My husband had to stop incivek early and has been totally off riba several times as well as on reduced dosages at various times. Because of this, we've been concerned about continuing to get UND results. Today we got the results for Week 20 and he's still UND! And liver enzymes are normal. I'm just sh...
Just trying to get an idea of where it is in the clin phases? Anyone hear anything about how soon it might be out? I'm trying to decide if I should wait or not.
I've noticed many people new to the forum asking questions about their labs, particularly their blood cell counts. As I keep electronic and hard copies of ALL of my labs and radiology for past 20 years, I thought I'd post my tx labs on here to help all newbies, when they reach the point that their WBCs an...
I have just read an article relating to HCV Rx in Australia, as of Sept. 2012. Approx. 220,000 Australians have chronic HCV (1.1%). This compares to the US incidence of 1.8%. Only 1.7% of Australian patients have had Rx, or are being treated. I find this amazing. This may increase after December when V...
I am now in my 8th month of tx (ribaviren, interferon & boceprevir); it has been hell with rashes, open sores, eye fatigue, SOB, etc but now comes a real problem. My Gums are bleeding & teeth are breaking not mention turning dark brown. Sores on my lips hinder some mouth hygiene but I still brush...
Lab report from yesterday 1st lab after 22 days on 3x treatment- viral load from 11,000,000 to 64. I really needed to see that! Good response to meds. Dr. wants undetected by next 2 week visit. Also, red blood count at 12.5 - all looks good. I'm always tired and rash has started on right side of stomach ju...
Has anyone else had eye pain during Rx. ?. Pretty weird, only on lying down, and severe enough to make eyes water. Pain is directly behind eye globe. Rapidly disappears after standing up. Vision may be a bit blurry but that is probably due to eyes watering. Has woken me up from sleep 2 nights in a row, so I s...
finished incivek last friday and went to the 12 week labs!!! feel better much less itching going on and feel also lighter...longest 12 weeks of my life.....
Hi everyone, I have many questions but will start with a few. I am not a US citizen but is permanent resident. My viral load is now 10,7 million. I am obviously concerned as it has tripled in short amount of time. My question is, has any of you had to obtain medical insurance while being aware of your Hep C...
VL became undetected at 23.day of my treatment... Now i try to understand what is my chance of getting SVR? Does anybody have statistics about 4week results relations with SVR? Or how much it is possible to become positive at 12week results? I got statistics from incivo's advanced phase study that %9...
Hi Everyone, right now I am sitting in a lot of fear around my results. I had 3 tests done in Mexico where I was undergoing treatments for Hep C. My initiat viral load was 8.3 million and I felt horrible. After treatments I arrived a 2.9 million and felt fantastic! These test where done in a acknowledged c...
Week 18 coming through and the rage is catching up quickly. I'm never happy with anything or anyone. Create arguments out of nothing. Oh my poor family! Getting depressed and not finding happiness out of things i love and dont want to do anything at all. I will try diff antidepressants again, I am a real...
I just listened to the Diane Rehm show referencing Hep C and the CDC. Still a lot of misinformation and dated info in the media coverage of our disease. To bad.
Hi all, I need to start antidepressants before starting Tx. Being Bipolar I just ride the wave up and down and have learned how to use the wave. Get house work and gardening done while manic, bake like the dough boy, get the picture . When Im depressed I sit in front of TV or PC in the same duds ; all teary ey...
Well hubby and I went to the hospital today for his Week 6 visit. We were expecting to get the viral load results from Week 4 but the nurse told us that the machine had failed and the sample had been lost. Very disappointed...... After seeing the nurse, we went in to see the specialist and she said that t...
After three days of Tx I have begun to itch. I was aware this would happen and have trimmed my nails. It seems that the areas that itch most are my tattoos. Has this happened to anyone else? When getting tattoos they itch real bad during the healing process. Is it possible that being the immune system is in...
Took my second shot Friday and from the start it knocked me on my rear. Stayed in bed all day Saturday dizzy, lightheaded, weak and tired. Wow! not what I expected since last week I hardly noticed any difference in how I felt. Its worth noting and this could be the reason why such a noticeable difference,...
DiarrheaShe doesn't smell like a roseand everybody knowsShe'll get you in dutchYou can look but you'd better not touch Diarrhea, DiarrheaWell late at night when you're sleepingDiarrhea comes a creeping all around She's not sweet like a DaisyBut look out man she's crazyShe'll really do you in With...
Hi Everyone,It's good that that this petition is being highlighted on the forum, but could I remind people not to use ridiculously large fonts.I understand how passionate we feel about the need to get the point across, but it is very bad net etiquette and looks terrible. It could even put people off wh...
Incivek (Telaprevir) Fact Sheet From Treatment Action Group April 2012What Is Incivek? Incivek is a hepatitis C virus (HCV)-fighting protease inhibitor that works for people with genotype 1. Incivek blocks an important step in the hepatitis C virus life cycle. The HCV protease enzyme wor...
when my dr told me i tested + for hvc he also said that i might have Hemochromatosis. i have been reading on this disease also and some of the symptons are the same. can anyone help with this.
I went in to my doctor's office a couple weeks ago with a sinus infection and while talking to her, my doctor noticed that I have a lot of bruises. I told her I bruise easily, so she ordered blood tests. My liver enzymes came back elevated. 70 and 112. A new set of tests was ordered a few days later and the...
Hi Everyone,We would like to welcome News (Alan) as our new addition to the team. He's kindly agreed to work with 3 women, so please wish him all the best! Steff, Heather and Jill xx
Hi Everyone, Thought I'd pop my head in and say G'Day. It's been over a year now after my treatment and during the last 6 months or so I've been feeling a bit odd, (I'm normally quite odd anyway). I have been loosing weight, hot flushes hyperactive, really stressed out, hands shaking to name a few. Anyway...
how bad is portal hypertension? just been told on friday just gone ,the same day i started tx, that i have this ,and i might be put on beta blockers,i know its to do with blood pressure,i will google it see what comes back
A message of encouragement sent from Deirdre to Steve-o - "Just had this FB message from Deidre, she asked me to pass it on, I have. It May help someone.""I almost feel guilty saying this to you, because of the way your treatment turned out. But, I know you are bigger than that. So I was ho...
Hello,I takeVictrelis@ 6:30AM, 3:30PM and 10:30 PM (this is my 4th week)I also takeRiba@6:30 AM together withVictrelisand @6:30 PM by itself.This is 4 pill-taking times a day. Each time I have to take it with food or snack (according to directions. Thankfully does not have to be high in fat)....
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