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Hep C Discussion Forum -> On Treatment -> Relapse
Post Info TOPIC: Relapse
sandypsych


Veteran Member

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Posts: 69
Date:
RE: Relapse
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Groupgetter:

So sorry to hear your news!  I can sort of relate...my husband was on treatment and undetected before, but had to stop treatment, and the virus returned.  Its such an emotional roller coaster.  But keep the faith!  I don't think any of us thought that there would be this many discoveries, and a potential cure on the horizon even a few years ago.  The treatments are evolving quickly.  You have given your liver a break and been an inspiration to many.  Even your attitude now and encouragement of others is so admirable.

I'll be praying for you!  Hang in there and keep us posted.   

Sandy



__________________

Hubby profile:  Genotype 1a.  Hep C since late 70's.  Cirrhosis.   Interon/Riba 2x.  Incivek/interf/riba:  Und at 8 weeks, but had to stop due to DRESS syndome.  Olysio/Sovaldi started 6/18/2014.  Cleared virus 11/05/2014
Fireman Rob


Senior Member

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Posts: 334
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Greg,

My thoughts have been with you since your first relapse post. I can't but help it think that this recent Tx knocked the virus down enough to keep in down for a while. You wouldn't think it would grow rapidly before the next and curing Tx is obtained.

I can't imagine the heart ache your feeling right now but you're going to get through this next time. Hang in there and please stay on this forum, we need you!

-Rob



__________________

Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

Treated with Sovaldi/Olysio: SVR 24 on February 16, 2015!
Barnacle


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Posts: 125
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Groupergetter wrote:

Thought I should move this conversation from the "On Treatment Thread". My apologies, it probably shouldn't have been there to begin with.  I was so bummed out I wasn't thinking clearly, and maybe still not.  Didn't sleep at all Monday night with all the different thoughts, concerns, and looming questions racing thru my mind. Was a zombie at work yesterday.

Thanks to all for the concern and well wishes.  I didn't speak to my doctor but did talk to the PA.  She confirmed what I already knew, relapse.   My vl is on the upward move. She asked my how I was doing?  I answered her truthfully, felt like I've been kicked in the gut, ass, teeth, and head.  It's a stressful situation knowing my health will continue to deteriorate. All the questions and uncertainties that accompany relapse have moved painfully to the forefront. 

No additional testing, and my next scheduled appointment was moved to early October as there is little else to be done at this point.  Briefly discussed the new tx's coming which I already knew about. Hoping I'll still have insurance when the new meds are available, if my insurance will approve them? 

Will still be hanging out on the forum, as there is much to be gained from each other's support, insight, knowledge, and compassion.  Glad to see Audrey is UND and others reaching EOT.  I am down but not out. Just have to keep in mind what my buddy Paul wrote: (paraphrased)  "More than this, we can rejoice in our sufferings-tribulations, because we know that suffering produces endurance, endurance builds character, character gives hope, and hope doesn't disappoint us because we know God's love will be poured into our hearts. (Roman's 5)

I told Taz I'd be waiting for her at the finish cheering. Still plan to be there.  Hope all have a better day.  

 

 

 So sorry to hear about that man. I am sure you won't have to wait long for something better as they seem to be looming just on the horizon.

 

I wonder if Gilead would not pick up the tab for your next treatment if you are planning on using their next offering? For all the money they charge you would think they would be invested in your cure...

 

best of luck. Still have 6 month wait to know if my Tx worked.

 



__________________

57yo male gen 1a since '70s. Fib F3-4 VL >2M Tx started 5 Apr 14 Sov/Oly/Rib

wk 4 UND wk 8 UND, wk 12 EOT UND...keep em coming 24wks UND = SVR!
TazKat


Senior Member

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Posts: 479
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groupergetter, my heart is sunk .keep the faith tho. please. I go for reg labs tomorrow, last shot next week, then within the month we will know.  the feeling of being kicked in the gut etc.   been there. & this treatment has done that to me physically, that is why I keep the faith it is in there doing something. it has been brutal. I am scared, as I don't want to do any more toxic. so I pray for undetection & stay that way. did they wait til the eot to do the viral test? that is what is happening to me. sure wish they would have done at least 6 weeks. you better not leave this forum. never give up.. heck gotta do what we gotta do. it is very hard & stressful, but we here for u.. crysmile  praying BIG time for SVR for you & all of us.

 

Taz



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Audreyanna


Veteran Member

Status: Offline
Posts: 78
Date:
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I know how down you must be but the better stuff is only 2 months away now. Something will work out with the insurance or Obama care or the drug companies themselves.

hang in there, your liver got a great break from the virus, it won't have a chance to get real high in two months. Everyone is going to get rid of this nasty dragon soon!!

believe me I know hoe you feel as I read the wrong bloodwork or something happened last night and it was.Like a kick in the gut. I cried for a couple hours before I triple checked it and then I finally saw the word "non" detectable. Wow.

so look forward, it will be ok.



__________________

Audrey

 

55 y/o, GT 1A, 1.4 million UI, cirrhosis, low platelets, enlarged spleen, high LFTs. Failed tx x2. 12 weeks Sovaldi/Olysio. Undetected end of treatment and 4 weeks after EOT!
Scruffy


Guru

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Posts: 500
Date:
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Sorry to hear this my friend. Try to put the worries behind you for now (easy to say hard to do) New drugs and new tx for you in the future. Keep that fighting spirit!!!

Stay Strong!



__________________

Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Groupergetter


Guru

Status: Offline
Posts: 796
Date:
Permalink  
 

Thought I should move this conversation from the "On Treatment Thread". My apologies, it probably shouldn't have been there to begin with.  I was so bummed out I wasn't thinking clearly, and maybe still not.  Didn't sleep at all Monday night with all the different thoughts, concerns, and looming questions racing thru my mind. Was a zombie at work yesterday.

Thanks to all for the concern and well wishes.  I didn't speak to my doctor but did talk to the PA.  She confirmed what I already knew, relapse.   My vl is on the upward move. She asked my how I was doing?  I answered her truthfully, felt like I've been kicked in the gut, ass, teeth, and head.  It's a stressful situation knowing my health will continue to deteriorate. All the questions and uncertainties that accompany relapse have moved painfully to the forefront. 

No additional testing, and my next scheduled appointment was moved to early October as there is little else to be done at this point.  Briefly discussed the new tx's coming which I already knew about. Hoping I'll still have insurance when the new meds are available, if my insurance will approve them? 

Will still be hanging out on the forum, as there is much to be gained from each other's support, insight, knowledge, and compassion.  Glad to see Audrey is UND and others reaching EOT.  I am down but not out. Just have to keep in mind what my buddy Paul wrote: (paraphrased)  "More than this, we can rejoice in our sufferings-tribulations, because we know that suffering produces endurance, endurance builds character, character gives hope, and hope doesn't disappoint us because we know God's love will be poured into our hearts. (Roman's 5)

I told Taz I'd be waiting for her at the finish cheering. Still plan to be there.  Hope all have a better day.  

 

 



__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
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