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Hep C Discussion Forum -> Post Treatment -> 12 weeks post tx blood results
Post Info TOPIC: 12 weeks post tx blood results
nikcoh1


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RE: 12 weeks post tx blood results
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Thank you Jill, Malcolm, Matt - I looked up the Bible verse and it fits perfectly. I have made my way through today and am stronger than I was yesterday. Tomorrow will be better and one day I will look back and see this has been an obstacle I have conquered. It is odd to me that after failing treatment in 1998 and again in 2004, I had come to accept myself as I am, virus as well. This most recent treatment gave me hope again so I did not expect to feel this feeling of being "dirty". I am thinking my personal relationship is what tipped me over the edge. Realizing this should help me to be strong again. The future is mine. I can choose to accept myself again and dicard all the negativity. In time there will be more options and as long as I take care of myself all will be fine. Thank you all again.

__________________

Diagnosed 1997, Genotype 1b, unsuccessful tx in 1998 (interferon), 2004 (interferon & riba). Started victrelis/interferon/riba 7/20/2012, finally UND at week 24, will continue for 48 weeks. EOT 6/20/2013 UND, 12 weeks post tx Relapsed
Loopy Lisa


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Firstly I am so sorry to hear about treatment faliure, you are the second person i have read today with this tragic news. I know its not forever, and I believe in my heart there is a cure for all of us around the corner..But sending you a hug...

I believe that love in whatever form will conquer anything. I think your partner used your illness as an excuse to bail. I might be wrong, but most of the people in my life have become closer to me including my husband since diagnoses not further. My best friend and a few others told me if they could take it out of my body and place it it theirs they would. You are as every bit as lovable as you were before diagnoses and don't you forget it, or let anyone make you believe otherwise. There are probably thousends of people that would love a woman like you and cherish every second with you. If he can't see this he is a fool and doesn't deserve you! x



-- Edited by Loopy Lisa on Saturday 5th of October 2013 12:27:53 AM

__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
mallani


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Hi Cindy,

I must agree that some Medicos don't bother keeping up to date, and that HepC is so poorly understood by many. Sounds as if the guy wasn't worth keeping anyhow. Just have a cry about the result, and get ready for the next round. I know it's easy to say, but many of us have had the same bad news many times. Ten years ago it was really depressing as there was no new Rx on the horizon, but now there is one with with your name on it!

Hang in there. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Matt Chris


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Hello Cindy

Sorry to read about your emotional roller coaster, I have been there also. Shame on that doctor, of all people he should know the true facts about transferring HCV.

Try not to let your sadness overcome you. Their is a time to be sad but their is also a time move on and get active with something that helps others. Remember your future has not been written yet and you have a lot living yet come come. Your options for treatment will only get better in the next 2 years without the burden of Interferon it will a lot easier.

Their is a beautiful scripture in Philippians 4:6,7 you should read when you feel the need.

Looking to the future with you

Matt

 



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
nikcoh1


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Hi all. Just checking in again. Two weeks now since I got my results back and I am still holding on. It has certainly been a roller coaster of a ride with my emotions.
I haven't shared too much, but these past few months have taken a toll. The man I have been seeing for the past two years, was somewhat rocky due to my hep c and his fear of getting it (his doctor, who is very uneducated in this disease, really gave him a lot of incorrect information and only amplified the fear), well we are officially done. It hurts just as much as getting my results back.
This too shall pass, but I often wonder how many times are people misinformed by health care professionals, that only causes more bad information to spread.
We had other issues as well so I cannot blame it on the hep c, but I certainly believe it was a great contributor.
Maybe this should go under the "rant and rave " section. So when will all my crying, hurt, anger and resentment end??
Hanging on and hearing the struggles and joys from everyone gives me the strength to keep going on. Thank you all again.

__________________

Diagnosed 1997, Genotype 1b, unsuccessful tx in 1998 (interferon), 2004 (interferon & riba). Started victrelis/interferon/riba 7/20/2012, finally UND at week 24, will continue for 48 weeks. EOT 6/20/2013 UND, 12 weeks post tx Relapsed
Cinnamon Girl


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I really feel for you, Cindy, you just don`t need any more stress in your life.  This should be a time for healing and nurturing and you need positive and supportive people around you.  Negative influences aren`t conducive to our well-being and in the end you will be better off without a partner who isn`t prepared to listen and learn the facts for himself.

Unfortunately doctors and health professionals aren`t always as well informed as they should be and it`s really disgusting that they help to enforce some of the misconceptions and myths surrounding this disease.  The only person I`ve told who has reacted badly to the fact that I had Hep C has been one of my brothers.  He asked his doctor how I would have caught it and the doctor`s reply was categorically "she caught it through sharing dirty needles".  My brother still throws this at me to this day.  I was shocked and very annoyed to hear this, and it just goes to show how the stigma of Hep C still exists, even among the medical community.

Take good care of yourself, Cindy, and focus on moving forward.  Your life is precious and so are you, just remember that.  x



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
ios9


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Dear Cindy,

I just saw your messages. I am very sorry for what is happening to you, and can understand your feelings right now, one of my friend had same sad news.

I agree with people here who tell you there will be a victory one day, progress goes so fast. It's good your liver had a big rest, I have been reading somewhere Interferon helps reducing fibrosis, so at least your liver had some help. Take the good part and look ahead for better news as your time will come :)

Warmest hugs to you  smile

 

Do



-- Edited by ios9 on Monday 30th of September 2013 09:27:39 PM

__________________

Geno 1b. VL 17. M. AbbVie Turquoise II. UND EOT 4. 8. 12. SVR.

"Our task must be to free ourselves by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty."Albert Einstein

 

 

 
Bloomster


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Hi Cindy,

Biggyb (Bob) told me that the virus had returned for you.  I am so sad to hear this and just wanted to say: be encouraged, you must be a strong woman to endure such tough treatment and there will be something that comes up for you, I'm sure.  Take care, Caroline



__________________

My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
nikcoh1


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Thank you all so much. Positive thoughts. I like it. Of course I am reading your messages with tears in my eyes. What is the phrase.... "good things come to those who wait". Well, we are all waiting so good things WILL come.

__________________

Diagnosed 1997, Genotype 1b, unsuccessful tx in 1998 (interferon), 2004 (interferon & riba). Started victrelis/interferon/riba 7/20/2012, finally UND at week 24, will continue for 48 weeks. EOT 6/20/2013 UND, 12 weeks post tx Relapsed
Tig


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Cindy, I'm sorry to hear your news as well. I'm at week 18 and like you have the desire to kick this disease at the earliest possibility. We know that treatment failure is always looming but the battle is also an important part of our recovery. The battle gives our liver a huge rest and will give you an excellent platform to dive off when the time is right to battle it again. Keep good thoughts front in your mind and they'll happen. None of us knows for sure what treatment will bring, but we do know that it makes us want to win, want to succeed and you have to believe that you will succeed! There are some great new treatments right in front of us and one of those has your Dragon's name all over it!!



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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mallani


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Hi Cindy,

As I said, we need to support our buddies, no matter what the news. You've had a long haul, so take some time to recover and get yourself into shape for the next round (which will work!). Many of us has had the same news, and it's just a matter of putting it aside as a temporary setback. Easy to say, I know, but you're not alone. HepC can now be treated successfully unless you've progressed to ESLD, which you haven't. Our thoughts are with you girl. You're a strong person, and you'll beat this. Almost certainly, your next Rx will be shorter and easier. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Cinnamon Girl


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So sorry to hear this, Cindy, I really feel for you after everything you`ve been through.  I`m glad you decided to share this with us, you need all the support you can get while you come to terms with this blow, and we`re here for you all the way. 

Time to take some time out now to recover and nurture yourself, and remember your day will come, you will beat this in the end!

Sending hugs, Jill x



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Biggyb


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Very sorry to hear this news. But we know were gambling here. I was following your progress closely as we had the same Doctor and meds and everything. I am alot more discouraged now as i go next week for my 12 week post test.

But either way it gave our livers a big rest. And as they all say there is newer crap coming out soon.
 So go out and live your life to it's fullest, it's gonna be fine. You will see.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
nikcoh1


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Hi all my hep c family - I just had my 12 week post tx bloodwork done and sadly the hep c is back. I wasn't going to post but (thank you for your advice malcomb) have decided to share this. I am having a very difficult time with this news but this too shall pass. New meds on the horizon and I have faith that one day I will clear this. Taking one day at a time and working on staying healthy so I will be ready for the next round. I just recently started feeling better after the long haul of taking all the meds.  This forum has been what keeps me going, both during tx and now recovering. Thanks to all of you!



__________________

Diagnosed 1997, Genotype 1b, unsuccessful tx in 1998 (interferon), 2004 (interferon & riba). Started victrelis/interferon/riba 7/20/2012, finally UND at week 24, will continue for 48 weeks. EOT 6/20/2013 UND, 12 weeks post tx Relapsed
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