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Post Info TOPIC: The "When is your last shot?" thread


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Hi Kevin, Welcome from me as well. You'll soon join the exclusive 48 weekers club! With your rapid response, the future looks good. Keep us informed and if you like, do a post in the New Members area. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm

Tig


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Congrats Sirslic! That's a long, long course of treatment and you should be thrilled (rightfully so)!! I wish you the very best of luck for SVR and continued excellent health!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Hello Kevih

Welcome to the forum and congrats on making it this far on your treatment, no easy feat.

We need more members like you, please relate your insight on what you have learned about your HCV journey during treatment, it may help others.

Matt



-- Edited by Matt Chris on Tuesday 3rd of September 2013 05:28:53 PM

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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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my last shot is 9/20/13 48 weeks never thought I would make it!!!



-- Edited by sirslic on Tuesday 3rd of September 2013 04:25:21 PM

 

1B, early cirrhosis must of had it 40 years doing 48 tx with incevick have been UD since week 2



-- Edited by sirslic on Tuesday 3rd of September 2013 04:33:31 PM

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My last shot will 9/22/13 Just picked up my last Rx. What a long strange trip it's been evileye



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1b, 3rd time around on treatment. Stage IV cirr. Undetectable at 8 weeks with Incviek. Been infected since the late 70s. 48wk treatment completed. Sustained undetectable. 



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This week biggrin



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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Tig


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Now that's going to be almost impossible to answer at this stage! That date depends on the lab results at week 12 or 24 or 36, assuming they use those results to make that decision. The sooner the better! hmm



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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December 20!  Right before Christmas. yay



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"



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July 30

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 1b, start triple treatment(incivek) on Feb 5, 2013.  UND@ 4,12,24 wks. EOT Aug 6, 2013



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July 26th

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Genotype 1a

1/18/13 -  VL 1.5mil triple therapy with boceprevir

2/3/14 - relapsed. 1.7ml

 

6/28/14 - started solvadi interferon and ribavirin for 12 weeks

7/28/14 - week 4 undetected dosage reduction of rib and peg

 

11/2/14 und 4 weeks post eot

 

g

 



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June 14 is last shot. I cannot wait.

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Diagnosed 1997, Genotype 1b, unsuccessful tx in 1998 (interferon), 2004 (interferon & riba). Started victrelis/interferon/riba 7/20/2012, finally UND at week 24, will continue for 48 weeks. EOT 6/20/2013 UND, 12 weeks post tx Relapsed



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Don't need any new drugs prescribed by a shrink.

July 26 will be my last shot.



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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.



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I have the same problem with crying at sad movies, emotional stuff etc. Suggest you see a shrink, it helped me a lot..



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August 16th will be the last shot... no. 24



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June 16th will be dart 48.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~



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April 12,2013 Shot #48! RIBA stops April 19th.
Soon I will begin the healing process.

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!



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Last shot is Dec 17, 2013.  I am looking forward to completing Incivik in 10 days also.



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Hep C 1a since probably 1981.  Incivek, riba and interferon-48 weeks.  UND at weeks 2-4-6-8-10-12-16-20-24.  Previously Interferon alone for 6 months non-responder.  SVR 48 weeks 12/11/14



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I'm getting no real definite dates on last shot

BUT I just a a call from my doctors  I now have a lab test that says   week 10 results   "UND"    I think I was UND @ week 6 but can't be sure Labcore has been unable to show a test result that was clearly UND

So I have 10 days of Incivek left 

Then on an indefinite sentence of Peg and Ribv  It started out 24 weeks after the relapse then up to 36 and now I hear they would like me to redo the whole 48 weeks  so see ya Friday's for another 36 weeks  As sick as it sounds I'm on the home stretch LOL

Thanks for all your support people and thanks to the one above

BS

 



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.



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Started on: December 17, 2011. Will end on:
November 10, 2012



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Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1



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My last shot was yesterday, but I was only on a 12 week triple with gs 7977.  I noticed that most of the sx seeemed to be cumulative, the fatigue got worse, and i really really hate to admit it, but i've begun to cry at sad movies and books.  I really have a lot of respect for those of you who are hanging in there for 24 or 48 weeks of this crap.  I hope this works because I don't think I would do it again.



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genotype 1a, viral count 7 M

7/12/12 started triple with GS-7977(400 mg 1/day), Peginterferon and Ribavirin  12 wk  trial

11/2012 no svr

12/10/13 new trial with sofosbuvir/ledispavir combo and riba12 wks

3/10/14 UND

3/16/15 still UND, and feeling great



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Last shot Oct 11. So far it's looking good for the 24/28 treatment . Good news because as I have all my meds till then, insurance can only be cobra as of 10/1 after I pay my $2,500 balance. Really, who can afford $1,100/ month for insurance? Hoping doctor still sees me as individual uninsured...since meds have been covered. Hate to add more financial terror to the non-stop self obsession that encompasses me. BUT...undetectable!

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Debra

 

Geno type 1a1b

Began Peg/Rib 4/16/2012  

Began Victrelis May 14, 2012            4 week and 8 week labs undectable

12 weeks und. 16 weeks und. Week 17 Cut peg, added Neopogen 5+months und.!



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Suey Very well said  I don't know what me feels like anymore either

  I'm in a similar situation   After relapse in July i Got another 24 weeks added to my 1st year sentence and They're hinting at the full 48 really scared they're gonna add another 24 all I can say is i feel your pain I hope we have the strength to keep on keeping on I'll root for you

Bills



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.



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My last shot is Jan 8th, it was supposed to be Oct 22 but I tested as still detectable at week 4 (altho too small to quantify). The news was not well received by me when the doc said I needed to go for 36 weeks. In fact, I've been pouting for the last 3 weeks. Maybe this snit will last until Jan. Yeah, yeah, I will snap out of it.....soon, maybe. But I can't remember what 'me' feels like anymore.

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Susan Yantz


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JoAnne, you inspired me to look it up. Last shot 9th Feb 2013, last pills 16th Feb. Wish I hadn't done that!



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



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My last shot is April 12th!!! Seems years away!
But grateful so this opportunity to beat the virus.
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!



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You sound so excited Kiwi Im excited for you too  So good to hear this

BillS



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.



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next week, in 6 days, on thursday 4 october, that will be my last shot... wow.... jawdrop.gif

 

laughing.gif this kiwi is a happy camper (quietly, still not jumpin up and down yet, too tired haha)



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)



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Hi,

I took my last dose of victrellis Aug.10th I do my last shot Nov.2,  I'll be on ribaviron for ten more days.  I can't believe I did it.  I can't describe the horror of it all but I'm on a count down and I'm undetected and can't wait to feel like myself again.  I wish you luck and some day you'll be writing this same e-mail to someone.

  The Very Best of Luck to You,  I'll keep you in my prayers,

Mike



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Gen 1A
VL 214

Im in a study started in July my final will be Jan 4, 2013 as long as I stay: wk 2- 7 UND.


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:) Awesome !!!!!!!!



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My last shot will be November 2nd, 2012. Can't wait!



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Last incivo: 25 october

End of treatment: 17 january 2013

SVR Test: 7 july 2013



-- Edited by cmerduran on Sunday 16th of September 2012 02:01:02 PM

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Murat
28.07.12: HCV-RNA +, VL:7.1m, 1b
02.08.12: incivo-riba-pegasys started
24.07.13: HCV-RNA: WEEK 3, 12, 24, 36, 50 UND(SVR!!)
*all men have fears but the brave, put down their fears and go forward... sometimes to death, but always to victory.


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August 10, 2012.



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Geno 1a, Viral load at 2 4, 8, 12 and 16  weeks, UND, Triple therapy Incevek done,   Peg & Riba Done, UND and making plans for the future!!



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Last shot is this Saturday, July 21, 2012 in the early afternoon. Anyone in the mid-Atlantic area should ignore any minor seismic activities or loud, warlike shouts from the west side of Baltimore. Just a happy shooter retiring the darts.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!



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May 23, 2013 , a week before Bass Opener here in Minnysoda



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.



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July 21 st, Sunday babe, 26th shot and last, Doc told me 26 wks is more than enough in my case! Yay! It seemed a long way from Jan 31st!



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I'm Alex. Diagnosed with hep c 12 years ago. Genotype 1a. Started tx on 1/31/12 Ironically, I'm an RN. VL 15.9 (!) mil.  Wk 5, 8, 12, 16, 20 - all UND :)



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Last shot is July 9.
ordinary

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ordinary

Third round of treatment. Started with telprevir and peg/riba in August 2011. UND after 2 weeks. Stopped telaprevir in Sept. due to rash. Continued peg & riba with addition of boceprevir. Did 48 weeks. TX ended July11th. Labs UND as of August.



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I heard that, Carl my friend. July 28 can't come fast enough for me. My friends and family are planning a big get together, with a beggars' banquet and the whole schmeel. I will be the happiest man on earth. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!



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August 2!  Doing 36 weeks.  Can't get here soon enough.  Most I miss the REAL taste of food and the energy to get moving!



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Geno 1B Relapser 2001. Started Incivek 12-16-11. 57 yr old male.  Last biopsy 2000 -stage 3 fibrosis. UND Wk4, 12, 18, 26.  Did 34 weeks.  Still UND at 12-wks post.



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I throw my last dart Friday August 17th.  Tomorrow night is dart 40, 8 to go after that.  Still lack much energy, but I was buoyed by Undetectable at week 4, 12, 24 and last Fridays (really week 39) also Undetectable.

Think I've Slayed the Dragon! 

Hail Hail Incivek, despite it's side effect (surgery to fix a fistula in ano).

To those on treatment or getting ready to start;  HANG IN THERE, FIGHT THE GOOD FIGHT!  I'm my case and I hope yours it's worth it.

Geno 1A




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ScotU - Age 61, Geno 1A, Diagnosed 1999. Cirrhosis (so no more biospy's), but decent MELD score.  Too many studies, trials, and treatments to remember!  24 Week Harvoni (w/ Ribavirin) Trial - SVR @ 24 Post - 8/28/15

kr


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Sept 7 - I am doing 48 weeks also and on week 31 (17 more shots to go)



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I am on week 36. I have to go to 48 and don't know if I can make it that long. After the Incivek I thought it would be a walk in the park. Not true. I guess I am just getting old and tired. This is my 3rd time on treatment. F

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The week 12 labs came back today so I finally get to post in this thread. And they came back UND! Super happy, I get to go 10 more weeks instead of another 34.

Last Dart- July 13th
Last Riba- July 19th
B-day- July 22nd

I didn't realize until my third week of treatment that I might be able to go 24 instead of 48 weeks. I've never told Jen as I didn't want to get our hopes up in case it didn't pan out. Keeping it a secret for a few more days until her birthday on Saturday.

"Looking good, Billy Ray! Feeling good, Louis!"

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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo



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May 18th



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June 8th



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12



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January 2013

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Type 1B - Unknown for 30 years, diagnosed September 2011, started treatment February 2012

8 weeks Incivik - stopped early due to rash.

Continuing Pegasys and Ribavirin until January 2013 - 48 weeks

Undetectable from week 4 --> present



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I am thinking that June 29th will be my final dart!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!



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I can finally post in this thread! Yeah! Until today I didn't know how long I would be on tx. Just found out today that I am UND after 4 weeks on Victrelis, so my tx time is now 36 weeks, making my last shot around Sept 30! Wow, what an amazing feeling to know that it IS working, and I DO have an end date.

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Genotype 1a, non responder to Peg/Riba in 2005. Started triple therapy 1-27-12 with Victrelis.  UNDETECTABLE as of 8wk labs (after 4 weeks of Victrelis) 4-3-12. UND at week 8, 12, 16 & 20 of tx. Completed triple therapy Oct 2012. relapsed 10/2012



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August 17 2012



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Geno 1a, Viral load at 2 4, 8, 12 and 16  weeks, UND, Triple therapy Incevek done,   Peg & Riba Done, UND and making plans for the future!!



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I just calculated...

Last injection is Tuesday July 10th!!!  



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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!


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