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Hep C Discussion Forum -> Post Treatment -> Finally feeling better, dare I say?
Post Info TOPIC: Finally feeling better, dare I say?
Shep


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RE: Finally feeling better, dare I say?
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Great to hear that your are back among the living!! It is nice to be a part of the world again. Keep up the good work!

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
hrsetrdr


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Kate,

Glad to hear that your post tx life is becoming more like Real Life!

Best wishes,

Tim

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Cinnamon Girl


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Really pleased you`re turning the corner with your post tx recovery now Kate, sounds like you`re really getting your zest for life back.  I think going through tx and coming out the other side can really change the way you view your life.  Good luck with the surgery next week, I`m sure you`ll be glad to get that over with and move forward.  thumbsup.gif

All the best to you, Jill xx

ps - I`m moving this to "Post Treatment" for you.  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Iris Dragonfly


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Kate...here hoping that 9 miles gets short really fast. Good to hear you are begining to feel better. Never hear of "buttox"!... hey, maybe you could talk them into  lip while you there!  Keep getting strong...PS love your dog. Blessings Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
wnose


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Good to hear! For me, post treatment was an up and down experience. Some days I still felt like crap so take things easy. Give your body time to recover and restore itself.



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Diagnosed Geno 1a, 1992. Relapsed after riba-peg trmt in Aug 08. Oct 22 2011: Incivek 3rx @ 18 million VL.

Day 10: <15. --------------------->>>>>>12 OCT 2012: SVR!!! 
ordinary


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wilsondog wrote:

Finished 24 week Insivek treatment 4 weeks ago and i can finally say I am starting to feel better! No more fever, (was spiking every night post treatment for 3 weeks). Brain fog is a little better, I am tired but I definately have more energy, and most importantly I want to be among the living! I want to be with my friends, go out to shows, ( saw Kasey Chambers Sunday night with my daughter and she was amazing!) And I want to move! My body is not ready for heavy exercise, but I want to get back muscle that atrophied on treatment! It does get better thank goodness! I am still dealing with residual conditions like anal fissures, which will be surgically addressed with Botox next week. Wish she could do my upper lip before injecting my ass, but I'll keep my wrinkles in exchange for pain-free bowel movements without hesitation! Hairloss and scalp Folliculitis continue to be an issue that I am told will improve, but hot weather exacerbates my scalp itch and makes it harder not to scratch.. I never thought I'd look forward to Fall, but I really am this year! I also find I have a new lease on life and don't want to hold back at all. If I want to wear cowboy boots in the summer, I wear cowboy boots without self-consciousness. I don't want to groan when people say I look great anymore because I no longer feel like sh!t and think they are just trying to make me feel better or actually saying, "you look fine, it can't be all that bad!" which is how I felt on treatment a lot, because post-Insivek it was easier to hide the treatment look, but I still felt like nine miles of bad road! Happy to be Hep C free and living again! XO, Kate

So great to hear Kate. It sounds like you had it worse than many. What you say about more energy and wanting to be among the living is exactly how I'm feeling 4 weeks post treatment. I feel like the cage doors have been opened. I still am itchy but the heaviness of treatment has lifted. All my clothes are loose too! First post treatment blood test is Friday. For some reason they are testing me every month.

BTW I love your new profile pic.

ord



__________________

ordinary

Third round of treatment. Started with telprevir and peg/riba in August 2011. UND after 2 weeks. Stopped telaprevir in Sept. due to rash. Continued peg & riba with addition of boceprevir. Did 48 weeks. TX ended July11th. Labs UND as of August.
Margo


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That's wonderful Kate! The most important you beat the virus, everything else will come slowly. I'm glad to hear you are doing well!

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
wilsondog


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Finished 24 week Insivek treatment 4 weeks ago and i can finally say I am starting to feel better! No more fever, (was spiking every night post treatment for 3 weeks). Brain fog is a little better, I am tired but I definately have more energy, and most importantly I want to be among the living! I want to be with my friends, go out to shows, ( saw Kasey Chambers Sunday night with my daughter and she was amazing!) And I want to move! My body is not ready for heavy exercise, but I want to get back muscle that atrophied on treatment! It does get better thank goodness! I am still dealing with residual conditions like anal fissures, which will be surgically addressed with Botox next week. Wish she could do my upper lip before injecting my ass, but I'll keep my wrinkles in exchange for pain-free bowel movements without hesitation! Hairloss and scalp Folliculitis continue to be an issue that I am told will improve, but hot weather exacerbates my scalp itch and makes it harder not to scratch.. I never thought I'd look forward to Fall, but I really am this year! I also find I have a new lease on life and don't want to hold back at all. If I want to wear cowboy boots in the summer, I wear cowboy boots without self-consciousness. I don't want to groan when people say I look great anymore because I no longer feel like sh!t and think they are just trying to make me feel better or actually saying, "you look fine, it can't be all that bad!" which is how I felt on treatment a lot, because post-Insivek it was easier to hide the treatment look, but I still felt like nine miles of bad road! Happy to be Hep C free and living again! XO, Kate

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wilsondog
news


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Good to hear, Kate. I am two weeks out, and have not been impressed with the recovery rate. Surely it is better, but I wanted superhuman in one week. Didn't happen. Just have to learn to be patient. But it would probably be easier for me to come up with a theory for world peace. Patience is not my strong suit.

Alan



-- Edited by news on Thursday 16th of August 2012 12:21:30 PM

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
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