Hep C Discussion Forum

Karyl · Karyl

Hi, I'm new here. 65 yr old female with genotype 1a since I was in my early 20s. So basically I've been living with this monster all my adult life. First there was no treatment available, then it was awful like chemo. And expensive. I chose not to get treated as I need to be able to work full time. Still do, i...

webtomass · webtomass

Hi Everyone, New treatment: Sofosbuvir, Velpatasvir, GS-9857. 1 pill a day with food. I'm in the Deferred Treatment Substudy. This will be the one for all genotypes that will hit the market later this year or early next year. Its been 10 days and no side effects whatsoever. Vieira Pak + Ribavirin trea...

moochie · moochie

Hi all, Im new to a forum but not new to hep c. Dunno if I can make sense but heres whats up with my journey: Im a boomer so not a young one and in poor health... very high anxiety type & majorly neurotic. Diagnosed in 2000, GT 1a, VL 12mil. Tried & failed treatment in 2012/2013 (nightmare), peg-...

how to decorate my profile · Dandyindeed

What prompt do I use to create a profile pic and bio ?

woodytwoshoes · woodytwoshoes

Hi all, day 25 and doing well except for diarrhea the last two days with quite severe stomach cramps. Anyone else experienced this? Could just be bug but thought id ask anyhoo. thanks, Woody

holdingfire20 · holdingfire20

Sorry Bookworm, Suziq is correct. I should have mentioned that. There is help available. Do a search on this and you will see post others have done with links to financial assistance.

leaffine5212 · leaffine5212

It is great you have found out you have it, a lot of people can carry it for years without knowing. Forewarned is forarmed. There is great advancement currently in HVC research with new drugs on the horizen. There are a lot more SVR than not on the site, and others that relapsed or non responders, are hav...

james_mc85 · james_mc85

Hello everyone. New member from Scotland. I will be making a post in the post treatment section of the forum to give everyone my story

sunnyard5666 · sunnyard5666

I am a 57 years old female and was diagnosed with HCV in 1999. I contracted the virus from a blood tranfusion in 1977 in a bad car accident. My health is excellent. Genotype 1A, minimal liver fibrosis and inflammation, ALT and other liver enzymes almost always normal, viral count usually 1-2 million...

GoNavy · GoNavy

Hello All, Tomorrow I start Epclusa - scared and not sure when is the best time to take this drug. I do suffer from GERD as well and from what I've been reading the two don't mix very well. Any advise out there on time and stomach related issues would be greatly appreciate. I can't tell y 'all how gratefu...

karmab-itch · karmab-itch

hey there i have just started on the harvoni treatment and i am pleasently surprised at the lack of side effects i gently helped my life partner go through the interferon and it was hell no sleep burning skin walks at 4am to cool down core temperature i almost feel kind of guilty about the ease in which Har...

woodytwoshoes · woodytwoshoes

HI, new here, was going to start Epclusa tomorrow but have decided against it. I can't find any long term studies that show it won't cause cancer, liver failure etc. I am pretty healthy and have a low viral count. I think i will keep getting blood work done and keep an eye out for any changes for the worse. I...

JB · JB

Hi everyone! I'm so glad I found this forum. I've been lurking for a few days and have done tons of research over the past several weeks. I live a fairly healthy life. I ate OK, however, ate a lot of junk and processed food. I drank only moderately. I'm not overweight, just a normal guy in his upper 30s. I was...

Dishbrat · Dishbrat

Hello Everyone! I've been lurking and reading for a few weeks on here, and I've gathered quite a bit of information from the knowledgeable members :) I'm currently in the process of getting treatment, I've had my bloodwork done, and just yesterday, a sonogram of my liver etc. I've (tried to) create a s...

Ziggy65 · Ziggy65

... Greetings: I am new to the forums. 10 years ago, while I was being tested for breast cancer treatment at age 41, I discovered that I had Genotype 1 Hep C. (I was fortunate and caught the breast cancer early enough and I am a 10 yr survivor). I did a liver biopsy for the Hep C and doctor said, "You and He...

SeeTheLight · SeeTheLight

Just to say a big Hello to everyone. I'm behind the times only learning there were now effective treatments available to all, in July 2017. I was referred for treatment, got a reply saying we will ring you when we have an appointment for you, but when nothing seemed to come of it I had pretty well resigned...

5-1-18 · 5-1-18

so, my user name is the date I took my first pill so far so good and i'm happy to find this forum. I will add more as the days go by, for now i'm happy to be here to blog my journey. I am so happy I got on the treatment train after 35 yrs carrying the C. low viral load 3mil., no other tx besides a short trial of interfe...

mariasmile509 · mariasmile509

hello everyone who is just finding this place..... you have stumbled upon the greatest hep C and all other things health site on the internet..... i found this place by chance on google while surfing around hep info .... Im glad God said hay look here ....i dont belive in chance or randomness :) any...

Shortstack · Shortstack

Hey I'm completely new to this. I found this forum trying to look for some answers about how I'll be feeling once i start treatment tomorrow. I have genotype 1 and I'll be starting mavyret tomorrow once the pharmacy drops it off. I'm 26 years old and contracted hep c around 8 years ago. The insurance comp...

MotherOfDragons · MotherOfDragons

Hi Everyone, I was diagnosed with HepC GenType 2(b?) about 6 years back but I sought treatment only 1 month back. 2 months back these were my lab results AST: 124 ALT: 184 F score: .29 F1 A Score: .83 A3 I have completed 4 weeks of Epclusa and these are my current enzyme levels: AST:28 ALT:22 NO HCV detect...

WorriedO · WorriedO

Hello Everyone, Recently, a free clinic that I was attending had me test for hep c and I have a HCV/ RNA of 125,000 IU/L. I do have symptoms of fatigue, digestive problems, joint pain. Currently, I don't have health insurance, but I am looking into getting one as soon as possible. I would appreciate if an...

jcorum · jcorum

I posted on here a couple weeks ago that my son was diagnosed with Hep C. I am encouraging him to get on here but so far he has not. I told him he really needs support from those who have gone before him because he feels like crap. He is exhausted & it takes all he has to get thru his workday. He also feels lik...

jcorum · jcorum

My son has been extremely fatigued for about 6 months. Went to Immediate care & his liver enzymes were high. Sent him to Infectious Disease doctor (he is 34) and they diagnosed Hep C. I lost the paper where I wrote down his numbers when we went to the specialist but his viral load was several million....

Nirav · Nirav

We want a Hepc patient from USA seeking cure who is willing to travel to India on 29th December 2017 and is ready to face the camera for a commercial video shoot. All trip and Medicine expenses are paid. This is urgent. For more details you can send a personal message. Admins if this is not allowed please...

New member here · Stevebol

Hello to everyone! I guess I'll be starting treatment for Hep C fairly soon. I'm 59. Doc say's I have type Ib. I'm hoping for the best and I look forward to reading more info on this site.

bbomb · bbomb

Hi Everyone/friends!!! So happy to find you al to talk too that is going through the same treatment!!! omgoodness! Does this weakness and fatigue get better or worse into it, or does it just depend on the day? I'm one month into the Viekira pak w Ribavirin treatment and this last weekend I felt so ho...

Cocojojo · Cocojojo

Hi everyone - I've been looking round this forum for a while and found so much humour, mutual support and useful information that I thought it would be good to join instead of lurking on the edges! I am a 52 year old mum of two grown up boys, amicably divorced from their dad and have been happily settled wit...

Dadinohio · Dadinohio

I'm so afraid I have a fibrosis score of f3 and a viral load of 1,600,000 and starting to get ascites. In the process of getting approved for treatment. Am I to late will my ascites improve and my belly go down? These doctors won't be straight up with me.

Worriedguy · Worriedguy

Hi I am new to the forum and have a question about insurance coverage. Specifically, I have Federal Blue Cross Blue Shield, the basic option. I just got diagnosed today. I was wondering how advanced your hep c has to be in order to get prior approved for Harvoni. Has anyone had experience wit

Lindsmatt52 · Lindsmatt52

Hi. I was diagnosed with HEP C June 2017. I have seen the NP in my GI's office, am Genotype 1a, my VL is 7.4 million and I have F1-F2 fibrosis. I had the Ns5 test and am resistant to both Harvoni and Zepatir, so my doctor prescribed Epclusa. I have been denied by my insurance company (apparently not sick...

Topic		Started By	Replies	Views	Last Post
	Can't afford treatment? What can I do? (Preview) Hi, I'm new here. 65 yr old female with genotype 1a since I was in my early 20s. So basically I've been living with this monster all my adult life. First there was no treatment available, then it was awful like chemo. And expensive. I chose not to get treated as I need to be able to work full time. Still do, i...	Karyl	27	1055	Sep 21, 2018 by Canuck
	Enrolled in Sofosbuvir/Velpatasvir/GS-9857 clinical trial (Preview) Hi Everyone, New treatment: Sofosbuvir, Velpatasvir, GS-9857. 1 pill a day with food. I'm in the Deferred Treatment Substudy. This will be the one for all genotypes that will hit the market later this year or early next year. Its been 10 days and no side effects whatsoever. Vieira Pak + Ribavirin trea...	webtomass	29	2506	Aug 26, 2018 by Hoodietree
	New here. Mavyret n me (Preview) Hi all, Im new to a forum but not new to hep c. Dunno if I can make sense but heres whats up with my journey: Im a boomer so not a young one and in poor health... very high anxiety type & majorly neurotic. Diagnosed in 2000, GT 1a, VL 12mil. Tried & failed treatment in 2012/2013 (nightmare), peg-...	moochie	20	1372	Aug 16, 2018 by angelseven
	how to decorate my profile (Preview) What prompt do I use to create a profile pic and bio ?	Dandyindeed	3	768	Aug 8, 2018 by 5-1-18
	day 25 epclusa (Preview) Hi all, day 25 and doing well except for diarrhea the last two days with quite severe stomach cramps. Anyone else experienced this? Could just be bug but thought id ask anyhoo. thanks, Woody	woodytwoshoes	4	718	Aug 3, 2018 by Canuck
	Im newbie (Preview) Sorry Bookworm, Suziq is correct. I should have mentioned that. There is help available. Do a search on this and you will see post others have done with links to financial assistance.	holdingfire20	1	704	Jul 28, 2018 by Tig
	Im newbie (Preview) It is great you have found out you have it, a lot of people can carry it for years without knowing. Forewarned is forarmed. There is great advancement currently in HVC research with new drugs on the horizen. There are a lot more SVR than not on the site, and others that relapsed or non responders, are hav...	leaffine5212	1	711	Jul 24, 2018 by Tig
	New here (Preview) Hello everyone. New member from Scotland. I will be making a post in the post treatment section of the forum to give everyone my story	james_mc85	1	774	Jul 18, 2018 by Hoodietree
	Hi there (Preview) I am a 57 years old female and was diagnosed with HCV in 1999. I contracted the virus from a blood tranfusion in 1977 in a bad car accident. My health is excellent. Genotype 1A, minimal liver fibrosis and inflammation, ALT and other liver enzymes almost always normal, viral count usually 1-2 million...	sunnyard5666	4	842	Jul 7, 2018 by Tig
	Newbie 2018 (Preview) Hello All, Tomorrow I start Epclusa - scared and not sure when is the best time to take this drug. I do suffer from GERD as well and from what I've been reading the two don't mix very well. Any advise out there on time and stomach related issues would be greatly appreciate. I can't tell y 'all how gratefu...	GoNavy	25	1155	Jun 29, 2018 by 5-1-18
	New Harvoni taker(i suppose) (Preview) hey there i have just started on the harvoni treatment and i am pleasently surprised at the lack of side effects i gently helped my life partner go through the interferon and it was hell no sleep burning skin walks at 4am to cool down core temperature i almost feel kind of guilty about the ease in which Har...	karmab-itch	14	1060	Jun 23, 2018 by Tig
	epclusa (Preview) HI, new here, was going to start Epclusa tomorrow but have decided against it. I can't find any long term studies that show it won't cause cancer, liver failure etc. I am pretty healthy and have a low viral count. I think i will keep getting blood work done and keep an eye out for any changes for the worse. I...	woodytwoshoes	24	1116	Jun 19, 2018 by Canuck
	New here, alone, scared... (Preview) Hi everyone! I'm so glad I found this forum. I've been lurking for a few days and have done tons of research over the past several weeks. I live a fairly healthy life. I ate OK, however, ate a lot of junk and processed food. I drank only moderately. I'm not overweight, just a normal guy in his upper 30s. I was...	JB	11	1078	Jun 7, 2018 by upstate
	New Here!! (Preview) Hello Everyone! I've been lurking and reading for a few weeks on here, and I've gathered quite a bit of information from the knowledgeable members :) I'm currently in the process of getting treatment, I've had my bloodwork done, and just yesterday, a sonogram of my liver etc. I've (tried to) create a s...	Dishbrat	21	2477	Jun 1, 2018 by Tig
	Greetings, I'm New. (Preview) ... Greetings: I am new to the forums. 10 years ago, while I was being tested for breast cancer treatment at age 41, I discovered that I had Genotype 1 Hep C. (I was fortunate and caught the breast cancer early enough and I am a 10 yr survivor). I did a liver biopsy for the Hep C and doctor said, "You and He...	Ziggy65	48	3657	May 26, 2018 by Ziggy65
	Hi All (Preview) Just to say a big Hello to everyone. I'm behind the times only learning there were now effective treatments available to all, in July 2017. I was referred for treatment, got a reply saying we will ring you when we have an appointment for you, but when nothing seemed to come of it I had pretty well resigned...	SeeTheLight	30	1191	May 22, 2018 by 5-1-18
	started harvoni 5/1/18 (Preview) so, my user name is the date I took my first pill so far so good and i'm happy to find this forum. I will add more as the days go by, for now i'm happy to be here to blog my journey. I am so happy I got on the treatment train after 35 yrs carrying the C. low viral load 3mil., no other tx besides a short trial of interfe...	5-1-18	5	1009	May 11, 2018 by Canuck
	hello everyone (Preview) hello everyone who is just finding this place..... you have stumbled upon the greatest hep C and all other things health site on the internet..... i found this place by chance on google while surfing around hep info .... Im glad God said hay look here ....i dont belive in chance or randomness :) any...	mariasmile509	1	654	May 4, 2018 by Canuck
	Newbie here! (Preview) Hey I'm completely new to this. I found this forum trying to look for some answers about how I'll be feeling once i start treatment tomorrow. I have genotype 1 and I'll be starting mavyret tomorrow once the pharmacy drops it off. I'm 26 years old and contracted hep c around 8 years ago. The insurance comp...	Shortstack	8	1011	Apr 9, 2018 by Canuck
	Questions about Fibrosis and NecroInflammation (Preview) Hi Everyone, I was diagnosed with HepC GenType 2(b?) about 6 years back but I sought treatment only 1 month back. 2 months back these were my lab results AST: 124 ALT: 184 F score: .29 F1 A Score: .83 A3 I have completed 4 weeks of Epclusa and these are my current enzyme levels: AST:28 ALT:22 NO HCV detect...	MotherOfDragons	15	2540	Apr 5, 2018 by Tig
	New here and would appreciate any advice (Preview) Hello Everyone, Recently, a free clinic that I was attending had me test for hep c and I have a HCV/ RNA of 125,000 IU/L. I do have symptoms of fatigue, digestive problems, joint pain. Currently, I don't have health insurance, but I am looking into getting one as soon as possible. I would appreciate if an...	WorriedO	1	862	Mar 11, 2018 by Tig
	Greg Jeffreys (Preview) I posted on here a couple weeks ago that my son was diagnosed with Hep C. I am encouraging him to get on here but so far he has not. I told him he really needs support from those who have gone before him because he feels like crap. He is exhausted & it takes all he has to get thru his workday. He also feels lik...	jcorum	4	1054	Mar 3, 2018 by Tig
	New on here, son diagnosed 2 weeks ago with Hep C (Preview) My son has been extremely fatigued for about 6 months. Went to Immediate care & his liver enzymes were high. Sent him to Infectious Disease doctor (he is 34) and they diagnosed Hep C. I lost the paper where I wrote down his numbers when we went to the specialist but his viral load was several million....	jcorum	2	1217	Feb 24, 2018 by Canuck
	Sponsored Medical Tourism Trip to India (Preview) We want a Hepc patient from USA seeking cure who is willing to travel to India on 29th December 2017 and is ready to face the camera for a commercial video shoot. All trip and Medicine expenses are paid. This is urgent. For more details you can send a personal message. Admins if this is not allowed please...	Nirav	13	1765	Feb 22, 2018 by sweetyeliza
	New member here ( 1 2 ) (Preview) Hello to everyone! I guess I'll be starting treatment for Hep C fairly soon. I'm 59. Doc say's I have type Ib. I'm hoping for the best and I look forward to reading more info on this site.	Stevebol	75	8393	Jan 17, 2018 by Tig
	Any advice welcome here!!! ( 1 2 3 4 ) (Preview) Hi Everyone/friends!!! So happy to find you al to talk too that is going through the same treatment!!! omgoodness! Does this weakness and fatigue get better or worse into it, or does it just depend on the day? I'm one month into the Viekira pak w Ribavirin treatment and this last weekend I felt so ho...	bbomb	157	14947	Jan 14, 2018 by Tig
	Hello from the UK (Preview) Hi everyone - I've been looking round this forum for a while and found so much humour, mutual support and useful information that I thought it would be good to join instead of lurking on the edges! I am a 52 year old mum of two grown up boys, amicably divorced from their dad and have been happily settled wit...	Cocojojo	30	3671	Nov 12, 2017 by wendyo
	Please help is it to late? (Preview) I'm so afraid I have a fibrosis score of f3 and a viral load of 1,600,000 and starting to get ascites. In the process of getting approved for treatment. Am I to late will my ascites improve and my belly go down? These doctors won't be straight up with me.	Dadinohio	23	3477	Nov 11, 2017 by Canuck
	New And curious about insurance coverage. (Preview) Hi I am new to the forum and have a question about insurance coverage. Specifically, I have Federal Blue Cross Blue Shield, the basic option. I just got diagnosed today. I was wondering how advanced your hep c has to be in order to get prior approved for Harvoni. Has anyone had experience wit	Worriedguy	4	1332	Sep 19, 2017 by Lindsmatt52
	Hi! New here and SO glad I found this board!! ( 1 2 ) (Preview) Hi. I was diagnosed with HEP C June 2017. I have seen the NP in my GI's office, am Genotype 1a, my VL is 7.4 million and I have F1-F2 fibrosis. I had the Ns5 test and am resistant to both Harvoni and Zepatir, so my doctor prescribed Epclusa. I have been denied by my insurance company (apparently not sick...	Lindsmatt52	79	8892	Aug 31, 2017 by Tig
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