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Hep C Discussion Forum -> Post Treatment -> Thought we had it beat!
Post Info TOPIC: Thought we had it beat!
LanaiSurferGirl


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RE: Thought we had it beat!
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I am waiting on pins and needles to hear my 4 month post results... I have now been through treatment twice.  Don't dispair...I work in biotech and see things all the time about how so many companies are working on things for hep C.

aloha,

Meghan



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
Judy S


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So sorry to hear, Scot.  You do have a wonderful attitude, though.  I'm in the same boat.  We'll get it the next time around.



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
scotu


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Thanks to all for your encouragement!  Keeping my chin up.

JoAnne, yes I do have cirrhosis but no outside symptoms (no pain, jaundice, etc.).

Doc insists on ultra-sound or MRI plus Alpha-fetoprotein test (tumor marker) every 6 months.

Life Will Go On!



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ScotU - Age 61, Geno 1A, Diagnosed 1999. Cirrhosis (so no more biospy's), but decent MELD score.  Too many studies, trials, and treatments to remember!  24 Week Harvoni (w/ Ribavirin) Trial - SVR @ 24 Post - 8/28/15
onabugeisha


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Damn bad news.  Hate hearing this.  One of those times you scream and cry and then keep fighting.  Hope for better results for you on the next round.  Hugs



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     Gen2-diagnosed 2012  probly infected 1982   tx started 10-19-12   peg/riba  24 wks
Shep


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Oh Scot-so sorry to hear your news--not the best holiday. Keeping my fingers crossed for the new trial. Hang in there and big hugs to you!!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
Adamos40


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Ahh sorry for your news Scott. Hopefully the new trial will beat it for good. Hang in there, admire your attitude. All the best from Wales, UK, Adamsmile



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A weston Geno Type 1, started triple therapy October 2012, completed April 2013 UND.  December 2013 SVR
Cinnamon Girl


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Oh Scot, how disappointing for you, really sorry to hear this.  You gave it your best shot, now relax and keep your chin up, you`ll get there in the end.  Good luck with getting into that trial and do keep in touch.

All the best to you, Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Iris Dragonfly


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Scott... I'm so sorry. What a bummer. Wish your Thanksgiving had better news. Hope the trial will be the drug that does it for you...best wishes with that... Blessings Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
kiwi


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buggar, that sucks mate. hugs from new zealand.



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Mary Jane


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bummer of course, but you are a survivor, we all are... hang in there you seem to half the right attitude.. MJ

 



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
mallani


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Bummer Scot. Very disappointing for you. Take some time and the next round will do the trick. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Biggyb


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Very depressing, like we all say you got a good years break on your liver..Stay strong dude.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
JIme


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Awwwww crap! Sorry to this Scott. You did all you could do. Stay as healthy as you can and be ready for the next round. Stay tough.

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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
JoAnneh


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Wow, super sad news! The news we are fear!
So sorry:(
So much hard work.....fortunately your
Doctor is on the up and up!!!!
Keep us posted on updates as there are
Others on trail drugs.
We all need hope if we receive same answer.
Sometimes I wonder....is this triple tx really
Working for us w chirrosis! I assume doing
48 weeks u have cirrhosis too.
Bless your heart, keep chin up no
Matter your circumstances. Have a good cry and
Come back fighting!!! Like your attitude
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
scotu


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Started triple therapy treatment Sept 2011 (Peg, Riba and Incivik).  At all key labs (12, 24, 36, 48 week) undetectable.  Then at week 60 came the smack in the face... Viral Load 10,300,000.  Made for a depressing Thanksgiving.

Thought we had it beat.

Doc's gonna try to get me into another trial study he's running (people coming from all over the East Coast for this one) and more promissing Drugs on the way for late 2013/early 2014.



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ScotU - Age 61, Geno 1A, Diagnosed 1999. Cirrhosis (so no more biospy's), but decent MELD score.  Too many studies, trials, and treatments to remember!  24 Week Harvoni (w/ Ribavirin) Trial - SVR @ 24 Post - 8/28/15
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