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Hep C Discussion Forum -> On Treatment -> How low can you go?
Post Info TOPIC: How low can you go?
HazeySask


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RE: How low can you go?
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mallani wrote:

My doc gave me the choice of finishing 1.5 days early. Being stubborn and stupid, I'm going to carry on and finish on Friday as planned.

-- Edited by mallani on Wednesday 13th of February 2013 03:10:04 PM

 Good on you for finishing up! Might as well get that last bit in, for all the good it can do!



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Genotype 1 :: Treatment Started 09-JAN-2013 :: Ribavirin - Peginterferon - Telaprevir :: VL UND Week 6
Shep


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Dearest Malcolm--I love that you are stubborn. I was trying to think up all kinds of reasons NOT to take those last few doses--but I swallowed and cussed. Let the recovery begin!!!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
Bills


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Hey Malcom

I so glad your done cheers. sorry to hear about the last episode but your done !!!!!

and I think we all need to stand up to the doctors and drug companies recommendations about over treatment

Hope all works out with the SX So gald your finnishing up.

Bill s



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

hrsetrdr


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Fainting....I'll be glad when you're finished with tx, Malcolm. Take it easy until those blood numbers get better.

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
packerfan24


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WTG MALCOLM you did it.You will start feeling brtter soon. I have been done now for 4 weeks and I am felling great. Good luck and keep us posted.

 

Ken



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Packerfan24
2willy


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Way to go, I know how it feels and I still have a ways to go, Any hope of a couple of bags for a transfussion to bring you up.  It  helped me to stabilize.  Only difference is my Platts are still high, best wishes and good luck and yes we males seem to have that affliction of " I will finish this even if it kills me" that includes banana splits as well as medications.

Bill and Family



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
Biggyb


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Get better. they reduced my riba to 600 also. But in my mind it's the Vic doing it, which they can't reduce.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Cinnamon Girl


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Malcolm, that is very low!  hmm  I`ll be so glad when you`re off these drugs and getting back on your feet, we all will be!!  Tx has really given you a kicking but it`s also given the virus a good beating too...fingers crossed for you that you get the result you deserve!!  smile

Not much longer to stick it out, you`ve done brilliantly....Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
JIme


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That riba is a bee.....octh sometimes. I couldn't walk up a flight of stairs at the end without huffing and puffing. I felt light headed but I never fainted. Be careful.

You must be stubborn to stay on tx for all these weeks. Why stop now? lol.......2 more days and you are a free man.

It will feel weird not taking any meds. But I think you'll get used to it.....almost home brother.



-- Edited by JIme on Wednesday 13th of February 2013 04:42:32 PM

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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Bloomster


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1.5 days - good on you.  I will be so interested to hear how you feel when you stop treatment.  I am hoping you will feel like a million dollars.



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
Northern


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My Riba was dropped down to 600mg from 1200mg because of my anemia. Hb still hanging around 8 and that is with weekly Procrit shots. Hang in there!



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1b, 3rd time around on treatment. Stage IV cirr. Undetectable at 8 weeks with Incviek. Been infected since the late 70s. 48wk treatment completed. Sustained undetectable. 
mallani


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The low Hb is from the Riba, with potentiation from Vict. Low platelets and WCC are from Peg, and don't cause symptoms. My doc gave me the choice of finishing 1.5 days early. Being stubborn and stupid, I'm going to carry on and finish on Friday as planned.

I'm very impressed with my Lab. After my wife called my doc after my fainting episodes, he organised for a Tech to do a home visit to collect my blood!



-- Edited by mallani on Wednesday 13th of February 2013 03:10:04 PM

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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Caryn


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Wow!! That is LOW! Please keep us posted and feel better. 1.5 days and you are DONE!!! You did it!



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1a, CT. Incivek triple 1/2013, vl 810 @ 2 weeks, 610 @ 4 weeks, 3000 @ 8 weeks, tx stopped. 

4/2014 - tx with Sovaldi/Olysio/Riba. VL 39 mil. - VL 230 @ 1 week, VL 40 @ 3 weeks, 5 weeks UND, EOT - UND, EOT @ 4 weeks UND, EOT @ 12 weeks UND!
mallani


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I've been fainting so doc. said get some urgent bloods.

Hb- 7.1 (71 here)

WCC- 1.7

Platelets- 36!!

Thank goodness I finish Rx in 1.5 days or may not be here to tell you about it. I'm going to have a serious talk with my doc about Riba reduction for future patients.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
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