Hep C Discussion Forum

edmed · edmed

Hi all, this is the third time around on treatment [tx]. In 04 I was in riba & peg while on my second week of tx one day i went fishing wihtout skin protection and a rash started. the rash got so bad my doctor took me off the med while the dermotolist treated the severe rash with steriod and tubs of triamci...

Butcheeyboy · Butcheeyboy

I just can not get over the cost of meds for the triple - Incivik-Riba-Pega/Interf treatment I always got a copy of the bill every month from CuraScript (they provided meds via FedEx-overnite from Orlando, Florida) $2,600 for 4 shots a month $696 for 1 bottle of Riba a month $17,000 for 1 box of I...

Loopy Lisa · Loopy Lisa

I am getting increasingly nervous about the liver biopsy, I am pretty scared actually, so much so I am losing sleep over it. Is my imagination much worse than the actual event???

dragonfly · dragonfly

How do you get on a trial in the UK? My consultant says that no troals are taking place for non-interferon therapy but I read in my newsletter that some of the workers at the Hepc C trust are on one. Getting desperate now as I am going down with chest infections all the time. Just recovered from pleuris...

mallani · mallani

WARNING: If offended by the topic, please do not read and press the 'Back' button This is a topic which is taboo on most Forums and has been rarely mentioned on this Forum. I'm not sure why, as I regard a satisfactory sex life as part of a normal healthy lifesyle. 'Satisfactory' may have different meani...

Dopey · Dopey

I'm in severe pain in my upper back/ shoulders to the point of it becoming unbearable, I've a high pain threshold and reach the painkillers as a last resort but this pain is agonising. I have moved from paracetamol to cocodamol and am gradually increasing to a stronger and stronger dose. I started get...

Michaele · Michaele

Hi all, decided to eat some brown rice, so as it's simmering away I decide to check into the arsenic scare info. Hope the dog enjoys a little rice in her kibble , cause Im not going to be eating it. Arsenic levels are higher in brown rice than white and higher if grown in the USA. You can rinse the heck out of...

Dopey · Dopey

Hi all I've been away recovering from my short tx! Its bizzare, but even though I was only only tx for 4 weeks its taking me a long time to recover from the sx. I remember feeling better sooner after 19 weeks of tx last time. But anyway slowly but surely I'll get there. ÃÂ I went for my fibroscan a couple of da...

Carolinca · Carolinca

Before I ask this question, I want to clarify that my husband has HCV and not me. Also, even though I don't have HCV, I still do not drink alcohol. If someone achieves SVR, and they have no more virus attacking their liver anymore, why is it still suggested that someone abstain from drinking alcohol? ...

Brendalee333 · Brendalee333

I am curious about these labs, as in what is a really high number. My doctor had me get a biospy cause my levels were high. 569 and 400. Can I get some input? Thanks

Carolinca · Carolinca

Does anyone know the percentage of people who become detectable again once they achieve SVR? Thanks, Carol

mallani · mallani

Hi all, This post was prompted by a discussion with a fellow patient while waiting for my doc to arrive. I knew her from cruising/sailing, and we had discussed HepC after finding we were the only non-drinkers at a beach party. She was about 60 yo, was F2 and was about to start triple Rx with Victrelis. She...

allib · allib

This seems like a wonderful place and I am so happy to have found it. A little back ground: A few weeks ago my husband hadnt been feeling well for about a week (headache and fever), went to the doctor and she diagnosed ear infection. Gave antibiotics and at follow up the ear infection went away, but he wa...

Ouchie · Ouchie

My confirmation test was positive - my primary dr doesn't want to give me the viral load information etc but wants to send me to a specialist to have it explained to me. I understand it is high enough to start therapy. I'm hopping all this body ache and joint pain and being tired etc will go away after thera...

Smothered · Smothered

I have hep c... of course and i have worked 2 days as a dishwasher at a restraunt i wasnt even thinking about my problem but now i am worried, is there some kind of legal issue here? do i have to leave my new job?

JLynch30 · JLynch30

I was wondering if anyone had any warnings for a product called serovital - an HGH increadeer with something called schizoneptea powder- I am reading mixed review son liver effects

SteffieHoney · SteffieHoney

Hi everyone. I am currently on treatment with Incivek and I know a lot about my own disease but this post is for my aunt. I have not seen her labs and only know what she herself has conveyed to me but she wanted me to ask you all some questions about her options and clinical trials. My aunt recently went to th...

Ouchie · Ouchie

I guess Im asking that if I were told about being positive for antibodies but never got any further testing , can that donation center or does that center report this to any agency ? can an insurance company pry and get these results ? even if these results are NOT positive results of an active infection....

Ouchie · Ouchie

I had to come home - I climbed stairs at work ( 3 sets 3 levels ) I was totally out of breath and my knees buckled - I was very weak and started to get a little dizzy - tonight I'm sore all over , weak and have a stiff neck among other muscles. I went to my Dr today - he knows about the Hep c antibody positive thing bu...

Zlikster · Zlikster

i have antibodies in blood for CMV and EBV, does that have any influence on SVR? or even reactivation of those 2 herpes viruses during tx? shall people who test positive on CMV antibodies check pcr vl of cmv during hcv therapy? found this article http://www.ncbi.nlm.nih.gov/pubmed/21175794

Zlikster · Zlikster

Found online (UK prices) that Telaprevir (2,250mg daily) is 22.400 GBP 12 week cost, Boceprevir (2,400mg daily) is 8.400 GBP 12 week cost. Why such price difference? I can't find any hints how much Sofosbuvir will cost, but i presume it will be in price range of Telaprevir? I am trying to figure out how...

greenqueen · greenqueen

Hi GM5 and Rio I thought a thread dedicated to all transplant issues and info would be a good idea - will make it a "sticky", later on today. It would be great to hear from anyone who's had a transplant or is waiting for one - your experiences could really help a lot of people who are just browsing...

mallani · mallani

Hi all, Ribavirin is an odd drug. It was discovered in 1970 and was found to have antiviral activity. It was sold in Mexico as a cure for the flu. In 1998, it received FDA approval for use in HCV in combination with Interferon. It is useless by itself, but it was found that SVR rates doubled when added t...

Enavigo3891 · Enavigo3891

Hello Everyone... <---- NEW HERE so please bare with me! I am a 29 year old female (will be 30 in less than 2 weeks). I first tested positive for HepC at age 13. My sister (16 at the time) was undergoing standard pre-op for a surgery when she tested positive. They thought it was a false + so they reteste...

tomyboy · tomyboy

Hi everyone, dont know why I couldn't put this under a another discussion but regardless we have been hit but yet more bad news. We went for our follow up appt at Mt Sinai as we were told Tom had a liver laceration. I am sorry to report that we were informed the CT Scan revealed liver cancer. We are blown a...

Ouchie · Ouchie

Hello out there :) I would like to list issues I've had creep up on me in the last few years at a pretty slow pace and now that I'm aware of my HCV I was wondering if anyone has also experienced any of these. I want to list all I can think of and please tell me if anyone has also experienced any of these.... Sure w...

tornadomia9190 · tornadomia9190

BEFORE i was diagnosed w hep c .. i was working on losing weight. now i have to find a way to add 60g of fat to my diet a day. i see no healthy way to do that. any suggestions???

HepatitisCommunity · HepatitisCommunity

Sorry, but we don`t allow people to promote or advertise other websites and forums here, thanks! -- Edited by Cinnamon Girl on Wednesday 6th of March 2013 10:37:31 AM

hepcinohio · hepcinohio

Hello, King here. Thanks all of you for your welcomes. very much appreciated. I have a question. Ive read online about some new tx coming in 2014 and that the tx is only like 16 weeks or so, it doesn't make you sick and has like a 85% success. If this is true should I try and habg in there until 2014 and try this...

Matt Chris · Matt Chris

Has anyone in our forum investagated on how one can expunge all remants of the HCV after one reaches undetectable? Also does the the HCV hides it self somewhere in the body? Matt

Topic		Started By	Replies	Views	Last Post
	effects of the sun while on treatment. (Preview) Hi all, this is the third time around on treatment [tx]. In 04 I was in riba & peg while on my second week of tx one day i went fishing wihtout skin protection and a rash started. the rash got so bad my doctor took me off the med while the dermotolist treated the severe rash with steriod and tubs of triamci...	edmed	2	935	Apr 24, 2013 by mallani
	Cost of 'triple' treatment' unbelievable (Preview) I just can not get over the cost of meds for the triple - Incivik-Riba-Pega/Interf treatment I always got a copy of the bill every month from CuraScript (they provided meds via FedEx-overnite from Orlando, Florida) $2,600 for 4 shots a month $696 for 1 bottle of Riba a month $17,000 for 1 box of I...	Butcheeyboy	4	992	Apr 23, 2013 by Dillo
	Liver biopsy (Preview) I am getting increasingly nervous about the liver biopsy, I am pretty scared actually, so much so I am losing sleep over it. Is my imagination much worse than the actual event???	Loopy Lisa	17	1183	Apr 19, 2013 by Loopy Lisa
	Trials (Preview) How do you get on a trial in the UK? My consultant says that no troals are taking place for non-interferon therapy but I read in my newsletter that some of the workers at the Hepc C trust are on one. Getting desperate now as I am going down with chest infections all the time. Just recovered from pleuris...	dragonfly	3	781	Apr 19, 2013 by Cinnamon Girl
	Sex problems and HCV (including treatment) (Preview) WARNING: If offended by the topic, please do not read and press the 'Back' button This is a topic which is taboo on most Forums and has been rarely mentioned on this Forum. I'm not sure why, as I regard a satisfactory sex life as part of a normal healthy lifesyle. 'Satisfactory' may have different meani...	mallani	18	2403	Apr 19, 2013 by K2
	Pain...... (Preview) I'm in severe pain in my upper back/ shoulders to the point of it becoming unbearable, I've a high pain threshold and reach the painkillers as a last resort but this pain is agonising. I have moved from paracetamol to cocodamol and am gradually increasing to a stronger and stronger dose. I started get...	Dopey	2	712	Apr 16, 2013 by Cinnamon Girl
	Arsenic (Preview) Hi all, decided to eat some brown rice, so as it's simmering away I decide to check into the arsenic scare info. Hope the dog enjoys a little rice in her kibble , cause Im not going to be eating it. Arsenic levels are higher in brown rice than white and higher if grown in the USA. You can rinse the heck out of...	Michaele	5	748	Apr 16, 2013 by Karen
	Fibroscan (Preview) Hi all I've been away recovering from my short tx! Its bizzare, but even though I was only only tx for 4 weeks its taking me a long time to recover from the sx. I remember feeling better sooner after 19 weeks of tx last time. But anyway slowly but surely I'll get there. ÃÂ I went for my fibroscan a couple of da...	Dopey	3	938	Apr 16, 2013 by Dopey
	Question About Alcohol Consumption After Achieving SVR (closed) (Preview) Before I ask this question, I want to clarify that my husband has HCV and not me. Also, even though I don't have HCV, I still do not drink alcohol. If someone achieves SVR, and they have no more virus attacking their liver anymore, why is it still suggested that someone abstain from drinking alcohol? ...	Carolinca	20	2887	Apr 15, 2013 by mallani
	ALT and AST (Preview) I am curious about these labs, as in what is a really high number. My doctor had me get a biospy cause my levels were high. 569 and 400. Can I get some input? Thanks	Brendalee333	1	803	Apr 15, 2013 by mallani
	Anyone Know this Particular Statistic on SVR? (Preview) Does anyone know the percentage of people who become detectable again once they achieve SVR? Thanks, Carol	Carolinca	2	731	Apr 15, 2013 by Carolinca
	Liver Imaging- a review (Preview) Hi all, This post was prompted by a discussion with a fellow patient while waiting for my doc to arrive. I knew her from cruising/sailing, and we had discussed HepC after finding we were the only non-drinkers at a beach party. She was about 60 yo, was F2 and was about to start triple Rx with Victrelis. She...	mallani	8	1045	Apr 12, 2013 by Daook
	New here (Preview) This seems like a wonderful place and I am so happy to have found it. A little back ground: A few weeks ago my husband hadnt been feeling well for about a week (headache and fever), went to the doctor and she diagnosed ear infection. Gave antibiotics and at follow up the ear infection went away, but he wa...	allib	13	1374	Apr 9, 2013 by allib
	Confirmation test positive : ( (Preview) My confirmation test was positive - my primary dr doesn't want to give me the viral load information etc but wants to send me to a specialist to have it explained to me. I understand it is high enough to start therapy. I'm hopping all this body ache and joint pain and being tired etc will go away after thera...	Ouchie	4	875	Apr 8, 2013 by Loopy Lisa
	Dishwasher at a restraunt (Preview) I have hep c... of course and i have worked 2 days as a dishwasher at a restraunt i wasnt even thinking about my problem but now i am worried, is there some kind of legal issue here? do i have to leave my new job?	Smothered	4	1574	Apr 8, 2013 by Cinnamon Girl
	serovital - amino acid and schizonepeta powder (Preview) I was wondering if anyone had any warnings for a product called serovital - an HGH increadeer with something called schizoneptea powder- I am reading mixed review son liver effects	JLynch30	2	2437	Apr 7, 2013 by Constance
	Clinical trails for Hep C w/ cirrhosis & cancer??? (Preview) Hi everyone. I am currently on treatment with Incivek and I know a lot about my own disease but this post is for my aunt. I have not seen her labs and only know what she herself has conveyed to me but she wanted me to ask you all some questions about her options and clinical trials. My aunt recently went to th...	SteffieHoney	10	1184	Apr 2, 2013 by Cinnamon Girl
	Do blood donation centers and or plasma centers report hepatitis c if they find antibodies in your blood ? (Preview) I guess Im asking that if I were told about being positive for antibodies but never got any further testing , can that donation center or does that center report this to any agency ? can an insurance company pry and get these results ? even if these results are NOT positive results of an active infection....	Ouchie	4	1083	Apr 2, 2013 by Biggyb
	Okay lol this is bad - now I'm freakin a bit (Preview) I had to come home - I climbed stairs at work ( 3 sets 3 levels ) I was totally out of breath and my knees buckled - I was very weak and started to get a little dizzy - tonight I'm sore all over , weak and have a stiff neck among other muscles. I went to my Dr today - he knows about the Hep c antibody positive thing bu...	Ouchie	5	1724	Mar 23, 2013 by mallani
	CMV Passive infection with HCV? (Preview) i have antibodies in blood for CMV and EBV, does that have any influence on SVR? or even reactivation of those 2 herpes viruses during tx? shall people who test positive on CMV antibodies check pcr vl of cmv during hcv therapy? found this article http://www.ncbi.nlm.nih.gov/pubmed/21175794	Zlikster	0	703	Mar 22, 2013 by Zlikster
	DAAs pricing (Preview) Found online (UK prices) that Telaprevir (2,250mg daily) is 22.400 GBP 12 week cost, Boceprevir (2,400mg daily) is 8.400 GBP 12 week cost. Why such price difference? I can't find any hints how much Sofosbuvir will cost, but i presume it will be in price range of Telaprevir? I am trying to figure out how...	Zlikster	2	1526	Mar 21, 2013 by Zlikster
	TRANSPLANT THREAD (Preview) Hi GM5 and Rio I thought a thread dedicated to all transplant issues and info would be a good idea - will make it a "sticky", later on today. It would be great to hear from anyone who's had a transplant or is waiting for one - your experiences could really help a lot of people who are just browsing...	greenqueen	20	5795	Mar 20, 2013 by BeingOral
	Understanding Ribavirin (Preview) Hi all, Ribavirin is an odd drug. It was discovered in 1970 and was found to have antiviral activity. It was sold in Mexico as a cure for the flu. In 1998, it received FDA approval for use in HCV in combination with Interferon. It is useless by itself, but it was found that SVR rates doubled when added t...	mallani	3	2259	Mar 16, 2013 by Matt Chris
	First Liver Specialist Appt - what do I ask? (Preview) Hello Everyone... <---- NEW HERE so please bare with me! I am a 29 year old female (will be 30 in less than 2 weeks). I first tested positive for HepC at age 13. My sister (16 at the time) was undergoing standard pre-op for a surgery when she tested positive. They thought it was a false + so they reteste...	Enavigo3891	9	1273	Mar 14, 2013 by Matt Chris
	Bad Mt Sinai Update (Preview) Hi everyone, dont know why I couldn't put this under a another discussion but regardless we have been hit but yet more bad news. We went for our follow up appt at Mt Sinai as we were told Tom had a liver laceration. I am sorry to report that we were informed the CT Scan revealed liver cancer. We are blown a...	tomyboy	16	1370	Mar 14, 2013 by mallani
	Symptoms of HVC are strange sometimes - can anyone verify or add new ? (Preview) Hello out there :) I would like to list issues I've had creep up on me in the last few years at a pretty slow pace and now that I'm aware of my HCV I was wondering if anyone has also experienced any of these. I want to list all I can think of and please tell me if anyone has also experienced any of these.... Sure w...	Ouchie	4	882	Mar 13, 2013 by LUV2RYDE
	new to this. 20g of fat. i dont want to gain weight trying to get the 60g a day. HELP (Preview) BEFORE i was diagnosed w hep c .. i was working on losing weight. now i have to find a way to add 60g of fat to my diet a day. i see no healthy way to do that. any suggestions???	tornadomia9190	7	1266	Mar 12, 2013 by tornadomia9190
	New website about Hepatitis C (Preview) Sorry, but we don`t allow people to promote or advertise other websites and forums here, thanks! -- Edited by Cinnamon Girl on Wednesday 6th of March 2013 10:37:31 AM	HepatitisCommunity	0	716	Mar 6, 2013 by HepatitisCommunity
	Question about new tx (Preview) Hello, King here. Thanks all of you for your welcomes. very much appreciated. I have a question. Ive read online about some new tx coming in 2014 and that the tx is only like 16 weeks or so, it doesn't make you sick and has like a 85% success. If this is true should I try and habg in there until 2014 and try this...	hepcinohio	7	1925	Mar 4, 2013 by Cinnamon Girl
	How does one expunge all remants of the HCV after one reaches undetectable? (Preview) Has anyone in our forum investagated on how one can expunge all remants of the HCV after one reaches undetectable? Also does the the HCV hides it self somewhere in the body? Matt	Matt Chris	16	1613	Mar 3, 2013 by Scout
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