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Hep C Discussion Forum -> On Treatment -> starting treatment (maybe)
Post Info TOPIC: starting treatment (maybe)
OldenSlow


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RE: starting treatment (maybe)
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Gracie wrote:

__________________________________________________________________________________________________________
My platelets have been borderline for a couple of weeks down near 50. He said he would operate on me with platelets at 50 so to not be concerned and let the meds do their job. If I get SVR, all the complaining, tiredness etc, will have been 100% worth it. 

You bet it will, Gracie.  I've nothing but admiration for you and all others who have undergone INF therapy.  I knew I'd never make it through and didn't even try.  By the the time I figured out I had to do something, like it or not, the platelets were so low it was pretty much a non-option, anyway.  I feel most fortunate to have another opportunity.  Best regards..

wayne 



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66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
Gracie


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New Brunswick, and I'm covered under chamber group and husbands Sunlife. And incevik paid my co-pay plus sent me a bunch of coupons for free products (like peanut butter, boost, hydrocortisone creams etc). They took care of everything for me which was nice. The incevik is $15,000 for four weeks so nice you have no cap. I ne'er had to pay anything.

I asked my doctor about the new treatment and he said it would be 2-3 years before he would be prescribing it, although I find that hard to believe, it's hard to argue with him. It's also hard to stomach 48 weeks when others are doing 12..... Sigh ... But I've been relatively good symptom wise, have managed to keep working and doing most of my normal stuff except exercising and staying up past ten. And I'm losing some weight on the anemia diet so that's good...lol.

My platelets have been borderline for a couple of weeks down near 50. He said he would operate on me with platelets at 50 so to not be concerned and let the meds do their job. If I get SVR, all the complaining, tiredness etc, will have been 100% worth it. Pretty sure I've had it almost 30 years.

Really hoping you get the 12 weeker tho.... Although victrellis is a 28 week treatment so still not too bad.

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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Barnacle


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Gracie wrote:

The more I hear, the more I wish I had been more informed. I'm covered under two private health care plans and should have tried for the sovaldi. It feels like I may be the last of the 48 week incevik relics....

 I don't really know if I will be successful getting the meds. If not I will also be a relic. 

 

What province are you from Gracie? My insurance (Sun Life) covers 80% up to a $3000 deductable cap then 100% coverage.

Dr figures it will be about a year before Sovaldi is covered through BC med. He suggested I don't wait that long.

Here's hoping you have a problem free treatment. However we get there slaying this dragon is totally worth it.



__________________

57yo male gen 1a since '70s. Fib F3-4 VL >2M Tx started 5 Apr 14 Sov/Oly/Rib

wk 4 UND wk 8 UND, wk 12 EOT UND...keep em coming 24wks UND = SVR!
Gracie


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The more I hear, the more I wish I had been more informed. I'm covered under two private health care plans and should have tried for the sovaldi. It feels like I may be the last of the 48 week incevik relics....

__________________
  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Barnacle


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So first off let me say how valuable this forum has been to me.

I just left my specialist who had the report from my fibroscan (F-3) . I have also done a CT scan, and had so many blood samples over the last couple of years. Anyway lots of jargon and numbers flying around but this time I had them print out all my labs for me.

He has concerns about possible HCC (cancer) and wants to do an MRI to rule that out. If the MRI is negative then he has highly recommended me for treatment.

This is where this forum came in:

I said what treatment? He said Victrelis/Peg/Riba combo so I asked him wasn't there something better out there? Well yes but provincial health won't cover it. Ah but I have health insurance from work. That's really good news we can put you on Sovaldi...

Upon further discussion he is concerned about my low PLT (72) and since peg-interferon supposedly can affect PLT then I should avoid it and he is trying to make a case for Sovaldi/Olysio for 12 weeks. I have even signed the application for the Gilead co-pay program in case my insurance doesn't cover it all

 

Had it not been for this forum I would have just accepted Victrelis/Peg/Riba and been off work for the next year. I don't know if it will be approved but it looks like he's making a strong case.

 

It also looks like I will be the first in BC to get Sovaldi. Fingers crossed.

 

Thanks for the great folks at this forum. I'll keep you posted.



__________________

57yo male gen 1a since '70s. Fib F3-4 VL >2M Tx started 5 Apr 14 Sov/Oly/Rib

wk 4 UND wk 8 UND, wk 12 EOT UND...keep em coming 24wks UND = SVR!
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