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Hep C Discussion Forum -> On Treatment -> Last shot, last week of RIBA , looking back.
Post Info TOPIC: Last shot, last week of RIBA , looking back.
Margo


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RE: Last shot, last week of RIBA , looking back.
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Thank you!

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Uval951


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Rita, I congratulate you, all the best and health in the first place. Quickly forget these horrible six months and be happy.



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Gen. 1b. 1st Tx in 2003 Rib/Peg. Biopsy F3-F4; 2nd Tx started 2/28/12, Pegasys+RibaPak+Victrelis for 48 weeks. VL: 260,000 (starting), 125,600 (4 weeks), UND-weeks 6-45.EOT 1/7/13 after 45 full weeks. Post Tx 4,12,24 weeks -UND  SVR!
davesf


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Just take it as it goes Margo. Your body will tell you what you're ready for. You'll still have up and down days but both of those get better all the time.

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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
wnose


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Margo wrote:

Hey guys, this is almost it for me. Even though I felt pretty good throughout my treatment( except the Incivek months) I do look pale and sick. People comment on my appearance daily, it is noticeable. I try to cover up with with bronzers daily. Lost 80% of my hair, the most upsetting part. Lost weight, from 128-118 and still going down. Lately experience nausea, especially at night, insomnia and radiating back pain. My blood tests are pretty normal according to my doc WBC 1.9, lol. Cough and congestion has been with me for 3 months. No appetite, can't eat meat at all, indigestion. Energy levels were always pretty good but did have some anxiety and rage issues :), antidepressants helped a bit but brings hunger pains at night. I will still be here for anyone who needs support or advice, like you were here for me. Thank you everyone!

 

It only gets better from here. Mood, apetite, sleeping improved for me 10x after medication. You might actually have to take it easy on the food because my apetite came back with a vengeance and all of a sudden, food was awesome again.

I suggest berry smoothies as a tool to rebuild. Berries, yogurt, milk, protein powder, plus boosters like green tea and spirulina. You don't have to gulp it all down - just slowly sip it. Melatonin for a sleeping aid - used to take about 1.5 mg and it works wonders.  



__________________

Diagnosed Geno 1a, 1992. Relapsed after riba-peg trmt in Aug 08. Oct 22 2011: Incivek 3rx @ 18 million VL.

Day 10: <15. --------------------->>>>>>12 OCT 2012: SVR!!! 
Margo


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davesf wrote:

Woohoo, you're done! Yes it was a rough ride but now it's detox time. You'll start feeling a little better each day as the the RIBA slowly leaves your system and your red blood cells regenerate. I felt noticeably different at 2 weeks and relatively speaking, absolutely amazing at 6. I dropped about 10 pounds of fat and 5 pounds of muscle during the nausea/no exercise tx regimen. I've made it my mission to gain the 5 muscle back while losing another 5 of fat. I'm eating well and slowly built up to where I'm working out 5 days a week. And funny thing, the behavior is not too hard. It used to be tough to have enough discipline and willpower to exercise regularly and not make exceptions to eating crappy stuff. But coming off the physical/mental sacrifice of treatment...it's been relatively easy. But that reminds me. If you're all done, Margo, it's time for my 12 week labs on Monday. Good job Margo!

Thanks Dave! Let us know in your blood test! Any suggestions in the detox?

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
davesf


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Woohoo, you're done! Yes it was a rough ride but now it's detox time. You'll start feeling a little better each day as the the RIBA slowly leaves your system and your red blood cells regenerate. I felt noticeably different at 2 weeks and relatively speaking, absolutely amazing at 6. I dropped about 10 pounds of fat and 5 pounds of muscle during the nausea/no exercise tx regimen. I've made it my mission to gain the 5 muscle back while losing another 5 of fat. I'm eating well and slowly built up to where I'm working out 5 days a week. And funny thing, the behavior is not too hard. It used to be tough to have enough discipline and willpower to exercise regularly and not make exceptions to eating crappy stuff. But coming off the physical/mental sacrifice of treatment...it's been relatively easy. But that reminds me. If you're all done, Margo, it's time for my 12 week labs on Monday. Good job Margo!

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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
kiwi


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how ya goin margo. this is my first day in 11 months i havent had to take pills that are gonna make me feel like crap. woo hoo.

still tired, but its a good tired coz i went fishin and just got out of my own head. gota have a quiet one tonight tho, all worn out. me and the pup. lol



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Shep


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Hey Margo--I am so happy for you! You did it--hope your recovery comes quickly and smoothly. Good job girl!!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
K2


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Great work Margo. Happy for you. It is a monumental acheivment.



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
DJ


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Congratulations!  It will all be so much better from here. 



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Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
gatekeep


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Great to hear! Second times a charm... Looks like you had the long road, but made it... Best !

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
Lindsay


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Congrats on being on your last week Margo! I hope you will be able to achieve SVR. :)

 

Lindsay



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Supporter for my fiancee LadyAlaise (Renee).  Where else would I be but beside her on this journey?!?
Margo


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Thank you guys, Jill, Tim-I hope the new treatment comes out soon so you can get cured, JoAnne- I know it's tough, but the worst part is over. Keep on a great job, I hope to see all of you in the Post-treatment topic!

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
hrsetrdr


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Margo,

I'm very happy for you- congratulations!

 

Tim



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
JoAnneh


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Margo, u have been few weeks ahead of me and always there for eachother!
I don't know how I could have made it without you many days.
I thought I would
Be finished in 3 weeks but Doc wants 48 week.
Must admit I have had enough and thought of 27 more weeks is depressing.
Feels like another life sentence BUT counting my blessings a d hope it keeps working! Stay in tough and happy for you! JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Mary Jane


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Margo wrote:

Thanks everyone for the kind words!

 Oh that is music to my ears, I want to play that tune.. Congratz and all the best Rita.. peace and love MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
country1960


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Congrats Margo hope and prayers for you svr....



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GENO 1A,  VL 600,000 DIAGNOSED 2007 PROBABLY INFECTED IN THE 80'S

UND @ 8 weeks!!! WEEK 12 STILL UND

doing triple tx Vict,peg, riba
Cinnamon Girl


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Margo, that`s fantastic, very well done!!  biggrinclap.gifHope you start feeling better quickly, all the best of luck with your post tx results.  Onwards to SVR! 

Glad to hear you`ll be staying around, keep us posted on your progress!  smile  ~ Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Margo


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Thanks everyone for the kind words!

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
kiwi


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Posts: 498
Date:
Permalink  
 

Margo wrote:

Hey guys, this is almost it for me. Even though I felt pretty good throughout my treatment( except the Incivek months) I do look pale and sick. People comment on my appearance daily, it is noticeable. I try to cover up with with bronzers daily. Lost 80% of my hair, the most upsetting part. Lost weight, from 128-118 and still going down. Lately experience nausea, especially at night, insomnia and radiating back pain. My blood tests are pretty normal according to my doc WBC 1.9, lol. Cough and congestion has been with me for 3 months. No appetite, can't eat meat at all, indigestion. Energy levels were always pretty good but did have some anxiety and rage issues :), antidepressants helped a bit but brings hunger pains at night. I will still be here for anyone who needs support or advice, like you were here for me. Thank you everyone!

 hi margo... i hear ya mate. ive lost over 15kg (thats a bonus for me tho), my wbc are 1.5 right now, and i just got on antibiotics for some real dodgy lil sores from my puppys sharp teeth 3 weeks ago, not healing at all.

the nausea too yup. insomnia, oh yeh and my hair is very thin....

BUT WE DAMN WELL MADE IT THRU MATE. we rock, so proud of you as well.

take care and keep in touch...

kiwi



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
bauhaus76


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HI !Margo!! good luck with everything,hoop you get a fast recovery! now starts the rest of your life!! i was a couple weeks behind you, but my MD told me i go for the 48 weeks, was DETEC at week 4 and UND at week 12....!! let us know about your tx recovery! greetings!!!



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hep c 1a on triple therapy with incivek UND at week 12 ,week 24...going for 48 weeks.
mallani


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Congrats on getting to the end, Margo. Recover rapidly and good luck for the SVR.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Margo


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Posts: 459
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Hey guys, this is almost it for me. Even though I felt pretty good throughout my treatment( except the Incivek months) I do look pale and sick. People comment on my appearance daily, it is noticeable. I try to cover up with with bronzers daily. Lost 80% of my hair, the most upsetting part. Lost weight, from 128-118 and still going down. Lately experience nausea, especially at night, insomnia and radiating back pain. My blood tests are pretty normal according to my doc WBC 1.9, lol. Cough and congestion has been with me for 3 months. No appetite, can't eat meat at all, indigestion. Energy levels were always pretty good but did have some anxiety and rage issues :), antidepressants helped a bit but brings hunger pains at night. I will still be here for anyone who needs support or advice, like you were here for me. Thank you everyone!

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
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