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Hep C Discussion Forum -> On Treatment -> Tingling sensation in hands, fingers and toes.
Post Info TOPIC: Tingling sensation in hands, fingers and toes.
Margo


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RE: Tingling sensation in hands, fingers and toes.
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The information is clear online that Interferon can cause Peripheral Neuropathy, great. I should mention to my doctor about this next time I see him.

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
jrc


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I had the same thing during tx but no remedy sorry

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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
Margo


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Sunrise747 wrote:

Ever since my first treatment (combo) ten years ago I have noticed that my feet feel somewhat numb and sometimes tingly or a slight burning sensation - mostly at night in bed.  Definitely got worse this round, especially when my HGB was at its lowest (8.5 - 10).  There were times when I had to hang my feet off the end of the bed because just their pressure on the mattress made then burn.  Better now that my HGB is in the mid-10s.  My latest odd symptom is that my ears hurt when I lay on my pillow. 

There is always something, I'll tell ya.., I do have prikling in my left ear as well;)

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Margo


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Cinnamon Girl wrote:

Hi Margo, just to say that it has been mentioned before by various people, either while on tx or post-tx, so there does seem to be a connection.  I typed in `tingling` in the search box, at the top of the page, and several previous threads came up, although no definitive answer I`m afraid. 

I`ve had tingling in my hands and feet for years, it can be quite uncomfortable at times, I know.

All the best ~ Jill xx

 



-- Edited by Cinnamon Girl on Thursday 7th of June 2012 06:00:40 PM

Hi Jill, thanks, I just have to research more about it, I'm sure there is a connection. I was fine before the treatment.

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Sunrise747


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Ever since my first treatment (combo) ten years ago I have noticed that my feet feel somewhat numb and sometimes tingly or a slight burning sensation - mostly at night in bed.  Definitely got worse this round, especially when my HGB was at its lowest (8.5 - 10).  There were times when I had to hang my feet off the end of the bed because just their pressure on the mattress made then burn.  Better now that my HGB is in the mid-10s.  My latest odd symptom is that my ears hurt when I lay on my pillow. 



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Geno 1B Relapser 2001. Started Incivek 12-16-11. 57 yr old male.  Last biopsy 2000 -stage 3 fibrosis. UND Wk4, 12, 18, 26.  Did 34 weeks.  Still UND at 12-wks post.
Cinnamon Girl


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Hi Margo, just to say that it has been mentioned before by various people, either while on tx or post-tx, so there does seem to be a connection.  I typed in `tingling` in the search box, at the top of the page, and several previous threads came up, although no definitive answer I`m afraid. 

I`ve had tingling in my hands and feet for years, it can be quite uncomfortable at times, I know.

All the best ~ Jill xx

 



-- Edited by Cinnamon Girl on Thursday 7th of June 2012 06:00:40 PM

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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Margo


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hrsetrdr wrote:

Margo,

I haven't read of tingling in extremities(related to treatment) since I've been on this forum, maybe someone who has experienced this might stop by and comment.


Good point, Tim I will do my research about that, I'm only 30 just weird having this so young.

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
hrsetrdr


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Margo,

I haven't read of tingling in extremities(related to treatment) since I've been on this forum, maybe someone who has experienced this might stop by and comment.




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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Margo


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hrsetrdr wrote:

Unlike the central nervous system, the peripheral nervous system can heal- to a certain extent.   There are many different causes of PN, as there are many different causes of tingling in fingers & toes, so your condition would have to be evaluated by a doctor.

Best of luck.

Tim

Thanks Tim, I realized my first symptoms appeared after my first hep c treatment, I guess interferon did some damage...

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Margo


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JoAnneh wrote:

Margo, hope u find some answers! I was having a great day
But fire in the hole has been burning all afternoon and very painful. I have my regular check up
Tomorrow and 1st VL drawn. Hope this passes keep me posted please
We are in this together! JoAnne

Thanks guys, but I did go see 2 doctors about my symptoms, they found me perfectly healthy, completely ignoring my symptoms. I mean good doctors from Cornell Hospital and NYU... JoAnne, I also have burning over there, I will go buy preparation h tomorrow, it's unbearable at night. Hope you find some relief as well.

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
JoAnneh


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Margo, hope u find some answers! I was having a great day
But fire in the hole has been burning all afternoon and very painful. I have my regular check up
Tomorrow and 1st VL drawn. Hope this passes keep me posted please
We are in this together! JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
hrsetrdr


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Unlike the central nervous system, the peripheral nervous system can heal- to a certain extent.   There are many different causes of PN, as there are many different causes of tingling in fingers & toes, so your condition would have to be evaluated by a doctor.

Best of luck.

Tim



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Margo


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hrsetrdr wrote:

Sound like peripheral neuropathy, which is what I have in my feet. The Doc ruled out any kind of allergic reation to your meds?

 No, I was never diagnosed, doctors ignored my complains. Ive read about peripheral neuropathy, sounds like what I have. I guess there is no cure right?



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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
hrsetrdr


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Sound like peripheral neuropathy, which is what I have in my feet. The Doc ruled out any kind of allergic reation to your meds?

__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Margo


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There is always something new happening, now it's the tingling in fingers, hand and toes. Ranges from uncomfortable to painful. Makes me pull my hand or leg away like I touched something sharp. Anyone experienced anything like that, any remedies? Doctors don't know what it is.

 

Thanks!



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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
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