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Hep C Discussion Forum -> On Treatment -> 4 week blood draw over with
Post Info TOPIC: 4 week blood draw over with
onabugeisha


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RE: 4 week blood draw over with
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Thanks Capt.    Good read



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     Gen2-diagnosed 2012  probly infected 1982   tx started 10-19-12   peg/riba  24 wks
DJ


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onabugeisha wrote:

DJ  I have a friend who i found out is also infected.  She has refused treatment because of the side effects.  She is watching me to help her decide.  I have not had it too bad at all.  At least not anything that would keep me from continueing.  But you are reminded of the treatment now and then.  LOL   I just keep thinking if I ever have grandchildren I want to be here to see them.  I want to spoil them rotten.  I want my revenge.  Know what i mean.  I feel very lucky that i CAN be treated.  I hope i keep feeling this way.  Let us know when you get news.

 

I have 19 year old twin daughters who are freshmen in college.  And I want to see them graduate and get married and have children one day.  I understand your friend's fear, but I also knew someone who died from Hep C and it is not the way I want to go (I want to go pain free and peaceful).  THAT is why I am wanting to just do this and get better....to live longer to see how my daughter's lives unfold and because I am more 'chicken' of going through the painful death of liver failure than I am of the treatment.

I think you will do fine.  You are going to complete treatment and your friend is going to see that it was all worth it!

 

 



__________________

Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
onabugeisha


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DJ  I have a friend who i found out is also infected.  She has refused treatment because of the side effects.  She is watching me to help her decide.  I have not had it too bad at all.  At least not anything that would keep me from continueing.  But you are reminded of the treatment now and then.  LOL   I just keep thinking if I ever have grandchildren I want to be here to see them.  I want to spoil them rotten.  I want my revenge.  Know what i mean.  I feel very lucky that i CAN be treated.  I hope i keep feeling this way.  Let us know when you get news.



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     Gen2-diagnosed 2012  probly infected 1982   tx started 10-19-12   peg/riba  24 wks
DJ


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onabugeisha wrote:

Well Mary Jane, I had to laugh after i wrote about exercising.  The next day i felt nauseous, had a head ache that would not go away.  And felt very tired.  Oh and my right side was hurting alot.  I seem to have these highs and lows this last week.  When i feel good I want to get out and do things then it hits me and i want to go to bed.  I know what DJ wants is to have this virus GONE.  The sooner the better.  It's like putting your life on hold.  Last night i was hugging the waste basket throwing up everything and sitting on the toilet at the same time.  I must say i was miserable.  I think i threw  up my riba.   What is it that the Riba does to our wbc.  I never seem to get the questions out at the Dr.  I get home and then they spill.  Dr.s are into this speed Dr.ing.  They are in and out like lightning.  I suppose  they have to do this.  I miss the days when my Dr. would come in and hold my hands and I felt he really cared.  Miss you Dr Boone.   

 

Oh my!  I guess this is what I have waiting for me....but as you said, I just want this GONE!  It is going to be a long 6 months.  I am so glad to have found this forum.  I haven't told anyone except my husband what is really going on, and it is just so nice to be able to 'talk' to people about it all.

Thanks for your updates.  I hope things improve side effect wise!  Glad to hear there are some good days.

My life IS on hold right now.  I have been a stay at home mom for 18 years and my twins just started college and I was all ready to look for a job and get 'back out there' in the real world and then THIS happens......it is a blessing that I can stay home and just take care of myself, but I do feel like everything is on hold until this is over with.

Next week I see my doctor, so I should know if December will be "my" month!



__________________

Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
DJ


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Cinnamon Girl wrote:

 

Hi DJ, I had genotype 3 also and going on my own experience I would get started as soon as you can if you`re aiming to be well for the June wedding, especially as you`re planning a quiet Christmas anyway.   Of course we`re all different, but I found that after the first two or three weeks my sx setttled down to a steady level and I felt a lot better.   As tx wore on though I gradually felt more fatigued and the `riba rage` became more pronounced.   You may well need to take into account a period of recovery once tx is finished too.  That`s just me though, and it`s up to you and your doctor to make that decision. 

Good luck, and I hope your sx will be minimal when you do start tx!  smile

 

And well done to you Cathy, the drugs are doing their job and so are you!  smile Keep us posted!

~ Jill xx

 

Well I may not have a choice because so far it seems like I go to the doctors and they tell me I have to wait another month.  I am starting to wonder if she will ever let me start.  BUT if she does, I will probably go ahead and start as soon as possible so that maybe I can go to the wedding in June.   I didn't think it would be an issue. I found out in July I had this and have been trying to start treatment but my low iron is holding me up.  Hopefully December will be the month for me to start.

Thanks for your insights.  Since you went through the same treatment that I will be going through I really appreciate your input!  Thanks!



__________________

Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
12Step Guy


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Bugshia, you may want to read Mallani's Nov 5th post on the General Discussion Forum " Anaemia is good!" and the subsequent posts on this. I found them very helpful.

Capt. R



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
onabugeisha


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Well Mary Jane, I had to laugh after i wrote about exercising.  The next day i felt nauseous, had a head ache that would not go away.  And felt very tired.  Oh and my right side was hurting alot.  I seem to have these highs and lows this last week.  When i feel good I want to get out and do things then it hits me and i want to go to bed.  I know what DJ wants is to have this virus GONE.  The sooner the better.  It's like putting your life on hold.  Last night i was hugging the waste basket throwing up everything and sitting on the toilet at the same time.  I must say i was miserable.  I think i threw  up my riba.   What is it that the Riba does to our wbc.  I never seem to get the questions out at the Dr.  I get home and then they spill.  Dr.s are into this speed Dr.ing.  They are in and out like lightning.  I suppose  they have to do this.  I miss the days when my Dr. would come in and hold my hands and I felt he really cared.  Miss you Dr Boone.   



__________________

     Gen2-diagnosed 2012  probly infected 1982   tx started 10-19-12   peg/riba  24 wks
Cinnamon Girl


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Hi DJ, I had genotype 3 also and going on my own experience I would get started as soon as you can if you`re aiming to be well for the June wedding, especially as you`re planning a quiet Christmas anyway.   Of course we`re all different, but I found that after the first two or three weeks my sx setttled down to a steady level and I felt a lot better.   As tx wore on though I gradually felt more fatigued and the `riba rage` became more pronounced.   You may well need to take into account a period of recovery once tx is finished too.  That`s just me though, and it`s up to you and your doctor to make that decision. 

Good luck, and I hope your sx will be minimal when you do start tx!  smile

 

And well done to you Cathy, the drugs are doing their job and so are you!  smile Keep us posted!

~ Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
DJ


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Phil G wrote:

I started tx on December 2 last year. I delayed thru Thanksgiving as we were going out of town. Christmas was not too bad. I was on Victrelis so there were no major issues other than the flu like symptoms for a while until the deeper anemia set in.

 That is good to know.  Since I have Genotype 3, I will only be on the two medicines so what you experienced would be similar to what I will probably experience (although I know everyone is different, plus I seem to get side effects very easily).

Maybe I will just get started as soon as my doctor lets me even if it means near Christmas.  We won't be going anywhere or having company and I have a wedding to attend in June and I really want to be done by then.

Thanks!



__________________

Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
Phil G


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I started tx on December 2 last year. I delayed thru Thanksgiving as we were going out of town. Christmas was not too bad. I was on Victrelis so there were no major issues other than the flu like symptoms for a while until the deeper anemia set in.



__________________

Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
DJ


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Bills wrote:
DJ wrote:
onabugeisha wrote:

DJ  Why are they waiting to start treatments.   I am so impatient that would make me crazy.  I wish you great success with your treatment. 

 

It is driving me crazy and I have been quite upset over the delays.  They are waiting for my iron levels to be higher.  I took iron supplements for a month but it wasn't high enough still so I am taking them for another month and hopefully then she will let me start. 

Maybe it will be my Christmas present to start treatment :)

 I can't help but notice that your asking for drugs that make you feel like *&#$%  For Christmas  It just aint right  But I do understand it and thats what I would want too I were you    I hope you get started soon and and the SX are min good luck

BS

 

Yes, I know.  haha  I have been debating about waiting until after the holidays at this point.  It would probably mean a 2 week delay, so I may do that just so I can enjoy the holidays and at this point, what is two more weeks.  But I am also so anxious to get started that I feel like as soon as the doctor says OK I don't want to wait another day!  So I don't know.  It may not be my decision if the doctor doesn't give me the go ahead at my next appointment. 



__________________

Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
Mary Jane


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Cathy.. Glad you are kicking dragon butt... I can't imagine execercising.. wow what a differnce the drugs have on each and every one of us.. Yeah, from what I understand the Riba can play havoc with the Red and White blood cells.. as Jill said listen to your body, mine says get back in bed... all the best peace and love MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Bills


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DJ wrote:
onabugeisha wrote:

DJ  Why are they waiting to start treatments.   I am so impatient that would make me crazy.  I wish you great success with your treatment. 

 

It is driving me crazy and I have been quite upset over the delays.  They are waiting for my iron levels to be higher.  I took iron supplements for a month but it wasn't high enough still so I am taking them for another month and hopefully then she will let me start. 

Maybe it will be my Christmas present to start treatment :)

 I can't help but notice that your asking for drugs that make you feel like *&#$%  For Christmas  It just aint right  But I do understand it and thats what I would want too I were you    I hope you get started soon and and the SX are min good luck

BS



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

DJ


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onabugeisha wrote:

DJ  Why are they waiting to start treatments.   I am so impatient that would make me crazy.  I wish you great success with your treatment. 

 

It is driving me crazy and I have been quite upset over the delays.  They are waiting for my iron levels to be higher.  I took iron supplements for a month but it wasn't high enough still so I am taking them for another month and hopefully then she will let me start. 

Maybe it will be my Christmas present to start treatment :)



__________________

Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
onabugeisha


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DJ  Why are they waiting to start treatments.   I am so impatient that would make me crazy.  I wish you great success with your treatment. 



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     Gen2-diagnosed 2012  probly infected 1982   tx started 10-19-12   peg/riba  24 wks
DJ


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onabugeisha, that is wonderful news! And yes, I will be starting the same treatment you are on right now....hopefully soon.  So glad it is going well for you. 

 



__________________

Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
mallani


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Hi onabugeisha, Yes, Geno 3 is treated the same. For your lab tests, look in Knowledge Base- Understanding Lab tests. Always good to see the VL come down.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
onabugeisha


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Thanks for the well wishes.  I have good news.   I began with a viral load of 6767850  and now I am 130.  After 5 weeks.  My Dr. said I was beating that viris' butt.  Then my Dr. says but listen you need to have a boost to your white blood cells.  Or something like that.   He has sent me to an onocologist for (yeah!) more injections.  I have started feeling worst.  But still do-able.   DJ Yes i am doing the pegasis and ribivirin.  Is genetype 3 treated the same.  I wish i could understand all the lingo in these printouts of my blood test. 



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     Gen2-diagnosed 2012  probly infected 1982   tx started 10-19-12   peg/riba  24 wks
DJ


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Are you just taking the two medicines instead of the triple treatment? I saw you have Genotype 2.  I have Genotype 3 and am will hopefully start treatment next month with just the two medicines.  I am glad to hear side effects are not too bad for you.  Hope things continue to go well!



__________________

Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
JoAnneh


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Kep us posted on test result!
Sounds like you are doing good:)
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Cinnamon Girl


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Hi Cathy, good to hear how things are going with you, and it sounds like you`re doing pretty well so far!  People react to tx in different ways and quite often do feel more energetic once they`ve got used to the drugs after the first few weeks have passed.

Exercise is good for your physical and mental well-being...just listen to your body and don`t overdo it.

All best of luck with your results, keeping my fingers crossed for you!  smile ~ Jill xx



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
onabugeisha


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It has been 4 weeks now.  I had my first blood draw Tuesday.  And will find out results next week.  I have had a few side effects but nothing i couldn't handle.  Knock on wood.  Mostly have just gone about my daily routine.  I am thinking I will start exercising again.  As my joint pain has subsided.  I sometimes have lots of energy.  Maybe that means the treatment is working.  Please.



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     Gen2-diagnosed 2012  probly infected 1982   tx started 10-19-12   peg/riba  24 wks
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