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Hep C Discussion Forum -> On Treatment -> A humorous look at what 40 weeks of anemia feels like to me.
Post Info TOPIC: A humorous look at what 40 weeks of anemia feels like to me.
Scruffy


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RE: A humorous look at what 40 weeks of anemia feels like to me.
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  I tell them at the infusion center that the sun is starting to hurt my eyes. People with O+ are starting to glow, they should be glad I have false teeth because who knows what might happen next.

  Heres a little food for thought.  Don't wana be a downer but I'm sure ppl here can relate to this.  I have tattoos was given blood products and used drugs in my younger days. I most likely caught this from drugs. I was on a methadone program for 10 yrs at 90 miligrams a day. Decided I'd had enough, 10 days later I was on zero. (wana talk about side effects?) Never looked back. Now that I'm drug free for 30 years I still have to go and some one sticks needles in my arm to make me feel better. Karma is relentless, how ironic is this.

Hope your feeling better Dusty. 



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
dustbear


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hepcat60 wrote:

Yea I hear you.  I have been mildly anemic for 42 weeks now.  I am also tired of being tired.  My Hemo is about 12 right now, but I still suffer from shortness of breath, fatigue, and almost constant nausea.  Not long to ge though.  Hang in there

 If I recall, our EOT dates are very close together. Mine is Dec 20th.



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
dustbear


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FYI:

The pain has severely increased in the last 2 days (my hgb drops is at 8), esp at the back of the neck and head. Feels like my head is going to explode.

I tried every type of pill possible, even an allergy pill and nothing worked.

Today something did work for the most part!

Caffeine!! Yup a big of cup of regular tea!

Wiki says that caffeine is a central nervous system stimulant.

So did I really have a headache or is it just a lack of oxygen? confuse

 

 

 



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
dustbear


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Thank you all so much.

Scruffy: I just ran out of breath laughing so hard, Dracula! That is priceless.

Sandy: I know! Just spent 15 hours in bed.

Terry: I agree, one day at a time. Everyone is so unique.



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
tonib


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Hang in there sweetie...your on the horizon! Best of luck!! 7 is a lucky # You can do it!!

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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
ucbgal


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dustbear,

 

what a trooper you are!!!! just think you're in the home stretch and this'll probably be your last transfusion. i know the fatigue is horrid.....

i'm on week 19 out of 24 and am dragging myself out of bed at noon daily. soon we'll both have tons more energy .

 

sandy,ucbgal



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hepcat60


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Yea I hear you.  I have been mildly anemic for 42 weeks now.  I am also tired of being tired.  My Hemo is about 12 right now, but I still suffer from shortness of breath, fatigue, and almost constant nausea.  Not long to ge though.  Hang in there.



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Hep C 1a since probably 1981.  Incivek, riba and interferon-48 weeks.  UND at weeks 2-4-6-8-10-12-16-20-24.  Previously Interferon alone for 6 months non-responder.  SVR 48 weeks 12/11/14
Scruffy


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I know how that feels Dustbear. I'm at week 15 and went for my third transfusion Oct. 30. I couldn't resist it being so close to Holloween. I showed up dressed like Dracula and in my best Beli Legosi voice told them trick or treat. I don't know how I had the attitude or will to do that. But I did my hb was 7.2. Ahhh a little me time with the IV.

Best to ya.



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Cinnamon Girl


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Oh Dustbear, I really feel for you!  Hang on in there, you`re doing so well, and it`s good to see you`ve managed to keep your sense of humour through these rough days.  Just keep going, one day at a time, you can do it!  smile 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
hrsetrdr


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Dustbear, I'm looking forward to the day that you take that last shot!   You've been through so much with tx, the improvement in your quality of life will be just immense!  Best wishes, Tim

 

@Terry, somehow you got a  identical double post in, so I removed the duplicate one. 



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Terry


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Hi Dustbear  Just hang in there I am off the turquois II trial and after four weeks I am still very tired. I thought that the anemic parts would go away a lots faster then this but we made it through the program so not much longer. Take care Terry



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Geno Type 1a stage 4 cirrhosis EOT 52 weeks SVR !!
Zlikster


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2 weeks post tx and you will feel 10000 times better :) after just 2 weeks without pills n shots, my blood counts improved almost back to normal. So don't worry, 7 more shots and just relax and njoy to see energy levels getting back :)



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
Loopy Lisa


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My goodness, I don't find that humerous, more like hell. Stay strong x



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Biggyb


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7 more weeks and you'll be through, ill be glad oh how bout you ?

Recovery from this crap comes the first week your off it. You will start feeling a whole bunch better..I know, believe me i know, the last 7 or 8 weeks are very hard but you can do it..We are here rooting you on...

Good luck ~Bob



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
dustbear


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It is a total lack of energy due to a lack of oxygen in the red blood cells (low hemoglobin).

No oxygen = no energy = extreme fatigue

 

My mind wants to get up and go but the lack of energy says do I need to, do I want to, do I have to, it can wait, Ill run out of breath and get dizzy and thats too much effort!

-         Laying in bed totally exhausted; not sleepy but too tired to:

-         Roll over in bed

-         Sit up in bed

-         Get out of bed and put on shoes

-         Walk to the toilet, sit and stand up again

-         Walk to the couch to do what, sit there?

-         God do I have to go downstairs, its not that important

-         Lets go back to bed and lay there!

-         I tried to walk around the block last week and it took 3 days to recover!

 

Its not really painful, just tiring.

Im tired of being tired.

 

I hope this brings some enlightenment to others.

In a positive note, what this has done for me is to live in the present moment.

I let go of worrying what I cant do and control.

I didnt give up, I gave in.

When a moment of energy arrives, I say to myself surprise and lets enjoy the moment! smile

 

Now Im due for my 5th blood transfusion!  Yippee some more energy!



__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
dustbear


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That is good news to hear. I was worried how long it would take for my blood to bounce back.

You almost get used to the feeling but then you give your head a shake. confuse

Yes Bob, the last 7 weeks seem to be like a cliff-hanging movie!

Thanks for the words of wisdom.

I see the light!



-- Edited by dustbear on Friday 1st of November 2013 02:04:49 AM

__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
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