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Hep C Discussion Forum -> On Treatment -> ER doc made me stop RIBA
Post Info TOPIC: ER doc made me stop RIBA
KLG


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RE: ER doc made me stop RIBA
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Back from doctor. Resume RIBA at 200 per day and start procrit. If things look good in a couple of days she'll bump me to 400 and then 600.

Thank you all for your responses! It's nice to have others to "talk" to.

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Geno 3a, stage 3, IL28 cc, diagnosed 94, interferon 1year, relapsed immediately, started RIBA/int on 2/1/13, 4 wk und. Female, age 55, EOT 7/18/13. 4 weeks UND, 12 weeks UND, 6 months UND!!!
2willy


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They dropped my rib down to 600 from 1400 in two weeks and hemo dropped still till it hit 74, I had just finally started the Vic after 9 weeks of only peg and rib, stopped treatment for 5 days put me for a transfussion two bags and know I am on eprex weekly, at week 26 right know and probably ready for another transfussion blood down again to 84, so you see we are all different on this forum but have one common spirit and that is to help each other get through this treatment and beat the dragon

Bill and Family



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
KLG


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He did discuss it with the GI doc on call and GI doc said stop. My doc was not on call this weekend... Hopefully the two day stop won't impact treatment. I will talk to my doc tomorrow.

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Geno 3a, stage 3, IL28 cc, diagnosed 94, interferon 1year, relapsed immediately, started RIBA/int on 2/1/13, 4 wk und. Female, age 55, EOT 7/18/13. 4 weeks UND, 12 weeks UND, 6 months UND!!!
mallani


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Hi Kathi,

This can be a problem as many ER doctors have little knowledge or understanding of HCV treatment. I was told only to go to the ER at the Hospital attached to my Hepatology Clinic and tell them I was on HCV Rx. There was always a Consultant Hepatologist or Senior Registrar on call for such situations. As Ribavirin has a long half-life, it's probably OK, but ask your doctor what to do if the same situation arises.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
DJ


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Biggyb wrote:

Doc reduced mine to 600 also, blood counts never went back up, but never got lower either. Make sure you see your dr pronto, i don't think er doc knows much about treatment.

 That is what I would be worried about....the ER doctor not knowing what he is talking about.  From the times we have dealt with the ER doctors, they haven't been very good.  So be careful.  Does you own doctor have an emergency number you can call?



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Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
Biggyb


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Doc reduced mine to 600 also, blood counts never went back up, but never got lower either. Make sure you see your dr pronto, i don't think er doc knows much about treatment.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Phil G


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Mine was reduced to 600 at 9.5 after 4 weeks below 10. The next week, it dropped to 9.4, and came up to 10 the next week. So, it took two weeks to change direction. Personally, I wouldn't worry about it, but I'm not a doctor.



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
KLG


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A little freaked out because I went to the er yesterday. My hgb dropped to 8.6 and they told me to stop taking RIBA and see my hep dr. On Monday. My doc had already reduced my RIBA too 600 on Thursday because my hgb had dropped to 9.2. Unfortunately it continued to drop. I know from reading the forums that hgb of 8.6 is not unusual, I am just hoping that this 2 day stop won't impact my treatment!!!

__________________

Geno 3a, stage 3, IL28 cc, diagnosed 94, interferon 1year, relapsed immediately, started RIBA/int on 2/1/13, 4 wk und. Female, age 55, EOT 7/18/13. 4 weeks UND, 12 weeks UND, 6 months UND!!!
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