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Hep C Discussion Forum -> Post Treatment -> Are we cured?
Post Info TOPIC: Are we cured?
Judy S


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RE: Are we cured?
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Phil, have you gotten your results, yet?  Shaun, good luck and keep us posted!!  Praying for you both!



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
jrc


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Gl phil and shaun



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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
mallani


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Phil, Thinking of you. Good luck!



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Mary Jane


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Phil G wrote:

Good luck Shaun. I do my 12 week blood draw tomorrow morning. The anxiety returns!

 ditto for you too Phil...thumbsup.gif MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Mary Jane


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Shaun wrote:

One day I asked my nurse practitioner why they don't call it a 'Cure'. She told me that, medically, for something to be considered a cure it must be effective for 100% of those treated. Because it is only about 80% effective, it isn't called a 'Cure', but if you achieve SVR, you are cured.

I am six months out from my last shot as of a few days ago. I have my liver test appointment in ten days to see if I have achieved SVR, wish me luck!

 Lady luck on your side thumbsup.gif peace and love MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Bills


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Hoping the best for you Shaun

BillS



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

Phil G


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Good luck Shaun. I do my 12 week blood draw tomorrow morning. The anxiety returns!



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
JIme


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Good luck brother.  Let us know right away...........I got a feeling your gonna be good to go.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Shaun


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One day I asked my nurse practitioner why they don't call it a 'Cure'. She told me that, medically, for something to be considered a cure it must be effective for 100% of those treated. Because it is only about 80% effective, it isn't called a 'Cure', but if you achieve SVR, you are cured.

I am six months out from my last shot as of a few days ago. I have my liver test appointment in ten days to see if I have achieved SVR, wish me luck!



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Iris Dragonfly


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The dentist will ask "have you ever" had these things...and the list is long..I just went. (Look MA no cavities!!) anyway I do not believe you will be able to give blood....

BB, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
jrc


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I think it depends on your level of progression of the disease. Im Tx naive and no liver damage. This might play a huge part in the decision of SVR @ 12 weeks post tx. There have been many studies on relapse after the 12 week test and the chances are very slim.Not trying to start a debate over it as everyone is different and i wish everyone SVR.I took my test at 4 1/2 months post tx not right @ 3 months.



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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
Scout


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I'll be testing at 12 and 24 (1 week post tx right now) After that I'll feel confident to use the term SVR, if it applies to me, as will my doctor. Right now I'll UND and feeling stronger daily. my twocents.gif



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Geno 1a, Viral load at 2 4, 8, 12 and 16  weeks, UND, Triple therapy Incevek done,   Peg & Riba Done, UND and making plans for the future!!
mallani


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Hi jrc, A number of papers and articles have been published, suggesting that VL undet. at 12 weeks should be taken as 'the new SVR'. 'Gold Standard' implies worldwide, widespread acceptance of a concept, which is not the case here. As Alan said, it is immaterial as your SVR is between you and your doctor. Congrats.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
news


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OK, let's just agree to disagree. JRC, if your doctor tells you that you are SVR at 12 weeks post, then you are. Who cares? You are done with treatment, clear of the virus, have the best doctor in the world, and an excellent chance at a wonderful life. I, on the other hand, will not have SVR until 24 weeks post treatment. That is fine with me. Fact is, we'll both be sitting on our porches on hot Summer days 20 years from now, sipping iced tea, and trying to remember how it was on treatment. Mission accomplished. Being classified SVR can happen at any point. I don't care when. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
mallani


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If VL 24 weeks after Rx ends is undetected, we have SVR. <1% of patients relapse after this time. There has been a push for undet. at 12 weeks to be accepted as SVR, but this has not been widely accepted.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
jrc


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mallani wrote:

If VL 24 weeks after Rx ends is undetected, we have SVR. <1% of patients relapse after this time. There has been a push for undet. at 12 weeks to be accepted as SVR, but this has not been widely accepted.

 12 weeks post tx is indeed the gold standard if und = SVR  98.9% of people dont relapse if und 12 weeks post tx  I challenge you to show otherwise, my hepc dr is one of the best in houston which is indeed one of the biggest city in the world



-- Edited by jrc on Saturday 25th of August 2012 02:09:34 AM

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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
hrsetrdr


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bstanga wrote:

If svr is achieved are we cured? When filling out info for, say dentest or other med info do we check hep?

sorry if this has been asked

brian

 Just a note:   all dentists use "universal precautions" to protect tnemselves, employees & patients from bloodborne pathogens; many jurisdictions do not have a legal requirement to report such conditions, I suspect that the information that the dentist is collecting is simply for his/her internal use.



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
jrc


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We are cured!

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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
bstanga


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If svr is achieved are we cured? When filling out info for, say dentest or other med info do we check hep?

sorry if this has been asked

brian



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geno type 3, pegsys and 1200mg ribaviron 24wks(finished 08/2012)
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