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Hep C Discussion Forum -> On Treatment -> Weekends energy and motivation
Post Info TOPIC: Weekends energy and motivation
K2


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RE: Weekends energy and motivation
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Hey Mallani & Kiwi, Bloody cold sitting in front of the fire, watching garbage( well I don't actually don't watch, The box is just on. I look but don't see and hear but can't listen- too hard)

Kiwi- I am on the Murray and struggle to function under 20 deg, never seen snow so yep I'm a total wuss when it comes to cold. However before tx I enjoyed sitting outside in the cold, a fire raging and a few stubbies listening to the footy and some tunes. It was our winter weekend routine- usually wack a spit on and watch it cook. Now I feel I have abandoned my husband coz I leave him outside alone.

Although I've got nothin in the tank, with kids life still goes on. Last week a wedding, this week took the 5 hr drv to Melbourne to see Annie the musical . It was my bday so we saw the show and had dinner, it was nice but I still felt like a party pooper. It was back to the room and in bed by 7.30pm, sorry family mummy's tired and grumpycry. Three weeks time we're off to Darwin for a week, once again it will be nice but i just feel my ability embrace experiences is overshadowed by this tx. Anyway she'll be right mate-i'm grateful for everything.



__________________

genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
mallani


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Hi Kristy and Kiwi, It is freezing her in Brisbane. Being anaemic doen't help, but I have never been so cold in Queensland. Sitting in front of heaters, watching garbage on TV, what a life! I'm at week13,  finish in Feb 2013.  Roll on summer.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
kiwi


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K2 wrote:

It's winter here in OZ and I was just thinking, I do not like the cold and I simply cannot be bothered I'm tired.... Can I just be like a bear and hibenate for the winter? It sounds like the perfect plan......pleaseyawn

 where abouts in oz... lol. us kiwis say you fullas dont know the meaning of winter. haha.

but seriously i know how ya feel. im glad its winter, i go to work, i come home. i live on the couch lately. literally.  oh yeah, i wish i could go to sleep and wake up and this is all over....

oh well. least by summer this year i will be off treatment... yay. bring it...

but i have watched a helluva lot more tv than i have ever done...

hang in there people. dont get too puffed out.



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Shep


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Kristy--I started my tx in the winter and it was great to hunker down and hibernate! It is kind of tortureous now--because it has been a beautiful spring and I am mostly to worn out for all my usual activities--gardening, biking and just being outside. Try to get out at least one day a week! Oh well--always next year!!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
K2


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It's winter here in OZ and I was just thinking, I do not like the cold and I simply cannot be bothered I'm tired.... Can I just be like a bear and hibenate for the winter? It sounds like the perfect plan......pleaseyawn



__________________

genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
davesf


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I do have to say, no matter how tired and unmotivated I am, it's still way better than the Incivek days.  Incivek was always that way...plus brain fog to top it off.  Without the Incivek it's sometimes tough but sometimes normalish.  Today was normalish and I finally did my taxes I've been procrastinating for a few months.  I knew in April that I was at my limits just to file the extension form.  Incivek definitely made me dumber.  I had to write down math I normally do in my head and spreadheets were definitley a bit more confusing.  So today's message of hope for you Incivek users is that it gets better soon!

All the Best,  Dave



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
wilsondog


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I find I like to veg in the evenings, but have been keeping myself busy during the day and I swear it makes me feel better.  I have always been the kind of person who has trouble sitting still, but when things got rough and earlier on in treatment when I just felt lousy, the couch was my best friend and my teenagers knew exactly where not to sit because it was my spot!  

I think it's great to relax on the weekend, especially if you are working all week. I do find I feel worse if I stayed sedintary too often during the week.  Naps help, 20 to 45 minutes, sometimes twice a day if you can fit them in.

Stay comfortable,

Kate



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wilsondog
kr


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I unfortunately have become addicted to Lifetime movies



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ss


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Im glad i am not alone

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Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
Shep


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I have a confession--yesterday was a higher energy day--but I am a teacher who is off work for the summer--so I had all week to rest up and have a somewhat "productive" Saturday. Today I have a date with the couch and Netflix.

I have sworn an oath to never watching another episode of Law & Order again!

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
Kellyw


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Heavens no it is not just you! I've spent more weekends than not in my big chair (I know everything there is to know about going through the worm hole with Morgan freeman, and ancient aliens, discovered the big bang theory and am obsessed with Brit tv on you tube) I do feel better now and like Shep I've got more energy -guess my body is getting used to the stuff- But I know I will have a headache for a few days when I over do like today. I say go with it. Just do what you need to do. Like Alan I do think work kept me going. Hang in there my experience is it will get a better .

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
Margo


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As I read the post, I realized that I too became totaly uninterested in things I like. I just want to be left alone, read or watch some TV. I guess it's not only you...

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
JoAnneh


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I, too am
Encouraged to do 48 weeks. I am starting week 3!
Wiped out day after shot. I call it chilling time
Today has been rough as I gave my injection a day early
As wanted to change days and shot has really
Wiped me out, even pain on liver area. Not too bad though,
Just enough to get my attention several times. Drinking lots of water
And resting....
Sometimes I find having a reason to make me
Get up and go helps me get motivated like Alan mentioned. Today no way to push they
Tomorrow should be better. Yes, SS lack of
Energy. Who wants to play
Words
W friends? Ha
Joanne


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
reglenn58


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takes all of my energy to go and stay at work all week the weekend i dont do nothing but stay at home glad i am not the only one



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Geno type 1b VL=4m started triple treatment April 6 2012. Tryed treatment back in 2007 VL never dropped below 10 HOPE this works
Shep


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Well all this talk about energy levels or the lack thereof got me feeling a bit guilty. Got out today--went to Farmer's Market bought a gallon of blueberries, went to Target--bought t-shirts (because I am such a fashionista) and then after a brief rest went out to our community garden. Dug in the dirt, planted stuff, did a little weeding and after about an hour & half-came home & collapsed. It was a brief energy spurt and there is no danger of it happening again too soon.

Did feel good to get out around "normal" people--and the weather is spectacular!!

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
news


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If it weren't for my job I would never have left the house during early treatment. Felt too bad. But something about heading out to work made me feel motivated enough to actually do it. A creature of habit, I guess. All I can say is later in treatment it seems I'm either used to it, or it's fading, because there is a little more energy now. Enough that my grandson and I head out Friday to Chestertown, MD for a charity bike tour that lasts two full days. We'll see how that turns out. Alan

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
davesf


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Not me, I'm motivated!  I think I'm going to get my butt off this couch and get me a little exercise.  Trip to kitchen, fill bowl with ice cream, return to couch.  Whew, that's enough for now.



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
hrsetrdr


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ss wrote:

Is it me ? When it comes to the weekend is anybody feeling like they dont want to do anything on weekends? Cant get out of the house - just curious

 Not just weekends, but every day of the week.  hmm      

 

-that's really my main side effects, being the couch-potato-zombie-walking dead.



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
kiwi


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NO its not just you mate. i hibernate. and stay home as much as i can. i gota make myself go out soon and feed a mates dog for her. otherwise, i do buggar all in the weekends... and lucky for me, this is a long one. queens birthday weekend here in new zealand..

take it easy steve. i call this ''the new normal''



__________________

kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
ss


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Is it me ? When it comes to the weekend is anybody feeling like they dont want to do anything on weekends? Cant get out of the house - just curious

__________________

Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
mallani


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Date:
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Weekends are no different. I just watch more TV, play computer games, and encourage my wife to go out. Thank God for cable TV and a box. Only at week 12 on triple Rx with Victrelis. Undet. at 8 weeks. Cirrhotic, so on the stuff for 48 weeks! Tried to hit some golf balls on Friday. Tried one swing and almost fell over from dizziness and nausea. Hb is 10 so unlikely to get any reduction in Riba out of my doc. I'm retired, waching my Super Fund disappear, so there's not a lot of joy. Trying hard to stay focused on the goal!!cry

 

 

 

Geno 1b, 69 yo cirrhotic, vl 1.28m at start.



-- Edited by mallani on Sunday 3rd of June 2012 04:04:59 AM

__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
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