Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> New Members Area -> new member
Post Info TOPIC: new member
LC


Senior Member

Status: Offline
Posts: 473
Date:
RE: new member
Permalink  
 

http://hepcfriends.activeboard.com/t58771686/charts-linked-in-article-comparing-the-current-hcv-meds/

I don't know where you are from and what's available there, but I would like you to see this and the pie charts linked in this.  I am on the AbbVie combo, which is the most clinically effective for the treatment-naïve 1a's.  My side effects have been very minimal, and I am a whiner so I would be complaining if they weren't.  So don't sweat it if you don't get Harvoni.



__________________

Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
Isiscat2011


Guru

Status: Offline
Posts: 1724
Date:
Permalink  
 

liverking wrote:

Thanks for the responses, like many I will see if I can navigate the Harvoni red-tape dog and pony show, and give it a try! I just recently, in the last couple of months, been feeling terrible and I need to at least say, yes, I tried.

______________________________________________________________________________________________________________

 Hi liverking:

The first thing you need to do is get your liver assessed.  Fibroscan can test the level of fibrosis.  Biopsy can test the level of fibrosis, inflammation, and a number of other things.  Find a good doctor who has HCV tx experience and begin the process.  Going directly to tx is probably not possible and not advisable even if you could.  You need to understand the state of your health after living with HCV for >25 years first.  We are here to help when you have questions and concerns.

 



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
liverking


Newbie

Status: Offline
Posts: 2
Date:
Permalink  
 

Thanks for the responses, like many I will see if I can navigate the Harvoni red-tape dog and pony show, and give it a try! I just recently, in the last couple of months, been feeling terrible and I need to at least say, yes, I tried.

__________________
???????
Milliganus


Senior Member

Status: Offline
Posts: 168
Date:
Permalink  
 

Welcome Matthew,

Having HCV long term can have detrimental effects, especially as we age.  I had much more fatigue, joint pain, slow to heal the last few years.  Just finished a clinical trial with 2 of the newer meds.  Virtually no side effects.  This is a great time to seek treatment with these new medications.

 

Good luck And keep us posted.



__________________

Marcy

Long-term HCV, GT1a, IL28B C/T, T/G;  VL 2 mil.  Merck C-Edge Clinical trial  EOT 10/01/14. +24= UND
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hi Matthew,

Welcome to the forum, I'm glad you're here! There are some new and very effective all oral, non interferon protocols available now. There is really no reason for you as a treatment naive GT 1A patient to even consider an IFN backbone now. They are available, but you're a perfect candidate for something highly successful with few side effects. There is a ton of information here on the forum, (search function and home page references) will really enlighten you to what's available. What you can't locate, feel free to ask on the appropriate thread (or anywhere) and we'll do our best to get your question answered!

There are a lot of knowledgeable and caring people here and we all look forward to helping you get your questions answered and prepare you for your first visit to your specialist. It's a really great time to treat. It's not at all like it used to be, so put the fear and horror stories to rest! I look forward to following your progress, good luck!

Tig



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
TazKat


Senior Member

Status: Offline
Posts: 479
Date:
Permalink  
 

the infectious doc should have the info u need. the new meds that are out that are all oral I am hearing are supposed to be the bomb. I did the sovaldi riba & interferon. it looks like it can be or different treatments for diff. ppl. heck I did the riba & interferon twice, the then incivek. then along came solvadi  earlier this yr. kicked butt. yay. I wish you happy trails & health. I love seeing all the new sciences of the ppl in the labs doing great things.. keep on keepin on with whichever one u get.. smile

these ppl here are very very smart & helped me to learn many things..

Taz



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

Welcome liverking

There is a list of the abbreviations posted in THIS THREAD.

Stick around and you'll find plenty of help here.



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Huey


Guru

Status: Offline
Posts: 678
Date:
Permalink  
 

Hi welcome.. you can put your Viral Load count, when and if you get them, also your genotype is vary helpful. You can just put this in your Sig ware your ??? now is.

 

The Newest treatment for 1a's is the most promising yet!  Harvani is suggested,  You do NOt won't to keep taking any Milk Thistle, Aloe Vera Juice, St Johns Wart.  These things flush out free radicals to an extreme and  that it includes some that help keep the replication process asleep , this makes your viral load go up.  Taking these things will weaken the drugs wile on treatment as-well



-- Edited by Huey on Wednesday 22nd of October 2014 02:33:03 AM

__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
liverking


Newbie

Status: Offline
Posts: 2
Date:
Permalink  
 

New member, will have to learn all the terms, abbrev. and other hepc related stuff. Was diagnosed over 25 years ago and have seemed to manage it well enough, take milk thistle religiously, don't smoke or drink anymore and didn't really exhibit any extreme side-affects. Hard to explain, but I "feel" my liver. Whenever I see my kind and well-meaning country-esque doctor, he assures me it's not swollen. Never had a biopsy, because quite frankly I have little to no respect for modern american medicine. I do know I have type1a, which I believe is the hardest to treat, and all the percentages seem to plummet when discussing the recovery rates. Anyone I have ever talked to that has endured any of the "new" medicines has told me they had brutal side-effects and that more than half of those people relapsed. Sooooooooooo, what to do? Problem is I fell something is going on there. I heal, skin-wise, a lot slower that I used to. Wake up at night all the time, and have heavy night sweats sometimes. I did get one of those newer type sonograms (with color!) which didn't show anything of mention, except one of my kidneys has damage (nephros-something) from rampant kidney-stones in my thirties.  My nice country doctor sent me to infectious disease spec. He didn't ask me very many questions about my history, but was quick to suggest I take a combo with Pegasys and another 2. I asked him what was his commission. He over assuredly told me that never happens! Puuleeze. Anyway thanks for listening (or reading)! 



-- Edited by liverking on Wednesday 22nd of October 2014 02:24:27 AM



-- Edited by liverking on Wednesday 22nd of October 2014 02:25:15 AM

__________________
???????
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> New Members Area -> new member
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.