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Hep C Discussion Forum -> On Treatment -> Anyone experiencing a need for excessive sleep?
Post Info TOPIC: Anyone experiencing a need for excessive sleep?
ucbgal


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RE: Anyone experiencing a need for excessive sleep?
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hepcat,

i'm on the 6 mo. plan w/only 6 more days of pills left & retired. i agree w/ you totally about the sleep thing. i'm wired awake till 5am then get 2 catnaps of 2 hrs each. also 1 day/wk i take the 6.25mg of ambien and really crash. i believe it's the ribo that's making us wired/edgy.

i give you so much credit for working & doing the 48 wk plan. you're almost there.... can you take off 1 day/wk to catch up on the sleep? i did that on my 1st attempt in 2001. it really helped.

i totally agree w/ you re;sx towards the end. the rash,itchy scalp,muscle aches and nausea seem to really like my body. have you noticed that as soon as you take the ribo this awful mettaliic taste attacks you?

sorry,i shouldn't vent... in 6 mos. when we're both SVR we'll be laughing over this hysterically.

put one foot in front of the other,w/ your cane and keep on trucking...

sandy,ucbgal



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hepcat60


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I come home every day and take a short nap.  I have been doing this since treatment began.  I am not talking a need for a nap I am taking about sleeping 35-40 hours some weekends.  Probably just the amount of time an length of treatment wearing me out.  I am on week 47 of 48.  I am tired to the bone!  It's amazing how day to day the side effects are.  I have slept a total of 6 hours the past 3 days.  



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Hep C 1a since probably 1981.  Incivek, riba and interferon-48 weeks.  UND at weeks 2-4-6-8-10-12-16-20-24.  Previously Interferon alone for 6 months non-responder.  SVR 48 weeks 12/11/14
JIme


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I took naps almost every day after work during triple tx.  I think it's normal.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Bloomster


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Hi there, my husband needed a tonne of sleep on treatment. I think it's the body's way of coping. All the best with your treatment. Caroline

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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
lauralou57


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Yes, lets hope!

But the fatique and excessive sleep I was referring to below was while I was NOT on treatment.

When I was on treatment (interferon and ribaviran in 1999) I was tired but I got a migraine almost every day and the interferon made me very WIRED! I have never had pain worse than migraine pain so when I was on treatment I was very focused on the migraines. Then my viral count started going up NOT DOWN and the hep C doc said I should stop treatment.

I am sure that hep C fatique is much worse on treatment than off, particularly for some people who get anemic from ribaviran. I tolerated ribaviran well - my hemoglobin went down 2.5 points but then three weeks later it went back up and stayed up.

I am not a medical professional but it sounds like you should focus on taking extra good care of yourself and don't worry about anything else!



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Tig


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I've been having periods throughout treatment when I would be so tired, for no reason other than the SFX of the medication. I haven't worked this time, so I've had ample opportunity to rest when necessary, but all the rest in the world means nothing at times. I can be well rested, having slept 6-8 hours and the minute I sit down, I'm out cold. The fatigue from this treatment has no rules or ways to understand it. I finally accepted it for what it is and let it have it's way when it wanted it. I feel for those of you working through this, I know how difficult exhaustion can be. I have noticed there are times when it's worse and if I can make myself take a 20-30 minute power nap, I feel a big improvement over the original episode. As we rid our body of these drugs and get back to some form of normality, I hope our sleep clock will also give us a rest!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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lauralou57


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Fatique and sleeping is one of the hepatitis C symtoms I have experienced.

Since 1999 (when I found out I had hep C) all of my biopsies have been great and all of my blood work (liver enzymes, etc. ) usually falls in the normal range, even my ALT.

But, as I have gotten older (I am 57) I sleep more and more hours every night. If I go to bed without setting the alarm I will sleep 10 hours straight. On the weekends I frequently take a nap also for up to an hour. But I sleep well and usually wake up refreshed.

When I was younger and before the car accident I had involving a blood transfusion which gave me hep C I never slept that much.

But, if I get my 10 hours of sleep I am then fine.

I am hoping that, once I clear the virus from the new meds coming, I will sleep less.



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marktrux


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There were days when I'd get home from work, sit in my recliner and nap until it was time for a shower then straight to bed. And other times I'd toss and turn all nite long and not sleep a wink. I tried to take advantage of the times I was sleepy and would sleep as much as I could then. That way when I couldn't sleep, I felt like I had some extra sleep "in the bank". I would say most of the time I did what my body said I needed to do. Slept when I was sleepy and stayed awake when I couldn't sleep.



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hepcat60


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I spent most of Thanksgiving week sleeping.  I mean literally 18 hours plus per night and day.  I remember Joannah talking about an excessive need for sleep toward the end of treatment.   I am working full time at the moment and really crash on weekends, however, there are week nights that I can't sleep at all.  Anyone else experiencing this?



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Hep C 1a since probably 1981.  Incivek, riba and interferon-48 weeks.  UND at weeks 2-4-6-8-10-12-16-20-24.  Previously Interferon alone for 6 months non-responder.  SVR 48 weeks 12/11/14
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