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Hep C Discussion Forum -> On Treatment -> At Last...... 24 Week Labs!
Post Info TOPIC: At Last...... 24 Week Labs!
news


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RE: At Last...... 24 Week Labs!
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Hi, Trisha. I saw your post saying the stuff had arrived and you were preparing to begin. Good for you, and welcome. I will be keeping an eye out for you. Be sure to post if you need advice. That's one thing we have plenty of. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
LUV2RYDE


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Congrats Alan...keep going strong. I am just getting started on my journey....but have alot of hope thanks to many of you on this board.

 

Trish



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Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 
LanaiSurferGirl


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so nice to hear that everyone is kickin virus butt lately! :)



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
news


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Nothing is so happy as a long term UND. 29 weeks! Spectacular. Go kiwi. Kick them virus asses.

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
kiwi


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yaaaaay and me too. just found out right now. still undetected.. im in week 29 im stoked....



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
AlexNY


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Good news, news) keep it up !!!! those labs are everyone can wish for!



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I'm Alex. Diagnosed with hep c 12 years ago. Genotype 1a. Started tx on 1/31/12 Ironically, I'm an RN. VL 15.9 (!) mil.  Wk 5, 8, 12, 16, 20 - all UND :)
innerview


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Thanks Alan!

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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
news


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It was a sad day. But right now I am more concerned about your pneumonia. Be careful, take care and get rid of that quickly. Thank goodness you mentioned it to the nurse. With 0.4 neutrphils you cannot afford untreated infections.

Say hello to Charlie Whitesox and to that fine looking young man that helps you to care for him. 

Feel better fast.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
innerview


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Great walk with Charly Whitesox! We had a blast.

I wonder why they don't add a week of Incivek instead? I question this stuff all the time. Seems an extra week of the wonder drug would do the trick. I realize it is all a guessing came for the most part.


"The only time it really hurt was at the end of the 24th week, when I should have been done. Instead, I put my head down and charged into the 25th week. Now I am in the 27th already. "

Ouch!  I can feel that already.

no




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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
news


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Great idea, Mark. A walk in the forest is time well spent, and with your dog it's even better. In treatment I found that any form of gentle exercise was very helpful, so I still do it today even though I feel pretty good most of the time. I did protest the additional twelve weeks, but in all honesty I had read the manufacturer's material on the subject and was not surprised when my nurse practitioner refused to budge. The fact that a few strands of virus still exist must mean that they have a hiding place, or the body is not spreading the meds to all areas evenly, or something like that. Truth is, once I finished Incivek I started feeling so much better that additional time didn't sound as bad. The only time it really hurt was at the end of the 24th week, when I should have been done. Instead, I put my head down and charged into the 25th week. Now I am in the 27th already. 

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
innerview


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Hi Alan! Congratulations!

As I am also up for an additional 12 weeks of tx, and you also had very low VL at week 4, I wanted to ask you if you ever questioned doing the extra time? and what info your dr gave you to support going the extra mile?

thanks.

I'm not going to ride a bike... but I am going out to walk the dog in the forest in your honor! ... It's going to reach 70* here today!!!!

Peace,
Mark



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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
news


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Thanks my friend. I actually feel almost good most of the time. Just a little tired, and I have gotten used to that. The way the body adjusts to adversity is amazing. Keep up the good fight. You seem to be trudging right along. Did the 27th Pegasys injection yesterday, and I'm training for the MS 150 Bike Tour to be held June 9-10. I am quite sure I'll be the only participant doing a Pegasys injection Saturday evening after the first day of riding. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
hrsetrdr


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Some good lookin' labs Alan! 



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
news


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Great news, Meghan. I knew you would do it. I'll be thinking of your brother often. I hope he is able to carry on. So, off we go on our penalty laps. Like you said, they will fly by. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Shep


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Hey Meghan
Congrats to you and your brother! Love hearing good news. Bet you can't wait to see your hubby--hope you guys have a wonderful vacation!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
LanaiSurferGirl


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24 week labs came in and I am still undetectable!! :) Just a little over 10 weeks to go and it will fly by fast.  My husband comes home from Afghanistan in about 3 weeks then we will go on vacation a week later so I have lots of things coming up to keep my mind busy not thinking about treatment!

My brother's 12 week lab results came in and he is still undetectable as well.  He is having some depression and was on lexapro but not working so is switching soon.  I am praying that he stays mentally tough enough to make it to at least 24 weeks!

aloha,

Meghan



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
news


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Thanks, Meghan. 

I am so glad to have you to walk along with me as I do my twelve extra weeks. Hope you are feeling good. I have changed my avatar to show a picture of Adam and I riding the MS 150 last year. This is mile 78 on the first day.

Be SURE and let me know when your Week 24 labs come in.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
LanaiSurferGirl


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wow!  I just read you are doing the MS150....where do you have that kind of energy??!!??  I want mine back!  :)  Good for you!  I wish you luck and happy times with your grandson.



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
LanaiSurferGirl


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Congrats Alan!!!  I am right behind you and find out the results to my 24 week labs on Friday....hopefully the viral load will be in by then :)  I am still on track to do my extra 12 weeks too unless the doc says something different.  I will keep all of you posted.

aloha,

Meghan



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
elizabeth


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Congrats Alan!  We're thrilled for you!   It's wonderful to know that there can be good news.



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news


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Count on it, Iris. This has become my extended family.

Thanks all you crusaders for the kind words and well wishes. And kiwi, 48 weeks IS the dog box, for sure. But we've been in worse places, right?

June 9-10 is the annual MS 150 Bike Tour down in Chestertown, MD. My grandson and I will be riding. The event calls for 100 miles Saturday and 50 more Sunday. I am going for 50 each day. I'll be proud to do that much. If any of you are feeling wealthy you can sponsor me at:

http://main.nationalmssociety.org/site/TR?px=2312558&pg=personal&fr_id=17584&s_tafId=219568

Keep kicking virus butt. It's what we do.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Iris Dragonfly


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hey Alan, this looks great! keep up the good work, we still want to hear your witty posts, so stick around, K? Blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
kiwi


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yaaay alan. haha extra 12 for bad behaviour. lol. what does 48 weeks mean. in the dog box. lol....

glad you are kickin ass of this dodgy virus... :)



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Sunrise747


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Congratulations Alan!  And thanks for sharing the really interesting spreadsheet!  Always helpful to see how someone else is trending.



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Geno 1B Relapser 2001. Started Incivek 12-16-11. 57 yr old male.  Last biopsy 2000 -stage 3 fibrosis. UND Wk4, 12, 18, 26.  Did 34 weeks.  Still UND at 12-wks post.
Shep


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Yea Alan! This just makes me so happy for you and I looked longingly at my bike in your honor!! Next 12 weeks are going to zoom by!!--like those seniors passing Dave--sorry couldn't resist.

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
jrc


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congratz



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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
davesf


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Congrats Alan! You're 2/3 of the way there. I too took a bike ride in your honor today. (I had to walk all the hills and at one point I got passed by a senior couple on the small foldable bikes, but heck, I'll take it)

It looks like your blood counts have stabilized; hopefully you're feeling halfway decent?

All the Best, Dave



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
JIme


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I went for a bike ride in your honor today.  Congrats Alan!



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
news


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Thanks guys. But Scout, I'm not done. They gave me 12 extra weeks for bad behavior. I still had a few strands of virus at four weeks. But they're dead now.

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Phil G


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Way to go, Alan, another big milestone! Really glad you shared it since I've been on 600 mg riba for 6 weeks. I will do 24 week draw on Friday. Maybe I'll worry less, maybe not.



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
Cinnamon Girl


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Very nice results there Alan, congrats! smile  No wonder you`re feeling happy, really pleased for you.  thumbsup.gif

Hope the rest of your tx goes nice and smoothly, just keep going...

~  Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Scout


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Congrats Alan!! I'm happy you are done. I'm really looking forward to those type numbers as well!

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Geno 1a, Viral load at 2 4, 8, 12 and 16  weeks, UND, Triple therapy Incevek done,   Peg & Riba Done, UND and making plans for the future!!
news


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Just left the doctor's office after a nice visit with the nurse practitoner. She had this to say:

Viral Load  -  UND

AST   -   38

ALT   -   37

Hematocrit - 37.7

Neutrophils (abs) - 1.3

So basically, I have to stop complaining now  biggrin  . Also, the liver ultrasound came back as completely normal.  All of this makes me very happy and I wanted to share it with you. The schedule of labs and visits really drops off now, with CBCs only each four weeks, no VL till 36 weeks. There won't be much to report for a while. But I can bask in the warm glow of these reports for at least a few weeks.

Alan

Link to latest blood labs spreadsheet:

https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-7151756_1



-- Edited by news on Monday 14th of May 2012 06:41:48 PM

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
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