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Hep C Discussion Forum -> On Treatment -> It's Back
Post Info TOPIC: It's Back
andrzej


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RE: It's Back
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WOW, just looking at the pics of some of the lovely ladies in this forum wish me well is medicine enough to keep me going! wink



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iggle


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really sorry to hear this. there will be better days



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AlexNY


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Be strong, MD may recomend u the Vic for 36 weeks maybe or new drugs will be around soon too, u can do it, dont give up



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I'm Alex. Diagnosed with hep c 12 years ago. Genotype 1a. Started tx on 1/31/12 Ironically, I'm an RN. VL 15.9 (!) mil.  Wk 5, 8, 12, 16, 20 - all UND :)
JoAnneh


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Andrej, that's great attitude the same we all
Must take! I have been getting friends and family to sign petition for new drugs
To get on the market. Let's all participate as we can all be in your shoes too!
Let's get those 100,000 signatures ASAP! Let's make some noise!
Get attention for new drugs to be approved ASAP. There is a site:

http://www.change.org/petitions/family-c

Also do a search on this formun for petition to read more as well as Journal 7977.
Formun pioneer Jime is on the trial drugs and cleared the virus in 14 days extend of
Treatment 12 weeks...no interferon!
This is so exciting and we thank Jime for sharing
All news w us!!!
JoAnne


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
LanaiSurferGirl


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I am so sorry but know how you feel! I went through treatment with no avail  12 years ago and am on the triple therapy again to hopefully kick it.  I am guessing we will see more and more posts in the next few months about peoples results either sustaining SVR or the virus coming back since now more and more people are finishing the treatment.  

Keep your head up!

aloha,

Meghan



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
greenqueen


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Sorry to hear this news, Andrzei. As you know, these new drugs seem to be having great results in trials - Jim's journal is really encouraging.

Look after yourself and keep that great attitude!

Love Steff xxxx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
andrzej


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Hey, all thanks for the kind words, engouragement and good wishes. I'm good. My attitude it is life goes on, just make the best of it. Don't want to be a downer, just trying to keep it real. I started treatment back in September and finished February this year, 30 day test came up good, 90 day, no good. Oh well as stated life goes on, hope it works out better for everyone else on the same treatment. Me I'll just continue enjoying life and wait for the next latest and greatest. 



-- Edited by andrzej on Saturday 9th of June 2012 02:14:27 AM

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JoAnneh


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Do a search for Jounal 7977, Jim is doing new trail drug with great success.
It could be our miracle drug coming 2013-2914! JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
JoAnneh


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Andrzej, thank you for letting us know. I started Invicek May 19th and it is already a ride.
It breaks our heart when tx falls and we all desperately need
The NEW drug markers to get it together on their financial disagreement and get new medicine
Out to us! I think we would all stop what we are on and get on it. I believe there are few members
Doing the drug in trails on this formun. I read where Geno 1 has had 100 percent success.
After putting ourselves thru treatment, getting our hopes up
Then relapse it is a great disappointment.
But we are survivors and have the honor of being courageous
Enough to try. I know I could be in your shoes too.
Bless your heart! Once u work thru your emotions, try to see if anyone on here
Knows how you can get to do any new trials.
Know that you are not alone!
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Shep


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Geesh! So sorry to hear your news--but I think you have a really great attitude. And they are working on new tx all the time!

Keep up the fight!!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
K2


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I felt a massive desire to swear when i read your postcensored.gif. But as they say "that , which don't kill us can only make us stronger".

It's just one battle, you can win the war!

best of luckX



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Cinnamon Girl


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Really sorry to hear this Andrzei, you gave it your best shot, and you must feel so disappointed.  Don`t give up hope though, with great looking new drugs in the pipeline your day will come I`m sure!

In the meantime take good care of yourself and be proud that you endured tx with incivek!

Wishing you all the best and sending a big hug,  Jill xx  



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
kiwi


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oh hell mate. i cant imagine how you must feel. gutted... :(

hugs from new zealand. xx

keep the faith tho, and dont give up



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
hrsetrdr


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When I saw the thread title "It's Back" I felt like I got hit in the gut; I can only imagine how you feel. There are some promising treatments just around the corner, so please take comfort in that knowledge.

Best wishes

Tim

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Kellyw


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Ohhh. I'm so sorry!

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
Margo


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That sucks, I know how you feel...in how long you found out after you finished the treatment? Did you do 24 or 48 weeks? What's your genotype? The guys are right, one more new drug is coming out very soon, there is hope, don't give up!

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
ty


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I'm sorry to hear your news, but the others are right, there are some amazing new drugs in the pipeline.  You are in my thoughts and prayers.  ty



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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 
andrzej


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JIme wrote:

Sorry to hear this my friend, but all is not lost. You proved you can clear the virus, which is huge. You are not a non-responder. You did the triple tx, which we all know is not easy. You are tough as nails. The new drugs will probably do the trick for you. Hang in there, recover, stay healthy, and prepare for the next round. Your gonna be ok.

 Thanks, that's all one can do. Life goes on.



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jrc


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Im sorry this happened, wishing you the best there is amazing drugs coming.



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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
JIme


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Sorry to hear this my friend, but all is not lost. You proved you can clear the virus, which is huge. You are not a non-responder. You did the triple tx, which we all know is not easy. You are tough as nails. The new drugs will probably do the trick for you. Hang in there, recover, stay healthy, and prepare for the next round. Your gonna be ok.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
andrzej


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no went through the triple treatment with Incivek. Finished treatment on 2/17, just got call from Dr's office, virus is back. Oh well, back to the drawing board. 



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