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Hep C Discussion Forum -> On Treatment -> venting
Post Info TOPIC: venting
intothelight


Newbie

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RE: venting
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Hi aprileee,

 

So glad you are having a better day......

And thank you for your kind thoughts and prayers. I know that I can sure use them.

I remember getting to 20 weeks and in my mind I was nearly half way......those 4 extra weeks sure dragged, so I can really emphasise with you.

Down to 3 shots! Fantastic and all the best to getting through them.

Take care and love and light to you and yours.



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aprileee


Veteran Member

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Wow! thank you so much for the beautiful responses from everyone. Yes, I do need to realize how lucky I am because it could be much worse for me. The side effects suck but these are temporary things. I may be experiencing such frustration with that because my nurses gave me the impression that it was going to get easier over time, but it seems quite the opposite. So I am glad that we are here to help newbies understand the "truth" lol.

Kellie, you are done?! That is amazing! I never thought of it as the virus clogging anything up before but I like that analogy, this is getting me cleaner to see things differently and live a healthier, smarter life. Although I think even if I didn't get rid of this, I would still manage to do the same because I have learned and grown a lot though this whole experience.

Yes JoAnneh, I think sometimes I forget that I am allowed to pamper myself more than usual. Rest, baths, movies...that's what I need to be more concerned with, not so much my fall garden or making it to every single softball,basketball,volleyball game and it is OK to eat out once in awhile lol....and I am starting yoga in a few days!!

Terry and Cinnamon Girl, yes, a friend also said the same thing to me today, one day at a time....that's all I can even do.

2willy, this is so true and a little bit scary for me, but I am not seeing many true friends or caring husband these days. I am trying to not take it personally and just give it some time because I know I am oversensitive right now. But I'm pretty sure this is opened my eyes to the truth about things that I may have been trying to hide from before the treatment even started. THis was just kind of a kick in right direction whether I like it or not!

tonib, im sorry that you are a non-responder. as I said earlier I need to keep in mind how this could be a much different and worse situation for me. Thank you for being here to help remind some of us....good luck to you.

and lastly, intothelight, you are right 4 weeks is nothing, and actually since I do my injections on Saturdays, I just did one. So now I can say that I only have 3 left! that is awesome, and I am very very very grateful that I do not need the 48 week treatment!

You are all amazing people for taking time out of your day to give me your advice/experiences and I will pray for you all and I can easily say that this forum has been a life saver to me!! Good luck to all of you on your journeys, you have truly helped me through mine!!! <3

 



__________________

33 years old Genotype 3a NO luck with Peg & Riba in 2013 but am undetected after 2 weeks of Sovaldi with Riba 2014 :)
JoAnneh


Guru

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Yes, the medicine made me see things differently.
My first attempt 12 years ago failed.
I was a wreck on treatment.
This time I felt better emotionally
But treatment wasn't easy.
Things that helped me cope:
Sleep as much as possible on hard days
Or get out and about :)
The forum was a life line of support for me
Remembering I couldn't live without
A liver and counting my blessings and
Not my burdens. When negative thoughts
Came which to counting blessings
As in, I have a chance to beat this disease.
Focus on not taking out frustrations on loved ones!!!
Read material that soothes the soul, for me
Getting into the bible helped.
Yoga helps, baths helped!
I ate a lot and gained weight!!
Watch movies!
Rant on forum we understand and don't take
It personally like others may at home.
You are not a quitter and fighting
For your life! U will finish:)
Be glad you don't have 48 weeks like I did
As 24 weeks is VERY HARD!
Thinking of you. Keep your chin up
It's hard but u got this


__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Terry


Senior Member

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Posts: 124
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Hi April   

  Try and think about just one day at a time and that will help. I had to take some Ativan for a bit and cut the tabs in half so I just used enough to take the edge off. I felt like you worrying about complaining to much to family and friends but they understood and we certainly do so come and vent , talk or just read some posts and it will help you finish this off. Take care !



__________________

Geno Type 1a stage 4 cirrhosis EOT 52 weeks SVR !!
2willy


Senior Member

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Posts: 256
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went through the same and it is ok now, you find who are your true friends, how reliable and careing your partner is and there is a light at the end and recovery in all areas will happen slowly but it will happen



__________________

Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
tonib


Senior Member

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Posts: 188
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Turn the coin and think how lucky you are, after 13 weeks I had to stop therapy because I am a non responder...so a few more weeks with the chance of being cured is gonna be cake for you.

Stay strong!



__________________

 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
intothelight


Newbie

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Posts: 4
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Hi aprilee,

4 weeks is nothing!
you can do it standing on your head.

I know it seems long, but it to will pass....

I know that for a fact!

I am week 38 of 48.....

Yup to feeling that you are loosing it and that things are getting out of control.

It is all part of the ride, part of the journey through this.

You will do it.
I promise you that it will get better....next week you will be down to 3 shots.....that sounds pretty good to me.

Take care and love and light, you are not alone and 'we' the others on this path certainly know how you feel.


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Kellie


Senior Member

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Posts: 328
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Hey Girl, I could understand everything you said-

The last 4 weeks were the worst for me. The emotional toll the riba and interferon took on me was big. It just seems to effect some folks more - -probably some genetic thing. 24 weeks is crazy long time - especially if the tx effects you emotionally badly.

I am 12 days off the peg/riba today. I am coming back to normal. I have some crazy moments, but they're just moments now, not 24 f*(&ing hours a day.So there is something to look forward to, rest assured I promise.

I've used the xanax throughout treatment - in the beginning when I was on the Incivik, more so. Pretty sparingly low dose for the most part the rest of the treatment. I was unable to sleep through the hard days and have been unable to nap like I used to since I began tx.

It has a bite though, and depending on how much you are taking now daily, be aware that you may need to wean yourself off slowly because of the physical and mental withdrawals. Your doc will be very happy to help you with this when your time comes.

I say your time because it may be a few days/weeks/months afterwards when you feel you are ready and able to handle stuff on the natch again w/o it.

About the new understanding of life - yes, me too. I see and understand things clearer and on deeper levels now - maybe because the virus is not clogging and inflaming my cells - who knows - I'm 50.

So hold on there nellie, there is an end to this. you are almost there - thanks for sharing - great vent! oxox

 



-- Edited by Kellie on Saturday 12th of October 2013 06:33:13 PM

__________________

HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
Cinnamon Girl


Guru

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Posts: 5629
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Hi April, I really feel for you, and I`m glad you`ve told us what you`re going through.  No-one can really understand what it`s like to go through this treatment unless they`ve done it themselves, and no, it`s not easy.   Many people find that the mental and psychological side effects are even more difficult to cope with than the physical ones, I know I did, and quite often the last few weeks are hard-going.  I know everything must seem very dismal and depressing to you at the moment, but try to remember that it`s the tx drugs that are making you feel like this, things will look so different once you`ve got the next 4 weeks over with and start recovering.

I understand what you`re saying about the Xanax, but sometimes we need to do whatever it takes to get through to the end, and if it`s helping you then that`s a good thing.  You`ll be able to deal with coming off the pills once you`re feeling back to yourself again.

Just try taking it one day at a time rather than looking at how much longer you`ve got left to do, some people find that helps, and whenever you feel like venting we`re here for you.  Keep going and it won`t be too long before you`ll be feeling much better... and I hope the next 4 weeks fly by for you!  smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
aprileee


Veteran Member

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Posts: 86
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THIS SUCKS!!

I mean, im trying to stay positive, but it is NOT easy. I am on peg & riba and I have 4 more injections left....hard to believe I have already done 20!!! I knew it would be hard, and since I am already a pretty emotional person, I had a feeling the mental side effects would effect me the worst, and I was right, BUT WOW!!!! This is intense. I don't know if my home life is just excessively annoying to begin with, or if its just the treatment but I am starting to understand why some people cannot even finish the treatment. Its unexplainable.

Someone please tell me how 4 weeks is nothing and I can make it???? lol....and that I will be back to normal in no time??

But tell me if anyone understands this.....I may feel somewhat foggy, (especially the last 3 weeks since I have been occasionally taking Xanax to calm myself down) but this treatment has given me a feeling of understanding things in my life so much clearer than I ever have before. I think its either the medicine itself, the life-threatening aspect of the virus, or maybe even just simply that I am getting older now (32). Examples: my marriage, my finances, my parenting, other relationships with "friends" and family....I just have a feeling of everything being out of control. Yes the Xanax helps but I am concerned about getting addicted to it. Its to the point where I always feel like im having a panic attack and when I try and talk to people about it, I get the feeling that they are sick of hearing me complain. Like, "shut up april, its almost over." But I am struggling pretty bad. This was my only other idea, to share with ya'll, hoping that someone will have the magic solution for me. lol  

Even if no one responds, I hope this helps people like me feel less alone! :)

 



__________________

33 years old Genotype 3a NO luck with Peg & Riba in 2013 but am undetected after 2 weeks of Sovaldi with Riba 2014 :)
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