Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> My turn at bat
Post Info TOPIC: My turn at bat
news


Guru

Status: Offline
Posts: 850
Date:
RE: My turn at bat
Permalink  
 

Yes, as Shep said, the horns and tail come and go pretty much at their own convenience. The all-over red color (like Hot Stuff the devil) is very popoular with Incivek patients, but you two are both Vic guys, so you might not get to enjoy that one.

Right now the big sx for me is being out of breath anytime I climb stairs or try to jog a little bit. Very low hematocrit, and also neutrophils (a white cell thing), but not low enough to treat. I just get to live with it. 

I'll be watching you closely, wishing for smooth sailing. 

Alan



__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Shep


Guru

Status: Offline
Posts: 592
Date:
Permalink  
 

Hey Tim--glad you are hanging in there. My doc recommeded taking one extra-strength tylenot and one ibeprophen. Something I would never have tried--it helps take the edge off the headaches and bodyaches and aches. And of course water, water, water.
My horns and tail pick the most inopportune times to pop out!

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
hrsetrdr


Guru

Status: Offline
Posts: 940
Date:
Permalink  
 

Hey, thanks all for the well wishes and words of encouragement! The injection class went well, this morning I woke up with a bit of a headache, but I've been hydrating-up in hopes to quell the headache without using Tylenol(which isn't very effective anyway). Had my first dose of Ribavirin, so far i haven't grown horns and a tail....yet.   biggrin



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Hep Me


Senior Member

Status: Offline
Posts: 472
Date:
Permalink  
 

Good luck Tim, you'll do alright.

__________________

"Ah but I was so much older then, I'm younger than that now."  Bob Dylan
alohaKim


Senior Member

Status: Offline
Posts: 125
Date:
Permalink  
 

Welcome Tim! I'm on the same regimen you'll be taking. On week 12 now. It's not easy, but it's definitely manageable & YOU CAN DO IT!!!
Aloha!


__________________

Genotype 1a, non responder to Peg/Riba in 2005. Started triple therapy 1-27-12 with Victrelis.  UNDETECTABLE as of 8wk labs (after 4 weeks of Victrelis) 4-3-12. UND at week 8, 12, 16 & 20 of tx. Completed triple therapy Oct 2012. relapsed 10/2012
JIme


Guru

Status: Offline
Posts: 733
Date:
Permalink  
 

Way to go Tim.   Welcome.



__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Shep


Guru

Status: Offline
Posts: 592
Date:
Permalink  
 

Welcome aboard Tim! I too am on Vic triple tx--getting ready to start week 18 out of 28! Keep us posted on how you are doing.

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
jrc


Senior Member

Status: Offline
Posts: 207
Date:
Permalink  
 

I completed treatment with victrelis that you will be on, if you have any questions pm me!smile



__________________

Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
chatterbox


Veteran Member

Status: Offline
Posts: 83
Date:
Permalink  
 

Welcome here. I had my first shot Monday. 5 days now and still feel fine. Went from being so scared about side effects to wondering why I don't seem to Have any.. Anyone else?

__________________

Debra

 

Geno type 1a1b

Began Peg/Rib 4/16/2012  

Began Victrelis May 14, 2012            4 week and 8 week labs undectable

12 weeks und. 16 weeks und. Week 17 Cut peg, added Neopogen 5+months und.!
wilsondog


Senior Member

Status: Offline
Posts: 127
Date:
Permalink  
 

Welcome aboard Tim! Hope it's smooth sailing all the way for ya!

Kate



__________________
wilsondog
greenqueen


Guru

Status: Offline
Posts: 2282
Date:
Permalink  
 

Hi Tim and welcome back smile

Wishing you all the best with your tx and let us know how you're getting on aww

Love Steff xx

 



__________________
Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
hrsetrdr


Guru

Status: Offline
Posts: 940
Date:
Permalink  
 

Thanks Iris!    
news wrote:

Go for it, Tim. Glad to hear you are getting started. Stay in close touch with us. You mention peg and riba. Is there a third drug in your protocol?

Alan

 Yes, I'll also be using Boceprevir starting  on Day 29.     I'll definately be posting here regularly, to share the "ups & downs" with you all, as a group with whom I have so much in common .  

 

-Tim



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
news


Guru

Status: Offline
Posts: 850
Date:
Permalink  
 

Go for it, Tim. Glad to hear you are getting started. Stay in close touch with us. You mention peg and riba. Is there a third drug in your protocol?

Alan



__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Iris Dragonfly


Guru

Status: Offline
Posts: 1166
Date:
Permalink  
 

You Go Tim! Best wishes for minimal symptoms, and may you have a speedy recovery! Blessings, Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
hrsetrdr


Guru

Status: Offline
Posts: 940
Date:
Permalink  
 

After having been here[mostly lurking] for over a year, I finally get to join the ranks of those here "on treatment".  

I do my first Pegasys shot today at the "give-yourself-a-shot" training class at Kaiser-Permanente; not doubt I'll also  be gulping down Ribavirin caps like they're going out-of-style.

 

Here we go!    wink

 

-Tim



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> My turn at bat
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.