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Hep C Discussion Forum -> On Treatment -> Eye pain- again
Post Info TOPIC: Eye pain- again
Cinnamon Girl


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RE: Eye pain- again
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Very good news, Malcolm, great, and it`s got to be good hearing that you don`t have any cerebral atrophy...I`d be jumping for joy! wink  All the same those migraine headaches must be excruciating, hope they`re a passing phase and don`t hang around.

Glad you`ve got some warm weather to enjoy now!  It was really nice to see a photo of you with your lovely lady wife, having our families around us is such an incentive to carry on even when the going gets tough.

Take care, you`re getting there...thumbsup.gif  Jill xx



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
greenqueen


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Hi Malcolm,

Relieved to hear that all's well with your eyes smile It's one of those sx that needs looking into properly ( no pun intended ) as you know.

Thanks for being here for everyone too, despite having to endure such a long and difficult tx yourself. It's much appreciated!

Steff xx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
davesf


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Glad to hear everything is ok Malcolm. Keep on powering along; You're going to make it. Best, Dave

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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
JoAnneh


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See u r two months ahead of me so I am looking at you to show me I can do it! Get strength from Kiwi too. I am finished w pouting that I can't stop next week at 24 wks. Willing to do what I got to do, with best attitude I can. So Glad u r improving formun doc! Hehe
JoAnne


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
mallani


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Thanks all. Kristy, I agree my wife is more attractive than a blue fin tuna! My eldest son is 40yo today, and just spoke to him and his family. They are holidaying on Crete, so it's a great incentive to get through this and get back to a 'normal' life.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Mary Jane


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Good news Malcom glad all is normal, as normal can get for all of us on the meds.. take care MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Bloomster


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Haven't checked in for a couple of weeks, but am glad to hear that you're eye is ok.  I suffer from migraines and have to take preventative medication every day, so I can tell you that they can be pretty severe and horrid.  In this case, it's the lesser of two evils, so I'm glad your eye checks were all clear.  Congrats also on your 30 week UND which I read on another post.  My husband has just started Week 14 and next Monday we should find out the Week 12 VL test result.



__________________

My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
K2


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mallani wrote:

 Jim, it's 35C here, so I've reverted to the fishing avatar as requested.

 I would have thought the photo with your beautiful wife was showing off your grestest catch ever biggrin



__________________

genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
JIme


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Thanks for the pic change.....lol......at least I know somebody who's enjoying the weather, although it is beautiful here today.

Glad it was not the tx causing the problems.  My wife gets those nasty migranes once in a while. It does not look like fun at all. My brain is too small for anything like that to fit in there, at least that's what she tells me. Have a great day or should I say morning?

Keep moving forward.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
mallani


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Thanks JoAnne. There's no way I'm stopping after all this! We'll be able to celebrate together.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


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Malcomb, just seeing the formun about you!!
Thank God you are okay! You have been here
Since I started and I want to see us make all 48 weeks.
Thank goodness for good report and I hope your head stops hurting soon.
Take care, JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
K2


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Glad to hear it malcolm. Bearing it is something is something you will be well practised at, I hope you can manage a grin once in a while too.

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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Greg


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Glad all is well apart from the migraine take care mate.

Best Wishes,

Greg



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
mallani


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Must be a world record for getting an MR and Neurology consult! The MR brain and orbits was completely normal- no brain tumour, normal optic nerves and sheaths with normal opthalmic arteries and perfusion. Pleased to see I don't have any cerebral atrophy! The Neurologist could not find any problems and is certain it's a migraine. Possibly related to the Rx and/or stress and he gave me some hints to avoid triggers. Basicly he cannot give me any effective treatment at the moment, so grin and bear it. I'm much relieved. Thank you for your thoughts Kiwi and Kristy and thanks for the link Greg. Jim, it's 35C here, so I've reverted to the fishing avatar as requested.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
K2


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I do hope that this issue/sx is sorted quick smart Malcom. Good luck and hopfully you recieve a reasonable, easily rectifiable prognosis at your appts.



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
iggle


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Glad to hear it is nothing too serious. I noticed at times my vision was a little blurry and I had some eye discomfort, but it went away thankfully. I've never had a migraine, but I've heard they can be terrible. 



-- Edited by iggle on Tuesday 23rd of October 2012 07:58:18 AM

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Greg


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Hi Malcom,

I think I have said hello before, I don't get in here that much but saw your post and wanted to say get it seen to straight away mate as this is a serious side effect that needs urgent attention. see point two in link to attached pdf.

http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Treatment_Side_effect_Guide.pdf

Good luck mate keep us posted,

Cheers,

Greg



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
kiwi


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good luck malcolm. thinkin bout ya ozzy. !!

take it easy mate



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
JIme


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Malcolm, that's weird.  Be smart and be careful, we only get 2 eyeballs.

 All you can do is the footwork. Good luck.
 

( I like the boat pic better, it's getting colder here in NJ....lol )



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
mallani


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Thanks Tim. I won't stop unless I'm forced to! Now I'm all anxious about all this cr*p.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
hrsetrdr


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mallani wrote:

Saw my Hep doc today. Had about 5 hours of severe R eye pain with nausea, faintness yesterday. Possibly some kind of migraine?? Now off to see neurologist for possible MRI. Don't want to stop treatment!!!!!

 Malcolm, I'm hoping that the neurologist can discover both a cause and a cure to provide relief.      I would hate to see you forced to stop treatment, you've endured way too much horse$h*t; to stop now would be such  a heartbreaker..



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
mallani


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Saw my Hep doc today. Had about 5 hours of severe R eye pain with nausea, faintness yesterday. Possibly some kind of migraine?? Now off to see neurologist for possible MRI. Don't want to stop treatment!!!!!



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
mallani


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Hi Tim, when this started again I thought of you and wondered whether things have improved. Glad to hear you may be on the mend. My eye guy wants to see me again in 2 weeks- he is rather confused and a bit concerned. Great!



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
hrsetrdr


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Malcolm,

I was just thinking of you and your eye situation; was going to PM you...must be ESP.     My swollen right optic nerve is[I believe] healing somewhat.    Still light sensitive in lower third of field of vision, and I see bizarre artifacts when in dimly light room.

Your eye situation doesn't sound like fun at all, and would be scarey.

 

Dear Lord, may we all be rid of the dreaded virus...may we all survive the cure in one piece.

 

Amen.



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
mallani


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Two months ago I had episodes of severe R eye pain. I saw my Opthalmologist who checked my eyes, pressures etc and said they all looked normal. I'm worried about optic nerve neuritis which may be an interferon Sx. He said it could be a wierd migraine and to come back. Sure enough, for the last two nights, severe R eye pain woke me from sleep. Accompanied by nausea, blurred vision, sweating and low BP(90/45). Back to the doc. today, still normal vision, normal fundi and optic discs, normal pressure, no haemorrhages or retinal detachment, normal visual fields. The pain lasts for about an hour then subsides and vision returns to normal. The opthalmologist can't explain it. My Hepatologist is away for the next 5 days, so I'll leave it to then. Life on Rx is certainly interesting!



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
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