Hep C Discussion Forum

CharlieC · CharlieC

Have not been able to find anyone taking Solvadi and Daclatasvir combo on the forum but my question is more towards the Solvadi side effects I think. The last 4 mornings about an hour after I take my pills (which include the 2 pills for HepC treatment and, right now, 15mg of Prednisone (down from 20mg las...

Groupergetter · Groupergetter

So it appears there are going to be delays, denials, and problems in Harvoni approvals. Having already been denied an approval after relapsing on S/O I understand the frustrations folks are having to deal with. I thought this thread might be a good place to discuss things we could do to give supp...

RudiRoo · RudiRoo

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3793988/

JLynch30 · JLynch30

Anyone getting the gold yet?

JLynch30 · JLynch30

I relapsed on solvaldi - is anyone else being denied Harvoni because of this?

libgirl07 · libgirl07

I just finished sol rib and int a few days ago. I'm wondering if I'd get a vl soon and it'd be und if that would matter. How fast would it come back. I'm nervous sick right now.

RudiRoo · RudiRoo

Went to the beach this morning, took a few iphone videos to tide me over, came home and took the first dose of S/O. Told old Snidely Whiplash his days were numbered. Checked my numbers in Skewed's groovy VL calculator. Felt really good about it. Two hours later saw the news that three people in Japan on Ol...

JLynch30 · JLynch30

I took sovaldi over the summer with interferon and ribrivirin. I was undetected all the way through treatment but the dragon came right back. he thinks seeing I was exposed to sovaldi my "best best" might be the abvie. My other liver doc at kesier today she thinks mid november they will h...

JLynch30 · JLynch30

My Keiser doctor is saying there is something else coming out any day now (abvie) so maybe I should wait seeing I had solvaldi over the summer. They don;t have it yet anyway. Booooo

Thom · Thom

I just gave myself an interferon injection. A week from today will be my last injection and the end of treatment. At 6 weeks or so my viral load was tested and it was zero. With hind sight it would have been better to wait for the new treatment that was approved on October 10. The combination of Pegasus an Ri...

johnsshutts · johnsshutts

I know some of the treatments are really rough and unbearable for a lot of us, but, we do want to be cured of this terrible disease, and start a fresh new life, am I right? Just think about the bright future a head of us. Our families and all of us certainly deservre it! I can say this with experience, just li...

skewedButNotBroken · skewedButNotBroken

Hi guys, I had my cardiologist to order a liver panel and everything came back within normal range except my ALT. The range for ALT at this lab is 13 - 69 and my ALT was flagged as low: ALT: 8 I'm not sure how to interpret that. My AST was 23 (that's because I'm taking Ativan--I hope) Anybody have any idea why i...

Angel67 · Angel67

Today I went to the hospital to find out where I stand with this illness. Well I am genotype 3, have moderate fibrosis and a fatty liver. I had an ultrasound scan two days ago, everything was checked and nothing is unusual....this made me happy as I was more worried about what might show up on the inside. S...

Gracie · Gracie

It's approved in Canada. How did this happen so fast? I called and he said the insurance companies should start approving in 1-3 months. Now to get my slow dum dum doctor to get on the ball and get me on the program. This stuff will work - I can feel it! http://goo.gl/CRh7Mb -- Edited by Gracie on Friday 24...

MzmiffY · MzmiffY

Hi everyone, Hope today is a good one for you. Thought I would check in as have been both too tired and lazy to focus on anything outside of work. I am pleased to report that my 24 wk vl came back und, especially good given I was dosing incorrectly for the first 4 months. My HB has climbed to 75, while tokenist...

LC · LC

I wanted to share this (again) especially for any treatment naïve 1a's that miss the train they want. There are other ways to get where you want to be, and they might even have a better success rate for your situation. http://www.realendpoi...

BigPharma · BigPharma

Hello friends, I was reading somewhere (may be here on this forum) that someone did a therapy with sofosbuvir & daclatasvir or sofosbuvir & simeprevir.(I dont remember exactly) He/She had very low VL on week 4 ( less than 15 IU) . But the problem was he/she had the same VL on week 6 ( less than 1...

Dzdayscomin · Dzdayscomin

I'm starting this thread so we can all channel our collective forces to get the Grouper guy on the new tx and get him to SVR. So that said I'm calling on my God to bless this man and provide him with the tx he needs, and the support of all of us to get him to where so many of us have been fortunate to get to....The p...

shadow10cats · shadow10cats

I met with my liver dr today and we discussed my going on Harvoni. I had a lot of questions of course & expected to hear the worst. Here's the story he had for me: Apparently, after the FDA approved Harvoni, many if not all of the NYS insurance companies decided they were going to make it very difficul...

LC · LC

I am wondering if it is leaving via our poo, urine, or if it self destructs inside us when the medicines beat up on it?

I've been flipping off every flush just in case. -- Edited by LC on Sunday 19th of October 2014 12:27:56 AM

skewedButNotBroken · skewedButNotBroken

http://betablog.org/new-treatments-hepatitis-c/

Angel67 · Angel67

GS/5816, this compound looks like a promising treatment for all the genotypes.

thepoet · thepoet

Hello Guys, Tomorrow will be my last dose of the 6 month Sovaldi & Ribavirin. Praise the Lord. I am planning on having a flu shot on Monday. Is this okay? I'm pretty sure that it will be okay, but I don't want to mess anything up at this juncture. Opinions and experience please. Thanks!

LC · LC

I talked to someone from the Abbvie company who is running the clinical trial I'm on, and asked her if there were any foods I should avoid while on treatment. She said not to eat grapefruit or drink grapefruit juice. My nurse told me now that I started treatment, to get a new toothbrush, nail clipper...

Mugsy · Mugsy

Skip to main page contentSkip to searchSkip to topics menuSkip to common links HHS U.S. Department of Health and Human ServicesFDAU.S. Food and Drug AdministrationProtecting and Promoting Your HealthA to Z IndexFollow FDAEn EspañolSearch FDA HomeFoodDrugsMedical Devices...

wmlj1960 · wmlj1960

Here are values I get off the patient portal. I don't have the complete lab result printout yet so I'm not sure if both of these dates are done by the same lab. I don't think so. I'm not good at reading these so you all help me here. RBC's and platelets look pretty low to my untrained mind. How low will my Dr le...

drexelpbp · drexelpbp

17 weeks EOT on Sovaldi and Olysio virus is still Not Detected!!!!!! I'm keeping my fingers crossed as I relapsed on Peg-interferon and rib after being clear for several weeks EOT in 2005. Does anybody know what the stats are for relapsing on Sovaldi and Olysio after being clear 12 weeks EOT? Gary

TazKat · TazKat

Keep fingers crossed everybody!!!!!

thepoet · thepoet

Hey guys, I haven't been in the forum for quite some time. My life was turned upside down. My mom got sick in SC, so I had been going back and forth from NY since May. I had to leave school and basically put my life on hold. I have since moved to SC to help care for her along with my daughter. On Sept 18, she passed...

Scruffy · Scruffy

Here is a link to the full prescribing information sheet for Harvoni http://www.gilead.com/~/media/Files/pdfs/medicines/liver-disease/harvoni/harvoni_pi.pdf -- Edited by Scruffy on Friday 10th of October 2014 08:46:32 PM

Topic		Started By	Replies	Views	Last Post
	Solvadi and Daclatasvir. Side Effects. (Preview) Have not been able to find anyone taking Solvadi and Daclatasvir combo on the forum but my question is more towards the Solvadi side effects I think. The last 4 mornings about an hour after I take my pills (which include the 2 pills for HepC treatment and, right now, 15mg of Prednisone (down from 20mg las...	CharlieC	25	8651	Nov 1, 2014 by Cinnamon Girl
	Dealing with delays, denials, and frustrations in getting Harvoni approval (Preview) So it appears there are going to be delays, denials, and problems in Harvoni approvals. Having already been denied an approval after relapsing on S/O I understand the frustrations folks are having to deal with. I thought this thread might be a good place to discuss things we could do to give supp...	Groupergetter	17	2493	Nov 1, 2014 by RudiRoo
	Anybody know about Galectin Therapeutics potential fibrosis medication?? (Preview) http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3793988/	RudiRoo	1	671	Oct 31, 2014 by Angel67
	anyone get Harvoni yet ( 1 2 ) (Preview) Anyone getting the gold yet?	JLynch30	53	10887	Oct 30, 2014 by Isiscat2011
	any relapsers denied? (Preview) I relapsed on solvaldi - is anyone else being denied Harvoni because of this?	JLynch30	3	1083	Oct 30, 2014 by Josh Haynie
	after TX if you'd relapse have fast would your vl be detectable (Preview) I just finished sol rib and int a few days ago. I'm wondering if I'd get a vl soon and it'd be und if that would matter. How fast would it come back. I'm nervous sick right now.	libgirl07	4	1028	Oct 29, 2014 by libgirl07
	Snidely Whiplash is goin' down! (Preview) Went to the beach this morning, took a few iphone videos to tide me over, came home and took the first dose of S/O. Told old Snidely Whiplash his days were numbered. Checked my numbers in Skewed's groovy VL calculator. Felt really good about it. Two hours later saw the news that three people in Japan on Ol...	RudiRoo	2	708	Oct 29, 2014 by RudiRoo
	Opinions? (Preview) I took sovaldi over the summer with interferon and ribrivirin. I was undetected all the way through treatment but the dragon came right back. he thinks seeing I was exposed to sovaldi my "best best" might be the abvie. My other liver doc at kesier today she thinks mid november they will h...	JLynch30	2	690	Oct 29, 2014 by Groupergetter
	Now! (Preview) My Keiser doctor is saying there is something else coming out any day now (abvie) so maybe I should wait seeing I had solvaldi over the summer. They don;t have it yet anyway. Booooo	JLynch30	3	834	Oct 28, 2014 by LC
	Update (Preview) I just gave myself an interferon injection. A week from today will be my last injection and the end of treatment. At 6 weeks or so my viral load was tested and it was zero. With hind sight it would have been better to wait for the new treatment that was approved on October 10. The combination of Pegasus an Ri...	Thom	11	1163	Oct 28, 2014 by Scruffy
	Cure this terrible disease (Preview) I know some of the treatments are really rough and unbearable for a lot of us, but, we do want to be cured of this terrible disease, and start a fresh new life, am I right? Just think about the bright future a head of us. Our families and all of us certainly deservre it! I can say this with experience, just li...	johnsshutts	0	625	Oct 27, 2014 by johnsshutts
	ALT was flagged in a liver panel (Preview) Hi guys, I had my cardiologist to order a liver panel and everything came back within normal range except my ALT. The range for ALT at this lab is 13 - 69 and my ALT was flagged as low: ALT: 8 I'm not sure how to interpret that. My AST was 23 (that's because I'm taking Ativan--I hope) Anybody have any idea why i...	skewedButNotBroken	8	2273	Oct 26, 2014 by mallani
	Turning down treatment (Preview) Today I went to the hospital to find out where I stand with this illness. Well I am genotype 3, have moderate fibrosis and a fatty liver. I had an ultrasound scan two days ago, everything was checked and nothing is unusual....this made me happy as I was more worried about what might show up on the inside. S...	Angel67	46	2356	Oct 25, 2014 by Cinnamon Girl
	Harvoni and Canada (Preview) It's approved in Canada. How did this happen so fast? I called and he said the insurance companies should start approving in 1-3 months. Now to get my slow dum dum doctor to get on the ball and get me on the program. This stuff will work - I can feel it! http://goo.gl/CRh7Mb -- Edited by Gracie on Friday 24...	Gracie	6	1808	Oct 24, 2014 by Gracie
	Halfway there (Preview) Hi everyone, Hope today is a good one for you. Thought I would check in as have been both too tired and lazy to focus on anything outside of work. I am pleased to report that my 24 wk vl came back und, especially good given I was dosing incorrectly for the first 4 months. My HB has climbed to 75, while tokenist...	MzmiffY	7	1196	Oct 24, 2014 by mallani
	If you miss the Harvoni train (Preview) I wanted to share this (again) especially for any treatment naïve 1a's that miss the train they want. There are other ways to get where you want to be, and they might even have a better success rate for your situation. http://www.realendpoi...	LC	0	1298	Oct 23, 2014 by LC
	Sof & Dac (Preview) Hello friends, I was reading somewhere (may be here on this forum) that someone did a therapy with sofosbuvir & daclatasvir or sofosbuvir & simeprevir.(I dont remember exactly) He/She had very low VL on week 4 ( less than 15 IU) . But the problem was he/she had the same VL on week 6 ( less than 1...	BigPharma	12	3326	Oct 23, 2014 by BigPharma
	This thread is the positive force for Groupergetter guy..! (Preview) I'm starting this thread so we can all channel our collective forces to get the Grouper guy on the new tx and get him to SVR. So that said I'm calling on my God to bless this man and provide him with the tx he needs, and the support of all of us to get him to where so many of us have been fortunate to get to....The p...	Dzdayscomin	45	3267	Oct 22, 2014 by RudiRoo
	NYS INS COMPANIES & HARVONI COVERAGE (Preview) I met with my liver dr today and we discussed my going on Harvoni. I had a lot of questions of course & expected to hear the worst. Here's the story he had for me: Apparently, after the FDA approved Harvoni, many if not all of the NYS insurance companies decided they were going to make it very difficul...	shadow10cats	11	1915	Oct 21, 2014 by Miss B
	does anyone know how this virus exits our bodies? (Preview) I am wondering if it is leaving via our poo, urine, or if it self destructs inside us when the medicines beat up on it? I've been flipping off every flush just in case. -- Edited by LC on Sunday 19th of October 2014 12:27:56 AM	LC	15	1460	Oct 19, 2014 by LC
	These new meds may clear the virus in just six weeks (Preview) http://betablog.org/new-treatments-hepatitis-c/	skewedButNotBroken	2	817	Oct 19, 2014 by Huey
	Something new for genotype three? (Preview) GS/5816, this compound looks like a promising treatment for all the genotypes.	Angel67	0	650	Oct 19, 2014 by Angel67
	Sovaldi - Riba & Flu Shot (Preview) Hello Guys, Tomorrow will be my last dose of the 6 month Sovaldi & Ribavirin. Praise the Lord. I am planning on having a flu shot on Monday. Is this okay? I'm pretty sure that it will be okay, but I don't want to mess anything up at this juncture. Opinions and experience please. Thanks!	thepoet	4	1303	Oct 18, 2014 by wmlj1960
	No grapefruit?? (Preview) I talked to someone from the Abbvie company who is running the clinical trial I'm on, and asked her if there were any foods I should avoid while on treatment. She said not to eat grapefruit or drink grapefruit juice. My nurse told me now that I started treatment, to get a new toothbrush, nail clipper...	LC	14	2684	Oct 15, 2014 by Huey
	Here it is (Preview) Skip to main page contentSkip to searchSkip to topics menuSkip to common links HHS U.S. Department of Health and Human ServicesFDAU.S. Food and Drug AdministrationProtecting and Promoting Your HealthA to Z IndexFollow FDAEn EspañolSearch FDA Popular ContentHomeFoodDrugsMedical Devices...	Mugsy	3	1433	Oct 15, 2014 by Huey
	My lab results 2 weeks post SOT ( 1 2 ) (Preview) Here are values I get off the patient portal. I don't have the complete lab result printout yet so I'm not sure if both of these dates are done by the same lab. I don't think so. I'm not good at reading these so you all help me here. RBC's and platelets look pretty low to my untrained mind. How low will my Dr le...	wmlj1960	53	6878	Oct 12, 2014 by Huey
	JUST GOT MY LAB RESULTS!!!!!! (Preview) 17 weeks EOT on Sovaldi and Olysio virus is still Not Detected!!!!!! I'm keeping my fingers crossed as I relapsed on Peg-interferon and rib after being clear for several weeks EOT in 2005. Does anybody know what the stats are for relapsing on Sovaldi and Olysio after being clear 12 weeks EOT? Gary	drexelpbp	12	1579	Oct 12, 2014 by Huey
	Did 12 weeks after treatment labs today (Preview) Keep fingers crossed everybody!!!!!	TazKat	8	873	Oct 12, 2014 by Huey
	Staying Sober through tough times! (Preview) Hey guys, I haven't been in the forum for quite some time. My life was turned upside down. My mom got sick in SC, so I had been going back and forth from NY since May. I had to leave school and basically put my life on hold. I have since moved to SC to help care for her along with my daughter. On Sept 18, she passed...	thepoet	7	1001	Oct 11, 2014 by RonH
	info sheet Harvoni (Preview) Here is a link to the full prescribing information sheet for Harvoni http://www.gilead.com/~/media/Files/pdfs/medicines/liver-disease/harvoni/harvoni_pi.pdf -- Edited by Scruffy on Friday 10th of October 2014 08:46:32 PM	Scruffy	7	1329	Oct 11, 2014 by Huey
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