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Hep C Discussion Forum -> On Treatment -> Week 9
Post Info TOPIC: Week 9
hepcat60


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RE: Week 9
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The side effects are very frustrating. I feel your pain. I will have a few days of feeling reasonably decent and think I am tolerating them better and WHAM! Another day spent in bed most of the day. Hang in there and enjoy the days that are better.

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Hep C 1a since probably 1981.  Incivek, riba and interferon-48 weeks.  UND at weeks 2-4-6-8-10-12-16-20-24.  Previously Interferon alone for 6 months non-responder.  SVR 48 weeks 12/11/14
TN99


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Roulette wheel is a good description. Week 5 for me and the sx do seem to be getting worse, or my attitude toward them is getting worse.
Who freakin knows. I'm just chalking up any new ache, itch, cramp, restless fit etc. to sx.
Fortunately at 4 weeks my VL has dropped and all my blood chemistry is within normal ranges so I know I'm not gonna check out anytime in the foreseeable future...as crummy as it feels.

Making peace with the fact that this is just going to be how it is for the coming months. I try not to lose sight of that fact that I'm fortunate enough to have access to medical care and these god awful, powerful drugs that are beating the hell out of this virus 24 hours a day on my behalf.

Keep it going forum family. The experiences, the stories, the commiserating and the successes.



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Geno 3a, dual tx started 06/28/2013 Pegasys, Riba
VL 9.4mil, 4 week VL 318, wk8 UND, wk12 UND, wk24 EOT UND, 12wks post UND

~Tony~
ucbgal


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tonib,

     i'm finding that as the treatment progresses i'm getting more&more side effects. my bf&i counted them up and realized i only have a few more to experience on this roulette wheel of sx.

     a week and a half ago i had 3 days of nonstop  crying and was spiralling downhill in a jiffy. after just 2 sessions w/a therapist i'm feeling so much stronger. interestingly because she's a cancer survivor she has given me tips regarding my hemo&platelets count.

     just keep on plugging along and enjoy your party this evening.

sandy,ucbgal



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ucbgal


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tig,

     sorry to hear your having more&more side effects. i'm getting a dental guard made&will put the fluoride gel in it to prevent any decay. also i'm going to be getting a fluoride treatment as well.finally when i ordered more ph-strips i also bought the ion/saliva booster kit.

     mallani mentioned j&j baby shampoo for i had the itchy scalp early on and the stuff really works!

     these meds are so powerful.... you're right that everyday it's something new.

     turns out that not only is my uric acid up to 7.3,but now my creatinine went up from 6.0  at start of treatment  to 1.18. i demanded the lowest dosage of allopurinal.

     just keep on plugging along.

sandy,ucbgal



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Biggyb


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mallani wrote:

Guys,

Treatment isn't easy and we have to dig deep to deal with each new side effect. With me it was a steady downward slide from week 5 to week 48.

 Same here, from about week 7-48. Never got better. I kept hoping it would be better but it never was, just some day's more bearable. All activities were put on hold or canceled for almost a year. Soooo glad it's over. Feeling like doing all kinds of things now. So if i can do it, you can too. ~Cheers ~



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
mallani


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Guys,

Treatment isn't easy and we have to dig deep to deal with each new side effect. With me it was a steady downward slide from week 5 to week 48. I was unhappy because I didn't expect the sides to be so severe, and the Riba rage helped me to deal with them. About a year ago I posted a song by Sheryl Crow.........

'No one said it would be easy, But no-one said it would be this hard.....'

Have a listen to it, it helps. Cheers.

 



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
tonib


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I am up for shot 4 tomorrow, and each week gets weird for me too. Now I have this funny feeling in my ear, feels like fluid or like a plug and then it goes away. I have been losing my voice and I feel like a frog in my throat, but my throat does not hurt. Sometimes I feel my body and its red hot so I guess I have a fever???
Yes I have this stuff in my mouth also, but I had it prior to treatment is some kind of rosacia and I can't eat anything with citrus or spicy, no pickles, no oranges, and before the treatment ....no beer. the doc said something about tcell's...what ever...but its a real pain. I have all kinds of mouth washes and creams and even an antibiotic for it when it gets bad or infected.

I am also increasingly depressed. I find myself crying and feeling so bad and ashamed of this disease. So the doc upped my antidepressant from 10 to 20 mg......

Somtimes I think....its all in my mind....I'm not really feeling all this....but then my body sort of knocks me down on the couch..

I try to drink plenty of water, but lately been eating junk food, i know thats a no no...but give me a break already...all this and I want some chips and dips so sue me already! lol

I have a party tomorrow night...but its dart night....ugh....oh well maybe I can just go and eat and leave at 8:45 for my 9 pm shot...hey thats worse then Cinderella...at least she had till midnight...maybe I'll lose my slipper and prince charming will save me and take me away on his white horse to SVR land!

Yes please tell us your stories how you dealt with the side effects.

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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
Kellie


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Hi Brady, I understand how you're feeling. I'm having to reevaluate my expectations about how I'm going to feel on this treatment. I seem to get frustrated when I don't feel "normal". I set the bar very high when I started treatment about trying to be "normal".

The funny thing is I'm not supposed to feel normal during this treatment. There's no way not to feel not normal with all the chemicals in my body now. Also, tissue and organs are at the first stage of healing after being infected for decades. I came to this conclusion last night.

Now I'm suffering sx from the meds treating the sx of the triple treatment, along with the sx from the treatment.

I'm frustrated to say the least. Everyday it seems there is another new sx.

So for now, I'm going to try real hard to lower my expectations of how I'm going to feel daily. I think this is the best idea for me, as lots of days I feel like quitting. But I can't quit now. I've come so far and through so much to get to this point. I believe there is a divine power guiding me through this. Most times now, I have to act on blind faith because I don't feel connected, at this point in treatment, to this power.

So I'll go another day today and continue this journey, knowing that there will be an EOT day and an excellent possibility for SVR in my near future.

Kel



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HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
Tig


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Week 9 and all is going fairly well but I've began noticing some increasing discomfort. My mouth has over the last few days been getting raw behind my lips. It's as if my teeth were coated with an abrasive. Odd thing is is I can't see anything obvious! This morning when I woke up I noticed that my top lip was twice its normal size, still is. It isn't Thrush again, that was something I considered right away. I'm using the Magic Mouthwash because I'm getting some relief from the lidocaine. But it's not improving as it did when I had Thrush. I'm also having new problems with an itchy scalp. I've tried Zyrtec with limited relief and hesitate using Benadryl because it knocks me out. I've got a roughness to my scalp, like small bumps and they itch. If I'm not careful I find myself really scratching. I purchased some OTC solution for itching but it hasn't helped much. 

Today is Dart 10 and I've noticed an increase in the side effects with each week. Whether that is from one of the medications or all of them is an unknown right now. It is however a result of this treatment! Is it fun or enjoyable? That would be a loud NO! Is it doable? That would be a loud YES! It's my hope that these side effects don't get so uncomfortable that a decision has to be made whether to continue or not. Each week that goes by is a week to be proud of and more reason to keep trying! It helps me to listen to everyone else's stories, especially those that describe your side effects and how you dealt with them.



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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