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Hep C Discussion Forum -> On Treatment -> NEW HERE, but been a lurker..STARTING TRIPLE TREATMENT SOON! YIPPEEE!
Post Info TOPIC: NEW HERE, but been a lurker..STARTING TRIPLE TREATMENT SOON! YIPPEEE!
lozeaujo


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RE: NEW HERE, but been a lurker..STARTING TRIPLE TREATMENT SOON! YIPPEEE!
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Thanks mallina.. My platelets have have held in between 30 and 40 thousand and  I have been extremely anemic, but I would do it all again for SVR.. My doctor did reduce my riba by 400 mg per day, but during the last month Ive been on full dose of everything. Im just trying to ride this last week out. Ive been reading some of your past posts and you give me great hopes for my future. You are a great inspiration to me and my liver.. Congrats to you!! and everybody that has made this journey..

           Joe.



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joe lozeau
mallani


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Hi Joe,

Welcome back! You've had a long, difficult journey and it's great you are almost finished. The 48 week Victrelis protocol is the most difficult thing I've done.

You have been Undetected since week 4, so your chances of SVR are excellent. How did your platelets hold up?

As a fellow cirrhotic, you will be pleased to hear I remain Undetected 14 months post Rx, and my liver fibrosis has regressed significantly, and the enzymes are normal for the first time in 30 years. After SVR, your portal hypertension will ease, and you can expect a much better quality of life.

Well done buddy, and please let us know the final results. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
lozeaujo


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Im back... I took my last shot of interferon tonight at 7pm.. 1 more week of treatment pills and I am done! 48 weeks and it went ok and things are looking up.. I pray for SVR..Ive been undetected since week 3, so Dr thinks I have a great shot.



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joe lozeau
Biggyb


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Good luck Joe, they look very similar to mine when i was on tx. Doc put me on Neupogen when my wbc went to i think 1.9. At least you now know the drugs are working and doing battle. Hang in there.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
mallani


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Hi Joe,

Your WCC and platelets are continuing to drop, and this may need attention as you're doing 48 weeks. By 48 weeks my platelets were down to 38,000 and my doc wanted me to consider an infusion. I would only do that if the platelets dropped below 20,000. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
lozeaujo


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This is my july 1st blood results, been on hep c treatment 8,9 or 10 weeks now..My doc reduced riba by 1 pill due to aniemea, am now on 1000mg a day instead of 1200.. Besides this, Im moving right along..

  

WHITE CELL COUNT4.4-11.0 K/cu mm2.1
RED CELL COUNT4.50-5.90 M/cu mm2.94
HEMOGLOBIN13.5-17.5 g/dL9.5
HEMATOCRIT41.0-53.0 %28.8
MCV80.0-96.0 fL97.9
MCHC33.4-35.5 g/dL33.0
RDW11.5-15.0 %18.3
PLATELET COUNT150-400 K/cu mm49
NEUTROPHIL %50-70 %41
LYMPHOCYTE %18-42 %44
MONOCYTE %2-8 %10
EOS %1-3 %3
BASO %0-2 %1
NEUTROPHIL #1.8-7.7 K/cu mm0.9
LYMPHOCYTE #1.0-4.8 K/cu mm0.9
MONOCYTE #0.0-0.8 K/cu mm0.2
EOS #0.0-0.5 K/cu mm0.1
BASO #0.0-0.1 K/cu mm0.0


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joe lozeau
Tig


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Great news on the RVR!! I'm hoping for the same. Sounds like you're fortunate regarding the side effects, hope it continues. Make sure of one thing, always have some extra batteries for the remote!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
lozeaujo


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Hi all...

 Its been a minute, since I last updated... Im doing O.K.. My side effects have mostly been fatigue, so alls well there.. Ive been trying to stay somewhat active, but you know..My remote hand is doing great!

 Anyways...My doctor said I have a great chance at SVR since I was undetected at week 4 which is considered RVR.. He said I have a 90 percent chance at SVR even with the cirrhosis and portal hypertension..

 Im on week 8 right now, with 40 weeks left.. tick tok..

 Joe



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joe lozeau
Kellie


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Hi Joe, How are you doing? Just checking in biggrin  Kellie



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HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
Cinnamon Girl


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lozeaujo wrote:
...I have genotype 1

These results are most likely indicative of the absence of HCV viral infection and the absence of HCV viremia. These results do not, however, rule out the presence of low-level HCV viremia below the assay's lower sensitivity limit of 7 IU/mL for HCV genotype 1, ...

Component Results

ComponentStandard RangeYour Value
HEP C PCR, QUANT Undetected

 

 

Hi Joe, the most important word here is `Undetected`...congrats!  biggrin

The rest of it means that it`s most likely you haven`t got any virus particles left but the test isn`t sensitive enough to detect a number below 7 IU/ml (for gentotype 1`s), so you might have a very tiny amount still circulating but too low to measure.  That`s all good and the best result you could get!

There`s not a lot of difference in your blood count results this time, and your doctor will be keeping an eye on them anyway.

Well done Joe, good going!  smile

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Biggyb


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Hey Joe, i don't know much about blood tests, but when i see undetectable i know that's a good thing. Good Luck !!



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Kellie


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Yay Joe! Your body is responding to the treatment. That is always good news. K



__________________

HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
lozeaujo


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Those are my june 3rd blood test results..

I also just recieved my viral load 4 week results.. Actually they are technechly my 3 week 4 day results, considered my 4 week results which is I think is good news.. Maybe somebody can fill me in 

on the results and what they mean..I have genotype 1

Reportable Range: 43-69,000,000 IU/mL

These results are most likely indicative of the absence of HCV viral infection and the absence of HCV viremia. These results do not, however, rule out the presence of low-level HCV viremia below the assay's lower sensitivity limit of 7 IU/mL for HCV genotype 1, 15 IU/mL for genotype 2, and 10 IU/mL for genotype 3.

Component Results

ComponentStandard RangeYour Value
HEP C PCR, QUANT Undetected

 



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joe lozeau
lozeaujo


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WHITE CELL COUNT4.4-11.0 K/cu mm2.0
RED CELL COUNT4.50-5.90 M/cu mm3.52
HEMOGLOBIN13.5-17.5 g/dL11.5
HEMATOCRIT41.0-53.0 %32.8
MCV80.0-96.0 fL93.2
MCHC33.4-35.5 g/dL35.1
RDW11.5-15.0 %19.5
PLATELET COUNT150-400 K/cu mm55
NEUTROPHIL %50-70 %42
LYMPHOCYTE %18-42 %42
MONOCYTE %2-8 %11
EOS %1-3 %5
BASO %0-2 %1
NEUTROPHIL #1.8-7.7 K/cu mm0.8
LYMPHOCYTE #1.0-4.8 K/cu mm0.8
MONOCYTE #0.0-0.8 K/cu mm0.2
EOS #0.0-0.5 K/cu mm0.1
BASO #0.0-0.1 K/cu mm0.0


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joe lozeau
Cinnamon Girl


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Hi Joe, thanks for the update.  Looks like your Hb and platelets have dropped a bit more and also your neutrophils.  This was your 4 week blood draw, was it?  How are you feeling now, more tired or about the same?

Best of luck with your viral load result!  ~ Jill

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
lozeaujo


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New blood test  results..

    

WHITE CELL COUNT4.4-11.0 K/cu mm2.7
RED CELL COUNT4.50-5.90 M/cu mm3.66
HEMOGLOBIN13.5-17.5 g/dL11.2
HEMATOCRIT41.0-53.0 %33.8
MCV80.0-96.0 fL92.2
MCHC33.4-35.5 g/dL33.2
RDW11.5-15.0 %18.5
PLATELET COUNT150-400 K/cu mm53
NEUTROPHIL %50-70 %37
LYMPHOCYTE %18-42 %47
MONOCYTE %2-8 %10
EOS %1-3 %5
BASO %0-2 %1
NEUTROPHIL #1.8-7.7 K/cu mm1.0
LYMPHOCYTE #1.0-4.8 K/cu mm1.2
MONOCYTE #0.0-0.8 K/cu mm0.3
EOS #0.0-0.5 K/cu mm0.1
BASO #0.0-0.1 K/cu mm0.0

General Information



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joe lozeau
lozeaujo


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Here is my next bloodwork test results for whoevers interested... Im on triple theropy with vic.. Start date of may 9 2013.. With barely hanging compensated liver cirrohiss, portal hypertension, somewhat blocked bile duct..Im 41 or 42 or 43 years old.. Whos counting?.. I might be 44...

Im on my first month with pegasys alpha 2a and 1200 of ribavirian a day.. 

Bloodwork was done may 20th 2013.. Sorry for all the miss spellings, tired...

 

WHITE CELL COUNT4.4-11.0 K/cu mm3.0
RED CELL COUNT4.50-5.90 M/cu mm4.11
HEMOGLOBIN13.5-17.5 g/dL12.5
HEMATOCRIT41.0-53.0 %37.1
MCV80.0-96.0 fL90.4
MCHC33.4-35.5 g/dL33.6
RDW11.5-15.0 %16.5
PLATELET COUNT150-400 K/cu mm59
NEUTROPHIL %50-70 %42
LYMPHOCYTE %18-42 %42
MONOCYTE %2-8 %10
EOS %1-3 %5
BASO %0-2 %1
NEUTROPHIL #1.8-7.7 K/cu mm1.2
LYMPHOCYTE #1.0-4.8 K/cu mm1.3
MONOCYTE #0.0-0.8 K/cu mm0.3
EOS #0.0-0.5 K/cu mm0.1
BASO #0.0-0.1 K/cu mm0.0


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joe lozeau
gatekeep


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I'm 34 weeks in and had a tough ride in the first 12 wks. Incevek kicked my ass!  Ever since getting off of it. Drink lots of water, I take Advil before the shot, listen to your body after 20 yrs. of being sick its time to let yourself heal, rest, sit down and watch the world go by for a few months. I too have had Hep for over twenty years. I think I can do more but I just have to sit down. I am at the point now that i can't remember how it feels to feel normal. 

Manage your side effects

it gets better



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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
Brendalee333


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hey joe, congrats on starting treatment.  I am about 6 weeks in and i felt the same way after my first shot cuz I felt fine the next day. So far my side effects have been managable.  Worse I had is being tired, (but im always tired cuz I got twins) headaches, and loss of appetite/lil nausous. Hard time sleeping also. Was suppose to start my 3rd med a week ago, but ofcourse the pharmacy misplaced the paperwork then the insurance didnt receive it yet....so im not to happy about that. The waiting game.....



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genotype 1a

Started treatment 4/12/13 with ribavirin and peg-intron. Started Victrelis 6/19/13. (triple therapy)
Biggyb


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lozeaujo wrote:

Thanks all..

 Im hanging in there and im going til the end with this...Walk, Crawl, roll,  Ill see you all at the end.. Platelets...Who needs them?

 You sound exactly the way i feel. I am too stubborn to quit now, Lord knows i can't wait for it to be over..Yea hell with a little low platelets, just try not to bleed, lol.

Good luck.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
lozeaujo


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Thanks all..

 Im hanging in there and im going til the end with this...Walk, Crawl, roll,  Ill see you all at the end.. Platelets...Who needs them? 

        Joe

P.s.. I may not be the first to finish this race, But to all that walked this road before me... Ill be there, someway...

   Ill keep you all posted, and mallani, I thank you for all the input, and I take your words as truth...Unless its something I dont want to hear..he he



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joe lozeau
mallani


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Hi Joe,

Your platelets are a bit low. A drop to 62 from 85 is a bit of a worry after only 2 weeks. I'm sure your doc will watch them carefully. At 1.1 your Neutrophils may also be a problem as Rx goes on.

The Hb drop usually kicks in when Victrelis is added. I went from 16.8 at SOT to 9.6 at week 5. That's when you really get tired. All the best.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


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Glad to see you both in the fight to beat Hep C!
I have always been active and slowing down
Wasn't easy but I eventually gave in to it.
Some days I had energy some I didn't.
Every day u r closer to the end:)

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
lozeaujo


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Hey..

 This treatment deal takes a little getting used to, but like you say....After this is over we will have all sorts of energy...

I recieved my first weeks blood test results today and Ill post them at the end of this.. Its not my viral load results, but my CBC DIFF...

 Have a great day!

Ps my results far right..

WHITE CELL COUNT4.4-11.0 K/cu mm3.0
RED CELL COUNT4.50-5.90 M/cu mm4.27
HEMOGLOBIN13.5-17.5 g/dL13.1
HEMATOCRIT41.0-53.0 %38.8
MCV80.0-96.0 fL90.9
MCHC33.4-35.5 g/dL33.8
RDW11.5-15.0 %15.9
PLATELET COUNT150-400 K/cu mm62
NEUTROPHIL %50-70 %37
LYMPHOCYTE %18-42 %46
MONOCYTE %2-8 %10
EOS %1-3 %6
BASO %0-2 %1
NEUTROPHIL #1.8-7.7 K/cu mm1.1
LYMPHOCYTE #1.0-4.8 K/cu mm1.4
MONOCYTE #0.0-0.8 K/cu mm0.3
EOS #0.0-0.5 K/cu mm0.2
BASO #0.0-0.1 K/cu mm0.0


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joe lozeau
Kellie


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Hey Joe,

Yes I am tired too. I'm trying to let my body feel how it wants to feel without putting too much negative self talk into it (sometimes this is very difficult for me). I'm used to having more energy too and have had to slow down and limit what I do to a great degree. Just think though, when we're done with tx we'll have tons of new energy that we haven't had in years. I have to keep reminding myself this is temporary......and the energy will return. Good for you Joe!



__________________

HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
lozeaujo


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Hi...

 Yep... today I am one week down, and I can say that Im feeling like a weeny...I thought Id handle this a little better, but the fatigue is killing me.. Im lazy, but I guess thats the way it goes..

Maybe week two I will have more energy...

 Congrats on week five.. Im right behind you and catching up.

                       Joe



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joe lozeau
Kellie


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Hi Joe! How are you doing? I'm on week 5 of the triple treatment with Teleprevir. The first few weeks were filled with side effects (rash, hemmaroids, foggy head), it's a little better now. I drink around a gallon of H2o a day. Just saying heyaww



__________________

HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
lozeaujo


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Thanks again...

  I am feeling a little achy and tired, like a case of the flu... 

  So thanks again

           joe



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joe lozeau
lozeaujo


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Hi..

 I took my first shot last night and woke up this morning feeling great.. After hearing all the horror stories, I wonder if I did something wrong with the shot..I followed all directions, but when I had to pull back on the syringe to check for blood..I had a hard time so I just  stuck at 45 degree and shot. When I pulled it out there was a tiny drop of blood on my skin..Did I hit a stomach vein?..

Now Im worried, since I feel so great today.. Its weird to be worried since I feel good, but I am..How far  should I pull back syringe to check for blood?

Anyways, please could someone give me some input?

  Joe



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joe lozeau
Cinnamon Girl


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Well done, Joe!  How are you feeling today after your first shot?  Hope you had a good night.  Let us know how it goes. 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Cinnamon Girl


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Hi Joe, it`s fine, you haven`t done anything wrong!  We`re all different and not everyone feels bad after their first shot, so just be pleased you`re feeling so good!

The subject of pulling back the syringe plunger has been discussed here many times before and most of us agreed that we didn`t ever pull back and that it wasn`t actually necessary.  I certainly wasn`t instructed to do that.  About the spot of blood...the needle probably broke a tiny blood vessel, not a vein, and that`s quite common, nothing to worry about. smile

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
lozeaujo


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Thanks...

 I took first 3 ribivirian 6 am,  then 3 more this evening at 6pm and just took my first interferon shot at 7pm, and I feel great!, to start this process..Hopefully all goes well...

I will keep you updated.. I will also post my blood draw results for whoevers interested..

              Joe



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joe lozeau
Biggyb


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mallani wrote:
you will need to set alarms to remind you,

 Bet you are glad those doggone alarms are done, i know i will be.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
mallani


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Hi Joe,

Welcome to treatment. It's very important to establish a routine that fits your daily schedule, and stick to it. Complying with the drug dosages and timing becomes difficult at times, but it ensures you have the optimal blood levels. I took 3 Riba at 6.30 am, then 3 Riba at 6 pm. I had my Peg. shot at about 7pm on Friday nights. When Victrelis was added, I took 3 Riba and 4 Victrelis at 6 am., 4 Victrelis at  2 pm, 3 Riba. at 6 pm, then the last 4 Victrelis at 10 pm. I always had some food with the pills. The Victrelis needs to be taken about 8 hours apart +/- 1 hour. I managed this for 48 weeks and was only late once. You will need to set alarms to remind you, but the closer you can stick to the routine, the better your chance of SVR will be. It's hard work, but worth it.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
lozeaujo


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Thanks for the heads up...

 I started this morning at 6 am... I took the 3 ribaviran, then 3 this afternoon, then my first shot this evening at 7 pm...Is this the usual first day start plan, I mean the order the pills and shot are taken on day one?

 Anybody?



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joe lozeau
Cinnamon Girl


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Great, good luck with your first shot, Joe!  It`s different for everyone, but best to be prepared for some `flu-like` symptoms coming on within a few hours afterwards.  Have some painkillers handy and plenty of water.  Keep us posted!  smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Cinnamon Girl


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Yes, it`s usual to start the ribavirin pills on the same day as your first shot.  Ideally, your ribavirin doses should be taken about 12 hours apart, but some people prefer to take their 2nd dose earlier as it can cause difficulty with sleeping if taken too late in the day.   And it`s always best to take your riba with food, even a snack will do.   Most people do their shots in the evening, and with any luck you`ll sleep though the worst of the side effects.  You should be fine with that routine, if it suits you. smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
lozeaujo


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Hi..

 New start date is thursday!..tomarrow morning..Ive been waiting so long to treat and now the day has come..

 Keep everybody posted!

          joe



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joe lozeau
lozeaujo


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Hi..

 I went to dr and he gave me a start date of this sunday.. He wants to see me weekly to keep an eye on me.. He also said that a new treatment is going to be out in about 9 months, and that I could wait if I wanted.. He advised against it, and said if this treatment doesnt work I can always try again with the new treatment coming in about 9 months....

 Anyways.. My viral load is 48000.. DR confirmed it today and he said that it is low which is good.. He also said my liver functions test looked better then in the past.. I quit smoking about a year ago though, so maybe that has something to do with it..

  Well sunday is my big day!!!!

               joe



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joe lozeau
mallani


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Hi Joe,

That's a very low Viral Load for a cirrhotic. Are you sure that's correct?  If it is, your chances of SVR are excellent. The leadin with Peg. and Riba works best with low VL's, so hopefully you should be Undetected at 4 weeks.

Best of luck. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
marktrux


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48,000 vl is in the very low range, you should do well.



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KCCO

 

 
lozeaujo


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Oh and here was my viral load 

HEP C PCR QUANT, VALUE48000 IU/mL

I dont know if thats high or low...

        joe



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joe lozeau
lozeaujo


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Hi..

 Thanks mallani for th info.. Im very hopefull and optomistic.. Today is the day for DR appointment to see if I start treating today or tomarrow..

Ill keep you all updated on my progress..

           Joe



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joe lozeau
mallani


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Hi Joe,

My platelets were 163,000 at start of Rx and my Hb was 16.1  At end of Rx my platelets were 28,000 and Hb was 7.0  My doctor did not want to reduce my Ribavirin below 1,200 mgm/day, but that's an extreme view and I'm sure you won't have to suffer as I did. I'll find out whether he was right in the next few days. In the USA, most patients get a Riba reduction when the Hb drops below 10.

Victrelis does cause significant anaemia in cirrhotics but I'm sure your doctor will watch your blood counts. I have not had a followup Fibroscan to check my liver status- I'll wait for my VL results first. Another thing to watch is your ALT. Mine started at 135, and ranged from 60 to 80 during Rx.  In a perfect world, the ALT will drop into the normal range, but it's not unusual for the ALT to stay elevated in cirrhotics.

8 weeks after Rx, my platelets were up to 128,000 and my Hb was 13.8, so things improve after you stop the poisons. Good luck.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
lozeaujo


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Thanks everybody.. I go in to see my dr tomarrow, for them to tell me the ins and outs of treatment.. They call it a teaching appointment, Ill either start treatment tomarrow or tuesday with the Victrelis triple treatment program for 48 weeks.. I will see my dr every 2 weeks for the first 4 months to make sure im ok.. My platlets are somewhat low now at 85000, so hopefully I dont become to anemic..

 Mallani.. what was your starting platlets like.. Can you give me any pointers since you are in the same spot as me... How is your liver now?.. Has it repaired itself any? How do you feel and are you still virus free..

       Thanks all..

          joe



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joe lozeau
Matt Chris


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Hey Joe and welcome to the forum

Great to hear you are exciting about joining the the battle for your family, it will change your life and test your endurance and give your life back to you, then you will give back to others all that you learned.

You will find the forum members are willing and ready to help with all things HCV and show great care in the process.

Hoping you find your wayWelcome green.jpg

Matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
mallani


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Hi and welcome Joe.

As a fellow compensated cirrhotic I'll follow your progress with interest. What drugs are you going to be on? I finished 48 weeks of the Victrelis triple 9 weeks ago. It was no picnic, but you're a lot younger and should have an easier time. Good luck and we're here to answer any questions you may have. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JIme


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Joe, welcome to the forum. Hopefully, this will be the beginning of the end.

You have a great attitude. This place is crawling with fighters. You'll fit in perfect.

Good luck!

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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Dillo


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Hey Joe,

Always good to lurk before you leap.

Glad your finally getting your treatment.

Stick around lots of good people and information here.

Hang in there and let us know how it goes.



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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Loopy Lisa


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Hi Joe,

What a great gift for your son. Terrible you had to wait for so long, but wonderful you can start. :D



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
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