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Hep C Discussion Forum -> On Treatment -> Tactile perception
Post Info TOPIC: Tactile perception
Sed3


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RE: Tactile perception
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My skin feels to me like tissue paper.

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Type 1B - Unknown for 30 years, diagnosed September 2011, started treatment February 2012

8 weeks Incivik - stopped early due to rash.

Continuing Pegasys and Ribavirin until January 2013 - 48 weeks

Undetectable from week 4 --> present
elizabeth


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hrsetrdr wrote:
I gotta laugh, 'cause cryin' screws up my sinus'.
r1ofl.gif

 

What a great attitude!  Take that full-body alligator suit and add deep gashes / sores where hubby clawed himself with the rash.  He's still gorgeous to me, but he's not too pleased with his appearance.  Neither of us has mentioned his beautiful silky hair being coarser and thinner.  Some things are just better ignored!  smile

Wishing all a good weekend!  God Bless!

 



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hrsetrdr


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Margo wrote:

 I am going in my 9th week:) not even close to finish line...

Margo,
I'm in the same boat, shot   #11 going down in a few minutes.
So, is our "glass" 1/3 full....or 1/3 empty?     
I gotta laugh, 'cause cryin' screws up my sinus'.
r1ofl.gif

 



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Margo


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news wrote:

Yes, the snake-like skin, coarse hair that gets thinner each day and looks like a 'possom's back, the pale and ghostly face, these seem to be worst in late treatment. I didn't notice it much in the first 18 weeks, but right now I look like I am in costume for a scary movie. Not meaning to sound mean, but I am glad to be a man in this stage of treatment. Ladies care so much more about their appearance, and from that point of view these are tough times indeed. Alan

I am going in my 9th week:) not even close to finish line...

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
news


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Yes, the snake-like skin, coarse hair that gets thinner each day and looks like a 'possom's back, the pale and ghostly face, these seem to be worst in late treatment. I didn't notice it much in the first 18 weeks, but right now I look like I am in costume for a scary movie. Not meaning to sound mean, but I am glad to be a man in this stage of treatment. Ladies care so much more about their appearance, and from that point of view these are tough times indeed. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Margo


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hrsetrdr wrote:

Margo wrote:
drying out from the inside

That is scary but true; is there like some oil pill or something available to help offset that?

 

 

Margo wrote:
A hair mask with mayonnaise and eggse
I swear my stomach's growling for an egg salad sandwich!    wink

We just have to research about that... Otherwise just drowning ourselves in water inside out.

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
hrsetrdr


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Margo wrote:
drying out from the inside

That is scary but true; is there like some oil pill or something available to help offset that?

 

 

Margo wrote:
A hair mask with mayonnaise and eggse
I swear my stomach's growling for an egg salad sandwich!    wink


__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Margo


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No Tim, I've been complaining as well...
My face is pale, I look like a ghost. Extremely dry skin, which I relieve with gold bond and cetaphil cleanser. Oh my hair! When I pull the strand between my fingers, it feels bumpy and so dry, it does not even lay, it stands up, gross. I found a recipie for A hair mask with mayonnaise and eggs, I have to try it on the weekend, people swear by it. Overall, I feel so drained, meaning drying out from the inside. This weather makes it even worse. Thank gd it's temporary but it will take a few month to completely restore yourself.

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
hrsetrdr


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davesf wrote:

Well with all our other perceptions mildly screwed up, why not our tactile sensation as well?  Seems reasonable.

Then again, good chance she's lying to you a little as well.  biggrin

I've been looking in the mirror every day.  Is the hair thinning?  I'm not sure?  Well maybe just a little?  My wife tells me not really.

Then I go to the barber today.  First words out of his mouth: "Why is your hair so much thinner?"

Then again as side effects go, it's the least of our problems.  It will come back after treatment.  I just call it the "forecast" for 10 years down the road.

Have a great weekend Tim.

 Sounds good- you have a good weekend too Dave!  wootj.gif



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
davesf


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Posts: 322
Date:
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Well with all our other perceptions mildly screwed up, why not our tactile sensation as well?  Seems reasonable.

Then again, good chance she's lying to you a little as well.  biggrin

I've been looking in the mirror every day.  Is the hair thinning?  I'm not sure?  Well maybe just a little?  My wife tells me not really.

Then I go to the barber today.  First words out of his mouth: "Why is your hair so much thinner?"

Then again as side effects go, it's the least of our problems.  It will come back after treatment.  I just call it the "forecast" for 10 years down the road.

Have a great weekend Tim.



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
hrsetrdr


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Having been on treatment now for a couple months, my skin and hair are certifiably trashed, skin feels like alligator hide and hair feels real course like a posum's.    However, my wife reports that my skin & hair are not as nasty to the touch as I report; is she just being a nice lady?  Or, is it possible that my own tactile feedback is skewed?



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
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