|
Hello from the UK
(Preview)
Hi everyone - I've been looking round this forum for a while and found so much humour, mutual support and useful information that I thought it would be good to join instead of lurking on the edges! I am a 52 year old mum of two grown up boys, amicably divorced from their dad and have been happily settled wit...
|
Cocojojo
|
30
|
4595
|
|
|
|
|
Please help is it to late?
(Preview)
I'm so afraid I have a fibrosis score of f3 and a viral load of 1,600,000 and starting to get ascites. In the process of getting approved for treatment. Am I to late will my ascites improve and my belly go down? These doctors won't be straight up with me.
|
Dadinohio
|
23
|
4406
|
|
|
|
|
New And curious about insurance coverage.
(Preview)
Hi I am new to the forum and have a question about insurance coverage. Specifically, I have Federal Blue Cross Blue Shield, the basic option. I just got diagnosed today. I was wondering how advanced your hep c has to be in order to get prior approved for Harvoni. Has anyone had experience wit
|
Worriedguy
|
4
|
1396
|
|
|
|
|
Hi! New here and SO glad I found this board!!
(
1 2
)
(Preview)
Hi. I was diagnosed with HEP C June 2017. I have seen the NP in my GI's office, am Genotype 1a, my VL is 7.4 million and I have F1-F2 fibrosis. I had the Ns5 test and am resistant to both Harvoni and Zepatir, so my doctor prescribed Epclusa. I have been denied by my insurance company (apparently not sick...
|
Lindsmatt52
|
79
|
10907
|
|
|
|
|
8 weeks down-4 to go !!
(Preview)
I can hardly believe it but yea I'm 8 weeks in and have my last bottle sitting here ready. I'll take my last pill September 25 The last couple of weeks have been much better because I'm now taking the pill late evening. I should have done so from the beginning and would definitely advise others to do so.
|
gabbiegal
|
4
|
1708
|
|
|
|
|
Approved for Epclusa!
(Preview)
I got a call from my insurance company this afternoon telling me I have been approved for Epclusa! I almost started to cry, but was at work so I restrained myself. There are so many emotions going thru my head right now. For the first time in about 36 years my body and mind will start to feel better. It's be...
|
Phoenix17
|
22
|
3675
|
|
|
|
|
Hello - I just received a call from my drug plan that Harvoni was approved for me.
(Preview)
The doctor first put in for Epclusa and that was rejected. I was delighted to find an active Board - I looked at some sites where the most recent posting was from 2015!
|
Jenny1
|
10
|
2348
|
|
|
|
|
Hep C Geno 3 New Member here about to start Epclusa
(Preview)
Hi. Am about to Start Epclusa, I believe within a week, or a bit longer. Everything has been okd as of this morning. Just waiting for the doctor to write the prescription. Its been a trip. Fortunately I have a sense of humour + in retrospect typed too much.... lol Sort of introduced myself in anoth...
|
HepCGtype2
|
22
|
3094
|
|
|
|
|
Re Found this Forum and Finally Getting Treatment
(Preview)
I was diagnosed with Hep-C in 2006 and have traced my contraction of the disease back to 1977. I have type 1A and was initially told I had a high viral count, but I don't remember the number. After a liver biopsy I was told I had F0 to F1 fibrosis. My doctor advised me against treatment, as at that time the tr...
|
saludahiker
|
5
|
1794
|
|
|
|
|
Starting Harvoni this Sunday, Aug 6th
(Preview)
As part of a routine physical in June 2017, being a baby boomer, my blood was tested for HCV and found to be Reactive. After a series of tests I was informed that I have 400k viral load, type 1a. I have quietly felt fatigued for several years with brain fuzziness. By force of will I have continued to work, an...
|
polosilver
|
13
|
2613
|
|
|
|
|
Hi
(Preview)
I recently completed an Epclusa HepC treatment, 12 weeks, succesfully! My provider flipped the script on me before I got started with an original plan of being treated with Harvoni, and I ended up with a 4 week supply of Harvoni that is in my medicine cabinet right now... 28 pills, that have been kept in...
|
Kimchi
|
1
|
1539
|
|
|
|
|
Just failed Harvoni Treatment
(Preview)
In BC Canada and just failed Harvoni treatment. Had DNA testing to identify the drugs I am resistant to (the reason for the fail) and drugs that may work down the road. I am 1a with stage 4 damage having probably had this thing for 40+ years. BC is not offering re-treatment at this time although they "may"...
|
treatfailure
|
27
|
3888
|
|
|
|
|
New member and about to start Harvoni
(Preview)
Glad I found this site. I've no idea where to begin except well I think I may have had Hep C for over 30 years but was diagnosed 10 years ago. Seeing a Hepatologist at the Texas Liver Institute and set to begin Harvoni within next few days. Fortunately my insurance is covering 100% of the cost. I was also dx w...
|
gabbiegal
|
26
|
3267
|
|
|
|
Member Signatures - ALL members please read!
(closed)
(Preview)
On this type of message / support forum, each member has some HCV related information which pertains to them specifically. For example, each of us may have different genotypes, fibrosis stage, HCV medication, treatment start / end dates, etc. When you start a new thread or respond to another member...
|
wmlj1960
|
0
|
1401
|
|
|
|
|
Starting new hep c drug in August
(Preview)
I cmpleted 12 weeks of SolvadI and Daklinza 15 months ago. Genotype 3. The new drug is Solvadi wit 2 others I believe. I have stage 3 cirrosis. I'm not sure how to read the ultrasound report but am concerned about the elast reading of 216 with 271 being failure. Any advise or info will be much appreciate. ...
|
Dax
|
9
|
2264
|
|
|
|
|
In the middle of 12 week Epclusa and Ribavirin TX
(Preview)
Hi everyone! I posted on Epclusers corner at the beginning of my treatment. I have 8 weeks to go . The virus was undetectable after 2 weeks of treatment. Then the same at 4 weeks. I just had lab drawn last week and have an appt next week to find out those results. I have insomnia, headaches and fatigue which...
|
Mary
|
9
|
2103
|
|
|
|
|
I am cured but it took some doing
(Preview)
HI people My story is good and very bad, Yeah !! I am cured I took a 12 week treatment with Viekera & Ribavirin. I instantly felt a calm when I joined this site, a place where I can relate, ask those questions and feel like that I not judge for my past as a wild child of the 80s, dealing coke passing th...
|
cbr45
|
15
|
2509
|
|
|
|
|
First day on Epclusa, could use some moral support.. What should I expect?
(Preview)
Hello, i'm Chloe. I have had Hep C since birth and today was my first day taking Epclusa. I have had a series of stomach aches throughout the day so far but nothing too serious. What side effects have others had with this medication? I have severe anxiety about starting this treatment and I was wonderin...
|
legionscube
|
13
|
2792
|
|
|
|
|
New here and needing advice
(Preview)
Hi everyone, I have Hep C GT 1 which I likely contracted in 1970 or so but was diagnosed in 2000. I opted not to treat at that time since my liver tests were only slightly abnormal and a biopsy showed grade 1 stage 1. I decided to wait for an option with less side effects and continued to monitor through live...
|
KristinB
|
7
|
1785
|
|
|
|
|
Transmission
(Preview)
Hello there I am a 27 year old female. At 19 I found out I had contracted Hep C from my mom. I did pegasus treatment and since then have tested negative for a viral load. However I still test positive for the antibody. Can I still transmit the disease to others? I am concerned that my 9 month old daughter and m...
|
hepcbybirth
|
3
|
846
|
|
|
|
|
Ready Set GO? Getting Ready to start EPCLUSA
(Preview)
I have been living with Hep C that I received in 1985 from a blood transfusion due to an eptopic pregnancy that ruptured. I am excited yet scared to death to start treatment which will begin on June 26. I guess what I have read so far on this forum is that drinking a ton of water is the best way to combat the pot...
|
Scared E Cat
|
11
|
1510
|
|
|
|
|
Worried I May Have Hepatitis C
(Preview)
Hi all, I live in England and am concerned after watching a documentary today on Contaminated Blood and the major cover up that's gone on. Donated blood wasn't tested for Hep C until late 1991. I gave birth to my first child in 1990, and due to a massive bleed and collapse after birth I was given a blood tr...
|
WhatIsMyFuture
|
12
|
1599
|
|
|
|
|
Day 1 of treatment & feeling FYNE
(Preview)
 good morning everybody! This is my first post, this is my first day of treatment, this is the first of a lot of things, or I should say a lot of firsts are coming my way! My name is Fran or Meow76 I am 41 years old, in a relationship with my boyfriend of 12 years his name is Luis, I was diagnosed arou...
|
Meow76
|
1
|
753
|
|
|
|
|
Mucinex and Liver disease
(Preview)
Went on a a little vacation last week before I was scheduled to be biopsied for a mass in my right lobe. Came home with the FLU. Had to reschedule the biopsy because I wasn't comfortable with the idea of someone rooting around in my liver with a needle while I cough! So, thought I would try to fix the probl...
|
kozanne
|
2
|
956
|
|
|
|
|
Newly Diagnosed and just cant stop thinking about it.
(
1 2
)
(Preview)
Hello, I have been lurking on the side lines and finally have the courage to say hello. I am so new to this and very distraught. But I see all of the positive feedback everyone is receiving. Hope to get the same.
|
Tigerlily
|
68
|
7956
|
|
|
|
|
Diagnosed with hepatitis C and health providers telling me not to recieve Hep B vaccine
(Preview)
Started feeling very sick towards the end of my program in school. I decided to get tested for Hep B/Hep C and the Hep C test turned out to be positive. Right now am really bothered about health care the providers i've been sicking advice from telling me to wait until am treated before recieving Hepatiti...
|
beertastic
|
23
|
1265
|
|
|
|
|
Just found out I have hep c g#1
(Preview)
I have been feeling tired for years , My doctor kept telling me watch your sugar and lose weight and you will feel better . I kept seeing the Harvoni Tv ad and told my doctor I wanted the test and sure enough I have it I think for a long time I am 56 years old in 3 weeks married with 3 little girls 2 , 7 , 11 years old...
|
Rick
|
43
|
1279
|
|
|
|
|
Harvoni and HPV virus
(Preview)
Blood transfusion at 14 yrs old. Learned i had hep C in 2001. This is my six day on Harvoni. Only 1st few days were tough but water reallly diminishes side effects. Also have HPV virus and wonder if this powerful harvoni can also kill this virus. Seems logical and i'm hopeful. Any thoughts- or suggestion...
|
Ladybutterfly
|
7
|
958
|
|
|
|
|
EPCLUSA Hep C drug
(Preview)
Hi there I've just posted a report regarding the drug EPCLUSA for combating Hep C, in the new drug information forum I have almost been cured of Hep C with the aid of this drug my viral load is now 59 which began at 5044467.
|
Steampunk
|
11
|
1426
|
|
|
|
|
Counting down time to this first pill
(Preview)
All day I've been feeling anticipation and dread to take this first $1000 Harvoni pill. Please don't let me choke on it! I am not a morning person, so I decided to take it at 6pm tonight. Does the time of day make any difference anyway? Thankfully, my doctor's office handled all the arrangements wit...
|
SuzieLu
|
13
|
892
|
|
|
