Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> Having to start Neupogen
Post Info TOPIC: Having to start Neupogen
ucbgal


Senior Member

Status: Offline
Posts: 297
Date:
RE: Having to start Neupogen
Permalink  
 

tig,

     sorry to hear that you had to pay for meds you have to discard. i take 1ml under skin each week of procrit not your meds. also i use my upper arms w/ the procrit and thighs for the pegasys

     also did you switch drs?  i did 2wks ago and yesterday went for outpatient w/2 bags of blood. just earlier today old doc calls to let me know my hemo was 7.0 last friday. at this point in my treatment i'd believe that most of these drs. and pharm cos. are just in it for the money.

     be well.

sandy,ucbgal



__________________
LadyAlaise


Senior Member

Status: Offline
Posts: 251
Date:
Permalink  
 

Hey Tig... I had to take nuepogen as well... (For more info look up my old posts) and I also recieved four syringes prefilled but had to take the whole shot each time...
Some seem to have a mild reaction (i.e.; soreness) to it. I was not one of those lucky peeps.
For myself; I ended up having to make sure the majority of my day was cleared of major things to do the day after my shot as I felt like I had been hit by a plow truck. It would get better as the days between shots progressed. (I had to take it for more than a couple of weeks 2x a week then 1x a week and then down to once every two weeks) I found that taking before bed was best for me as when it started to hit; if I wasn't asleep it was hard to fall asleep once the aches set in.
I hope you won't have to take it for long and hope your sides are of the mild sort!

__________________

Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1
Biggyb


Guru

Status: Offline
Posts: 820
Date:
Permalink  
 

I did same thing, squirted out half. Big waste.. Oh it works too !!  fast.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi Tig,

Good luck with the shots. You may need some procrit as well if the Hb keeps dropping. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Received the Neupogen via FedEx today. It came in 4 pre-filled syringes, each with 300 mg of medication per unit. I was left scratching my head in dismay because it said specifically on the package and order that my dose is 150 mg/weekly. I find it to be an incredible waste of medication and money because those orders state clearly that I am to DISCARD 50% of the medication before administering it! I spoke to a pharmacy and was told that this is a very expensive drug and instead of pre-measured units, it comes as pre-filled instead and the patient measures the actual dose! So I pay for 100% and have to throw away half of it! There seems that there is something very wrong with that!

The injection went without incident but an hour later and it feels like I've been kicked by a mule in that thigh! I hope it works as desired, especially at the price and waste involved in its  administration. Big Pharm is skipping all the way to the bank no



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Thank you Sandy! I appreciate the helpful tips. I was starting to wonder if I wasn't getting too anemic. I've noticed a large increase in fatigue and muscle cramping lately. My CBC and body weight have been in steady decline, so this doesn't come as a big surprise. At least I know this treatment is doing something, even if I don't like it, lol!!



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
ucbgal


Senior Member

Status: Offline
Posts: 297
Date:
Permalink  
 

tig,

     here's what i do to prevent any/all sx. 1st warm the solution you'll be injecting for it's quite thick. this will prevent pain & bruising. also i inject extremely slow and release even slower  again to prevent sx. finally i ice for 2 hours and pop 2 tylenols. i have procrit w/ a vial and needle,it's not a self injectable. hope this helps.

     hang in there this will make you stronger and maybe you can walk cane free. lately my cane has become a new addition to my vampire wardrobe. be well.

sandy,ucb gal



__________________
Biggyb


Guru

Status: Offline
Posts: 820
Date:
Permalink  
 

Hi Tig, don't worry about it. There"s  nothing to it. But a little aches.

I had no sting. It works really good and fast. I think i took 2 shots a week. I had a whole bunch left at EOT and gave it to the docs office for those who didn't have insurance. They were very thankful because it is a expensive drug. Just have to get the blood tests every week or 2. Hang in there bud.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

I just got a phone call from my hepa's office. My CBC has dropped low enough that he has ordered my specialty pharmacy to overnight ship me the Neupogen injectable. I'm not sure if it will be once or twice a week. But most certainly will be until my WBC comes up. I have read that Neupogen stings on injection and causes a lot of muscle soreness. Are there any suggestions that might make this easier to tolerate?

Hb- 9.6, Hct-29.5, WBC-1.7, RBC-3.15, Plt-100, Ab Neutros-1003, Ab lymph-614, Ab Mono-99



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> Having to start Neupogen
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.