Hep C Discussion Forum

Margo · Senior Member

RE: Pains and Aches after Incivek, can I ever be happy ??:)

LanaiSurferGirl · Senior Member

Margo, I work in a physical medicine & rehabilitation clinic....some of our patients have perepheral neuropathy and I recommend compression socks. You can buy them at "foot solutions" or any speicalty footwear store, or google them. They help bring circulation to your toes and lower legs. In some cases, health insurance will cover them as DME (durable medical equipment) if perscribled by a doc. :)

hope this helps,

Meghan

hrsetrdr · Guru

Margo wrote:
hrsetrdr wrote:
Oh no, so the B-12 is disturbing your sleep? I take my B-12 with my morning dose of rat poison(ribavirin). For my sleep disturbances I take melatonin, which seems to help as long as I don't take the whole 3 mg capsule- I dump a little out to drop the dose to about 2mg.
Of course, if I'm an insane, itchy mess(like last night) I resort to taking a benadryl.

Hi Tim, no sorry I phrased it wrong...the nerve prikling wakes me up, it can be painful. (little devils are poking me with their spears lol)I take B12 in the mornings too. Coincidently, I slept like a baby tonight, maybe because I fell asleep at 2am :)

Margo,

Ah O.K. well I hope your prickling spears go away on their own; my wife had tingling and some prickling after her cancer chemo...unfortunately she still has them 4+ years post tx. If you're up to taking yet more drugs the Gabapentine or maybe some Nortriptyline would be be in order. I have had each on separate occasions in the past for my Peripheral neuropathy, still have the numbness though.

Nortriptyline was originally approved by the FDA as an antidepressant, so if you are already using an AD drug be sure and alert your dr.

Margo · Senior Member

hrsetrdr wrote:
Margo wrote:
I remember Tim, you've mentioned about B12, I take every day since I saw your post. I will mention to my doctor if it continues to wake me up at night. Thanks!
Oh no, so the B-12 is disturbing your sleep? I take my B-12 with my morning dose of rat poison(ribavirin). For my sleep disturbances I take melatonin, which seems to help as long as I don't take the whole 3 mg capsule- I dump a little out to drop the dose to about 2mg.
Of course, if I'm an insane, itchy mess(like last night) I resort to taking a benadryl.

Hi Tim, no sorry I phrased it wrong...the nerve prikling wakes me up, it can be painful. (little devils are poking me with their spears lol)I take B12 in the mornings too. Coincidently, I slept like a baby tonight, maybe because I fell asleep at 2am :)

hrsetrdr · Guru

Margo wrote:
I remember Tim, you've mentioned about B12, I take every day since I saw your post. I will mention to my doctor if it continues to wake me up at night. Thanks!

Oh no, so the B-12 is disturbing your sleep? I take my B-12 with my morning dose of rat poison(ribavirin). For my sleep disturbances I take melatonin, which seems to help as long as I don't take the whole 3 mg capsule- I dump a little out to drop the dose to about 2mg.

Of course, if I'm an insane, itchy mess(like last night) I resort to taking a benadryl.

Margo · Senior Member

I remember Tim, you've mentioned about B12, I take every day since I saw your post. I will mention to my doctor if it continues to wake me up at night. Thanks!

hrsetrdr · Guru

Margo wrote:
I always find something to brag about...that's why, you guys are here to share your thoughts with me!
It may sound extremely strange, but BESIDES the horrible itching, rash, stomach problems, anemia and anorectal discomfort, I actually felt better on Incivek. I know, I know, I would not want to go back on Incivek, it gave me enough discomfort, but now I notice pains and aches that weren't noticed while on Incivek and also have the nausea now! I also wake up at night from painful pricks in my toes, peripheral nerve damage? Maybe. Very strange, maybe I am just weird or maybe Ive had so much crap to endure on Incivek, that these aches weren't noticable?

-- Edited by Margo on Thursday 2nd of August 2012 03:39:34 AM

Wow Margo- things are supposed to be getting alot better, so sorry to hear otherwise. About the Peripheral Neuropathy, your NP or GP might start off with prescribing something like Gabapentin which often helps with such stabbing pin pricks as you mentioned at night. Unlike the Central Nervous system- the Peripheral Nervous system can heal, so maybe in time the pain will resolve itself. A useful suppliment(in general) which is particularly benificial to the nervous system(in particular) is vitamin B-12; I take these 5000 mcg lozenges

Margo · Senior Member

davesf wrote:
But, sigh, they say you can never go back, you just have to move forward.
I'm bummed you're not feeling well Margo. I dealt with the nausea my first eight weeks. I'm hoping things get better. A lot of us have told you the second part is easier (not easy). I hope it turns around a little for you. Either way, you're getting closer to the end. There will be good and bad days/hours. Just take it one day at a time and keep chugging towards the finish line.
I'll let somoene else answer the nerve damage question. I know the Interferon gives a lot of people restless leg syndrome. I actually had jumpy legs (and eventually arms and shoulders). Actually finally got a scrip to prevent the twitching.
It will get better. You're tough and you will make it. 12 weeks from today, you'll be two weeks out of treatment with all of the Interferon and half of the Riba out of your system.

Ahh yes those were the good old days. Wistfully longing for those nostalgic days of Incivek. Thems were simpler times kids. We didn't even concern ourselves with the whole day. Just lived each 8 hour segment at a time. And diet like you kids do nowadays? Screw that, we ate all the fat we wanted.

Haha, that's hilaririous, Dave!

Margo · Senior Member

davesf wrote:
Ahh yes those were the good old days. Wistfully longing for those nostalgic days of Incivek. Thems were simpler times kids. We didn't even concern ourselves with the whole day. Just lived each 8 hour segment at a time. And diet like you kids do nowadays? Screw that, we ate all the fat we wanted.
But, sigh, they say you can never go back, you just have to move forward.
I'm bummed you're not feeling well Margo. I dealt with the nausea my first eight weeks. I'm hoping things get better. A lot of us have told you the second part is easier (not easy). I hope it turns around a little for you. Either way, you're getting closer to the end. There will be good and bad days/hours. Just take it one day at a time and keep chugging towards the finish line.
I'll let somoene else answer the nerve damage question. I know the Interferon gives a lot of people restless leg syndrome. I actually had jumpy legs (and eventually arms and shoulders). Actually finally got a scrip to prevent the twitching.
It will get better. You're tough and you will make it. 12 weeks from today, you'll be two weeks out of treatment with all of the Interferon and half of the Riba out of your system.

Thank you Dave again for yor support:) I feel like you know me more then anyone else on the forum:) with my riduculous symptoms. Looking forward to those days with anticipation...

davesf · Senior Member

Ahh yes those were the good old days. Wistfully longing for those nostalgic days of Incivek. Thems were simpler times kids. We didn't even concern ourselves with the whole day. Just lived each 8 hour segment at a time. And diet like you kids do nowadays? Screw that, we ate all the fat we wanted. smile

But, sigh, they say you can never go back, you just have to move forward.

I'm bummed you're not feeling well Margo. I dealt with the nausea my first eight weeks. I'm hoping things get better. A lot of us have told you the second part is easier (not easy). I hope it turns around a little for you. Either way, you're getting closer to the end. There will be good and bad days/hours. Just take it one day at a time and keep chugging towards the finish line.

I'll let somoene else answer the nerve damage question. I know the Interferon gives a lot of people restless leg syndrome. I actually had jumpy legs (and eventually arms and shoulders). Actually finally got a scrip to prevent the twitching.

It will get better. You're tough and you will make it. 12 weeks from today, you'll be two weeks out of treatment with all of the Interferon and half of the Riba out of your system.

Margo · Senior Member

I always find something to brag about...that's why, you guys are here to share your thoughts with me! biggrin

It may sound extremely strange, but BESIDES the horrible itching, rash, stomach problems, anemia and anorectal discomfort, I actually felt better on Incivek. I know, I know, I would not want to go back on Incivek, it gave me enough discomfort, but now I notice pains and aches that weren't noticed while on Incivek and also have the nausea now! I also wake up at night from painful pricks in my toes, peripheral nerve damage? Maybe. Very strange, maybe I am just weird or maybe Ive had so much crap to endure on Incivek, that these aches weren't noticable?

-- Edited by Margo on Thursday 2nd of August 2012 03:39:34 AM

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