I found this site tonight and have been reading for hours. Wanted to say Hello. I am holding out on treatment, hoping for some of the new treatments to pan out. I have Hep C 1. I have had to get life in order, while I stay current on treatment options. Thank you all for sharing. Just the reading gives me cour...
NP has ordered a Kenalog shot for me just in case the rash that is enveloping me gets too bad. No fever, just crazy itching with ugly red welts - I know she wants to keep me on the teleprevir at least 8 weeks. Going into week 7 tomorrow. Have any of you folks had this shot or any other steriod shot while on tripl...
Hi all, today makes 12 weeks of triple therapy for me. The last time I posted i spoke about how unhappy i was with my 8 week results, Which they were still detectable. It took me a couple of day to get over being detectable along with another battle with anal discomfort which the discomfort is trying to w...
Howdy all, I'm new here. I just started treatment May 17th (I'm a member of the friday night darts club too) and I will never forget how awful I felt after that first shot. A few hours after leaving the doctors office, I started to feel tired and achey....and then what started out as flu-like aches turned...
Earlier Sustained Virologic Response End Points for Regulatory ApprovalAbstract - Background & AimsTrials of therapies for chronic hepatitis C have used detection of hepatitis C virus (HCV) at week 24 of follow-up (sustained virologic response [SVR] 24) as a primary end point. However, th...
Hi all, Hubby has just under 8 weeks to go. He is fast becoming desperately over treatment. He's suffering between severe diarrhoea and constipation. The diarrhoea being very bad and what he refers to as like 'burning lava'. We have spoken to our nurse/specialist about this, but again it's all...
Just had my one year after treatment blood work done. Thank God I am still undetected! Triple therapy is rough but one needs to do all they can to stay on treatment. Most sx cleared up but still having brain fog some skin problems and GI issues. Doctors don't seem as worried about them as I am. My doctors...
Greetings. New here. I've had Hep C for probably 40+ years. I DO NOT drink a drop of alcohol, and faithfully take milk thistle. Thank God, I seem to be cruising with elevated levels, but not dangerously elevated. About two years ago I was also diagnosed with iron overload...1500+! I'm heterozygous f...
Today I went to see my RN. Depending on my week 16 blood result. HGB:102 RBC:2.97 WBC:2.9 PLT:100 NEUT:1.5 My RN ask to add 1 pill RIBA to 2 pills in the morning, 1 pill in the evening. keep the pegasys 180. Keep watching on my weekly blood test. Bad thing is ALT:62 is higher than normal (<50). I...
Hi all, I'm new to the forum and wanted to intro myself. I was diagnosed 2006 w/genotype 2, a stage 1 (biopsy). Quit all alcohol then and hadn't used drugs in 35+ years. Did all my blood work faithfully and fell thru the medical cracks, now stage 4, cirrhosis stage 1, plus auto immune hep C (2nd biopsy). F...
Hi Into seventh week of treatment of triple (Bocep 3rd week), previous 2 attempts on double, genos 1 and 2. Bloody hell this is tough. My life feels like its on hold and consists of tacking meds at 6.30, hour travel to work = travel sickness, get to work = feel sick. more meds, go home = feel sick, no diet, a...
Hi everybody! I got my 12 week results today. Boy was I nervous to hear what doctor had to say, but the news was good...no sign of virus. The thyroid is still off, white cells still low, and potassium levels need increasing. So, meds for that will continue until its corrected. I too am getting my streng...
I have not started treatment yet, but will in the next month. To get myself ready I have been trying to do the 20+ grams of fat diet to ensure that my body can process it. I have belly problems with too much fat at one time. Not only that, but I also am NOT a breakfast eater . While doing some research online I f...
Type 1 8 weeks into triple therapy treatment Viral load undetectable at 4 weeks. At the end of six weeks on triple therapy I developed a burning in my urinary tract. My Dr. had me get a UA which showed no problem. The problem continues through my 7th and now into my 8th week. Has anyone else encountered or h...
Hi everyone! I am a 29 year old man living in the UK and in September 2012 I was diagnosed with both Hep C (1a) and HIV, both contracted from my previous partner. To hear such shocking news was an understatement, when the health adviser told me about my diagnosis, I just homed in the words HIV, the Hep C wen...
The journey to a new life has begun! Side affects not to bad so far. Looking forward to one month viral load test. After one week my liver enzyme levels are back in the normal range. Powerful drugs and a mighty God. So grateful to be moving in the right direction. Thanks to all for your support and knowledg...
I am about 6 weeks into treatment, still waiting for my last med since the insurance is being slow. My side effects have increased lately, and I noticed that the heat really gets to me. Anyone else get this?
My husband had a TSH test a few months before starting treatment, which came back normal. Now his doctor wants him to do a TSH test after 12 weeks of treatment. Is this really necessary? The TSH test can be quite expensive. Thank You, Carol
anyone knows does taking antihistamine pills to treat hay fever can reduce effectivnes of peg/riba therapy? will ask my doc on Friday...but already i am feeling, beside interferon sx, miserable from pollen. thanks
Just started treatment last Thursday. I've been Type II diabetic since my first treatment with Riba and Interferon back in the 90s. My fasting level is normally around 130. I take 100 units of Lantus every day. Yesterday my fasting level was 260 and today it is 340. I'll be at my docs office on Tuesday m...
Praying for undetectable! Sure would like to do only 24. Reading all your posts has been a inspiration for me. So many courageous folks out there! I haven't been around long but sure admire Vern! You are the MAN!! Thanks everyone,Fred
Day 1 of Sapphire phase III trial, had my first dose of 'meds'. After bloodwork, ECG, weight and Questionaires, the nurse explained the dosage routine and side effects (which i was mostly aware of). I felt at ease there, they're a friendly lot and my nurse was great in answering any questions i had. Bec...
I was wondering if working out aka lifting weights especially would be harmful while on treatment? Im overall healthy but get tired pretty easy...Im on peg\telep iba and about 2 and a half months in.. plz let me know thanks!!
I got 2 letters in today about the apprroval of my meds. I was approved for Incivek for a one month time period and for Peg for 16 weeks. Does anyone know what that means? Am I going to have to pay full price after the approval dates end? They also have denied the use of the specialty pharmacy that my physicia...
I just started the triple therapy tonight. I'm as ready as I can get. Anyone else doing the Peg on Thursday? My doc wanted me to do it on Thursday because I see him on Thursday mornings. My preference was Friday, but oh well. Let the journey begin! Ted
My Name Is jessie. i am at week 4 of triple therapy treatment for genotype 1 and doing very well with all the physical side effects, headaches being my only one and some slight anal itching. all that has been tolerable. however, i have been so irritable and had terrible mood swings and i dont know if youd c...
just out of curiosity do most hepc doctors help managing side effects or send people to specialists or their primary dr. ? i requested a lower dosage of my blood pressure meds due to the interactions with incivek and was told to go to my primary. also i asked the nurse for a prescription for anti-nau...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
