Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> day 6 got a question on rash & skin
Post Info TOPIC: day 6 got a question on rash & skin
TazKat


Senior Member

Status: Offline
Posts: 479
Date:
RE: day 6 got a question on rash & skin
Permalink  
 

well today is better. it was the interferon that is taking it toll on me. I just hope I get well enough to go see my granddaughter play one of her tourney games. they have been awesome. she said she would like if me-maw  could come. broke my heart. i'll get there hopefully to watch her pitch that ball.. so here is to another day, hopefully a much better one. that interferon is strong this time. biggrin I am woman hear me roar.. I will do this..



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
TazKat


Senior Member

Status: Offline
Posts: 479
Date:
Permalink  
 

mallani, I bottomed out on 1200 mg a day last time. so hepa said 600 this time.. I am glad about that. I am getting some little rash areas on legs but trying to doctor them as fast as possible. I jump in cold shower bout 2 times a day ( just water) to relieve skin. I will so glad when this is over. I keep a headache too. sick of Tylenols too.. just a bad day.. i'll get thru it.  thanks



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi TazKat,

Are you really only taking 600 mg of Riba a day? That's a low dose, as normal males need 1,200 mg a day.

It's unusual just to get the Riba rash on the face. The trunk, chest and upper arms and legs is most common. I would get it checked out to make sure it's not something else.

For Riba rash, limit showers and only use lukewarm water. Baby shampoo in tiny amounts, no soap, no alcohol containing creams, avoid the sun, wear loose clothes and use a low strength hydrocortisone ointment, like 0.5% triamcinolone. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
TazKat


Senior Member

Status: Offline
Posts: 479
Date:
Permalink  
 

I am officially totally depressed today. can't do my pool because of sun & don't feel like driving to go get one more chemical. nobody to freaking help.. I am 20 miles from the walmart. sorry to whine. but I can not wait to get this crap over with & be well.. tazyawnhmm  the carmex stuff helped with rash around cheeks & mouth. that is ONE good thing. smile



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
TazKat


Senior Member

Status: Offline
Posts: 479
Date:
Permalink  
 

I am only 600 mg a day. 1 in morn & 2 at night..



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
TazKat


Senior Member

Status: Offline
Posts: 479
Date:
Permalink  
 

I actually got some carmine therpy for lips etc. put it around the area& bingo.. helps.. I even gave myself my own shot today. with this new star wars pen it was easy.. yay.. next Friday will #10    counting down... biggrin



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Barnacle


Senior Member

Status: Offline
Posts: 125
Date:
Permalink  
 

I have that on my wrist and arms. My Dr said if is doesn't go away soon he will reduce my riba dose. I'm a pretty big guy so I am taking 1400 mg/day.


__________________

57yo male gen 1a since '70s. Fib F3-4 VL >2M Tx started 5 Apr 14 Sov/Oly/Rib

wk 4 UND wk 8 UND, wk 12 EOT UND...keep em coming 24wks UND = SVR!
Isiscat2011


Guru

Status: Offline
Posts: 1724
Date:
Permalink  
 

TazKat:  Don't hesitate to call your doctor if it continues burning and/or isn't improving.  That is what they are there for!  We have to be careful with treating ourselves as we can exacerbate the problems without intending to.



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
TazKat


Senior Member

Status: Offline
Posts: 479
Date:
Permalink  
 

Oh My Enavigo.. that sounds so painful.. the price has to be paid for this to cure me.. i was the heck out of it in the shower with antibacterial dial soap.. then alcohol, got the calamin, got some cortizone, got some pray,. by damn one of these gonna work. don't worry, not doing them all at same time. thinking of trying an oatmeal paste..it is just burning like crap.. i didn;t have this last riba treatment. & the lips burn too. got chapstick for that. oh well.. thanks for all ur input. i really don't know what i would do without ur input... i have a wet paper towel on that area now. at work.. lol  i kep my door shut.. lol

smilesmile



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
longld


Senior Member

Status: Offline
Posts: 134
Date:
Permalink  
 

Angie,

  I use cold towels as compresses and then spray a hydrocortisone spray from Walgreens (Cooling itch Relief Spray).   Benadryl also helps a bit.

cheers, lee



__________________

62 Yrs Old, CHC Geno 3, Cirrhosis, Kidney Transplant (13 yrs), On Sovaldi/Riba Treatment (24 week) since Feb 01,2014

Viral Load 7M on 1/8/2014,  UND at EOT 7/18/2014
AngieV123


Senior Member

Status: Offline
Posts: 160
Date:
Permalink  
 

Yes..the riba rash. I have it on my forearms and lower legs and sometimes even get spots on my nose..very itchy like mosquito bites. Heat makes it worse. It's very annoying. I haven't found much that helps.

__________________

Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 
Scruffy


Guru

Status: Offline
Posts: 500
Date:
Permalink  
 

I got the riba rash way back when I started treatment for about three weeks. I found the sun and sweat made it worse. After that went away I got a slight rash from the incivek on my lower legs. Most important thing is NOT scratching.



__________________

Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Enavigo3891


Senior Member

Status: Offline
Posts: 154
Date:
Permalink  
 

Hey Taz,

I got the riba rash on my face as well. Prior to tx, even as a teenager I was lucky to not really have skin issues on my face but the riba has surely done a number on my skin. I haven't even considered the dermatologist as I know the cause, I figured I'd wait until after treatment and see if it fixes itself. I personally wouldn't use too much of the corisone lotions on your face as it may make you break out more. I at first tried to wash my face more thinking it would help, but it did the exact opposite. One day in the shower I decided to wash my face with my shampoo instead of soap and strangely enough, my face looked/felt so much better; since then I only wash my face with the shampoo in the shower, and of course no make up or anything. Not all shampoos would be good to use on your face of course, I use Garnier Fructis Pure Clean Shampoo (clear green bottle/white top).

I also got the rash on my ankles, the palms of my hands (my palms have also gotten real dry and callus like), and unfortunately, perhaps the most annoying, the cleavage area!! LOL ... that makes things rather uncomfortable as you can probably imagine. I was able to control (to a manageable level) the rash (everywhere but my face) by the occasional Benedryl if it was real bad and the use of a cortisone cream.

Good luck and like Tig said, don't scratch! (i have and its no good)



__________________

Born HepC + in 1983 ... diagnosed @ age 13 ... GT2 ... 12 wks of Sovaldi/Riba from 2/11/14 to 5/5/14  #ribazombie

1/30/14 - Starting VL 1,922,967 * 3/11/14 - UND @ 4 wks * 7/29/14 - SVR12 * 11/6/14 - SVR24 * May 2015 - SVR52 * MAY 2016 - STILL UND * FEB 2018 - STILL UND

 
Isiscat2011


Guru

Status: Offline
Posts: 1724
Date:
Permalink  
 

Hi Taz:  That is kinda weird that you got the rash just on your face.  My face, and my feet, were the only places I didn't get the rash (but that was on Incivek too).  Actually, my hands also didn't get the rash but my fingers got blisters instead.  Ahh...the memories.

I found that OTC topical cortisone creams worked as well as the prescription ones.  I also took many oatmeal baths.  You could probably create an oatmeal paste and apply it to your facial rash.  

It is possible that this particular rash isn't related to the meds but who knows?  It is good that it is just a small patch and hopefully that is the worst of it.

 



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
TazKat


Senior Member

Status: Offline
Posts: 479
Date:
Permalink  
 

thank tig!!!! think I will try the calamine. haven't done that one yet..  smile



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hi Taz,

What you're describing matches what we fondly call the Riba rash. Sometimes shows up in small or large patches. Often your face, arms and abdomen. I guess it can show up just about anywhere but that's where it got me. My abdomen mostly. It can be something that comes and goes the entire time you're taking it. The single worst thing you can do is scratch it! It will get much worse if you do. There are a few things you can do. I took an over the counter medicine called Xyrtec (Certrizine) or Benadryl. Xyrtec won't make you drowsy, Benadryl will, but it can also help you sleep at night. Check with your doctor first, but most will allow that. You can also use a topical cream or lotion, oatmeal based or even calamine lotion will help. Just don't scratch and don't expose them to sunlight either. 

Tig



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
TazKat


Senior Member

Status: Offline
Posts: 479
Date:
Permalink  
 

doing the sovaldi pegsys & riba. I am tring to drink lots of water. hard sometimes. but I am developing a small bumpy sorta red arsh on my face just a little. anyone having this too? its really annoying. well very.... no I already have place a dermatologist froze off my arms & legs 2 yrs ago that will not go away. I keep them covered in bandaids. they are kinda intensifying, just a little. I got to get through this..



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> day 6 got a question on rash & skin
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.