Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> Hopefully this will be encouraging for others
Post Info TOPIC: Hopefully this will be encouraging for others
Mary Jane


Guru

Status: Offline
Posts: 523
Date:
RE: Hopefully this will be encouraging for others
Permalink  
 

Daook wrote:
Judy S wrote:

My dr took me off for one week from Interferon.  Also lowered my Riba dose early in tx.  He says you can be off tx for 2 weeks straight, then continue.  He also said being off Interferon 3 different times for a week is OK.  I was still UND.

MJ-LC -

It looks like there could be some wiggle room when you start your meds. That's a good thing. Like I posted to 12step, it feels like my bod isn't fighting the meds so hard after just 6 weeks. (i.e. side effects dropping off).

Good luck!

 I'm diggin the " wiggle room" wink MJ



__________________

Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Judy S


Senior Member

Status: Offline
Posts: 360
Date:
Permalink  
 

When our tx was in the testing stage in trials, it was determined that most will attain SVR if they take their meds at least 80% of the time.  That 80% allows for some short breaks and med adjustments.



__________________

Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
Daook


Veteran Member

Status: Offline
Posts: 90
Date:
Permalink  
 

Judy S wrote:

My dr took me off for one week from Interferon.  Also lowered my Riba dose early in tx.  He says you can be off tx for 2 weeks straight, then continue.  He also said being off Interferon 3 different times for a week is OK.  I was still UND.

MJ-LC -

It looks like there could be some wiggle room when you start your meds. That's a good thing. Like I posted to 12step, it feels like my bod isn't fighting the meds so hard after just 6 weeks. (i.e. side effects dropping off).

Good luck!



__________________

Geno 1a, second time around, stable viral load since 1973, timing is right for new therapy
elizabeth


Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

That's great, Judy.  I know you've had a tough time of it.  I hope things are much better for you now.

With any luck and God's will, my husband will be able to stop treatment next week at the 24 week mark.  He's still on reduced riba, but we're very hopeful.



__________________
Judy S


Senior Member

Status: Offline
Posts: 360
Date:
Permalink  
 

My dr took me off for one week from Interferon.  Also lowered my Riba dose early in tx.  He says you can be off tx for 2 weeks straight, then continue.  He also said being off Interferon 3 different times for a week is OK.  I was still UND.



__________________

Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
Mary Jane


Guru

Status: Offline
Posts: 523
Date:
Permalink  
 

Thanks Elizabeth... for sharing that wonderful news, very encouraging to me as I am sensitive to allot of medications out there and was wondering, when I start the therapy drugs, that one size does not fit all.. So it is nice to know even when modified there is hope... happy dance indeed  party.gif



__________________

Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
LC


Senior Member

Status: Offline
Posts: 473
Date:
Permalink  
 

That's great!! I had the impression you either toughed it out and stayed the course or missed out.

__________________

Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
Minerva


Guru

Status: Offline
Posts: 2283
Date:
Permalink  
 

Great news.  Congrats and wishing all the best.

Hugs

Heather xxx



__________________

Finished TX 2005. Geno 3. Achieved SVR - Heather.

When You Are Up To Your Neck In It - Keep Your Chin Up!!

'Knowledge. Is knowing that a tomato is a fruit. Wisdom is not using it in a fruit salad'. My dad. X.
elizabeth


Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

Thanks all.  We appreciate your thoughts.



__________________
Bills


Guru

Status: Offline
Posts: 648
Date:
Permalink  
 

Yes Very encouraging Hopeing your husband finishes with Honors It is possiable Keep the faith



__________________

Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

iggle


Senior Member

Status: Offline
Posts: 139
Date:
Permalink  
 

great news!



__________________
hrsetrdr


Guru

Status: Offline
Posts: 940
Date:
Permalink  
 

Very good news, hoping for that most important SVR acheivement! 



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
elizabeth


Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

Thanks everyone!  He's at Week 20.  We're really hoping he can stop treatment at Week 24 but won't know until they do another viral load test at that time.



__________________
JoAnneh


Guru

Status: Offline
Posts: 1077
Date:
Permalink  
 

Thanks for posting encouraging news! Happy for you both.

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
wnose


Senior Member

Status: Offline
Posts: 123
Date:
Permalink  
 

Fingers crossed for your husband! When will the doctor conclude SVR????



__________________

Diagnosed Geno 1a, 1992. Relapsed after riba-peg trmt in Aug 08. Oct 22 2011: Incivek 3rx @ 18 million VL.

Day 10: <15. --------------------->>>>>>12 OCT 2012: SVR!!! 
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Very happy for you both Elizabeth. Must be a relief.smile



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

That`s great Elizabeth, congrats to your husband! biggrin Thanks for sharing your good news.  All best to you both, Jill xx



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
elizabeth


Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

That's great news bison!  Congratulations!



__________________
bison


Member

Status: Offline
Posts: 6
Date:
Permalink  
 

I had to stop the Pegasys injctions for a week at a time and still got und results at 5 weeks. 



__________________

1b  WV Started triple therapy 7/13/2012.
DJ


Senior Member

Status: Offline
Posts: 306
Date:
Permalink  
 

That is such good news!  Thanks for sharing.



__________________

Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
elizabeth


Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

My husband had to stop incivek early and has been totally off riba several times as well as on reduced dosages at various times.  Because of this, we've been concerned about continuing to get UND results.  Today we got the results for Week 20 and he's still UND!  And liver enzymes are normal.

I'm just sharing this in case anyone else has had to modify their meds.  You can still be UND if your med schedule hasn't been exactly as originally prescribed.

Doing the happy dance here!

God Bless!



__________________
urespa2


Member

Status: Offline
Posts: 43
Date:
Permalink  
 

That is encouraging news. Thanks for posting.



-- Edited by urespa2 on Thursday 23rd of August 2012 02:37:16 AM

__________________

Geno 1a  Start Pegasys, Ribavirin, and Incivek August 24th 2012
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> Hopefully this will be encouraging for others
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.