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Hep C Discussion Forum -> On Treatment -> update --week 8
Post Info TOPIC: update --week 8
KLG


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RE: update --week 8
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Lucy, my doctor didn't do the 8 week test either. Only 4 and 12. I was hoping they would do the 8 week because I am still on reduced RIBA and I was worried it might impact my vl. I guess I will find out at 12 weeks if I am still und.

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Geno 3a, stage 3, IL28 cc, diagnosed 94, interferon 1year, relapsed immediately, started RIBA/int on 2/1/13, 4 wk und. Female, age 55, EOT 7/18/13. 4 weeks UND, 12 weeks UND, 6 months UND!!!
Cinnamon Girl


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Hi Lucy, well I wouldn`t worry about that.  The 12 week viral load result, when you finish incivek, is more important than at 8 weeks, so I expect that`s why.  For people doing tx with victrelis though, week 8 is more important because they have to do a 4 week `lead in` with peg and riba only.



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Cinnamon Girl


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I hope so too, Lucy!  I know you are having a hard time and it`s not surprising that you are feeling so tired with such a low Hgb level.  After you have finished the incivek then it should start getting easier for you.  And the transfusion and riba dose reduction will help keep you going, I`m sure.  You`re doing well so far, UND at 4 weeks is very good! 

Rest as much as you can!  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
lucy


Senior Member

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Posts: 115
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I am surprised why my RA didn't ask me to take VL test in week 8? I tried to ask to her, she told me I just need to take VL test in week 12. I see other memebers seem to take VL in week 4,8,10,12...........



-- Edited by lucy on Sunday 7th of April 2013 04:12:40 PM

__________________

 1b, start triple treatment(incivek) on Feb 5, 2013.  UND@ 4,12,24 wks. EOT Aug 6, 2013
lucy


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30 April will be my last day to take incivek. Hoping it is coming soon.

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 1b, start triple treatment(incivek) on Feb 5, 2013.  UND@ 4,12,24 wks. EOT Aug 6, 2013
Cinnamon Girl


Guru

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Ok, well I can understand you being nervous about the transfusion after last time, but remember that things have improved a lot in the last 20 years, and all donated blood products are screened for the Hep C virus nowadays so you have no need to fear being re-infected.

So, do you have much longer on incivek now, Lucy?  By my calculations you`ve been on tx for about 8 weeks now? 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Cinnamon Girl


Guru

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Posts: 5629
Date:
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Hi Lucy, other members have also needed to have a blood transfusion when their HGB levels have dropped below a certain point, and it has made them feel a lot better.  Cutting your ribavirin dose should help too.  Are you taking 200 mg in the morning and in the evening now?

I hope you will be feeling better soon, let us know how it goes. 

Best of luck, Jill  smile 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
lucy


Senior Member

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Posts: 115
Date:
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yes. I am taking 200 mg in the morning and in the evening. At the begining, I took 600mg in the morning, 400mg in the evening. cutting it from week 5 to 400mg in the morning, 200mg in the evening. but HGB and RBC keep droping down. so from week 8 cutting RIBA to 200mg in the morning, 200mg in the evening. I feel so tired every day.

 

But about blood transfusion, I am worrying about a little. The reason I got Hep C 20 years ago is blood transfusion. So I so worry about it.



-- Edited by lucy on Friday 5th of April 2013 04:49:15 PM



-- Edited by lucy on Friday 5th of April 2013 04:49:49 PM

__________________

 1b, start triple treatment(incivek) on Feb 5, 2013.  UND@ 4,12,24 wks. EOT Aug 6, 2013
lucy


Senior Member

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Posts: 115
Date:
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HGB   78       120---160

RBC    2.29    3.8--5.2

HCT    0.23    0.36--0.46

My RA ask to reduce RIBA from 2 pills morning , 1 pill evening to 1 pill morning and 1 pill evening

And she told me I need blood fransfusion and set up time to do that next week.

Others keep the same.

 



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 1b, start triple treatment(incivek) on Feb 5, 2013.  UND@ 4,12,24 wks. EOT Aug 6, 2013
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