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Post Info TOPIC: Today is the day!


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So, after waiting all day for my med delivery that I was told would happen ...it did not arrive. I called the speciality pharmacy and it turns out the woman who told me yesterday that I would have my meds today did not get the final manager approval and it didn't send out. I found this out after speaking to about 8 different people. Finally, someone who took her time to read the notes on my account and contact the proper people set up a delivery for me for Tuesday. ..This time it's guaranteed as a go. My goodness. ...

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Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 



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Alright Angie

Way to go, from here it will be much easier.

matt 



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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Good news...tomorrow is the day!! :) The pharmacy will over night the sovaldi. Tomorrow night I begin. Finally! They are investigating what happened to the other pills but they did some override and luckily my insurance covered lost/stolen meds. Thanks all for reading all my complaints lol...I'm sure you haven't heard the last of me though.

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Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 



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angie,

sorry to hear of all this confusion over your meds. thank goodness you're having the rest shipped to your home.

i'm certain after all this mess you'll have smooth sailing from now on.

wishing you minimal sx & und while on treatment.

sandy,ucbgal



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Tig


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Angie,

I'm sorry that you're having such an ordeal getting started. I've seen a lot of road blocks and hesitation to get started on treatment, but this is a first! Trust that it will get straightened out quickly and you'll be on your way to a new hep free life!! Be sure you write this down in your journal. It will be something to laugh about in the near future biggrin Good luck!

Tig

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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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The nurse is trying to get all this fixed for me. I think she is more stressed than I am. She gave me a number directly to sovaldi and they just need some info from me and maybe they will send something out. Both my riba and sovaldi went missing or were never delivered in the first place. She had some copegus ribavarin (guessing there isn't any difference in that and ribosphere that I should have) on hand that she gave me but of course no spare sovaldi. The specialty pharmacy is also checking the warehouse for the possibility that there was an error and they did not send it...though it was on the packing slip.

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Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 



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I hope they resolve this soon, the waiting is the worst part....:)



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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Thanks you all for the support. It means a lot to have a place filled with nice people to talk to!

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Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 



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So...she can't find my meds and is trying to figure something out. Now I have no clue when I start. Could be tomorrow if she gets them or could be a week or two..depending on what she is doing. She had two other people's meds there and mine are the ones that randomly vanished. Arghhh...hoping I get a call tomorrow saying she has them. I'm hoping this is the very last set back lol...I have been going through hoops since September to get to this point. She did go over everything with me and all that is done...it's just a matter of her figuring out what happened to the meds . Thankfully, the next two months supply comes to my house directly.

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Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 



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Good luck to you, Angie.  I am on the same three meds and side effects very minimal so far. Just a case of chills and hard to sleep Friday night after the INF shot. 

Fingers crossed for us all.

 

 



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GT 1a / VL 6.5 million / age 64 / prior tx 1996 interferon

2/14/14 began Peg/Inf, Ribavin, Sovaldi for 12 weeks 

finished treatment 5/8/14  undetectable @ 4 wks, EOT & 12 wks



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Best of luck to you Angie, The Sofosbuvir hopefully will be at addition that gets the job done. Im on Sosf &  Riba  and having no  SX   Just a little hard to sleep but that got resolved yesterday with 5mg ambien.  Slept  like a baby.   Stay the course and keep us posted. Were all family here   RC



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 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   



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Yes, Jill...I will be on those 3 meds for 12 weeks. Sovaldi, pegasys and ribosphere.

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Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 

Tig


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Hi Angie,

That's great to hear! I know you've been anxious to get this started and over with. Keep your eye on the goal, SVR and don't quit til you get it! Good luck smile

Tig

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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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So, I'm sitting waiting for the instructions on the meds. ..that they have been looking for for the last 30 minutes. Apparently, someone has misplaced them and they only found my interferon. I really hope I leave here today with all my meds lol...always some delay!

__________________

Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 



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good luck Angie ;)

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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!




Guru

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Great news, Angie, it`s happening at last!  Will you be on a Sovaldi plus peg/riba treatment?

Try not to worry, you`ll feel so relieved once you get started, and you should do very well!  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Thank you :)


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Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 



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 Smooth sailing and much luck on your new treatment. 



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Dx. 2005-liver bx.: stg 2/gr 1. at that time  - GT 1a multiple transfusions in 1981.  Started Sovaldi and Olysio 1/16/14  (No prior treatments) Q80K present.  UND week 4,8 and at EOT.   UND at wk 4EOT, Und at wk 8EOT  SVR 12!!!..SVR 24 :-)



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Congratulations,!! Wishing for all the best for you.!



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John


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My appointment to start meds Friday was canceled due to a snow storm....but today I have a definite appointment to get started. She has had my meds since the 5th  and it's been driving me nuts waiting lol. I am trying to not think about It too hard because I am of course worried about side effects but I am also excited to get it over with. I struggle with anxiety/excessive worrying so I'm doing my best to keep an empty head and just go through the motions and press forth. 



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Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 

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