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Post Info TOPIC: Successful blood transfusion
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RE: Successful blood transfusion
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Glad this worked out for you, Bill. My doctor was able to turn my anemia around with a reduction in ribavirin dose for a while. I am so glad I didn't need a transfusion. I have a feeling that is where I picked this mess up in the first place. I would be real freaked out. I still get all pumped up when I think about how brave we all are. Take our bravery and add a little riba rage, and people really would rather sandpaper a wildcat's ass in a phone booth than mess with us. We bad.

Alan

PS. Y'all all get well. And Bill, I had to replace my well pump a couple weeks out of treatment. I just went out to the driveway and dragged my knuckles across the pavement to get that out of the way, then waded in there and did the pump swap out. Figured the bloody knuckles were going to happen anyway. Good luck to you and your family.



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Mary Jane


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2willy wrote:

Yes isn't murrphys law really a kicker, got up this morning with no water, will have to work on the well pump all day, always happens on a Friday and this time had a spare but ran for ten minutes and died last time I deal with that store, also they said could not do anything until Monday.  Well I guess I will just make more lists of people I think should go to heaven..................... tonight

Bill and Family

 Hey Bill and Family, glad your transfusion went well, mine lasted a tad longer.. but I do feel better, no bike riding or chopping wood.. sorry to hear about you well pump.. I believe murphy is a cousin of mine as well. hang in there ..peace and love MJ

 



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
2willy


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Yes isn't murrphys law really a kicker, got up this morning with no water, will have to work on the well pump all day, always happens on a Friday and this time had a spare but ran for ten minutes and died last time I deal with that store, also they said could not do anything until Monday.  Well I guess I will just make more lists of people I think should go to heaven..................... tonight

Bill and Family



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
davesf


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Glad you're feeling better!  And it always makes me happy to see a transfusion helping one of us through this mess.  I think it's compensation for the transfusion that most likely brought me down this road in the first place.  smile

All the Best,  Dave



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
mallani


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Hi Bill, Thanks for that. to summarise, 27 million VL in Nov 2011, 17 million VL in Feb 2012, and 9,690 VL after weeks Rx. That's more than a 3 Log drop which is great. Toronto Public Health are using Scientific Notation which I hadn't seen for 10 years. To convert SN to whole numbers, take the number before the E and add digits after the decimal point. e.g. 9.69E + 3 = 9,690.

Your ALT is 1-2 times normal, and your WCC and platelets are pretty good. The anaemia is a bit of a worry as this will get worse after Victrelis is added. Incivek probably would have been a better drug for you. I would be keen to get checked out by an Haematologist to see if there's another reason for the dramatic fall in Hb. Be good to see the Hb after the top-up. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
kiwi


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glad you are feeling better bill. and i love your sense of humour. good one. take it easy and no chopping wood for a few days. even tho i know its gettin nippy up them ways. brrrr, i have a friend in ontario and shes cold. lucky for me, im a month out of treatment, and spring is here. woo hoo.

 



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
2willy


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They found  the Hep C in November of 2011 I never got the paper work when they sent me to a Sandre m Md, FRCPC he said  Geno type 1 viral load 27,000,000 and wanted to send me for Biopsey which I had in February 2012 again he said on a scale of 0- 4 I was around 3.8 for cirrousis.  Trillium drug plan would not OK treatment until I had another blood test it was "Ast- Hep 46 Alt Hep 90; Hepatitis C RNA Viral Load Detected 1.70 E+7 IU/ml Tested Public Health Laboratory Toronto" 

Held off treatment until September 17 as I had alot to catch up on in work to get ready for downtime of a year, fire wood, well, etc.

Bood test done at lifeLabes different lab only Viral load done at Hospital??

Aug 15, 2012 Hgb 134 WBC 4.9 AnC 2.7 Plats 134 Bili 8 Alt 81

Did blood work 2 wks latter was doing One shot of Pegasys and 1400 of copigus per week and pills per day.

Sept 28 wk 2 Hgb 97 wbc 3, anc 1.2 plats 129 bili 24 alt 91 TSh 2 Creat 117

Oct 5  blood work wk 3 Hgb 88, wbc 2.3 anc 1.2, plats 171 bili14, alt  80 tsh 1.93 Creat 112

Oct 6 I was phone to drop RBV pink pills to 1000mg daily

Hmg 84, wbc 2.4 anc 1.2 Platts 183

Oct 13 decrease RBV to 800mg, virol load results from wk 4 said Ast 51 alt 89 and Detected 9.69 E+3 IU/ml

Eprex ordered and doing once a week rib 8000 daily, peg 1 shot per wk

November 12 wk 8.5   Hgb 76 wbc 2.1 anc 1.1 plats 141 bil 12 alt 74 tsh 1.28 creat 118

ordered 2 units of blood and drop for one day Rib to 600 then after blood transfussion back to 800 nurse called today and dropped rib back to two in morning one at supper so 600

Hope that clears things up 



-- Edited by 2willy on Thursday 15th of November 2012 09:01:58 PM

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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
JoAnneh


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Good news Bill! Glad u r breathing better!
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
2willy


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Went in for 8:30 a.m., they did the cross reference blood work and set me with a choice either a chair or bed.  I took the chair, as I have other injuries and need to move sometimes.  Blood was O + started units in my left hand.  Ended at around 2:30 p.m.  color came back and so did my breath.  No longer doing the 15 step marathon could walk 150 feet to truck with no problems.

Thinkg I learned.

This was the first transfussion I ever remember getting and I learned that if you wear braces in your pants, let the brace off your shoulder while hooking you up to blood machine makes it much easier if you have to use bathroom.  They put it in my left hand and I am right handed, this is a  bit of a pain for eating.   I had brought a light lunch of a sanwich, yoghart and a diet A+W Rootbeir.  If you stare at the blood bag it does not flow faster, if you stare to hard a pretty little lady of our ladies of perpetual revange will come over and smile and move bag out of your reach and say squeezing it is not going to speed things up.  All in all it was a good experience, seen some in their getting transfusssions worth 60,00.00 dollar drugs for cancer and get them once a week, many ladies in there for iron supplement treatments, Much to be grateful for, leaving the unit the smile again of the ladies and told to sit in wheel chair and as removed from facility told no you cannot go cut wood or hunting, take it easy for a few days. Well I came home and said "Stupid maybe go for a nice walk, then it was maybe I will lie down for a bit, Yes just got up and had supper it is 8:30 p.m. again my old sponsers words haunt me God looks after fools and drunks and you qualify in both area.  Just jokeing, all in all a very good experience and nice not to have shortness of breath, continue on with all med and wait for next monday and maybe will be hemo will be high enough to start the Vict

Bill and Family



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
mallani


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Hi Bill, glad the top-up went well. It'll be interesting to see what that does to the Hb.  I was just looking at your posts and I'm a bit confused about your 4 week VL results. You posted that it was 9.69E + 3  II/ml.  Do you mean 9.69E + 3/ml?  This is an old way of expressing VL called Scientific Notation. That equates to a VL of 9,690 i.u./ml.  Unless you've changed labs, it is strange they should go from reporting your preRx VL (17 million) in whole numbers back to Scientific Notation.  Also, could you confirm your Hb dropped from 134 to 83 after 4 weeks of Peg/Riba? I couldn't cope with that in northern Ontario at this time of year! Cheers.



-- Edited by mallani on Thursday 15th of November 2012 03:54:24 AM

__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
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