR (Sustained Viral Response) of Hep C. The insurance companies were difficult, if not impossible to work with. When I took my last round of treatment in 2013, the drugs were pretty rough on those that tried them. The rates of success compared to the new drugs, like Epclusa, were much lower and far longer courses of treatment. I'm so glad you've secured your first prescription. You're on the road to success!

We have a lot of data on the website regarding the drugs themselves, as well as anecdotal information from fellow members that all beat the Dragon back into its cave. The new DAA medications are so effective, they're almost foolproof. The most important piece of advice is to read some of our stories, and you'll gain vast amounts of insight into treatment. As our friend and long time member, 5, mentioned below, the way to reduce or eliminate side effects is to drink a gallon of water every day. I can't stress how important that is! Get a refillable container and carry it with you throughout the day, refilling often. You may learn to hate plain water for a while, but you'll see from other's experiences here and the medical reports, it's a sure way to ride through treatment feeling few, if any, side effects. Always take your medication at the same time each day and once you start, stick to that schedule. Many report sleeping like a baby on these medications, so you can choose to take it in the evening if that fits your schedule best. Very often any fatigue associated with it is experienced at night. I have two small grandchildren, so I know what chasing after them is like! They can keep you moving!

The Search function is top center of the page. Use a keyword or two, you'll find several discussions on the topic. You can always ask for help in finding the information you seek. That's what we're here for, and I encourage you to ask any and all questions you may have. Keep your chin up and don't let the side effects worry you. They are totally manageable with that gallon of water, good diet and rest. I know you can do it!

 

 



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Welcome Annie, this forum is great for support.
We were all nervous to start and somehow we did it and I am so happy to be cured.
I worked part time during my treatment and really only had a few really bad days.
Just in case, is there anyone at all that you could set up before hand in case you need a babysitter for a few hours?
Adjusting when you take your doses is also important because some ppl get wired and others get tired.
Drinking a gallon of water a day is a must, along with healthy foods.....but my hubby ate alot of pastry during his treatment. I stuck with a fairly healthy diet.
How many weeks is your treatment?
I'm excited for you
5

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Sorry, I started the thread and posted while I was in middle of writing. I was diagnosed with Hep C in 2016. Unfortunately, I was pregnant and would need to wait for treatment. I moved states and had my son. It took me a little while to get established with a local GI doc. When I first started going to the GI my labs were fairly normal. I had a hard time getting insurance approval. During this waiting period my enzymes became elevated, along with a slightly enlarged liver and a few issues with my gallbladder and bile duct. After my second ultrasound they ordered an MRI, which I still need to have done. Well, I got a call a bit over a week ago telling me I was approved for treatment with Epclusa. I received the first month's supply and have yet to start taking it. I've become super nervous, simply over the potential side effects. I've sort felt fatigued lately without taking medicine, which has made me hesitant to start. I see that treatment for many has gone real smoothly. I think I'm just nervous because I'm home alone during the day with a VERY active 3 year old. Anyway, I don't mean to ramble. Just wanted to introduce myself and hear about other people's experiences.

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Annie String


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Hello everyone, thanks for having me here.



-- Edited by Tig on Thursday 13th of May 2021 09:19:43 PM

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