Hep C Discussion Forum

Marc71 · Marc71

I have Hepatitis C with genotype 1a and viral load of approx. 2,000,000 copies/mL, and I purchased on my own the generic medicine Twinvir - which has the same composition as the original Harvoni (Sofosbuvir 400 mg and Ledipasvir 90 mg). The cost of my treatment with Twinvir for 12 weeks (84 pills) was 3...

JakeAms · JakeAms

I am now in week 23 daklynza/sobusvir/ribavarine. I haven't posted here for a while, so tired lately. The initial energy burst of the first few months went away, replaced by increasing fatigue, insomnia and itching only soothed by - nothing. I have been prescribed sleeping pills but only use 1/...

Sydhanrahan · Sydhanrahan

hi fellow train riders, I have just finished week 6 of 12. So half way. Viral load at four weeks had dropped from 4 million to 115. alt 41 ast 58; before treatment alt 220 sat 409. So I am jiggling along on my train seat very happily. The diuretics for ascites have been halved again and doctor says that I wa...

Steve76 · Steve76

I am a bit worried about the way I have been taking my Harvoni pills after reading about RAVS. I haven't missed any doses, I took my 1st pill in the evening around 5:30 PM(Nurse wanted me take the first pill it in front of here). I realized this time would not work for me so I took the 2nd pill at 9:00 AM the n...

tkflex36 · tkflex36

Just thought I'd put this out there, my trial location informed me today they have immediate openings for all geno 3's and anyone that has cirrhosis. Message me in you are anywhere near Philadelphia PA and still need treatmeant. You would need to go to all study visits about 9 over the course of 9 months...

chuckelle · chuckelle

I start my treatment next hopefully (Lord willing everything goes as planned) and have not had any symptoms. Found out April 2015 after donating blood at a local blood drive that I had the antibodies which of course started me on the road I am on now. My main question is I have started feeling like my st...

Tig · Tig

Hi Rick and Miracle, I saw your post Rick regarding Geno 2 treatments and wanted to give that to you on a different thread. I don't want to change the topic on the Harvoni Train, so I will post it here. Here is some of the recent information on the subject. There is also an upcoming treatment from Gilead, st...

Sydhanrahan · Sydhanrahan

Firstly this site has become such a crutch for me. Thank you to everyone who contributes. There is always something here that makes me feel less alone. Moderators must give up so much of their free time to help people going through this journey. i have just received blood tests for Four week marker. ALt...

anessa93 · anessa93

Hello I intend to buy generic by a person who brought from Morocco and wants to know if somebody have already tested this generic. the person is selling the 3 boxes for 6000 £ thank you for reply

Sydhanrahan · Sydhanrahan

I feel very lost and frightened. I was diagnosed with Hep C in 1994 but I was advised not to take Interferon because of side effects. I was supporting four children and couldn't afford not to work. The virus has been decimating my liver, particularly for the last two years. my specialist had been hoping...

seekinganswers · seekinganswers

can anyone tell me about their symptoms before treatment and which symptoms stopped after treatment.

Sieb · Sieb

Hi could someone please tell me if Harvoni has any effect on RBC? Just got my two week blood work results back with AST 16 and ALT 14 but RBC dropped a little to 4.19 (4.22-6.81) is this normal for Harvoni? Thanks.

JeanInMaine · JeanInMaine

65 years old, teacher, probably infected in a 1976 blood transfusion. Stage 3 Fibrosis. 1b Genotype. Joint pain and fatigue primary symptoms prior to treatment. Still working as a Math teacher. Have scaled back on non-work activity over past few years as fatigue worsened. I'm eating well, drinkin...

Gracie · Gracie

I think we need a feed for side effects alone for those of us on treatment. This will help us all know that we are not crazy and that these side effects are shared by others. It's such a new and powerful drug, and the phrase "too good to be true" keeps popping up in my thoughts. Keeping track will h...

Sieb · Sieb

After one week of Harvoni so far so good. Had minor headaches the first two or three days but after that all is well. Compared to the old treatments it makes you wonder if this is working. I get me first blood work next Monday but only the basic CBC and another set but no viral load. I did have a question can yo...

Bull · Bull

Hello. I created my account here for this question. Thank you all for creating this good community. I live in Japan so I have trouble communicating with my doctor using my Japanese. But I was able to land a 12 week Harvoni plan. Problem is: at 6 weeks, my viral load is 2.5 i don't know what that me...

mcmaklin · mcmaklin

I was offered Clinical trials for the treatment with Viekira no Ribavirin I am genotype 1b, F1, 1,5mln viral load, TT. PLEASE PLEASE because I do not know if I should wait for Harvoni. Maybe somebody here is on Abbvie train with no riba I am music composer, I am especailly interested in: 1. Can I have a bra...

Sieb · Sieb

Hi all first time post. Start Harvoni today for the 12 week haul. First diagnosed 1992 and tried the interferon 3 mg 3x a week non responder then was put in a trial 5 mg 3x a week plus 1200 mg of ribavirin non responder. I have had two biopsies one back in 1992 and the other 2006 minimal damage. After seeing co...

justvlm · justvlm

I apologize for the long rant - it contains no helpful information on dealing with treatment. First a history lesson: I love Christmas, I love decorating my tree with 15 years collection of beautiful glass ornaments, but most I love wrapping gifts. I even make my own bows and had folks (girls, anywa...

justvlm · justvlm

Hello all. It's been my first week of sovaldi / riba. Nothing major except the last few nights I wake with my heart pounding. Doesn't seem racing, just so hard I feel it almost shaking my body. 2 times lasted about an hour. Last night almoe 2.5 I had this happen last year and my Dr said heart sounded go...

Observer · Observer

there are only 4 of those evil blue pills left in the bottle, and two more blister packs of beige and pink pills and I am so, so, so ready to be finished. 11 pm pacific time on Dec 4 I swallow my last pills. will let you all know about vl when I get EOT blood work done but I'm very confident. I am thankful to have h...

G Man · G Man

Undetected. ALT 21 AST 21 I hear this is good? It's been a week since I ended treatment and I feel great. Have been to the gym every day. Swam a mile for the first time in three months and man did that feel good. Wishing everyone a very happy Thanksgiving. Good health and happiness to all, G

Gypsy Soul · Gypsy Soul

I'm not proud of it I was looking for decorative cookie tins for gifts and I know I went from one side of the store to the other at least 5 times. Then a lady told me they were on the other side of he store...and they weren't. So I proceeded to stomp away....growling....Ughhhhhh This is not me....in my defe...

96tears · 96tears

hi folks, been so busy that i haven't had a chance to post lately .. hope everybody is still on the mend! i have 20 more days of treatment to go and am VERY optimistic. still have an undetectable v-load level and having high hopes for a full recovery. i will have another at the end of treatment and if still UN...

justvlm · justvlm

Well, I've been hanging out in the shadows, but my day to embark on this journey begins tomorrow. Sovaldi and Riba just arrived. As it has surely been said a million times I am anxious to start in both a good and worried way. But it's been a long time coming. My heart begged to wait on the new the new pange...

freesoul · freesoul

What are the things that you can do to give yourself the best chance of success during treatment? Some are probably the common sense ones: don't drink alcohol, eat a healthy diet, stay hydrated...but maybe there are other, less obvious ones? For example, I was told not to drink grapefruit or other ac...

Breezybev · Breezybev

Hi Everyone! I am so glad to get back to this group. Hadn't had much to talk about before this. I started on Harvoni yesterday. I don't have cirrhosis, so my treatment is 12 weeks. I did find out that if a person takes Prilosec they have to take the 2 meds together after fasting. This means overnight to me. B...

ferry778 · ferry778

Spam and advertising is not allowed on the forum. -- Edited by Tig56 on Thursday 19th of November 2015 10:07:26 PM

mallani · mallani

Hi all, Ribavirin has been around forever, and has been part of HCV treatments since 1996. Many of has have been on it several times, and it is worth re-emphasing some facts. Firstly, Ribavirin has a long half-life, so dosage schedules are pretty loose. You just need to take it twice daily in whatever...

JimmyK · JimmyK

Hey y'all need some help. I just did my 4 week blood draw, through my primary care giver. He would then forward to my Specialty Doc but I does not look right. Can someone who knows advise? Thanks JimmyK

Topic		Started By	Replies	Views	Last Post
	Hepatitis C Treatment with Twinvir (generic Harvoni) (Preview) I have Hepatitis C with genotype 1a and viral load of approx. 2,000,000 copies/mL, and I purchased on my own the generic medicine Twinvir - which has the same composition as the original Harvoni (Sofosbuvir 400 mg and Ledipasvir 90 mg). The cost of my treatment with Twinvir for 12 weeks (84 pills) was 3...	Marc71	2	2391	Jan 30, 2016 by Marc71
	Last week of treatment (Preview) I am now in week 23 daklynza/sobusvir/ribavarine. I haven't posted here for a while, so tired lately. The initial energy burst of the first few months went away, replaced by increasing fatigue, insomnia and itching only soothed by - nothing. I have been prescribed sleeping pills but only use 1/...	JakeAms	5	1525	Jan 26, 2016 by Ari-anna
	Week 6 riba/sof/dac (Preview) hi fellow train riders, I have just finished week 6 of 12. So half way. Viral load at four weeks had dropped from 4 million to 115. alt 41 ast 58; before treatment alt 220 sat 409. So I am jiggling along on my train seat very happily. The diuretics for ascites have been halved again and doctor says that I wa...	Sydhanrahan	4	1542	Jan 24, 2016 by wmlj1960
	Dose Timing? (Preview) I am a bit worried about the way I have been taking my Harvoni pills after reading about RAVS. I haven't missed any doses, I took my 1st pill in the evening around 5:30 PM(Nurse wanted me take the first pill it in front of here). I realized this time would not work for me so I took the 2nd pill at 9:00 AM the n...	Steve76	3	1528	Jan 23, 2016 by Ari-anna
	More trial volunteers needed! (Preview) Just thought I'd put this out there, my trial location informed me today they have immediate openings for all geno 3's and anyone that has cirrhosis. Message me in you are anywhere near Philadelphia PA and still need treatmeant. You would need to go to all study visits about 9 over the course of 9 months...	tkflex36	0	940	Jan 20, 2016 by tkflex36
	Just a few ??? (Preview) I start my treatment next hopefully (Lord willing everything goes as planned) and have not had any symptoms. Found out April 2015 after donating blood at a local blood drive that I had the antibodies which of course started me on the road I am on now. My main question is I have started feeling like my st...	chuckelle	6	1493	Jan 15, 2016 by JimmyK
	Genotype 2 Treatments (Preview) Hi Rick and Miracle, I saw your post Rick regarding Geno 2 treatments and wanted to give that to you on a different thread. I don't want to change the topic on the Harvoni Train, so I will post it here. Here is some of the recent information on the subject. There is also an upcoming treatment from Gilead, st...	Tig	4	2955	Jan 12, 2016 by Linuxter
	4 weeks into treatment (Preview) Firstly this site has become such a crutch for me. Thank you to everyone who contributes. There is always something here that makes me feel less alone. Moderators must give up so much of their free time to help people going through this journey. i have just received blood tests for Four week marker. ALt...	Sydhanrahan	11	3010	Jan 11, 2016 by Sydhanrahan
	sofosbuvir generic (Preview) Hello I intend to buy generic by a person who brought from Morocco and wants to know if somebody have already tested this generic. the person is selling the 3 boxes for 6000 £ thank you for reply	anessa93	13	2196	Jan 11, 2016 by anessa93
	Three weeks into treatment (Preview) I feel very lost and frightened. I was diagnosed with Hep C in 1994 but I was advised not to take Interferon because of side effects. I was supporting four children and couldn't afford not to work. The virus has been decimating my liver, particularly for the last two years. my specialist had been hoping...	Sydhanrahan	6	1571	Jan 5, 2016 by Sydhanrahan
	life before and after treatment (closed) (Preview) can anyone tell me about their symptoms before treatment and which symptoms stopped after treatment.	seekinganswers	1	1029	Jan 1, 2016 by MzmiffY
	RBC and Harvoni (Preview) Hi could someone please tell me if Harvoni has any effect on RBC? Just got my two week blood work results back with AST 16 and ALT 14 but RBC dropped a little to 4.19 (4.22-6.81) is this normal for Harvoni? Thanks.	Sieb	2	1124	Dec 31, 2015 by Cinnamon Girl
	Two Weeks on Harvoni - no side effects, Pharma/Insurer rant (Preview) 65 years old, teacher, probably infected in a 1976 blood transfusion. Stage 3 Fibrosis. 1b Genotype. Joint pain and fatigue primary symptoms prior to treatment. Still working as a Math teacher. Have scaled back on non-work activity over past few years as fatigue worsened. I'm eating well, drinkin...	JeanInMaine	0	1093	Dec 31, 2015 by JeanInMaine
	Harvoni Side Effects ( 1 2 3 ) (Preview) I think we need a feed for side effects alone for those of us on treatment. This will help us all know that we are not crazy and that these side effects are shared by others. It's such a new and powerful drug, and the phrase "too good to be true" keeps popping up in my thoughts. Keeping track will h...	Gracie	118	11672	Dec 27, 2015 by Tig
	Week one complete (Preview) After one week of Harvoni so far so good. Had minor headaches the first two or three days but after that all is well. Compared to the old treatments it makes you wonder if this is working. I get me first blood work next Monday but only the basic CBC and another set but no viral load. I did have a question can yo...	Sieb	5	1129	Dec 25, 2015 by Groupergetter
	Harvoni fail (Preview) Hello. I created my account here for this question. Thank you all for creating this good community. I live in Japan so I have trouble communicating with my doctor using my Japanese. But I was able to land a 12 week Harvoni plan. Problem is: at 6 weeks, my viral load is 2.5 i don't know what that me...	Bull	3	1410	Dec 18, 2015 by Tig
	VIEKIRA PACK PLEASE HELP (Preview) I was offered Clinical trials for the treatment with Viekira no Ribavirin I am genotype 1b, F1, 1,5mln viral load, TT. PLEASE PLEASE because I do not know if I should wait for Harvoni. Maybe somebody here is on Abbvie train with no riba I am music composer, I am especailly interested in: 1. Can I have a bra...	mcmaklin	21	2715	Dec 15, 2015 by mcmaklin
	Hope third time is the charm. (Preview) Hi all first time post. Start Harvoni today for the 12 week haul. First diagnosed 1992 and tried the interferon 3 mg 3x a week non responder then was put in a trial 5 mg 3x a week plus 1200 mg of ribavirin non responder. I have had two biopsies one back in 1992 and the other 2006 minimal damage. After seeing co...	Sieb	6	1386	Dec 15, 2015 by Sieb
	Have a Merry (Riba) Christmas to me (Preview) I apologize for the long rant - it contains no helpful information on dealing with treatment. First a history lesson: I love Christmas, I love decorating my tree with 15 years collection of beautiful glass ornaments, but most I love wrapping gifts. I even make my own bows and had folks (girls, anywa...	justvlm	7	1637	Dec 14, 2015 by Gracie
	Pounding heart (Preview) Hello all. It's been my first week of sovaldi / riba. Nothing major except the last few nights I wake with my heart pounding. Doesn't seem racing, just so hard I feel it almost shaking my body. 2 times lasted about an hour. Last night almoe 2.5 I had this happen last year and my Dr said heart sounded go...	justvlm	9	1767	Dec 13, 2015 by justvlm
	2 more days (Preview) there are only 4 of those evil blue pills left in the bottle, and two more blister packs of beige and pink pills and I am so, so, so ready to be finished. 11 pm pacific time on Dec 4 I swallow my last pills. will let you all know about vl when I get EOT blood work done but I'm very confident. I am thankful to have h...	Observer	2	1049	Dec 7, 2015 by Tig
	12 week blood work in (Preview) Undetected. ALT 21 AST 21 I hear this is good? It's been a week since I ended treatment and I feel great. Have been to the gym every day. Swam a mile for the first time in three months and man did that feel good. Wishing everyone a very happy Thanksgiving. Good health and happiness to all, G	G Man	6	1653	Dec 5, 2015 by Observer
	Threw a hissy fit in Walmart....... (Preview) I'm not proud of it I was looking for decorative cookie tins for gifts and I know I went from one side of the store to the other at least 5 times. Then a lady told me they were on the other side of he store...and they weren't. So I proceeded to stomp away....growling....Ughhhhhh This is not me....in my defe...	Gypsy Soul	11	1550	Dec 4, 2015 by JimmyK
	20 more! (Preview) hi folks, been so busy that i haven't had a chance to post lately .. hope everybody is still on the mend! i have 20 more days of treatment to go and am VERY optimistic. still have an undetectable v-load level and having high hopes for a full recovery. i will have another at the end of treatment and if still UN...	96tears	3	1212	Dec 1, 2015 by wmlj1960
	Starting Solvadi + Riba this week (Preview) Well, I've been hanging out in the shadows, but my day to embark on this journey begins tomorrow. Sovaldi and Riba just arrived. As it has surely been said a million times I am anxious to start in both a good and worried way. But it's been a long time coming. My heart begged to wait on the new the new pange...	justvlm	8	1748	Nov 24, 2015 by Observer
	Best things to do during treatment and right after? (Preview) What are the things that you can do to give yourself the best chance of success during treatment? Some are probably the common sense ones: don't drink alcohol, eat a healthy diet, stay hydrated...but maybe there are other, less obvious ones? For example, I was told not to drink grapefruit or other ac...	freesoul	1	1167	Nov 21, 2015 by Matt Chris
	Harvoni and Prilosec (Preview) Hi Everyone! I am so glad to get back to this group. Hadn't had much to talk about before this. I started on Harvoni yesterday. I don't have cirrhosis, so my treatment is 12 weeks. I did find out that if a person takes Prilosec they have to take the 2 meds together after fasting. This means overnight to me. B...	Breezybev	7	2222	Nov 19, 2015 by Tig
	HOW I GOT MY MOTHER KIDNEY DISEASE CURED (Preview) Spam and advertising is not allowed on the forum. -- Edited by Tig56 on Thursday 19th of November 2015 10:07:26 PM	ferry778	0	968	Nov 19, 2015 by ferry778
	For those taking Ribavirin (closed) (Preview) Hi all, Ribavirin has been around forever, and has been part of HCV treatments since 1996. Many of has have been on it several times, and it is worth re-emphasing some facts. Firstly, Ribavirin has a long half-life, so dosage schedules are pretty loose. You just need to take it twice daily in whatever...	mallani	17	2005	Nov 18, 2015 by mallani
	Is This Right? (Preview) Hey y'all need some help. I just did my 4 week blood draw, through my primary care giver. He would then forward to my Specialty Doc but I does not look right. Can someone who knows advise? Thanks JimmyK	JimmyK	23	2037	Nov 17, 2015 by wmlj1960
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