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Hep C Discussion Forum -> On Treatment -> Just wanted to share with people who know what it feels like
Post Info TOPIC: Just wanted to share with people who know what it feels like
2willy


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RE: Just wanted to share with people who know what it feels like
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I am on Eprex once a week and side effects are like the flue for one day, do my both needles on Monday so Tuesday is down day, has kept hemo at 90, still way low but above transfussion level

Bill and Family



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
libgirl07


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My doctor said if the anemia gets worse i'll have to start procrit..

 

my gratitude list...   I'm thankful my side effects arent as bad as some peoples  I'm thankful I already have alot of hair and if it thins its not to terrible of a thing i  guess and i know it does grow back.  I'm going to be extremely thankful if i svr and can move on with my life and not fear my death all the time and know i'll be around for traveling and grandchildren and maybe i'll stop being so closed off emotionally and meet someone since i fear telling anyone about my hep c.       One last thing..   I AM SOOOO THANKFUL for this board.  No one knows what we are going through unless they have been through it so it is nice to share with people who know the joys and pains of this disease and the tx.



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Genotype 1a

1/18/13 -  VL 1.5mil triple therapy with boceprevir

2/3/14 - relapsed. 1.7ml

 

6/28/14 - started solvadi interferon and ribavirin for 12 weeks

7/28/14 - week 4 undetected dosage reduction of rib and peg

 

11/2/14 und 4 weeks post eot

 

g

 
JIme


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Gratitude list-

1. I'm alive.

The rest are all gravy....lol....

My eyelashes are like barbed wire. Still are, always were. I need a wax job....lol  Hi Karen!

 



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
britlitkaren


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haha! "Damn those gratitude lists!" Life just keeps getting better. I was lowered on Riba at week 4ish. Yipper! 9 mos SVR was THERE! Are you going to get Procrit? I was on it most of tx along w/ transfusions. Love those!

It makes me so happy to see another group kicking HCV, losing hair, and LIVING to tell about it. BTW - hair grows back! Has anyone noticed the long eyelashes? I had them all through treatment. A side effect that I hated losing... xoxoxo to you all! Karen:)



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Diag 8-10. 1st VL 600,000. Gen 1a. Grade 4 Stage 4 cirrhosis w/ Esophogeal varices level 2. Viral load 1,750,000 7/12/10. Triple Therapy w/ Telaprevir began 7-15-11
2willy


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Lowered Rib also to 600 also on eprex and had 2 bag transfussion, I call it the 15 step marathon, skin feels like I rolled in egg and bread crumbs, tired confussed same as rest only get pissed off when people keep telling me how good I look as I dropped from 250 lb to 210, I would like to attach the diahrea to the complements. In all have 3 friends passing with the C and I look at their is an end and a start of a new for me so I must keep writting them dam graditude lists

Bill and Family



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
12Step Guy


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Feeling tired and crappy, that's a new one on me LOL!  While each of us has a different experience with sides, they are part of taking these meds. For me I try to use whatever energy I have wisely. Work and sleep is all I can do. The longer I'm on them, the more my reasoning seems to be affected. So, I'm trying not to make too many decisions right now. Good luck with the Riba reduction, mine was lowered from 1,200 to 1,000 because my HGB dropped slightly but I wish they would have kept me at 1,200.



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
jrc


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Hi there,

I also lowered riba to 600 due to anemia , for me it didnt affect SVR. My dr told me there is no evidence of this affecting svr.Hang in there Victrelis did great things for me but im glad its now over!

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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
Biggyb


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I got anemia also. Riba lowered to 600 back in Nov. and i am still und at 35 weeks. Hang in there.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
libgirl07


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I went from 1.5 mil to 28k @ 4 week lead in to UND @ 8 weeks with boceprevir!  YAY!!!  It felt surreal at first but its sinking in.  Since I started boceprevir I became EXTREMELY tired.  I work 12 hr days 3 days a week but the other days i sleep all day.  My doctor is lowing my rib to 600mg a day instead of 1200 due to anemia.  I hope this helps with my tired crappy feeling.  That is really the only side i've been having.  I have noticed my hair is falling out but its worth it.   The lowering of the rib wont lower my svr chances will it?   Oh yea and now I have to do weekly labs until my anemia is under control.



-- Edited by libgirl07 on Wednesday 20th of March 2013 02:43:28 PM

__________________

Genotype 1a

1/18/13 -  VL 1.5mil triple therapy with boceprevir

2/3/14 - relapsed. 1.7ml

 

6/28/14 - started solvadi interferon and ribavirin for 12 weeks

7/28/14 - week 4 undetected dosage reduction of rib and peg

 

11/2/14 und 4 weeks post eot

 

g

 
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