Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> Hello rash!
Post Info TOPIC: Hello rash!
mallani


Guru

Status: Offline
Posts: 3398
Date:
RE: Hello rash!
Permalink  
 

JoAnne, it's nothing special, just a topical hydrocortisone. It's sold as 'Eleuphrat' here, made by MSD. Make sure you get the 0.05% stuff, and use it sparingly. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


Guru

Status: Offline
Posts: 1077
Date:
Permalink  
 

The rash went away after a extreme flare up the week after I finished Invicek.
Now at 20 weeks it has reappeared and it itches. Not bad as while on Invicek. Glad Brad mentioned it came back after Invicek.
I was worried this meant the med had stopped working.
Malcomb, I am going to mention the name of the onimonent
You are using to my NP.
You hang in there Malcomb!!!
JoAnne

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

After being rash-free for 26 weeks, I have developed some small itchy lesions on my back and butt. These disappear after 2 applications on betamethasone ointment. I guess this is a Riba rash, but it's taken a long time to appear. I have also developed numbness and tingling in the hands ? peripheral neuropathy. My doc accepts this as part of Rx. Sigh.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Rich


Member

Status: Offline
Posts: 20
Date:
Permalink  
 

I get the itch and rashes when I get warm and sweat in cooler temps. And I haven't started treatment yet. I wonder if this going to be an issue if and when I start treatment.

Sorry for the high-jack.

__________________
krowdog


Senior Member

Status: Offline
Posts: 377
Date:
Permalink  
 

For me the itch got worse, or at least was just as bad after the Incivek.

I'm sure it was the Ribavirin, and it slowly built up right to the end, and a little past.

My incivek rash was larger, under the skin, red blotches, though I didn't get it too bad.  These reddish purple areas took about 3 to 4 months for the color to go away completely.

The Riba was smaller, rough, sort itch all over, stuff. 

Nothing much helped,  except staying out of the sun, staying hydrated, and antihistamines.

Hang in there...

Brad



__________________

(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
iggle


Senior Member

Status: Offline
Posts: 139
Date:
Permalink  
 

I didn't itch while on Incivek (except for my backside). Since I stopped Incivek I itch like crazy! I rub lotion on all over about 3-4 times a day now. It's annoying, but I'd much rather deal with this than the rectal problems from incivek. Do your best not to scratch, because it makes things worse. Good news for me: my energy levels are definitely going up! I also feel pretty good in general. 



__________________
Lornadoone57


Member

Status: Offline
Posts: 5
Date:
Permalink  
 

Happy Monday,
I've been on treatment for less than a week and developed the rash. It seems to fly around my body. Last night I had my husband put benedryll lotion all over my body and this allowed me to sleep. i called my doc and he'll be in tomorrow to prescribe something. I don't want to quit treatement so I'm going to bear with it unless doc makes me quit.


__________________

God's Peace Lorna
Sed3


Veteran Member

Status: Offline
Posts: 91
Date:
Permalink  
 

I had to stop Incivek after 8 weeks due to the rash. It was so bad I had to ice down my knees and elbows to sleep. After 3 days the rash was healing, but the itch was essentially gone.

__________________

Type 1B - Unknown for 30 years, diagnosed September 2011, started treatment February 2012

8 weeks Incivik - stopped early due to rash.

Continuing Pegasys and Ribavirin until January 2013 - 48 weeks

Undetectable from week 4 --> present
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

wnose wrote:

My personal finding is that the rash disappeared within 2 weeks of stopping Incivek. 

Glad to hear, some people complained after incivek as well the rash or itchiness becomes worse.

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
wnose


Senior Member

Status: Offline
Posts: 123
Date:
Permalink  
 

My personal finding is that the rash disappeared within 2 weeks of stopping Incivek. 



__________________

Diagnosed Geno 1a, 1992. Relapsed after riba-peg trmt in Aug 08. Oct 22 2011: Incivek 3rx @ 18 million VL.

Day 10: <15. --------------------->>>>>>12 OCT 2012: SVR!!! 
peanutbutter


Senior Member

Status: Offline
Posts: 133
Date:
Permalink  
 

wnose wrote:

My personal finding is that the rash disappeared within 2 weeks of stopping Incivek. 

Ditto. I got some relief from desitine and aquaphor. Also, drinking water helped me with almost ever side effect. My rash got a little worse after stopping but that only lasted maybe a week, then it got better kind of quickly.

-- Edited by peanutbutter on Tuesday 3rd of July 2012 09:14:50 PM

__________________

Diagnosed in 2008. Geno 1a. 6 month treatment of Incivek. UND at 4 weeks, and have remained that way as of 2 months POST treatment.
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

Thank you Tim, I will read the articles.

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

Tim, I came across information that this tingling/prikling sensation that I describe as itch is due to the damage of the nerve endings. Someone posted before that Vitamin B12 has shown improvement within a week.( I hav eto find that post, it was a few other things). Also, Ive read that anemia increases itchiness as well, which I developed recently. But the most concerning thing is that people say that the itch becomes worse AFTER stopping Incivek, like a withdrawal effect...wow how freaking bad can it possibly get?



__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
hrsetrdr


Guru

Status: Offline
Posts: 940
Date:
Permalink  
 

Margo wrote:

No Tim, no sun. It's quite cold where I am now and windy. I saw that a lot of people develop rashes after week 8. It went away, but as soon as I begin to itch one part on my body, it spreads like crazy everywhere else. Controlling Myself not to itch, is the hardest...

 You know, I have noticed a distinct increase in new rash sites with myself, in the last week or two; very unsettling if this trend continues...

rolleyesil.gif



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
hrsetrdr


Guru

Status: Offline
Posts: 940
Date:
Permalink  
 

The B-12 is reported to benefit in healing periphral nerve damage, I've been taking the following B-12 product for about six months:

Jarrow Formulas, Methyl B-12, 5000 mcg

...for the periphral neuropathy in my feet.   I don't expect any dramatic results, as it may be possible that the periphral neuropathy is caused by Cryoglobulinemia, which is a condition that is common in HCV patients .

Edited- forgot to insert links!    confuse

Some external reading:

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001567/

http://www.hcvadvocate.org/hcsp/articles/Bonkovsky-2.html

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1808770/

http://peripheralneuropathycenter.uchicago.edu/learnaboutpn/typesofpn/inflammatory/cryoglob.shtml

Here's where I initially made inquiries regarding  PN(periphral neuropahty): neurotalk.psychcentral.com

...as a support forum they really have alot on their plate, with all the topics they have sub-forums for! 



-- Edited by hrsetrdr on Thursday 28th of June 2012 06:19:14 AM



-- Edited by hrsetrdr on Thursday 28th of June 2012 06:19:30 AM

__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
hrsetrdr


Guru

Status: Offline
Posts: 940
Date:
Permalink  
 

Margo wrote:

No Tim, no sun. It's quite cold where I am now and windy. I saw that a lot of people develop rashes after week 8. It went away, but as soon as I begin to itch one part on my body, it spreads like crazy everywhere else. Controlling Myself not to itch, is the hardest...

 Margo,

 

Yes, controlling one's urge to scratch the itch is the biggest challange for us mortals, here on Earth.  confuse

Once Pandora's box has be opened, it's so very hard to turn back the hands of time.

 

no



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

No Tim, no sun. It's quite cold where I am now and windy. I saw that a lot of people develop rashes after week 8. It went away, but as soon as I begin to itch one part on my body, it spreads like crazy everywhere else. Controlling Myself not to itch, is the hardest...

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
hrsetrdr


Guru

Status: Offline
Posts: 940
Date:
Permalink  
 

Margo, did you get too much Sun? I got a horrible rash due to too much Sun, and use Betamethasone lotion as needed.     gen068.gif

 

-Tim



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

Besides the horrible itching, I was granted a rash on top! Mild, patch like appearance on my upper arms, chest and upper back. That's just what I needed. Miserable then ever, overdosed myself on hydrozyzine and Benadryl I'm trying to fall asleep or I'll take my skin off. I thing god is trying my Tolerence...

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> Hello rash!
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.