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Hep C Discussion Forum -> General Discussion -> Really really confused with the VA
Post Info TOPIC: Really really confused with the VA
Rich


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RE: Really really confused with the VA
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Well things do change. I am in Portland. I met my daughter after not seeing her since she was 6. She is now 27. Things are going well with our relationship and I am looking to stay up here now for my daughter.
I am having an issue with finding a place to live though. After I find a place to live I will be making a new appointment with the nurse.
I do notice I am feeling a little weak and more brain fog when I'm tired. I'm thinking I need to get on with this thing.

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Rich


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I finally have a date when I meet the new Dr. He is located at the mare island clinic. It will be closer to Napa and no toll. I talked to the nurse and we have an appointment set for 17th of July. I forgot to ask if that is when I will start treatment. I got more info on follow ups and VL draws. Once every 2 weeks. That's more like it. So as soon as I get back from visiting my daughter, who I haven't seen in 21 years, I hope to start this next life chapter.

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Rich


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thanks Cinnamon Girl.

Kiwi- i never did a blood transfusion or got a tatoo. Unfortunitly i did do IV drugs during my stint.

Phil- I will be talking to a new Dr. in July. i will insist that we have consistant folllow ups.



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Cinnamon Girl


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Hi Rich, have moved this thread to `General Discussion` for you, no prob.

All the best of luck to you with getting your tx plan sorted out, that`s just ridiculous and totally inappropriate for this type of tx.

~  Jill xx

ps - Love your `Sisyphus` avatar - I know it feels as though you will be trying to push that rock up the hill forever more, but you`ll get there in the end.  Keep persevering!



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
hrsetrdr


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Yes, it would be an uphill battle for sure. Here is a document that may be of interest:

https://docs.google.com/open?id=1nF_do99D8ir88bMa7yr8HrFs6Mpj5xnLS-D255FRLFItBEj5LhJQanrlRfPI

Another link:

http://www.leatherneck.com/forums/showthread.php?8695-Hepatitis-C-Alert-Military-air-gun-shots

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Rich


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sorry to keep this topic going in the "on treatment form". if the mod could move it to General discussion, that would be great.

hrsetrdr

Anyway. thanks for the info . But i dont know after this long how i would prove that i had it when i got out of the service. I may have to do some research on that. Never dawned on me that i would of gotten it thru the innoculations. 



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kiwi


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yeh rich, i know a guy in florida who got hepc when he was in the marines, they lined them up for a jab, and wah lah, they all got hepc.... (hes never had a blood transfusion or used drugs or got tattoos)

its a real possibility depending on your age...



-- Edited by kiwi on Sunday 13th of May 2012 07:36:27 AM

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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
hrsetrdr


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Rich,

Have you filed a claim for service-connected disability for the Hep C? Of course, the V.A. isn't acknowledging a service connection, but there is a lot of indicators pointing in that direction.

Some informative links:

http://www.vietnow.com/pagesmagazine/rdarling.htm

http://usamma.detrick.army.mil/ftp/mmqc_messages/Q971169.txt

http://www.heathersveterans.org/hepatitis.htm



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
fireflash


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Began my tretment with the VA Marion, Ill., and have no complaints. After my biopsy they continued contact with regular labs. Began treatment 4/3/12 with peginterfiron/Ribi and just started the Victrelis today. Orriginal VL, 10,800,000. Today, five weeks in, 600,000. I agree with Phill 100%, I spend more time with the Nurses then With Dr. contact. Hang in there and I hope your local VA gets it together. I feel bad for you cause that's home for me, Walnut Creek, CA. So far so good, NO SIDE EFFECTS!!!!



-- Edited by fireflash on Saturday 12th of May 2012 06:28:09 PM

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Geno type 1  2011, 10,800,000 vl. March 2012 vl 3,000,000 no meds. Started interferon and ribavirin on 4/3/12. Just started victrelis today 5/12/12. Current vl, 600,000. I'm a FF/EMT and got this from job hazards.
Phil G


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Before I started tx, I found the VA website, and liked the information they published. But I have had friends deal with them for mororcycle wrecks, and they don't seem to move very fast. I agree with Alan, this isn't right. I really think there is some confusion over the biopsy followup and the regular tx schedule. I would talk to your doctor or his office to verify, in person preferably. There was a lot of confusion when I started tx as the dr did not provide any clear instructions on blood draws. Once I sat down wth the nurses and got the schedule, it has gone well. To be honest, my followup visits with my dr aren't of much use, but regular contact with the nurses has been, mainly to get my lab results. I think I see the results before my dr does.



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
news


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No, I have not dealt with them. But I have to say, at the risk of sounding negative, that that is the stupidest treatment plan I have ever heard. What about regular bloods, to detect anemia and low whites and high liver enzymes. What about a VL just to see if the treatment is working? What about the common courtesy of letting the patient know his/her chances for success. For crying out loud. Now I'm all pissed off. Sorry.

Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Rich


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After finally meeting with the G.I. Today, I got the results from my biopsy done in Feburary. Stage 4, level 3-4. VL of 1.6 mil. Looks like I will start treatment in July. At martenez CA. Once I start treatment my follow up appoint ment will be 9 mos. WHAT? Dosn't look like they will be doing VL test, but will be doing biopsy at 9 mos. Has anyone else delt with the VA in treatment.

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