Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> Incivek Rash Photos
Post Info TOPIC: Incivek Rash Photos
LadyAlaise


Senior Member

Status: Offline
Posts: 251
Date:
RE: Incivek Rash Photos
Permalink  
 

For me the itch stopped within a weekorsoafter stopping

__________________

Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

Sed3 wrote:

See my signature. It was so bad I had to ice my elbows and knees to sleep. Everywhere below the neck except genitals, palms, soles. I lasted 8 weeks. Within 3 days of stopping it was night and day. Of course now I'm on the 48 week protocol.

I still have some fading scars from the rash, and my skin feels very strange and like tissue paper. But I think that's a general reaction.

Hi Sed, did you itch as well? Everything stopped withing 3 days of discontinuing the incivek? I hope so, counting the days...

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Sed3


Veteran Member

Status: Offline
Posts: 91
Date:
Permalink  
 

See my signature. It was so bad I had to ice my elbows and knees to sleep. Everywhere below the neck except genitals, palms, soles. I lasted 8 weeks. Within 3 days of stopping it was night and day. Of course now I'm on the 48 week protocol.

I still have some fading scars from the rash, and my skin feels very strange and like tissue paper. But I think that's a general reaction.

__________________

Type 1B - Unknown for 30 years, diagnosed September 2011, started treatment February 2012

8 weeks Incivik - stopped early due to rash.

Continuing Pegasys and Ribavirin until January 2013 - 48 weeks

Undetectable from week 4 --> present
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

Renee, I have 5 days of incivek left and my rash just got worse last night aftethe shot. I dont know it triggered it or something...Drugged myself on various antihistamines so I can sleep and not itch. The soles of my feet and palms of my hands beame itchy as well.



Attachments
__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
LadyAlaise


Senior Member

Status: Offline
Posts: 251
Date:
Permalink  
 

Right before they had me discontinue Incivik, the rash was pretty much on all of my body; even the bottoms of my feet. it started to look bright red; but wasn't as 'raised' as some of the other pics others have posted; when I went to my doc about it (after trying all the creams etc) the saw the extent of my rash and were like ; oh crap, yeah we don't want to see that; you need to stop NOW. so I only did 6 weeks of incivik instead of 12....

__________________

Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1
ordinary


Member

Status: Offline
Posts: 35
Date:
Permalink  
 

Steff,
It was pretty terrible. The dermatologist called in all his colleagues to look at my poor body. I have a feeling that my case was "special" but I just felt like a diseased slab of meat :)

But now...10 months later I have 2.5 days to go. All of a sudden I feel weepy.

Deborah



__________________

ordinary

Third round of treatment. Started with telprevir and peg/riba in August 2011. UND after 2 weeks. Stopped telaprevir in Sept. due to rash. Continued peg & riba with addition of boceprevir. Did 48 weeks. TX ended July11th. Labs UND as of August.
greenqueen


Guru

Status: Offline
Posts: 2282
Date:
Permalink  
 

Deborah, that is some rash! No wonder they stopped the Incivek. It must have been horrendous for you aww

Steff xx



__________________
Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
JoAnneh


Guru

Status: Offline
Posts: 1077
Date:
Permalink  
 

Margo,
My rash looks like yours except on thighs, knees, arms, back and buttocks!
Week 8 and blood counts are so low. Doc will tell me tomorrow
What we are going to do to help counts.
Wow Things change fast. Too tired to walk
JoAnne

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

LanaiSurferGirl wrote:

I asked my doctor about antihistamines while on treatment and he said go for it.  I pre-loaded my system and started taking daily zyrtec 3 days before treatment.  I took it while taking incivik + an extra week and avoided the rash.  You might want to try this but ask your doc first.

Also, ribavirin can contribute to rash too so if it gets bad enough you can manipulate the dosing of drugs to isolate the problem child drug and deal with it accordingly. :)

good luck,

Meghan

Hi Meghan, Zyrtec doesn't help anymore not even hydroxyzine, only Benadryl brings relief but it makes me drowsy. I think my rash is from incivek, riba did not give me problems last time around.

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
LanaiSurferGirl


Senior Member

Status: Offline
Posts: 232
Date:
Permalink  
 

I asked my doctor about antihistamines while on treatment and he said go for it.  I pre-loaded my system and started taking daily zyrtec 3 days before treatment.  I took it while taking incivik + an extra week and avoided the rash.  You might want to try this but ask your doc first.

Also, ribavirin can contribute to rash too so if it gets bad enough you can manipulate the dosing of drugs to isolate the problem child drug and deal with it accordingly. :)

good luck,

Meghan



__________________

geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

This is my rash, which I consider to be mild. Tiny white and red bumps on my arms, that itch.



Attachments
__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Sunrise747


Senior Member

Status: Offline
Posts: 118
Date:
Permalink  
 

Ouch Deb!  That hurts just to look at it!  My rash never got remotely that bad looking.  I do believe you win the TROOPER award for hanging in there! 



__________________

Geno 1B Relapser 2001. Started Incivek 12-16-11. 57 yr old male.  Last biopsy 2000 -stage 3 fibrosis. UND Wk4, 12, 18, 26.  Did 34 weeks.  Still UND at 12-wks post.
ordinary


Member

Status: Offline
Posts: 35
Date:
Permalink  
 

My GGT was in the 300's, if I remember correctly. They suspected early DRESS symdrome. Rash was everywhere.

I'm so much better now.



__________________

ordinary

Third round of treatment. Started with telprevir and peg/riba in August 2011. UND after 2 weeks. Stopped telaprevir in Sept. due to rash. Continued peg & riba with addition of boceprevir. Did 48 weeks. TX ended July11th. Labs UND as of August.
hrsetrdr


Guru

Status: Offline
Posts: 940
Date:
Permalink  
 

Deborah, wow that is a really serious rash, I can't help but think that it is essentially the same as the rash I had been getting, due to the sun.   My NP prescribed Betamethasone Dipropionate lotion, which promptly took care of the rash, provided that I keep the sun off my arms(long sleeves and/or sun block).



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

ordinary wrote:

Hi Margo,

I am trying to post a photo of my rash. This is just my arm but it was all over. It was so bad it affected everything so they discont. the incivek and started me on the victrelis. I've been on it for 47 weeks. Tomorrow is my last week.

 Oh my gosh!!! I would never expect that, this was probably a severe case. Thanks for posting, no wonder they stopped Incivek...



__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
ordinary


Member

Status: Offline
Posts: 35
Date:
Permalink  
 

Hi Margo,

I am trying to post a photo of my rash. This is just my arm but it was all over. It was so bad it affected everything so they discont. the incivek and started me on the victrelis. I've been on it for 47 weeks. Tomorrow is my last week.



Attachments
__________________

ordinary

Third round of treatment. Started with telprevir and peg/riba in August 2011. UND after 2 weeks. Stopped telaprevir in Sept. due to rash. Continued peg & riba with addition of boceprevir. Did 48 weeks. TX ended July11th. Labs UND as of August.
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

peanutbutter wrote:

Whoops you're right some of those aren't even incivek rashes sorry. Some are but not all.

Mine looked like jock itch, with bigger red blotches than shown here and more spaced out. It was like a concentrated area of mosquito bites. Probably should have just posted that first....

I feel for you I know how those rashes are.



-- Edited by peanutbutter on Friday 6th of July 2012 10:35:35 PM

Hi, did you post any photo? I guess I can't see on my phone, ill use my comp later. I do get rashes sometimes, just wanted to se what other people get, it is may be educational to others as well if some if us will post, I'll do as well when I see a rash.

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

peanutbutter wrote:

I don't have any pictures of mine because I no longer have it, but You can try a google image search, I just did one and a good amount of photos showed up.

I googled and not too many I saw, just some illustrated from incivek directly.

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
peanutbutter


Senior Member

Status: Offline
Posts: 133
Date:
Permalink  
 

I don't have any pictures of mine because I no longer have it, but You can try a google image search, I just did one and a good amount of photos showed up.

__________________

Diagnosed in 2008. Geno 1a. 6 month treatment of Incivek. UND at 4 weeks, and have remained that way as of 2 months POST treatment.
Margo


Senior Member

Status: Offline
Posts: 459
Date:
Permalink  
 

Hey guys, I was always wondering what the incivek rash looks like and the degree of the rash that it ranges from mild to severe. Can someone post some photos?

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
peanutbutter


Senior Member

Status: Offline
Posts: 133
Date:
Permalink  
 

Whoops you're right some of those aren't even incivek rashes sorry. Some are but not all.

Mine looked like jock itch, with bigger red blotches than shown here and more spaced out. It was like a concentrated area of mosquito bites. Probably should have just posted that first....

I feel for you I know how those rashes are.



-- Edited by peanutbutter on Friday 6th of July 2012 10:35:35 PM

__________________

Diagnosed in 2008. Geno 1a. 6 month treatment of Incivek. UND at 4 weeks, and have remained that way as of 2 months POST treatment.
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> Incivek Rash Photos
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.