Hep C Discussion Forum

Harry · Harry

Hi im 65 yts old geno 3 , 21000000 VL copd emphasemia 26 pills left to go then finished i wanted to have VL checked At 4weeks to see if tx is working and im not damaging my immune system as i dont need a flu or cold atm breathlessmes is common with phasemia epclusa seems to make me exhausted ,depresion ,consti...

joe56 · joe56

My name is Joe, from the great state of New Jersey and I've known I had HepC goin on 40 years now. I was 16 years old, on my bicycle riding with friends when I was struck by a car. (Really bad wreck - almost died - last rights read to me and all) Obviously blood I was given wasn't screened back in 1978 so I was give...

Doglover32 · Doglover32

Hi all, i just tried to post this but apparently it didnt work. Im new to this group and extremely scared about going in to get my HCV checked out. Im a 32 year old male whose had hep for approx 14 years and has been a weekend drinker. Im very active (gym 3x - 4x a week, hiking, mtn biking on many other days) I wor...

New member saying Hi · Android6

hi everyone, I have never been a member on any board before so I am unclear on protocol but just wanted to say hello and express my gratitude for being here. i have had Hep C for well over 30years and waited until this summer to treat with HarvonI. Sadly I am in the minorty statistic of those who did not clear...

Android6 · Android6

Has anyone ever heard that one can drink too much water after immediately taking Harvoni so much so that it might dilute or neutralize the drug?

Giggles · Giggles

Hello. I got diagnosed 12 years ago and am finally getting treatment. On my 3rd week and starting to feel better. I ran across this forum and wanted to join to have some insight from others going through the same thing I am. I am at stage 3, advanced fibrosis and am a genotype 1A or 1B (was 1B when first diagn...

Shemp · Shemp

I'm 3 days into 12 weeks of mavyret. I got hep C after a car accident in 1979. Five surgeries lots of blood kinda like unlucky lottery.I was diagnosed in 2000 but didn't go through treatment because of the side effects.Science has come a long way.and it's time.I feel like a little kid Christmas morning....

oolloo12 · oolloo12

Dear all, So my girlfriend is a nurse. 10 days ago, while she was doing some works, she got some infected blood on her face (hcv+).. She was wearing glasses (for sights reasons not for protection) but some blood may have end up in her eye(dripping). I am worried some blood may have end up in the mouth as w...

Karyl · Karyl

Hi, I'm new here. 65 yr old female with genotype 1a since I was in my early 20s. So basically I've been living with this monster all my adult life. First there was no treatment available, then it was awful like chemo. And expensive. I chose not to get treated as I need to be able to work full time. Still do, i...

webtomass · webtomass

Hi Everyone, New treatment: Sofosbuvir, Velpatasvir, GS-9857. 1 pill a day with food. I'm in the Deferred Treatment Substudy. This will be the one for all genotypes that will hit the market later this year or early next year. Its been 10 days and no side effects whatsoever. Vieira Pak + Ribavirin trea...

moochie · moochie

Hi all, Im new to a forum but not new to hep c. Dunno if I can make sense but heres whats up with my journey: Im a boomer so not a young one and in poor health... very high anxiety type & majorly neurotic. Diagnosed in 2000, GT 1a, VL 12mil. Tried & failed treatment in 2012/2013 (nightmare), peg-...

how to decorate my profile · Dandyindeed

What prompt do I use to create a profile pic and bio ?

woodytwoshoes · woodytwoshoes

Hi all, day 25 and doing well except for diarrhea the last two days with quite severe stomach cramps. Anyone else experienced this? Could just be bug but thought id ask anyhoo. thanks, Woody

holdingfire20 · holdingfire20

Sorry Bookworm, Suziq is correct. I should have mentioned that. There is help available. Do a search on this and you will see post others have done with links to financial assistance.

leaffine5212 · leaffine5212

It is great you have found out you have it, a lot of people can carry it for years without knowing. Forewarned is forarmed. There is great advancement currently in HVC research with new drugs on the horizen. There are a lot more SVR than not on the site, and others that relapsed or non responders, are hav...

james_mc85 · james_mc85

Hello everyone. New member from Scotland. I will be making a post in the post treatment section of the forum to give everyone my story

sunnyard5666 · sunnyard5666

I am a 57 years old female and was diagnosed with HCV in 1999. I contracted the virus from a blood tranfusion in 1977 in a bad car accident. My health is excellent. Genotype 1A, minimal liver fibrosis and inflammation, ALT and other liver enzymes almost always normal, viral count usually 1-2 million...

GoNavy · GoNavy

Hello All, Tomorrow I start Epclusa - scared and not sure when is the best time to take this drug. I do suffer from GERD as well and from what I've been reading the two don't mix very well. Any advise out there on time and stomach related issues would be greatly appreciate. I can't tell y 'all how gratefu...

karmab-itch · karmab-itch

hey there i have just started on the harvoni treatment and i am pleasently surprised at the lack of side effects i gently helped my life partner go through the interferon and it was hell no sleep burning skin walks at 4am to cool down core temperature i almost feel kind of guilty about the ease in which Har...

woodytwoshoes · woodytwoshoes

HI, new here, was going to start Epclusa tomorrow but have decided against it. I can't find any long term studies that show it won't cause cancer, liver failure etc. I am pretty healthy and have a low viral count. I think i will keep getting blood work done and keep an eye out for any changes for the worse. I...

JB · JB

Hi everyone! I'm so glad I found this forum. I've been lurking for a few days and have done tons of research over the past several weeks. I live a fairly healthy life. I ate OK, however, ate a lot of junk and processed food. I drank only moderately. I'm not overweight, just a normal guy in his upper 30s. I was...

Dishbrat · Dishbrat

Hello Everyone! I've been lurking and reading for a few weeks on here, and I've gathered quite a bit of information from the knowledgeable members :) I'm currently in the process of getting treatment, I've had my bloodwork done, and just yesterday, a sonogram of my liver etc. I've (tried to) create a s...

Ziggy65 · Ziggy65

... Greetings: I am new to the forums. 10 years ago, while I was being tested for breast cancer treatment at age 41, I discovered that I had Genotype 1 Hep C. (I was fortunate and caught the breast cancer early enough and I am a 10 yr survivor). I did a liver biopsy for the Hep C and doctor said, "You and He...

SeeTheLight · SeeTheLight

Just to say a big Hello to everyone. I'm behind the times only learning there were now effective treatments available to all, in July 2017. I was referred for treatment, got a reply saying we will ring you when we have an appointment for you, but when nothing seemed to come of it I had pretty well resigned...

5-1-18 · 5-1-18

so, my user name is the date I took my first pill so far so good and i'm happy to find this forum. I will add more as the days go by, for now i'm happy to be here to blog my journey. I am so happy I got on the treatment train after 35 yrs carrying the C. low viral load 3mil., no other tx besides a short trial of interfe...

mariasmile509 · mariasmile509

hello everyone who is just finding this place..... you have stumbled upon the greatest hep C and all other things health site on the internet..... i found this place by chance on google while surfing around hep info .... Im glad God said hay look here ....i dont belive in chance or randomness :) any...

Shortstack · Shortstack

Hey I'm completely new to this. I found this forum trying to look for some answers about how I'll be feeling once i start treatment tomorrow. I have genotype 1 and I'll be starting mavyret tomorrow once the pharmacy drops it off. I'm 26 years old and contracted hep c around 8 years ago. The insurance comp...

MotherOfDragons · MotherOfDragons

Hi Everyone, I was diagnosed with HepC GenType 2(b?) about 6 years back but I sought treatment only 1 month back. 2 months back these were my lab results AST: 124 ALT: 184 F score: .29 F1 A Score: .83 A3 I have completed 4 weeks of Epclusa and these are my current enzyme levels: AST:28 ALT:22 NO HCV detect...

WorriedO · WorriedO

Hello Everyone, Recently, a free clinic that I was attending had me test for hep c and I have a HCV/ RNA of 125,000 IU/L. I do have symptoms of fatigue, digestive problems, joint pain. Currently, I don't have health insurance, but I am looking into getting one as soon as possible. I would appreciate if an...

jcorum · jcorum

I posted on here a couple weeks ago that my son was diagnosed with Hep C. I am encouraging him to get on here but so far he has not. I told him he really needs support from those who have gone before him because he feels like crap. He is exhausted & it takes all he has to get thru his workday. He also feels lik...

Topic		Started By	Replies	Views	Last Post
	Epclusa treatment ( 1 2 ) (Preview) Hi im 65 yts old geno 3 , 21000000 VL copd emphasemia 26 pills left to go then finished i wanted to have VL checked At 4weeks to see if tx is working and im not damaging my immune system as i dont need a flu or cold atm breathlessmes is common with phasemia epclusa seems to make me exhausted ,depresion ,consti...	Harry	85	4134	Dec 12, 2018 by Tig
	Hi all. My name is Joe - Had HepC for 40 years - will be starting treatment soon (Preview) My name is Joe, from the great state of New Jersey and I've known I had HepC goin on 40 years now. I was 16 years old, on my bicycle riding with friends when I was struck by a car. (Really bad wreck - almost died - last rights read to me and all) Obviously blood I was given wasn't screened back in 1978 so I was give...	joe56	23	1684	Dec 9, 2018 by Shemp
	New and Scared (Preview) Hi all, i just tried to post this but apparently it didnt work. Im new to this group and extremely scared about going in to get my HCV checked out. Im a 32 year old male whose had hep for approx 14 years and has been a weekend drinker. Im very active (gym 3x - 4x a week, hiking, mtn biking on many other days) I wor...	Doglover32	41	2116	Dec 6, 2018 by Cheddy
	New member saying Hi (Preview) hi everyone, I have never been a member on any board before so I am unclear on protocol but just wanted to say hello and express my gratitude for being here. i have had Hep C for well over 30years and waited until this summer to treat with HarvonI. Sadly I am in the minorty statistic of those who did not clear...	Android6	38	1437	Nov 28, 2018 by 5-1-18
	Too much water after Harvoni? (Preview) Has anyone ever heard that one can drink too much water after immediately taking Harvoni so much so that it might dilute or neutralize the drug?	Android6	3	896	Nov 26, 2018 by lamassu
	Newbie (Preview) Hello. I got diagnosed 12 years ago and am finally getting treatment. On my 3rd week and starting to feel better. I ran across this forum and wanted to join to have some insight from others going through the same thing I am. I am at stage 3, advanced fibrosis and am a genotype 1A or 1B (was 1B when first diagn...	Giggles	21	1601	Oct 26, 2018 by Canuck
	Hello everyone,I'm new here (Preview) I'm 3 days into 12 weeks of mavyret. I got hep C after a car accident in 1979. Five surgeries lots of blood kinda like unlucky lottery.I was diagnosed in 2000 but didn't go through treatment because of the side effects.Science has come a long way.and it's time.I feel like a little kid Christmas morning....	Shemp	17	1532	Oct 4, 2018 by Tig
	Nurse (Preview) Dear all, So my girlfriend is a nurse. 10 days ago, while she was doing some works, she got some infected blood on her face (hcv+).. She was wearing glasses (for sights reasons not for protection) but some blood may have end up in her eye(dripping). I am worried some blood may have end up in the mouth as w...	oolloo12	2	1261	Sep 25, 2018 by oolloo12
	Can't afford treatment? What can I do? (Preview) Hi, I'm new here. 65 yr old female with genotype 1a since I was in my early 20s. So basically I've been living with this monster all my adult life. First there was no treatment available, then it was awful like chemo. And expensive. I chose not to get treated as I need to be able to work full time. Still do, i...	Karyl	27	1590	Sep 21, 2018 by Canuck
	Enrolled in Sofosbuvir/Velpatasvir/GS-9857 clinical trial (Preview) Hi Everyone, New treatment: Sofosbuvir, Velpatasvir, GS-9857. 1 pill a day with food. I'm in the Deferred Treatment Substudy. This will be the one for all genotypes that will hit the market later this year or early next year. Its been 10 days and no side effects whatsoever. Vieira Pak + Ribavirin trea...	webtomass	29	3265	Aug 26, 2018 by Hoodietree
	New here. Mavyret n me (Preview) Hi all, Im new to a forum but not new to hep c. Dunno if I can make sense but heres whats up with my journey: Im a boomer so not a young one and in poor health... very high anxiety type & majorly neurotic. Diagnosed in 2000, GT 1a, VL 12mil. Tried & failed treatment in 2012/2013 (nightmare), peg-...	moochie	20	2149	Aug 16, 2018 by angelseven
	how to decorate my profile (Preview) What prompt do I use to create a profile pic and bio ?	Dandyindeed	3	992	Aug 8, 2018 by 5-1-18
	day 25 epclusa (Preview) Hi all, day 25 and doing well except for diarrhea the last two days with quite severe stomach cramps. Anyone else experienced this? Could just be bug but thought id ask anyhoo. thanks, Woody	woodytwoshoes	4	937	Aug 3, 2018 by Canuck
	Im newbie (Preview) Sorry Bookworm, Suziq is correct. I should have mentioned that. There is help available. Do a search on this and you will see post others have done with links to financial assistance.	holdingfire20	1	984	Jul 28, 2018 by Tig
	Im newbie (Preview) It is great you have found out you have it, a lot of people can carry it for years without knowing. Forewarned is forarmed. There is great advancement currently in HVC research with new drugs on the horizen. There are a lot more SVR than not on the site, and others that relapsed or non responders, are hav...	leaffine5212	1	909	Jul 24, 2018 by Tig
	New here (Preview) Hello everyone. New member from Scotland. I will be making a post in the post treatment section of the forum to give everyone my story	james_mc85	1	1005	Jul 18, 2018 by Hoodietree
	Hi there (Preview) I am a 57 years old female and was diagnosed with HCV in 1999. I contracted the virus from a blood tranfusion in 1977 in a bad car accident. My health is excellent. Genotype 1A, minimal liver fibrosis and inflammation, ALT and other liver enzymes almost always normal, viral count usually 1-2 million...	sunnyard5666	4	1141	Jul 7, 2018 by Tig
	Newbie 2018 (Preview) Hello All, Tomorrow I start Epclusa - scared and not sure when is the best time to take this drug. I do suffer from GERD as well and from what I've been reading the two don't mix very well. Any advise out there on time and stomach related issues would be greatly appreciate. I can't tell y 'all how gratefu...	GoNavy	25	1541	Jun 29, 2018 by 5-1-18
	New Harvoni taker(i suppose) (Preview) hey there i have just started on the harvoni treatment and i am pleasently surprised at the lack of side effects i gently helped my life partner go through the interferon and it was hell no sleep burning skin walks at 4am to cool down core temperature i almost feel kind of guilty about the ease in which Har...	karmab-itch	14	1495	Jun 23, 2018 by Tig
	epclusa (Preview) HI, new here, was going to start Epclusa tomorrow but have decided against it. I can't find any long term studies that show it won't cause cancer, liver failure etc. I am pretty healthy and have a low viral count. I think i will keep getting blood work done and keep an eye out for any changes for the worse. I...	woodytwoshoes	24	1541	Jun 19, 2018 by Canuck
	New here, alone, scared... (Preview) Hi everyone! I'm so glad I found this forum. I've been lurking for a few days and have done tons of research over the past several weeks. I live a fairly healthy life. I ate OK, however, ate a lot of junk and processed food. I drank only moderately. I'm not overweight, just a normal guy in his upper 30s. I was...	JB	11	1360	Jun 7, 2018 by upstate
	New Here!! (Preview) Hello Everyone! I've been lurking and reading for a few weeks on here, and I've gathered quite a bit of information from the knowledgeable members :) I'm currently in the process of getting treatment, I've had my bloodwork done, and just yesterday, a sonogram of my liver etc. I've (tried to) create a s...	Dishbrat	21	3511	Jun 1, 2018 by Tig
	Greetings, I'm New. (Preview) ... Greetings: I am new to the forums. 10 years ago, while I was being tested for breast cancer treatment at age 41, I discovered that I had Genotype 1 Hep C. (I was fortunate and caught the breast cancer early enough and I am a 10 yr survivor). I did a liver biopsy for the Hep C and doctor said, "You and He...	Ziggy65	48	5032	May 26, 2018 by Ziggy65
	Hi All (Preview) Just to say a big Hello to everyone. I'm behind the times only learning there were now effective treatments available to all, in July 2017. I was referred for treatment, got a reply saying we will ring you when we have an appointment for you, but when nothing seemed to come of it I had pretty well resigned...	SeeTheLight	30	1589	May 22, 2018 by 5-1-18
	started harvoni 5/1/18 (Preview) so, my user name is the date I took my first pill so far so good and i'm happy to find this forum. I will add more as the days go by, for now i'm happy to be here to blog my journey. I am so happy I got on the treatment train after 35 yrs carrying the C. low viral load 3mil., no other tx besides a short trial of interfe...	5-1-18	5	1416	May 11, 2018 by Canuck
	hello everyone (Preview) hello everyone who is just finding this place..... you have stumbled upon the greatest hep C and all other things health site on the internet..... i found this place by chance on google while surfing around hep info .... Im glad God said hay look here ....i dont belive in chance or randomness :) any...	mariasmile509	1	853	May 4, 2018 by Canuck
	Newbie here! (Preview) Hey I'm completely new to this. I found this forum trying to look for some answers about how I'll be feeling once i start treatment tomorrow. I have genotype 1 and I'll be starting mavyret tomorrow once the pharmacy drops it off. I'm 26 years old and contracted hep c around 8 years ago. The insurance comp...	Shortstack	8	1467	Apr 9, 2018 by Canuck
	Questions about Fibrosis and NecroInflammation (Preview) Hi Everyone, I was diagnosed with HepC GenType 2(b?) about 6 years back but I sought treatment only 1 month back. 2 months back these were my lab results AST: 124 ALT: 184 F score: .29 F1 A Score: .83 A3 I have completed 4 weeks of Epclusa and these are my current enzyme levels: AST:28 ALT:22 NO HCV detect...	MotherOfDragons	15	3368	Apr 5, 2018 by Tig
	New here and would appreciate any advice (Preview) Hello Everyone, Recently, a free clinic that I was attending had me test for hep c and I have a HCV/ RNA of 125,000 IU/L. I do have symptoms of fatigue, digestive problems, joint pain. Currently, I don't have health insurance, but I am looking into getting one as soon as possible. I would appreciate if an...	WorriedO	1	1192	Mar 11, 2018 by Tig
	Greg Jeffreys (Preview) I posted on here a couple weeks ago that my son was diagnosed with Hep C. I am encouraging him to get on here but so far he has not. I told him he really needs support from those who have gone before him because he feels like crap. He is exhausted & it takes all he has to get thru his workday. He also feels lik...	jcorum	4	1641	Mar 3, 2018 by Tig
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