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Hep C Discussion Forum -> On Treatment -> My troubles are nothing
Post Info TOPIC: My troubles are nothing
hrsetrdr


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RE: My troubles are nothing
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Isiscat2011 wrote:

Hi Hope4:

Vision disturbances are a fairly common side effect of Interferon.  Most times it will not be too serious but it can be.  I found this out when it happened to me during tx.  My doc sent me to an opthamologist who was able to see me the same day so tx was not interrupted.   Hrsetrdr can tell you about his experience too.

 Yes, just click on Treatment halted in my signature.       If you are experiencing vision abnormalities please don't delay in getting examined by an ophthalmologist.



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Isiscat2011


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Hi Hope4:

Vision disturbances are a fairly common side effect of Interferon.  Most times it will not be too serious but it can be.  I found this out when it happened to me during tx.  My doc sent me to an opthamologist who was able to see me the same day so tx was not interrupted.   Hrsetrdr can tell you about his experience too.



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Hope4


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HI, Thom,

Hope your'e still with us in the Forum here  .And I know what you mean, as I don't have any bad experiences to share , and feel so many others are coping with  so very much.....     BUT..I have a question specifically for you.....I see you have had a vision problem on a previous tx.    Would that have been from  peg-int or riba?    Just kind of curious...I'm on triple tx  (peg, riba and sovldi) now and overall, no big complaints, but I do notice my eyes feel a bit  bleary" sometimes, kind of achy in the eye sockets (I know that just sounds weird)  and things are appearing a bit blurrier than usual at times"   Wondered if this is sort of normal or something that should be checked out....well, just thought I'd toss this ? out there.... Wishing you peace and a happy life.

 

 



__________________

Gen 1a        60 yrs     (was tx naive )   Started tx Pegasys, Ribavirin and Sovaldi on 7/31/14  12 wks.    VL 2,186,415.      Dr. said no cirrhosis, had no biopsy. EOT 10/22/14, undetected.  TX was tolerable, overall.

Still Undetected 4/27/15   SVR 24!!!
hrsetrdr


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Thom wrote:

As I read the stories posted by the majority here I can see how insignificant my own situation is in comparison to many here and I am ashamed to post any longer. Good luck to you all.

 

                                 Thom

 Thom,   I've felt the same at times my friend.   But, all our stories are relevant and help paint a part of the big picture comprised of the experiences that HCV patients have endured.

Stay on with us, we all make a difference.



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Isiscat2011


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OldenSlow wrote:

 Yup. Classic. Come on back, Thom. Who better to share misery with than the likes of us?

And, who else is obsessed enough to understand the meaning of this obscure language we speak with terms like RVR, SVR, DAAs, IL28B allele, Genotypes, F-4, etc, ?   Nobody but us knows what the hell we are talking about.  



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Milliganus


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Thom,

You and I are the same age....I too got infected in the 70's.  I skated by with this but am now experiencing more "problems".  We are all in this together and each of us has earned our seats on this forum.  Hang in there with us.  Each and every one of us has something to offer.



__________________

Marcy

Long-term HCV, GT1a, IL28B C/T, T/G;  VL 2 mil.  Merck C-Edge Clinical trial  EOT 10/01/14. +24= UND
Dzdayscomin


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OldenSlow wrote:
Scruffy wrote:

Thom

Thats a riba post if I've ever heard one. Can't let the meds put you in that state of mind. 

 Yup. Classic. Come on back, Thom. Who better to share misery with than the likes of us?

 Great way to put it.......wink



__________________

53yr M 1a acq 12/83 cirr pre tx MELD 17  tx nv diag 1/29/12  tx S/O 3/5/14  trans list.

EOT 5/28/14 UND 6/12/14 SVR 8/29/14 MELD 14 dx HCC 9/5/2014 tumor ablation 9/24/14

In the 10K lakes State It's not about us but those around us.
OldenSlow


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Scruffy wrote:

Thom

Thats a riba post if I've ever heard one. Can't let the meds put you in that state of mind. 

 Yup. Classic. Come on back, Thom. Who better to share misery with than the likes of us?



__________________

66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
Scruffy


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Thom

Thats a riba post if I've ever heard one. Can't let the meds put you in that state of mind. 



__________________

Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Gator Man


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Thom, please keep posting.



__________________

Geno 1b, compensated cirrhotic, 54 yo, prior null responder. Pre tx VL approx 595,000, tx with Sovaldi/Olysio (no Riba) started 1/8/14. VL 40 @ 2 weeks, UND @ 4 weeks. Still UND @ EOT + 1 year.

Gator Man SVR12, Dragon 0, Final Score.
Cinnamon Girl


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Oh Thom, please don`t go, you`re a valuable part of this community of Hep C friends!

I totally agree with what the others have said...we need to hear about the full range of experiences of Hep C treatment so that people can see the whole picture.  And just think...if we only heard from people who were having a really rough time it could actually put someone off going in for tx at all, so please remember that you make a very worthwhile contribution here with your posts and comments!

Another thing to consider is that it could actually be the drugs themselves that are making you feel this way, in fact that seems very likely, so please stick around so that we can carry on giving you support and you can continue sharing your journey with us. 

I do hope you read all these comments and see that you`re wanted and needed here...please reconsider and stay!  smile 

Take care of yourself and let us know how you`re doing.  Jill x



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
MzmiffY


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Thom, I'm really sorry you are feeling this way. I hope you will reconsider and allow us to walk along side you. 

You are so very important, please stay..

 

Be kind to yourself Thom,

xx



__________________

42yrs/ f3-f4, gen 1a, 48 wks of Interferon,Ribaviran and Boceprevir. 

VL pre tx-384303, VL @ 4 wks 11095, 8wks- UND.

UND@ EOT, SVR 24!

 
rebeca


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Hi Tom,

I live in Spain, and here is very difficult to get a treatment, most of us live anxious, waiting for a change. When I read your stories, I feel better, because I can see that the situation is changing, I need to think that there are people who are healing. For me, your testimonies are very important.

A hug



__________________

52 yo. Genotype 1a. 1.500.000 VL. Fibroscan : 8 . Probably I infected in 80s. I´ve never been treated. I've started Harvoni, 9/02/2015. 12 weeks. 
Huey


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Thom , Hay man, Everyone comes here looking for someone who is in the same boat as themselves, Different kinds of boats here though, some in USA , some in UK, others with geno 1 , liver trans. ect.  We need all types here, The more diversity we have the better we can help all those who come looking , looking for a boat just like yours. 

We are all in this together, Keep your stick on the ice, 'Red Green Show.'



__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Dzdayscomin


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I agree with the masses here Thom..... we all can contribute regardless, if you notice many are cured yet still stay here and support others, and still share some of their problems etc.

I for one, would like for you to stick around, so we can see another person beat a disease .....which just a very short time ago was thought to be slim odds to beat....now we're whippin it right and left and each victory means something to all of us, especially those that had to be what I would say is lab rats doing multiple attempts with some very nasty drugs.

So stay with us so further down the road you will be comfortable asking any question that arises and trust me they do arise .

Duane



__________________

53yr M 1a acq 12/83 cirr pre tx MELD 17  tx nv diag 1/29/12  tx S/O 3/5/14  trans list.

EOT 5/28/14 UND 6/12/14 SVR 8/29/14 MELD 14 dx HCC 9/5/2014 tumor ablation 9/24/14

In the 10K lakes State It's not about us but those around us.
Isiscat2011


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Yeah, Thom.  So, keep your stick on the ice, or your ice on the stick, or however that goes.  biggrin 



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
wmlj1960


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Hi Thom,

 I beg to differ with you. Based on what it says in your signature,

62 years old. Probably became HCV positive in the early 70's. genotype 1. Started treatment August 15 2014 w/ pegasys, ribavarin, sovaldi

Positive since early 70's tells me that you will not be one of the very few people who manage to live a full life regardless of being positive with this virus.

62 years old tells me you are harder to treat. Our very own fellow forum member who happens to be a brilliant HCV experienced and educated physician, who's word I trust, taught us that one.

Genotype 1 is known as the hardest geno to treat.

The fact that you are taking pegasys and ribavirin, with their included side effects, tells me that your having a much harder go of trying to cope with Sx's than myself and also the majority of our members currently on Rx's that are much more Sx friendly.

Insignificant?

 Back to just the information in your signature:

62 years old. Probably became HCV positive in the early 70's. genotype 1

ribavarin, sovaldi

 I'm 53 years old, just 9 less than yourself. I probably became HCV positive in the early 80's - not far behind you.
 I'm genotype 1 (hard to treat)
 I'm interferon ineligible, but I also take ribavirin and sovaldi.

This means that, since you and I are so similar, I am keeping a close eye on your progress and following what you share and what problems you are having in your treatment so that I can learn, therefore you can help me accomplish what we are all here to accomplish, together. That makes what you post very significant to me.

 The bottom line is: We are all dealing with this thing in different ways, but collectively everyone's goal is the same... to live.
 The solution has improved over the years but it still sometimes produces side effects that makes it seem 'not worth it' sometimes. But the pain and feeling of despair could be, and is, much worse than even the worst case of all our members. And that my friend is the pain and despair of the many unfortunate souls out there who are fighting this monster all alone - without the support of others that are in the same boat, and without the answers and solutions that are only a click away for those of us who are members here.

 So I urge you to keep posting my friend, for the good of us all. As long as you are participating - you are still in the game. If you quit, then chances for any of us to gain from your experience is lost.

 

edit: grammar

 

 



-- Edited by wmlj1960 on Sunday 7th of September 2014 05:17:03 AM

__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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RonH


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Thom, we all need each other to get through this ****! We all have some hope to give to each other, remember no matter what we go through I am so glad that this forum and people like you are here to help me. It makes me think that things will get better in time, we are all combating a disease that we dont want to have but we do. Thank you for being here when I got here!

__________________

Genotype 2, VL 10,000,000

Sovaldi 400milligram 1x daily Ribavirin 400 milligram 2x daily. Started treatment 8-19-14, UND 9-30-14 UND 11-12-14!
Isiscat2011


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Hi Thom:

The range of problems and emotions people are dealing with here can be overwhelming.  One post is filled with extreme joy and the next will break your heart.  Add to that you are experiencing your own challenges and are on some powerful treatment drugs.  Just take a few deep breaths and don't let your feelings keep you down.  

Everyone's troubles, as well as their triumphs, are important here.  Through all the ups and downs this forum is, first and foremost, about teamwork and every team member counts including YOU.  



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
mallani


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Hi Thom,

It's not a contest to see who suffers most! We need members who sail through treatment to balance things out. Stick around buddy- we need you. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Tig


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Good Heavens Thom, nobody is here to compare problems. We're here to support each other and discuss whatever is on our minds. It's also a great place to share information, and be there whenever the need arises. We never know from day to day how things are going to be, but whether they're good, bad or just difficult, we're here to talk about it. You may be the one that has the right thing to say, or an answer to a problem that nobody else has had. Just because you're not as "sick" or have the same advanced liver disease as someone else, doesn't mean you aren't a valued friend and member here. I hope you reconsider and stick around, you do have a lot to offer. You can believe that! Think about it okay?

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Thom


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As I read the stories posted by the majority here I can see how insignificant my own situation is in comparison to many here and I am ashamed to post any longer. Good luck to you all.

 

                                 Thom



__________________

62 years old. Probably became HCV positive in the early 70's. genotype 1. Started treatment August 15 2014 w/ pegasys, ribavarin, sovaldi.

Finished treatment on November 7th. Had no detectable viral load at week 6. Waiting until the fat lady sings.
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