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Post Info TOPIC: Hanging on!
Biggyb


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RE: Hanging on!
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I am cheering for you JoAnn. You give me hope to push on another 18 weeks for that ungodly 48 weeks. Stay strong.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
2willy


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Good to hear that you are doing better, sometimes when I just read what you guys are doing, and in all that heat... ha ha, I have to log off and take a nap.  You guys are so open and honest about or immortality when on these treatments that it is blazing a trail of knowledge for  me and others.  Your experiences will help us get through what you went through today.  I know there is a 650 lb gorrila waiting to take a wak at me when I am near the end of treatment, but you have taught me how to run faster so I do not get beat up as much.  Thanks and cheers, If you were told to chile out well come north, it is -23 c with wind chile of -30 c. Vern can put you to work drilling holes for is ice fishing

Bill and Family



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
JoAnneh


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I don't know I would do without
You guys! Thanks for letting me rant.
Life needs to slow down.
Traveling was too much on me.
I had a friend contact me yesterday.
She has Hep C and they won't let her start tx
Till she has MRI as her tumor markers
Are high! Talk about reality hitting me
In the face. I pray she is able to do tx.
I love you all, thank you for your support
And encouragement. I have been tending
To an elder parent, working and traveling.
I pushed myself too much.
Xxoo

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Cinnamon Girl


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Yes indeed you can do this, JoAnne, you`re an inspiration to us all with your strength and determination!  You`ve had a very busy week so relax, prioritise, and do whatever it takes to get through each day...we all care about you and will be here for you all the way through to the end.  And if you feel like having a rant then please feel free, we understand!

I`m glad you`be got a prescription for the itching and if it relaxes you too, well so much the better.

You have our full support...big hugs from Jill  smile xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Zlikster


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Hang in there Jo! man when i see you 48 week tx GT1 fighters, makes me wanna never complain and brag how i want to shorten my 24week therapy )



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
hrsetrdr


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Hang in there JoAnne , we all love you and are here to stand by you for every miserable step of the way, so that you finish treatment.

Prayin for you,

Tim

__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Bloomster


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Jo-Anne, good on you for being so determined.  You've done incredibly well!  Nurture yourself in every possible way to get yourself to the finish line. 



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
mallani


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Hi JoAnne,

I understand completely! The last 10 weeks are very difficult as we are beaten up mentally and physically- I sometimes have trouble remembering why we are doing this to ourselves. With just 10 days to go I should be excited, but I just want this to be over.

We have cancelled all visitors as I can't be bothered explaining why I can't stand unassisted. My poor wife doesn't know what to cook as I have completely lost my appetite, and struggle to eat a tub of yoghurt with my Victrelis.

Just break the 10 weeks down to smaller pieces and count off a day at a time. The end will come. When you start feeling angry, go to bed before you say something hurtful.

For the Riba rash, avoid baths, hot showers and soap. I've been lucky as this is controlled by a small amount of betamethasone ointment- don't use a concentration stronger than 0.05%. I find that normal body creams and lotions makes it worse. Above all, don't scratch!

If necessary, be a hermit. You know you're strong enough to get through this.      CheersXX



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Shep


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Hey Joanne--you are so close. You can do this and you will. These last few weeks are hard but you just keep hanging on. I remember well feeling just like you do. Sending big hugs!!

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
JoAnneh


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Doctor pretty much said I don't have
To be positive all the time. She gave me
Prescription for itching that will help relax
Me too. Last week was so busy, I worked two
Days, took dad to doctor and traveled to
See our grandson thus weekend. My doctor
Said go to my favorite quiet room and chill.
MJ, the massage is a GREAT IDEA! My body
Is so tense/ like muscle spasms. I am crying easily
Too, which is side effect of exhaustion too.
Thanks guys for your encouragement.
I am having 38 week melt down of misery...
Yet please know I am so grateful for my blessings.
I count you guys on the forum as a blessing!
We are fortunate to have a change to kill
This deadly virus.
Sorry to whine, it's just not easy.....
If Malconb, Kiwi, Lady, Alan and others
Can survive 48 weeks so shall I! Yes indeed!
Xxxoooo

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
turtles


Member

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you can do it!!!!!!!



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Ted...HCV genotype 1 cirrhosis stage 4  PEG,RIBA,INCEVEK taken off treatment after 20 weeks,low platelets,playing the waiting game..
Caryn


Senior Member

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Hang in there Joanne!!! You have come a long way and are so close! How was your drs appt today? 



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1a, CT. Incivek triple 1/2013, vl 810 @ 2 weeks, 610 @ 4 weeks, 3000 @ 8 weeks, tx stopped. 

4/2014 - tx with Sovaldi/Olysio/Riba. VL 39 mil. - VL 230 @ 1 week, VL 40 @ 3 weeks, 5 weeks UND, EOT - UND, EOT @ 4 weeks UND, EOT @ 12 weeks UND!
Bills


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Maybe it's just a bad day or 2  You are going to do this and do it good  I hope u get a second wind Hang in there



-- Edited by Bills on Tuesday 5th of February 2013 04:12:19 AM

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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

Mary Jane


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relax.gif breath... see if someone will give you a massage ...with lotion you love to smell.. eat whatever tickles your fancy, pop in a good ole funny movie, wear your fuzzy warm pj's , and blame it on the drugs... you are blessed you are loved , the light is coming right around the tunnel..I know you can see... hugs, cheering you on you got this... peace and love MJ



-- Edited by Mary Jane on Monday 4th of February 2013 11:47:46 PM

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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
JoAnneh


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I started triple tx May 2012. I am in week 38 of 48!

I am miserable, no tolerance for anything!

I actes like a crazy person last night w a temper tantrum.

I want to cry often, I itch. I am a Zombie.

BUT I WON'T QUIT, I WILL SEE THE FINISH LINE AND

I AM VERY GRATEFUL FOR OPPORTUNITY TO SAVE MY LIVER.

I just need few days of complete rest and relaxation....



-- Edited by JoAnneh on Monday 4th of February 2013 11:08:32 PM

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
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