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Post Info TOPIC: 24 weeks post tx - how I feel


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RE: 24 weeks post tx - how I feel
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I need updates like this. Thanks for that Shaun. Let us know the SVR news. 



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Congratulations. I remember it being unreal how I felt after treatment. Here's hoping it only gets better from here on out.

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Diagnosed in 2008. Geno 1a. 6 month treatment of Incivek. UND at 4 weeks, and have remained that way as of 2 months POST treatment.



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Thanks for Encouraging news Shaun and Daniel!
I am week 18 of 48. I go for VL test tomorrow.
Keep us updated on Results.
Congratulations, JoAnnw

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!

DJ


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I really hopw to have more energy after treatment, but I will be 53 when it is completed (I am 52 now).  So I have no idea what to expect. 

But I don't have nearly the energy as most people my age. Never knew why, but I am guessing it is the Hep C.

 

So it is wonderful to read reports like this.  It gives me hope!



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Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.



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Great to hear about your rapid recovery Shaun. Gives us all hope. Good luck with the SVR.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



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Congrats, and I can't wait! I put off my wedding until after treatment. I'm getting married 2-3 months after I finish. I hope I feel up to it!

No problem waiting though - I waited 50 years so far.

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Type 1B - Unknown for 30 years, diagnosed September 2011, started treatment February 2012

8 weeks Incivik - stopped early due to rash.

Continuing Pegasys and Ribavirin until January 2013 - 48 weeks

Undetectable from week 4 --> present



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I'm at 26 weeks post treatment myself.  Tomorrow I will have my six months post tx liver test to see if I have achieved SVR.   I am the first to complete tx in my gastrointerologists office, so they are as eager as I for a victory.  My VL has been all zeros since three weeks into tx.  We expect SVR.

I have been at full strength, no fatigue, since about 5 weeks post tx.  Food tastes wonderful.  At about three months post tx, treatment was just a bad memory.  I still have a bit of moodiness, but nothing at all like when I was on TX.  Sometimes my mind goes blank when I am trying to recall things, but less and less as time goes one.  I also get out of breath easier than pre tx, have been intentionally taking the stairs at work the last month to help bring my wind back. 

I still have occasional insomnia, though it is becoming rare now.

Life feels normal again!  Yay!!

 



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That sounds so awesome right now. Every day I deal with fatigue that is overwhelming. Thanks for the update, it gives me some more hope.



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K2


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Thank you for that update. Glad you're feeling 'normal'. I look forward to it. Makes me smile.



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.



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wnose wrote:
Hep C had crept on me over the years and I had always discounted how I felt due to advancing age or work-related stress. I'm happy to report that it doesn't have to be that way and it feels good. It feels good to be..."normal".



-- Edited by wnose on Wednesday 12th of September 2012 05:34:11 PM


 Amen to that...glad to hea that you're feeling so much better!   wootj.gif



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 

jrc


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Congratz , i too know how ya feel its great!!!



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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR



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Hi Daniel, Thanks for letting us know there's light at the end of the tunnel. Enjoy your new life!



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



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Duplicate post in post-tx sub-forum but wanted to share this with others in treatment. I passed 24 weeks last Friday - April 6 was my last shot. For all of you struggling...it does get better, by a LOT.

This is life for me after Hep C:

1) I don't wake up tired anymore. I don't drag my feet out of the house and simply put...I feel ready for the day and its challenges. This applies for naps and mornings. I may feel a bit dazed for a few minutes but that applies for everybody.

2) After a workout, I'll be sweaty and a little tired...but it's a "good" kind of tired. I don't feel like collapsing and playing dead for 3 hours. I feel like there is a residual spark in me, ready to take on more exercise if need be. 1 hour after a workout, I feel a warm cozy glow in my muscles, not a bone-tired tiredness.

3) I can sustain light physical activity (e.g. gardening) for more than 2 hours. I remember the same time last year...my body kept protesting and protesting that it just didn't have anything to give. 

4) Mental state: at the beginning of treatment, I was suffering from depression - not sad, but just numbness & apathy at its worst. My core personality/drive/get-up-and-go had fled and I felt like a compass without a needle. Didn't even care that my needle had disappeared - I was a zombie stumbling from 1 day to the next. But 10 days after start of tx, I noticed an immediate improvement in my mood and outlook. 

Hep C had crept on me over the years and I had always discounted how I felt due to advancing age or work-related stress. I'm happy to report that it doesn't have to be that way and it feels good. It feels good to be..."normal".



-- Edited by wnose on Wednesday 12th of September 2012 05:34:11 PM

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Diagnosed Geno 1a, 1992. Relapsed after riba-peg trmt in Aug 08. Oct 22 2011: Incivek 3rx @ 18 million VL.

Day 10: <15. --------------------->>>>>>12 OCT 2012: SVR!!! 

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