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Hep C Discussion Forum -> New Members Area -> New to tx 7 weeks in
Post Info TOPIC: New to tx 7 weeks in
Isiscat2011


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RE: New to tx 7 weeks in
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Hi Matt:

I'm sorry you are having such a difficult time and hope the meds your doc prescribed will bring you some relief from your mental anguish.  It can be very confusing and upsetting to feel so poorly and not understand what is happening.  Just remember that these feelings will not last forever; they are temporary.  

For the nausea I tried eating soda crackers and drinking ginger ale.  What finally worked was a prescription drug called Ondansetron.  It is also called Zofran. It is important to eat and also to drink plenty of water.  Staying well hydrated may also help with both the headaches and the "burning."  

Hang in there.  :)

 



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Lawmatt


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Hi isiscat

i will have all my results after my next visit to the clinic Friday week 

feeling pretty yuk so unpredictable and up and down 

I really struggled with weird depression feeling and it was getting worse I rang the doctor last night concerned and they have prescribed medication of increased the dosage.

quite a bazare feeling thinking worse scenarios really sad and upset .

im also getting constant sick in the tommy and really difficult to eat at times .

the burning back passage has been ramping up over the last few days (not nice) 

headaches .just can't manage to work hardly at all ( builder) 

im trying to do everything right and take a lot of good advise from the wonderfull people on here just think it nice to talk to people who actually understand .

and looking forward to dropping the talaprevir even if it makes me feel a little better 

many thanks.     Matt



__________________

52 years old male genotype 1 

Start treatment 8/8/14 taking ribaviran .talepraver twice daily and interferon weekly 

week 4 virus detected 

Week 12 no virus detected 

Week 24 no virus detected  

Week 48 no virus thank god

4 weeks post no virus  

 
Isiscat2011


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Hi Matt:

Many people find that it does get better when the Incivek is finished; whatever side effects the Incivek is causing should dissipate shortly after you stop taking it.  The Incivek can also exacerbate the side effects of the Interferon and Riba.  The Interferon and Riba, however, often continue to cause side effects for the duration of tx.  

If you can get a copy of your blood/lab results it would really help.  

How are you feeling?  What types of side effects are you experiencing now?



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Lawmatt


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does anyone know does it get better after the 12 weeks of telepraver the doc has assured me the symptoms improve when I go on (soc) . 

I am into the 8th week 

Thanks 



-- Edited by Lawmatt on Tuesday 23rd of September 2014 10:44:40 PM



-- Edited by Lawmatt on Tuesday 23rd of September 2014 10:45:15 PM

__________________

52 years old male genotype 1 

Start treatment 8/8/14 taking ribaviran .talepraver twice daily and interferon weekly 

week 4 virus detected 

Week 12 no virus detected 

Week 24 no virus detected  

Week 48 no virus thank god

4 weeks post no virus  

 
Isiscat2011


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Lawmatt wrote:

I am struggling with the 30 gram of fat in food would anyone have a dietary list that could give me a guide ATM I eat avocado eggs on toast and lots of milk and water before meds  

 Hi Matt:

Here are a couple of good resources with lists of foods containing 20 grams of fat:

http://hcvadvocate.org/hepatitis/factsheets_pdf/Incivek_20%20Grams.pdf

http://www.hepatitis.va.gov/pdf/telaprevir-workbook.pdf



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Lawmatt


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Thanks Tig for your advise I have an appointment with my specialist next week and will ask for the results from the start and will post them up 

it appears I havent lost as much weight as thought am still at 70 kg down from 73 when started almost 2 months ago (faulty scales ) at home 

I have had it all fibrous can and many blood tests which I will upload when I get them 

I am struggling with the 30 gram of fat in food would anyone have a dietary list that could give me a guide ATM I eat avocado eggs on toast and lots of milk and water before meds 

sorry to be a bit vague and uninformed but my doctors are very good and ring to check my progress often so I do have the medical attention needed 

I think it is the interferon interfering 

Many thanks 



__________________

52 years old male genotype 1 

Start treatment 8/8/14 taking ribaviran .talepraver twice daily and interferon weekly 

week 4 virus detected 

Week 12 no virus detected 

Week 24 no virus detected  

Week 48 no virus thank god

4 weeks post no virus  

 
Tig


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Hi Matt,

Welcome to the forum! I'm glad you found us as well. You're on a very uncomfortable treatment protocol and as the others have said, you've got to be in constant contact with your healthcare team. They can offer advice for those ugly side effects and as you're already aware, there are several not so pleasant ones. It's vitally important that you maintain proper hydration throughout treatment. By adequate I mean at least 2-3 liters of good quality water daily. You must also pay close attention to the 20 gram fat requirement with each dose of Telaprevir. That's an absolute must and will help to prevent the anal/rectal discomfort so common with this medication. Keep everything "down there" very clean. Keep baby wipes available at all times. This will make a great difference in your comfort.

As was mentioned, Telaprevir isn't used for genotype 2 treatment. Do you have a copy of your lab results to review those tests? Please feel free to post your results. It helps us provide good, educated opinions. Any additional tests, like your ALT/AST, CBC, etc are also helpful.

I'd like to point out our search function at the top of each page and if you can't locate what you need, please feel free to ask. Keep in touch, we're here to talk. Good luck...

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Isiscat2011


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Lawmatt wrote:

the actual interferon injection doesn't seem to rattle me as much as the ribaviren and telepriver does sick nauseous confused and so damn tired .i run a small renovations buisness and didn't think I would be cosidering closing for a year . 

Sick, nauseous, confused, and lethargic describes some of what I felt like daily on this combo but you should not be consistently losing weight particularly with the fat requirement.   I wonder how your blood work is looking.  You may be experiencing anemia and/or another blood disorder.  

Your symptoms may be manageable but they need to be managed with the oversight of your doctor.  We can help you try to manage some of the lesser side effects like nausea, lethargy, minor skin rashes, and can also try to help you understand some of what you are experiencing, but I am not personally comfortable doing this without knowing you are being closely monitored by a physician.  This tx can be brutal for some and for others it can be downright dangerous.   

I am assuming you are not in the US and you are on a 1 year tx plan.  Is this correct?  You indicated that your liver is doing well but have you ever had a thorough liver fibrosis assessment via biopsy or fibroscan?   This tx often hits people with impaired livers or who have other conditions (diagnosed or undiagnosed) the hardest.  

Keep talking here, we may be able to help, but just need to get a better feel for what exactly is going on.  We can definitely offer moral support but proper medical care is even more important.  



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
mallani


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Hi Matt,

I think you've got your Genotype wrong. Telaprevir (Incivek) isn't used for Genotype 2.

Keep an eye on the Hb if you're that tired, and let us know the results. Good luck with treatment.

 



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Lawmatt


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the actual interferon injection doesn't seem to rattle me as much as the ribaviren and telepriver does sick nauseous confused and so damn tired .i run a small renovations buisness and didn't think I would be cosidering closing for a year .

hope my energy levels increase just a little 

thanks all 



__________________

52 years old male genotype 1 

Start treatment 8/8/14 taking ribaviran .talepraver twice daily and interferon weekly 

week 4 virus detected 

Week 12 no virus detected 

Week 24 no virus detected  

Week 48 no virus thank god

4 weeks post no virus  

 
Huey


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Yea great that is it, still need the geno-type but everything else is ok, The side effects I hear most talked about at first is the "Shot..Ware do i take it?: ect. ",  and the peg-inf is the most complained about of all the meds you are on.

  I am not one of the guys that has had to take any peg-inf so I can't advise too well on this, others will be on that have though and trust me, you will have plenty of questions as the treatment progresses. 

We are all in this together Keep your stick on the ice. 'Red Green Show'



__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Lawmatt


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Sorry bout the lack of info hope what I put in my signature is right

__________________

52 years old male genotype 1 

Start treatment 8/8/14 taking ribaviran .talepraver twice daily and interferon weekly 

week 4 virus detected 

Week 12 no virus detected 

Week 24 no virus detected  

Week 48 no virus thank god

4 weeks post no virus  

 
wmlj1960


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Date:
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Hi Matt.

 Yes there are several people here going through treatment but side effects are not so wicked in some cases, but are more so in others. Side effects depend on a lot of different criteria, which pretty much means that it is different for each individual case.  But there are likely members here that are taking the same medication regimen as you and suffering the same side effects, so you are sure to find at least some solutions here.

 I suggest using the 'Search' function key to find info that pertains to the subject you have questions about.

 I also suggest creating a signature in the 'Profile' section to let us all know which genotype you are as well as medications you are on as well as any other info pertinent to your particular situation, date you started treatment, lab results, viral load before start of treatment vs now etc.

 Some of the abbreviations used in the post and signatures are unique to this forum, so a list to familiarize yourself with them is HERE.

 I welcome you and there will be more, so settle in and join us in our common mission - to help each other overcome the obstacles presented by Hepatitis C. smile

 EDIT: Gee Duane and Huey. You guys sure type fast... lol biggrin



-- Edited by wmlj1960 on Sunday 21st of September 2014 12:09:38 AM

__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Huey


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Hi , I can tell you this is a wonderful mix if caring folks who are great to help others through this otherwise difficult time,

We are all in this together keep your stick on the ice.  'Red Green Show'



__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Dzdayscomin


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Hi LM ,

Can you share some more detail as to your tx and condition? That will allow many of us regulars,  and the really smart ones that swim these waters to help you understand what you can expect, as well as if you have questions they/we can try and answer them to give you some peace of mind etc....

Welcome to the forum I hope it helps you as much as it has me!

Duane



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53yr M 1a acq 12/83 cirr pre tx MELD 17  tx nv diag 1/29/12  tx S/O 3/5/14  trans list.

EOT 5/28/14 UND 6/12/14 SVR 8/29/14 MELD 14 dx HCC 9/5/2014 tumor ablation 9/24/14

In the 10K lakes State It's not about us but those around us.
Lawmatt


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Hi all 

this is really new to me from a active sporty person to dead lazy can't believe I could every sit still let alone want to sleep all the time.

the first couple of week so so brutal ajusting to the meds but as I figured out force feeding is the key I guess the dragon diet Fight the meds with food and lots of fluids.still trying to figure out how to stop the morning sickness though? 

I am loosing weight still not sure how much I should be loosing 

it is nice to meet some folk going through this wicked treatment and if I can help with ideas that have helped me I would love to 

Take care all



__________________

52 years old male genotype 1 

Start treatment 8/8/14 taking ribaviran .talepraver twice daily and interferon weekly 

week 4 virus detected 

Week 12 no virus detected 

Week 24 no virus detected  

Week 48 no virus thank god

4 weeks post no virus  

 
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